50 results on '"Ardalan, Kaveh"'
Search Results
2. Correction: Engaging patients and parents to improve mental health intervention for youth with rheumatological disease
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Fawole, Oluwatunmise A., Reed, Michelle V., Harris, Julia G., Hersh, Aimee, Rodriguez, Martha, Onel, Karen, Lawson, Erica, Rubinstein, Tamar, Ardalan, Kaveh, Morgan, Esi, Paul, Anne, Barlin, Judy, Daly, R. Paola, Dave, Mitali, Malloy, Shannon, Hume, Shari, Schrandt, Suzanne, Marrow, Laura, Chapson, Angela, Napoli, Donna, Napoli, Michael, Moyer, Miranda, Delgaizo, Vincent, Danguecan, Ashley, von Scheven, Emily, and Knight, Andrea
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- 2024
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3. Baseline characteristics of children with juvenile dermatomyositis enrolled in the first year of the new Childhood Arthritis and Rheumatology Research Alliance registry.
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Neely, Jessica, Ardalan, Kaveh, Huber, Adam, and Kim, Susan
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Cohort studies ,Juvenile Dermatomyositis ,Patient reported outcomes ,Pediatric rheumatology ,Registry ,Arthritis ,Juvenile ,Child ,Child ,Preschool ,Dermatomyositis ,Female ,Humans ,Male ,Patient Reported Outcome Measures ,Registries ,Rheumatology - Abstract
BACKGROUND: To report baseline characteristics, patient reported outcomes and treatment of children with Juvenile Dermatomyositis (JDM) in the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry. METHODS: Children newly diagnosed with JDM were enrolled in the CARRA Registry from 41 pediatric rheumatology centers. Baseline patient demographics, disease characteristics, assessments, patient reported outcome and treatments were recorded. RESULTS: In the first year, 119 JDM participants were enrolled. Most were female (63.4%), and white (72.3%) with a median diagnosis age 8.0 years (IQR 4.0-11.5), and median age of disease onset 7.0 years (IQR 3.5-7.5). They had characteristic rashes (92.4%), elevated muscle enzymes (83.2%), physician global score 4.0 (IQR 2.5-5.0) and manual muscle testing score 63.5 (IQR 51.0-75.0). Calcinosis (3.4%) and interstitial lung disease (
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- 2022
4. Real World Use of an Internet Intervention for Pediatric Encopresis
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Ritterband, Lee M, Ardalan, Kaveh, Thorndike, Frances P, Magee, Joshua C, Saylor, Drew K, Cox, Daniel J, Sutphen, James L, and Borowitz, Stephen M
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Computer applications to medicine. Medical informatics ,R858-859.7 ,Public aspects of medicine ,RA1-1270 - Abstract
Background The Internet is a significant source of medical information and is now being shown to be an important conduit for delivering various health-related interventions. Objective This paper aimed to examine the utility and impact of an Internet intervention for childhood encopresis as part of standard medical care in a “real world” setting. Methods Patients diagnosed with encopresis were given a Web-based information prescription to use an Internet intervention for pediatric encopresis. A total of 22 families utilized the intervention between July 2004 and June 2006. A chart review and phone interview were undertaken to collect user characteristics; defecation-related information, including frequency of soiling, bowel movements (BMs) in the toilet, and amount of pain associated with defecation; and information on computer/Internet usage. Three questionnaires were used to examine the utility of, impact of, and adherence to the Internet intervention. Program utilization was obtained from a data tracking system that monitored usage in real time. Results Overall, parents rated the Internet intervention as enjoyable, understandable, and easy to use. They indicated that the Internet intervention positively affected their children, decreasing overall accidents and increasing child comfort on the toilet at home. Of the 20 children who initially reported fecal accidents, 19 (95%) experienced at least a 50% improvement, with a reduction of accident frequency from one fecal accident per day to one accident per week. Although it is not clear whether this improvement is directly related to the use of the Internet intervention, patient feedback suggests that the program was an important element, further establishing Internet interventions as a viable and desirable addition to standard medical care for pediatric encopresis. Conclusions To our knowledge, this is the first time a pediatric Internet intervention has been examined as part of a “real world” setting. This is an important step toward establishing Internet interventions as an adjunctive component to treatment of pediatric patients in a clinical setting, particularly given the positive user feedback, possible cost savings, and significant potential for large-scale dissemination.
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- 2008
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5. Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives
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Stubbs, Leigh A., Ferry, Andrew M., Guffey, Danielle, Loccke, Christina, Wade, Erin Moriarty, Pour, Pamela, Ardalan, Kaveh, Chira, Peter, Ganske, Ingrid M., Glaser, Daniel, Higgins, Gloria, Luca, Nadia, Moore, Katharine F., Sivaraman, Vidya, Stewart, Katie, Vasquez-Canizares, Natalia, Hunt, Raegan D., Maricevich, Renata S., Torok, Kathryn S., and Li, Suzanne C.
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- 2023
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6. Identifying a stable and generalizable factor structure of major depressive disorder across three large longitudinal cohorts
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Schilsky, Richard L., Allen, Jennifer, Anderson, MaryAnn, Anstrom, Kevin, Araujo, Lucus, Arges, Kristine, Ardalan, Kaveh, Baldwin, Bridget, Balu, Suresh, Bashir, Mustafa R., Bhapkar, Manju, Bigelow, Robert, Black, Tanya, Blanco, Rosalia, Bloomfield, Gerald, Borkar, Durga, Bouk, Leah, Boulware, Ebony, Brugnoni, Nikki, Campbell, Erin, Campbell, Paul, Carin, Larry, Cassella, Tammy Jo, Cates, Tina, Montgomery, Ranee Chatterjee, Christian, Victoria, Choong, John, Cohen-Wolkowiez, Michael, Cook, Elizabeth, Cousins, Scott, Crawford, Ashley, Datta, Nisha, Daubert, Melissa, Davis, James, Dirkes, Jillian, Doan, Isabelle, Dockery, Marie, Douglas, Pamela S., Duckworth, Shelly, Dunham, Ashley, Dunn, Gary, Ebersohl, Ryan, Eckstrand, Julie, Fang, Vivienne, Flora, April, Ford, Emily, Foster, Lucia, Fraulo, Elizabeth, French, John, Ginsburg, Geoffrey S., Green, Cindy, Greene, Latoya, Guptill, Jeffrey, Hamel, Donna, Hamill, Jennifer, Harrington, Chris, Harrison, Rob, Hedges, Lauren, Heidenfelder, Brooke, Hernandez, Adrian F., Heydary, Cindy, Hicks, Tim, Hight, Lina, Hopkins, Deborah, Huang, Erich S., Huh, Grace, Hurst, Jillian, Inman, Kelly, Janas, Gemini, Jaffee, Glenn, Johnson, Janace, Keaton, Tiffanie, Khouri, Michel, King, Daniel, Korzekwinski, Jennifer, Koweek, Lynne H., Kuo, Anthony, Kwee, Lydia, Landis, Dawn, Lipsky, Rachele, Lopez, Desiree, Lowry, Carolyn, Marcom, Kelly, Marsolo, Keith, McAdams, Paige, McCall, Shannon, McGarrah, Robert, McGugan, John, Mee, Dani, Mervin-Blake, Sabrena, Mettu, Prithu, Meyer, Mathias, Meyers, Justin, Miller, Calire N., Moen, Rebecca, Muhlbaier, Lawrence H., Murphy, Michael, Neely, Ben, Newby, L. Kristin, Nicoldson, Jayne, Nguyen, Hoang, Nguyen, Maggie, O'Brien, Lori, Onal, Sumru, O'Quinn, Jeremey, Page, David, Pagidipati, Neha J., Parikh, Kishan, Palmer, Sarah R., Patrick-Lake, Bray, Pattison, Brenda, Pencina, Michael, Peterson, Eric D., Piccini, Jon, Poole, Terry, Povsic, Tom, Provencher, Alicia, Rabineau, Dawn, Rich, Annette, Rimmer, Susan, Schwartz, Fides, Serafin, Angela, Shah, Nishant, Shah, Svati, Shields, Kelly, Shipes, Steven, Shrader, Peter, Stiber, Jon, Sutton, Lynn, Swamy, Geeta, Thomas, Betsy, Torres, Sandra, Tucci, Debara, Twisdale, Anthony, Walker, Brooke, Whitney, Susan A., Williamson, Robin, Wilverding, Lauren, Wong, Charlene A., Wruck, Lisa, Young, Ellen, Perlmutter, Jane, Krug, Sarah, Bowman-Zatzkin, S. Whitney, Assimes, Themistocles, Bajaj, Vikram, Cheong, Maxwell, Das, Millie, Desai, Manisha, Fan, Alice C., Fleischmann, Dominik, Gambhir, Sanjiv S., Gold, Garry, Haddad, Francois, Hong, David, Langlotz, Curtis, Liao, Yaping J., Lu, Rong, Mahaffey, Kenneth W., Maron, David, McCue, Rebecca, Munshi, Rajan, Rodriguez, Fatima, Shashidhar, Sumana, Sledge, George, Spielman, Susie, Spitler, Ryan, Swope, Sue, Williams, Donna, Pepine, Carl J, Lantos, John D, Pignone, Michael, Heagerty, Patrick, Beskow, Laura, Bernard, Gordon, Abad, Kelley, Angi, Giulia, Califf, Robert M., Deang, Lawrence, Huynh, Joy, Liu, Manway, Mao, Cherry, Magdaleno, Michael, Marks, William J., Jr., Mega, Jessica, Miller, David, Ong, Nicole, Patel, Darshita, Ridaura, Vanessa, Shore, Scarlet, Short, Sarah, Tran, Michelle, Vu, Veronica, Wong, Celeste, Green, Robert C., Hernandez, John, Benge, Jolene, Negrete, Gislia, Sierra, Gelsey, Schaack, Terry, Tseng, Vincent W.S., Tharp, Jordan A., Reiter, Jacob E., Ferrer, Weston, Hong, David S., Doraiswamy, P. Murali, and Nickels, Stefanie
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- 2024
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7. The impact of the COVID-19 pandemic on pediatric rheumatology practice: an international, cross-sectional survey study
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Batu, Ezgi D., Demirkan, Fatma Gül, Sag, Erdal, Lamot, Lovro, Faleye, Ayodele, Marrani, Edoardo, Ziv, Amit, Ardalan, Kaveh, Gmuca, Sabrina, Swart, Joost F., and Uziel, Yosef
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- 2023
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8. The importance of development standards for anchoring vignettes : an illustrative example from pediatric localized scleroderma quality of life
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Zigler, Christina K., Jacobe, Heidi, Ardalan, Kaveh, Coles, Theresa M., Lane, Suzane, Schollaert, Kaila L., and Torok, Kathryn S.
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- 2020
9. Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group
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Lanis, Aviya, primary, Alexanderson, Helene, additional, Ardalan, Kaveh, additional, Edison, Suzanne, additional, Graham, Christopher D., additional, de Groot, Ingrid, additional, Gupta, Latika, additional, Kim, Susan, additional, Knight, Andrea M., additional, Kobert, Linda, additional, Livermore, Polly, additional, Lood, Christian, additional, Pilkington, Clarissa, additional, Regardt, Malin, additional, Rubinstein, Tamar B., additional, Shenoi, Susan, additional, Turnier, Luke, additional, Voet, Nicole B.M., additional, Wahezi, Dawn M., additional, and Saketkoo, Lesley Ann, additional
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- 2024
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10. A Case Report of SAVI Mimicking Early-Onset ANCA Vasculitis
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Ochfeld, Elisa, Curran, Megan L., Chiarella, Sergio E., Ardalan, Kaveh, and Khojah, Amer
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- 2021
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11. Adverse Childhood Experiences Are Associated with Childhood-Onset Arthritis in a National Sample of US Youth: An Analysis of the 2016 National Survey of Children's Health
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Rubinstein, Tamar B., Bullock, Danielle R., Ardalan, Kaveh, Mowrey, Wenzhu B., Brown, Nicole M., Bauman, Laurie J., and Stein, Ruth E.K.
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- 2020
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12. Myositis‐Associated Autoantibodies in Patients With Juvenile Myositis Are Associated With Refractory Disease and Mortality.
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Sherman, Matthew A., Noroozi Farhadi, Payam, Pak, Katherine, Trieu, Edward P., Sarkar, Kakali, Targoff, Ira N., Neely, Megan L., Mammen, Andrew L., Rider, Lisa G., Albert, Daniel A., Arabshahi, Bita, Ardalan, Kaveh, Baer, Alan N., Balboni, Imelda M., Ballinger, Susan H., Bayat, Nastaran, Becker, Mara L., April Bingham, C., Bohnsack, John F., and Cartwright, Victoria W.
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CROSS-sectional method ,MORTALITY ,DERMATOMYOSITIS ,MYOSITIS ,RAYNAUD'S disease ,RESEARCH funding ,AUTOANTIBODIES ,MULTIPLE regression analysis ,ENZYME-linked immunosorbent assay ,SEVERITY of illness index ,INTERSTITIAL lung diseases ,LONGITUDINAL method ,ODDS ratio ,CHRONIC diseases ,COMPARATIVE studies ,CONFIDENCE intervals ,PRECIPITIN tests ,IMMUNOBLOTTING - Abstract
Objective: Myositis‐associated autoantibodies (MAAs) have been associated with overlap myositis, certain disease manifestations such as interstitial lung disease (ILD), and worse prognosis in the idiopathic inflammatory myopathies. MAAs overall remain largely uncharacterized in patients with juvenile‐onset myositis. Moreover, it is unknown whether the number of MAAs is associated with disease severity. Methods: Patients with juvenile myositis in cross‐sectional natural history studies who underwent testing for myositis autoantibodies were included. Demographics, myositis autoantibodies, clinical characteristics, medications received, and outcomes of those with and without MAAs were compared. Multivariable logistic regression was performed to determine whether the number of MAAs detected was associated with severe disease features. Results: Among 551 patients, 36% had an MAA and 13% had more than one MAA. Among those who were MAA positive, there was a higher frequency of overlap myositis (18% vs 5.9%, P < 0.001). MAA positivity was associated with certain clinical features, including Raynaud phenomenon (odds ratio [OR] 2.44, 95% confidence interval [CI] 1.41–4.28) and ILD (OR 3.43, 95% CI 1.75–6.96), as well as a chronic disease course (OR 1.72, 95% CI 1.10–2.72) and mortality (OR 3.76, 95% CI 1.72–8.43). The number of MAAs was also associated with mortality (OR 1.83, 95% CI 1.16–2.86). Conclusion: MAAs were prevalent in a large cohort of patients with juvenile myositis. ILD, refractory disease, and mortality were associated with MAA positivity. Prospective studies are needed to determine whether early detection of MAAs may lead to improved outcomes for patients with juvenile myositis. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Longitudinal program evaluation of an inter-institutional mentorship network for pediatric rheumatology using a quality improvement framework
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Hayward, Kristen, primary, Grom, Alexi, additional, Muscal, Eyal, additional, Nigrovic, Peter A., additional, Rouster-Stevens, Kelly A., additional, Ardalan, Kaveh, additional, Hiraki, Linda, additional, and Moorthy, L. Nandini, additional
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- 2023
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14. Identifying a stable and generalizable factor structure of major depressive disorder across three large longitudinal cohorts
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Tseng, Vincent W.-S., primary, Tharp, Jordan A., additional, Reiter, Jacob E., additional, Ferrer, Weston, additional, Hong, David S., additional, Doraiswamy, P Murali, additional, Nickels, Stefanie, additional, Schilsky, Richard L., additional, Allen, Jennifer, additional, Anderson, MaryAnn, additional, Anstrom, Kevin, additional, Araujo, Lucus, additional, Arges, Kristine, additional, Ardalan, Kaveh, additional, Baldwin, Bridget, additional, Balu, Suresh, additional, Bashir, Mustafa R., additional, Bhapkar, Manju, additional, Bigelow, Robert, additional, Black, Tanya, additional, Blanco, Rosalia, additional, Bloomfield, Gerald, additional, Borkar, Durga, additional, Bouk, Leah, additional, Boulware, Ebony, additional, Brugnoni, Nikki, additional, Campbell, Erin, additional, Campbell, Paul, additional, Carin, Larry, additional, Cassella, Tammy Jo, additional, Cates, Tina, additional, Montgomery, Ranee Chatterjee, additional, Christian, Victoria, additional, Choong, John, additional, Cohen-Wolkowiez, Michael, additional, Cook, Elizabeth, additional, Cousins, Scott, additional, Crawford, Ashley, additional, Datta, Nisha, additional, Daubert, Melissa, additional, Davis, James, additional, Dirkes, Jillian, additional, Doan, Isabelle, additional, Dockery, Marie, additional, Doraiswamy, P. Murali, additional, Douglas, Pamela S., additional, Duckworth, Shelly, additional, Dunham, Ashley, additional, Dunn, Gary, additional, Ebersohl, Ryan, additional, Eckstrand, Julie, additional, Fang, Vivienne, additional, Flora, April, additional, Ford, Emily, additional, Foster, Lucia, additional, Fraulo, Elizabeth, additional, French, John, additional, Ginsburg, Geoffrey S., additional, Green, Cindy, additional, Greene, Latoya, additional, Guptill, Jeffrey, additional, Hamel, Donna, additional, Hamill, Jennifer, additional, Harrington, Chris, additional, Harrison, Rob, additional, Hedges, Lauren, additional, Heidenfelder, Brooke, additional, Hernandez, Adrian F., additional, Heydary, Cindy, additional, Hicks, Tim, additional, Hight, Lina, additional, Hopkins, Deborah, additional, Huang, Erich S., additional, Huh, Grace, additional, Hurst, Jillian, additional, Inman, Kelly, additional, Janas, Gemini, additional, Jaffee, Glenn, additional, Johnson, Janace, additional, Keaton, Tiffanie, additional, Khouri, Michel, additional, King, Daniel, additional, Korzekwinski, Jennifer, additional, Koweek, Lynne H., additional, Kuo, Anthony, additional, Kwee, Lydia, additional, Landis, Dawn, additional, Lipsky, Rachele, additional, Lopez, Desiree, additional, Lowry, Carolyn, additional, Marcom, Kelly, additional, Marsolo, Keith, additional, McAdams, Paige, additional, McCall, Shannon, additional, McGarrah, Robert, additional, McGugan, John, additional, Mee, Dani, additional, Mervin-Blake, Sabrena, additional, Mettu, Prithu, additional, Meyer, Mathias, additional, Meyers, Justin, additional, Miller, Calire N., additional, Moen, Rebecca, additional, Muhlbaier, Lawrence H., additional, Murphy, Michael, additional, Neely, Ben, additional, Newby, L. Kristin, additional, Nicoldson, Jayne, additional, Nguyen, Hoang, additional, Nguyen, Maggie, additional, O'Brien, Lori, additional, Onal, Sumru, additional, O'Quinn, Jeremey, additional, Page, David, additional, Pagidipati, Neha J., additional, Parikh, Kishan, additional, Palmer, Sarah R., additional, Patrick-Lake, Bray, additional, Pattison, Brenda, additional, Pencina, Michael, additional, Peterson, Eric D., additional, Piccini, Jon, additional, Poole, Terry, additional, Povsic, Tom, additional, Provencher, Alicia, additional, Rabineau, Dawn, additional, Rich, Annette, additional, Rimmer, Susan, additional, Schwartz, Fides, additional, Serafin, Angela, additional, Shah, Nishant, additional, Shah, Svati, additional, Shields, Kelly, additional, Shipes, Steven, additional, Shrader, Peter, additional, Stiber, Jon, additional, Sutton, Lynn, additional, Swamy, Geeta, additional, Thomas, Betsy, additional, Torres, Sandra, additional, Tucci, Debara, additional, Twisdale, Anthony, additional, Walker, Brooke, additional, Whitney, Susan A., additional, Williamson, Robin, additional, Wilverding, Lauren, additional, Wong, Charlene A., additional, Wruck, Lisa, additional, Young, Ellen, additional, Perlmutter, Jane, additional, Krug, Sarah, additional, Bowman-Zatzkin, S. Whitney, additional, Assimes, Themistocles, additional, Bajaj, Vikram, additional, Cheong, Maxwell, additional, Das, Millie, additional, Desai, Manisha, additional, Fan, Alice C., additional, Fleischmann, Dominik, additional, Gambhir, Sanjiv S., additional, Gold, Garry, additional, Haddad, Francois, additional, Hong, David, additional, Langlotz, Curtis, additional, Liao, Yaping J., additional, Lu, Rong, additional, Mahaffey, Kenneth W., additional, Maron, David, additional, McCue, Rebecca, additional, Munshi, Rajan, additional, Rodriguez, Fatima, additional, Shashidhar, Sumana, additional, Sledge, George, additional, Spielman, Susie, additional, Spitler, Ryan, additional, Swope, Sue, additional, Williams, Donna, additional, Pepine, Carl J, additional, Lantos, John D, additional, Pignone, Michael, additional, Heagerty, Patrick, additional, Beskow, Laura, additional, Bernard, Gordon, additional, Abad, Kelley, additional, Angi, Giulia, additional, Califf, Robert M., additional, Deang, Lawrence, additional, Huynh, Joy, additional, Liu, Manway, additional, Mao, Cherry, additional, Magdaleno, Michael, additional, Marks, William J., additional, Mega, Jessica, additional, Miller, David, additional, Ong, Nicole, additional, Patel, Darshita, additional, Ridaura, Vanessa, additional, Shore, Scarlet, additional, Short, Sarah, additional, Tran, Michelle, additional, Vu, Veronica, additional, Wong, Celeste, additional, Green, Robert C., additional, Hernandez, John, additional, Benge, Jolene, additional, Negrete, Gislia, additional, Sierra, Gelsey, additional, and Schaack, Terry, additional
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- 2023
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15. Engaging patients and parents to improve mental health intervention for youth with rheumatological disease
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Fawole, Oluwatunmise A., Reed, Michelle V., Harris, Julia G., Hersh, Aimee, Rodriguez, Martha, Onel, Karen, Lawson, Erica, Rubinstein, Tamar, Ardalan, Kaveh, Morgan, Esi, Paul, Anne, Barlin, Judy, Daly, R. Paola, Dave, Mitali, Malloy, Shannon, Hume, Shari, Schrandt, Suzanne, Marrow, Laura, Chapson, Angela, Napoli, Donna, Napoli, Michael, Moyer, Miranda, Delgaizo, Vincent, Danguecan, Ashley, von Scheven, Emily, and Knight, Andrea
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- 2021
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16. The impact of the COVID-19 pandemic on pediatric rheumatology practice: an international, cross-sectional survey study
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Research UMC Utrecht, Immuno/reuma patientenzorg, Child Health, Infection & Immunity, Batu, Ezgi D., Demirkan, Fatma Gül, Sag, Erdal, Lamot, Lovro, Faleye, Ayodele, Marrani, Edoardo, Ziv, Amit, Ardalan, Kaveh, Gmuca, Sabrina, Swart, Joost F., Uziel, Yosef, Research UMC Utrecht, Immuno/reuma patientenzorg, Child Health, Infection & Immunity, Batu, Ezgi D., Demirkan, Fatma Gül, Sag, Erdal, Lamot, Lovro, Faleye, Ayodele, Marrani, Edoardo, Ziv, Amit, Ardalan, Kaveh, Gmuca, Sabrina, Swart, Joost F., and Uziel, Yosef
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- 2023
17. Research priorities in childhood-onset lupus: results of a multidisciplinary prioritization exercise
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Ardoin, Stacy P., Daly, R Paola, Merzoug, Lyna, Tse, Karin, Ardalan, Kaveh, Arkin, Lisa, Knight, Andrea, Rubinstein, Tamar, Ruth, Natasha, Wenderfer, Scott E., Hersh, Aimee O., and on behalf of the Childhood Arthritis and Rheumatology Research Alliance and Lupus Foundation of America
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- 2019
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18. Barriers to Care in Juvenile Localized and Systemic Scleroderma: An Exploratory Survey Study of Caregivers’ Perspectives
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Stubbs, Leigh Anna, primary, Ferry, Andrew, additional, Guffey, Danielle, additional, Loccke, Christina, additional, Wade, Erin Moriarty, additional, Pour, Pamela, additional, Ardalan, Kaveh, additional, Chira, Peter, additional, Ganske, Ingrid M., additional, Glaser, Daniel, additional, Higgins, Gloria C, additional, Luca, Nadia, additional, Moore, Katharine F, additional, Sivaraman, Vidya, additional, Stewart, Katie, additional, Vasquez-Canizares, Natalia, additional, Hunt, Raegan D., additional, Maricevich, Renata S., additional, Torok, Kathryn S., additional, and Li, Suzanne C., additional
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- 2023
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19. Inpatient burden of juvenile dermatomyositis among children in the United States
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Kwa, Michael C., Silverberg, Jonathan I., and Ardalan, Kaveh
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- 2018
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20. 502 Psychological Stress and Cardiovascular Health in Juvenile Lupus and Dermatomyositis
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Ardalan, Kaveh, primary, Reeve, Bryce B, additional, Connelly, Mark A, additional, Hornik, Christoph P, additional, Lloyd-Jones, Donald M, additional, Anthony Moody, M, additional, Wu, Eveline Y, additional, and Schanberg, Laura E, additional
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- 2022
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21. Engaging Partners to Develop Stress and Cardiovascular Health Interventions for Youth with Juvenile Lupus and Dermatomyositis
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Ardalan, Kaveh
- Abstract
Young adults with juvenile systemic lupus erythematosus (JSLE) and dermatomyositis (JDM) have up to 8 times greater risk of cardiovascular disease (CVD) than the general population. Loss of cardiovascular health (CVH), defined by the American Heart Association (AHA) as the protective factors against CVD, is prevalent in JSLE/JDM patients. Psychological stress further increases long-term CVD risk by decreasing adherence to CVH behaviors (i.e., poor diet and sleep, physical inactivity) and elevating inflammation levels. We have found that 40-50% of JSLE/JDM patients report moderate-to-severe stress but most do not receive any treatment for stress due to access barriers. The objective of this proposal is to use a culturally sensitive intervention adaptation framework (Formative Method for Adapting Psychotherapy [FMAP]) to engage patient partners in adapting components drawn from brief self-administered online behavioral interventions (i.e. Lab for Scalable Mental Health [LSMH]) and a JSLE-tailored cognitive-behavioral therapy intervention (i.e. Treatment & Education Approach for Childhood Onset Lupus [TEACH]) into a remote, self-administered intervention for stress reduction and CVH behavior promotion in adolescents and young adults with JSLE/JDM (AYA-JSLE/JDM, 12-24 years old). Guided by the FMAP framework, we will engage with AYA-JSLE/JDM and other partners to iteratively adapt LSMH/TEACH components to generate the initial Teams Engaged in Adapting Mental Health Interventions for Lupus Erythematosus and Dermatomyositis Stress (TEAM-LEADS) intervention (Aim 1). We will then pilot test TEAM-LEADS, while continuing iterative intervention modification (Aim 2) and then refine the TEAM-LEADS intervention to address facilitators/barriers identified by AYA-JSLE/JDM (Aim 3). Completion of these aims will lay the foundation for future studies to: 1) determine optimal combinations of TEAM-LEADS intervention components to enable more personalized intervention; 2) conduct trials of the optimized TEAM-LEADS intervention’s efficacy for stress reduction and CVH behavior promotion in AYA-JSLE/JDM; 3) further adapt the TEAM-LEADS intervention for stress reduction and CVH behavior promotion in juvenile idiopathic arthritis and other chronic pediatric conditions in which high stress and CVD risk coexist.
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- 2023
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22. A Rare Manifestation of a Rare Disease: The Importance of Thinking Outside the Box in a Patient With Complex Dermatomyositis
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Milne, Megan, primary, Sims, Catherine, additional, Anderson, D. Ryan, additional, Johannemann, Andrew, additional, Leverenz, David, additional, Criscione‐Schreiber, Lisa, additional, and Ardalan, Kaveh, additional
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- 2022
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23. The Effect of Psychiatric Comorbidity on Healthcare Utilization for Youth With Newly Diagnosed Systemic Lupus Erythematosus
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Davis, Alaina, primary, Faerber, Jennifer, additional, Ardalan, Kaveh, additional, Katcoff, Hannah, additional, Klein-Gitelman, Marisa, additional, Rubinstein, Tamar B., additional, Cidav, Zuleyha, additional, Mandell, David S., additional, and Knight, Andrea, additional
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- 2022
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24. Comparison of Patient‐Reported Outcomes Measurement Information System Computerized Adaptive Testing Versus Fixed Short Forms in Juvenile Myositis
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Patel, Ruchi N., primary, Esparza, Valeria G., additional, Lai, Jin‐Shei, additional, Gray, Elizabeth L., additional, Reeve, Bryce B., additional, Chang, Rowland W., additional, Cella, David, additional, and Ardalan, Kaveh, additional
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- 2022
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25. Mobile-Mediated Versus Face-to-Face Dynamic Assessment, EFL Learners’ Writing Fluency and Strategy Awareness
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Ardalan Kaveh and Ehsan Rassaei
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Cultural Studies ,Linguistics and Language - Abstract
The current study examined the effects of mobile-mediated versus face-to-face dynamic assessment (DA) on EFL learners’ writing fluency and strategy awareness during four treatment sessions. To fulfill this objective, a total of 45 Iranian EFL learners were randomly selected and assigned into two experimental conditions, which included one mobile-mediated and one face-to-face DA condition, and one control group. Then, the participants of the experimental conditions were engaged in mobile-mediated and face-to-face DA sessions targeting their writing fluency while the control group students were just asked to write. The results of data analysis indicated that both mobile-mediated and face-to-face DA conditions were beneficial for EFL learners’ writing fluency and revealed that mobile-mediated DA was more effective than face-to-face DA. Moreover, the results showed that mobile-mediated DA enhanced learners’ writing strategy awareness.
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- 2022
26. Oral Macrolides for the Dermatologic Manifestations of Blau Syndrome
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Thareja, Shalini, Kollmann, Kaitlyn, Ardalan, Kaveh, Klein-Gitelman, Marisa S., Paller, Amy S., and Arkin, Lisa M.
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- 2017
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27. Comparison of Patient‐Reported Outcomes Measurement Information System Computerized Adaptive Testing Versus Fixed Short Forms in Juvenile Myositis.
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Patel, Ruchi N., Esparza, Valeria G., Lai, Jin‐Shei, Gray, Elizabeth L., Reeve, Bryce B., Chang, Rowland W., Cella, David, and Ardalan, Kaveh
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ADAPTIVE testing ,COMPUTER adaptive testing ,MYOSITIS ,INFORMATION storage & retrieval systems ,DERMATOMYOSITIS ,PEARSON correlation (Statistics) - Abstract
Objective: Patient‐Reported Outcomes Measurement Information System (PROMIS) measures can be administered via computerized adaptive testing (CAT) or fixed short forms (FSFs), but the empirical benefits of CAT versus FSFs are unknown in juvenile myositis (JM). The present study was undertaken to assess whether PROMIS CAT is feasible, precise, correlated with FSFs, and less prone to respondent burden and floor/ceiling effects than FSFs in JM. Methods: Patients 8–17 years of age (self‐report and parent proxy) and parents of patients 5–7 years of age (only parent proxy) completed PROMIS fatigue, pain interference, upper extremity function, mobility, anxiety, and depressive symptoms measures. Pearson correlations, paired t‐tests, and Cohen's d were calculated between PROMIS CAT and FSFs. McNemar's test assessed floor/ceiling effects between CAT and FSFs. Precision and respondent burden were examined across the T score range. Results: Data from 67 patient–parent dyads were analyzed. CAT and FSF mean scores did not significantly differ except in parent proxy anxiety and fatigue (effect size 0.23 and 0.19, respectively). CAT had less pronounced floor/ceiling effects at the less symptomatic extreme in all domains except self‐report anxiety. Increased item burden and higher SEs were seen in less symptomatic scorers for CAT. Modified stopping rules limiting CAT item administration did not decrease precision. Conclusion: PROMIS CAT appears to be feasible and correlated with FSFs. CAT had less pronounced floor/ceiling effects, allowing detection of individual differences in less symptomatic patients. Modified stopping rules for CAT may decrease respondent burden. CAT can be considered for long‐term follow‐up of JM patients. [ABSTRACT FROM AUTHOR]
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- 2023
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28. 2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Kawasaki Disease
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Gorelik, Mark, primary, Chung, Sharon A., additional, Ardalan, Kaveh, additional, Binstadt, Bryce A., additional, Friedman, Kevin, additional, Hayward, Kristen, additional, Imundo, Lisa F., additional, Lapidus, Sivia K., additional, Kim, Susan, additional, Son, Mary Beth, additional, Sule, Sangeeta, additional, Tremoulet, Adriana H., additional, Van Mater, Heather, additional, Yildirim‐Toruner, Cagri, additional, Langford, Carol A., additional, Maz, Mehrdad, additional, Abril, Andy, additional, Guyatt, Gordon, additional, Archer, Amy M., additional, Conn, Doyt L., additional, Full, Kathy A., additional, Grayson, Peter C., additional, Ibarra, Maria F., additional, Merkel, Peter A., additional, Rhee, Rennie L., additional, Seo, Philip, additional, Stone, John H., additional, Sundel, Robert P., additional, Vitobaldi, Omar I., additional, Warner, Ann, additional, Byram, Kevin, additional, Dua, Anisha B., additional, Husainat, Nedaa, additional, James, Karen E., additional, Kalot, Mohamad, additional, Lin, Yih Chang, additional, Springer, Jason M., additional, Turgunbaev, Marat, additional, Villa‐Forte, Alexandra, additional, Turner, Amy S., additional, and Mustafa, Reem A., additional
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- 2022
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29. Cardiovascular Health in Pediatric Rheumatologic Diseases
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Ardalan, Kaveh, primary, Lloyd-Jones, Donald M., additional, and Schanberg, Laura E., additional
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- 2022
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30. Comparison of PROMIS(®) Computerized Adaptive Testing versus Fixed Short Forms in Juvenile Myositis
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Patel, Ruchi N., Esparza, Valeria G., Lai, Jin-Shei, Gray, Elizabeth L., Reeve, Bryce B., Chang, Rowland W., Cella, David, and Ardalan, Kaveh
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Article - Abstract
OBJECTIVE: Patient-Reported Outcomes Measurement Information System(®) (PROMIS(®)) measures can be administered via computerized adaptive testing (CAT) or fixed short forms (FSF), but the empirical benefits of CAT versus FSF are unknown in juvenile myositis (JM). This study assesses if PROMIS CAT is feasible, precise, correlated with FSF, and less prone to respondent burden and floor/ceiling effects than FSF in JM. METHODS: Patients 8-17 yo (self-report and parent proxy) and parents of patients 5-7 yo (only parent proxy) completed PROMIS Fatigue, Pain Interference, Upper Extremity Function, Mobility, Anxiety and Depressive Symptoms measures. Pearson correlations, paired t-tests, and Cohen’s D were calculated between PROMIS CAT and FSF. McNemar test assessed floor/ceiling effects between CAT and FSF. Precision and respondent burden were examined across the T-score range. RESULTS: Data from 67 patient-parent dyads were analyzed. CAT and FSF mean scores did not significantly differ except in parent proxy Anxiety and Fatigue (effect size: 0.23 and 0.19, respectively). CAT had less pronounced floor/ceiling effects at the less symptomatic extreme in all domains except self-report Anxiety. Increased item burden and higher standard errors were seen in less symptomatic scorers for CAT. Modified stopping rules limiting CAT item administration did not decrease precision. CONCLUSION: PROMIS CAT appears to be feasible and correlated with FSF. CAT had less pronounced floor/ceiling effects, allowing detection of individual differences in less symptomatic patients. Modified stopping rules for CAT may decrease respondent burden. CAT can be considered for long-term follow-up of JM patients.
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- 2021
31. Comparison of Patient‐ReportedOutcomes Measurement Information System Computerized Adaptive Testing Versus Fixed Short Forms in Juvenile Myositis
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Patel, Ruchi N., Esparza, Valeria G., Lai, Jin‐Shei, Gray, Elizabeth L., Reeve, Bryce B., Chang, Rowland W., Cella, David, and Ardalan, Kaveh
- Abstract
Patient‐Reported Outcomes Measurement Information System (PROMIS) measures can be administered via computerized adaptive testing (CAT) or fixed short forms (FSFs), but the empirical benefits of CAT versus FSFs are unknown in juvenile myositis (JM). The present study was undertaken to assess whether PROMIS CAT is feasible, precise, correlated with FSFs, and less prone to respondent burden and floor/ceiling effects than FSFs in JM. Patients 8–17 years of age (self‐report and parent proxy) and parents of patients 5–7 years of age (only parent proxy) completed PROMIS fatigue, pain interference, upper extremity function, mobility, anxiety, and depressive symptoms measures. Pearson correlations, paired t‐tests, and Cohen's dwere calculated between PROMIS CAT and FSFs. McNemar's test assessed floor/ceiling effects between CAT and FSFs. Precision and respondent burden were examined across the T score range. Data from 67 patient–parent dyads were analyzed. CAT and FSF mean scores did not significantly differ except in parent proxy anxiety and fatigue (effect size 0.23 and 0.19, respectively). CAT had less pronounced floor/ceiling effects at the less symptomatic extreme in all domains except self‐report anxiety. Increased item burden and higher SEs were seen in less symptomatic scorers for CAT. Modified stopping rules limiting CAT item administration did not decrease precision. PROMIS CAT appears to be feasible and correlated with FSFs. CAT had less pronounced floor/ceiling effects, allowing detection of individual differences in less symptomatic patients. Modified stopping rules for CAT may decrease respondent burden. CAT can be considered for long‐term follow‐up of JM patients.
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- 2023
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32. International Consensus for the Dosing of Corticosteroids in Childhood-Onset Systemic Lupus Erythematosus With Proliferative Lupus Nephritis
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Chalhoub, Nathalie E., Wenderfer, Scott E., Levy, Deborah M., Rouster-Stevens, Kelly, Aggarwal, Amita, Savani, Sonia I., Ruth, Natasha M., Arkachaisri, Thaschawee, Qiu, Tingting, Merritt, Angela, Onel, Karen, Goilav, Beatrice, Khubchandani, Raju P., Deng, Jianghong, Fonseca, Adriana R., Ardoin, Stacy P., Ciurtin, Coziana, Kasapcopur, Ozgur, Jelusic, Marija, Huber, Adam M., Ozen, Seza, Klein-Gitelman, Marisa S., Appenzeller, Simone, Cavalcanti, André, Fotis, Lampros, Lim, Sern Chin, Silva, Rodrigo M., Miramontes, Julia Ramírez, Rosenwasser, Natalie L., Saad-Magalhaes, Claudia [UNESP], Schonenberg-Meinema, Dieneke, Scott, Christiaan, Silva, Clovis A., Enciso, Sandra, Terreri, Maria T., Torres-Jimenez, Alfonso-Ragnar, Trachana, Maria, Al-Mayouf, Sulaiman M., Devarajan, Prasad, Huang, Bin, Brunner, Hermine I., Abulaban, Khalid, Aguiar, Cassyanne, Ahn, Sun-Young, Akoghlanian, Shoghik, Al-Abrawi, Safiya, Aljaberi, Najla, Alperin, Risa, Angeles-Han, Sheila, Ardalan, Kaveh, Bader-Meunier, Brigitte, Balboni, Imelda, Barbar-Smiley, Fatima, Baxter, Sarah, Beary, John, Boneparth, Alexis, Brakeman, Paul, Bridges, John, Burgos-Vargas, Ruben, Cabral, David A., Cameto, Juan, Carter, Caitlin, Chang, Joyce, Chédeville, Gaëlle, Chhakchhuak, Christine, Chiraseveenuprapund, Peter, Cifuentes Alvarado, Mayra, Concannon, Anthony, Cooper, Jennifer, Cron, Randy, De Carvalho, Luciana Martins, De Quattro, Kimberly, De Ranieri, Deirdre, Dizon, Brian, Donnelly Wrigley, Catherine, Duong, Minh Dien, Eberhard, Anne, Ede, Kaleo, Edelheit, Barbara, Edens, Cuoghi, Espada, Graciela, Farhey, Yolanda, Flores, Francisco, Fritz, Deborah, Ganguli, Suhas, Gilbert, Mileka, Gittar, Patsy, Greenbaum, Larry, Grom, Alexei, Gulati, Gaurav, Harry, Onengiya, Hayward, Kristen, Henrickson, Michael, Hersh, Aimee, Hiraki, Linda, Hiskey, Megan, Hoffmann, Sarah, Hollander, Matthew, Hom, Christine, Houk, Lawrence, Houk, J. Brian, Hsieh, Elena W.Y., Hsu, Joyce, Jensen, Paul, Joos, Rik, Jurado, Rosario, Jusan Fiorot, Fernanda, Kallash, Mahmoud, Kamphuis, Sylvia, Keltsev, Vladimir, Khanna, Surabhi, Kim, Susan, Kimseng, Karen Joy, Knight, Andrea, Kunder, Rebecca, Lai, Jamie, Laskin, Benjamin, Lewandowski, Laura, Lim, Lily, Linda, Wagner-Weiner, Lo, Mindy, Lovell, Daniel, Luggen, Michael, Madison, Jacqueline, Mansuri, Asif, Martin, Lorena, Mason, Sherene, Miller, Michael, Mina, Rina, Mohammed, Abdul, Moncrieffe, Halima, Moorthy, Lakshmi, Morgan, Esi, Mosquera, Angela, Muntel, Emily, Muscal, Eyal, Myones, Barry, Nocton, James, Ogbu, Ekemini, Okamura, Daryl, Olson, Judyann, Orrock, Janet, Paim-Marques, Luciana, Pain, Clare, Park, Catherine, Patel, Pooja, Pereira, Maria, Prado, Rogerio do, Radhakrishna, Suhas, Rheault, Michelle, Ridgway, William, Riskalla, Mona, Ronis, Tova, Sadun, Rebecca, Sagcal-Gironella, Anna Carmela, Santos, Maria carolina, Schikler, Kenneth, AL Suwairi, Wafaa, Siddiqi, Nabeela, Silva, Marco Felipe, Singh-Grewal, Davinder, Smitherman, Emily, Smolewska, Elzbieta, Son, Mary Beth, Srinivasalu, Hemalatha, Sule, Sangeeta, Susic, Gordana, Syed, Reema, Thatayatikom, Akaluck, Ting, Tracy, Toth, Mary, Turnier, Jessica, Vashisht, Priyanka, Vega Fernandez, Patricia, Velasquez, Monica, von Scheven, Emily, Wahezi, Dawn, Ware, Avis, Wu, Eveline, Yan, Jacqueline, Yildirim-Toruner, Cagri, Zamparo, Celso, Zhang, Yujuan, Lawson, Erica, Graduate School, Paediatric Infectious Diseases / Rheumatology / Immunology, AII - Inflammatory diseases, University of Cincinnati College of Medicine, Baylor College of Medicine, The Hospital for Sick Children and The University of Toronto, Emory University and Children's Healthcare of Atlanta, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Medical University of South Carolina, KK Women's and Children's Hospital, Cincinnati Children's Hospital Medical Center, Hospital for Special Surgery, Albert Einstein College of Medicine, SRCC Children's Hospital, Capital Medical University and National Center for Children's Health, Universidade Federal do Rio de Janeiro (UFRJ), Nationwide Children's Hospital, University College London, Istanbul University-Cerrahpasa, University of Zagreb School of Medicine, IWK Health Centre and Dalhousie University, Hacettepe University, Northwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago, Universidade Estadual de Campinas (UNICAMP), Universidade Federal de Pernambuco (UFPE), National and Kapodistian University of Athens, University Teknologi MARA, Instituto Mexicano del Seguro Social, University of Washington and Seattle Children's Hospital, Universidade Estadual Paulista (UNESP), Amsterdam University Medical Center, Red Cross War Memorial Children's Hospital and University of Cape Town, Universidade de São Paulo (USP), Hospital de la Beneficencia Española, Universidade Federal de São Paulo (UNIFESP), National Medical Center La Raza, Aristotle University of Thessaloniki, King Faisal Specialist Hospital and Research Center and Alfaisal University, and University of Cincinnati College of Medicine and Cincinnati Children's Hospital Medical Center
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Male ,medicine.medical_specialty ,Adolescent ,medicine.drug_class ,Immunology ,Lupus nephritis ,Renal function ,Article ,Rheumatology ,childhood-onset systemic lupus erythematosus ,corticosteroids ,lupus nephritis ,treatment ,Internal medicine ,Biopsy ,Immunology and Allergy ,Medicine ,Humans ,Lupus Erythematosus, Systemic ,Dosing ,Age of Onset ,Child ,Glucocorticoids ,Retrospective Studies ,Kidney ,Proteinuria ,medicine.diagnostic_test ,business.industry ,food and beverages ,medicine.disease ,Lupus Nephritis ,Clinical trial ,medicine.anatomical_structure ,Corticosteroid ,Female ,medicine.symptom ,business - Abstract
Made available in DSpace on 2022-04-28T19:49:00Z (GMT). No. of bitstreams: 0 Previous issue date: 2022-02-01 Arthritis Foundation Institute of Clinical and Translational Sciences Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq) Fundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP) National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institute of Diabetes and Digestive and Kidney Diseases National Center for Advancing Translational Sciences Objective: To develop a standardized steroid dosing regimen (SSR) for physicians treating childhood-onset systemic lupus erythematosus (SLE) complicated by lupus nephritis (LN), using consensus formation methodology. Methods: Parameters influencing corticosteroid (CS) dosing were identified (step 1). Data from children with proliferative LN were used to generate patient profiles (step 2). Physicians rated changes in renal and extrarenal childhood-onset SLE activity between 2 consecutive visits and proposed CS dosing (step 3). The SSR was developed using patient profile ratings (step 4), with refinements achieved in a physician focus group (step 5). A second type of patient profile describing the course of childhood-onset SLE for ≥4 months since kidney biopsy was rated to validate the SSR-recommended oral and intravenous (IV) CS dosages (step 6). Patient profile adjudication was based on majority ratings for both renal and extrarenal disease courses, and consensus level was set at 80%. Results: Degree of proteinuria, estimated glomerular filtration rate, changes in renal and extrarenal disease activity, and time since kidney biopsy influenced CS dosing (steps 1 and 2). Considering these parameters in 5,056 patient profile ratings from 103 raters, and renal and extrarenal course definitions, CS dosing rules of the SSR were developed (steps 3–5). Validation of the SSR for up to 6 months post–kidney biopsy was achieved with 1,838 patient profile ratings from 60 raters who achieved consensus for oral and IV CS dosage in accordance with the SSR (step 6). Conclusion: The SSR represents an international consensus on CS dosing for use in patients with childhood-onset SLE and proliferative LN. The SSR is anticipated to be used for clinical care and to standardize CS dosage during clinical trials. University of Cincinnati College of Medicine Baylor College of Medicine The Hospital for Sick Children and The University of Toronto Emory University and Children's Healthcare of Atlanta Sanjay Gandhi Postgraduate Institute of Medical Sciences Medical University of South Carolina KK Women's and Children's Hospital Cincinnati Children's Hospital Medical Center Hospital for Special Surgery Albert Einstein College of Medicine SRCC Children's Hospital Capital Medical University and National Center for Children's Health Universidade Federal do Rio de Janeiro Nationwide Children's Hospital University College London Cerrahpasa Medical School Istanbul University-Cerrahpasa University of Zagreb School of Medicine IWK Health Centre and Dalhousie University Hacettepe University Northwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago University of Campinas Hospital das Clínicas da Universidade Federal de Pernambuco National and Kapodistian University of Athens University Teknologi MARA Instituto Mexicano del Seguro Social University of Washington and Seattle Children's Hospital São Paulo State University Amsterdam University Medical Center Red Cross War Memorial Children's Hospital and University of Cape Town Universidade de São Paulo Hospital de la Beneficencia Española Universidade Federal de São Paulo National Medical Center La Raza Aristotle University of Thessaloniki King Faisal Specialist Hospital and Research Center and Alfaisal University University of Cincinnati College of Medicine and Cincinnati Children's Hospital Medical Center São Paulo State University CNPq: 303422/2015-7 FAPESP: FAPESP 2015/03756-4 National Institute of Arthritis and Musculoskeletal and Skin Diseases: P30-AR-076316 National Institute of Diabetes and Digestive and Kidney Diseases: P50-DK-096418 National Institute of Arthritis and Musculoskeletal and Skin Diseases: R34-AR-071651 National Center for Advancing Translational Sciences: T32-AR-050958
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- 2021
33. Utility of patient-reported outcomes measurement information system (PROMIS) physical function form in inflammatory myopathy
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Saygin, Didem, primary, Oddis, Chester V., additional, Dzanko, Sedin, additional, Koontz, Diane, additional, Moghadam-Kia, Siamak, additional, Ardalan, Kaveh, additional, Coles, Theresa M., additional, and Aggarwal, Rohit, additional
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- 2021
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34. The Effect of Psychiatric Comorbidity on Healthcare Utilization for Youth With Newly Diagnosed Systemic Lupus Erythematosus
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Davis, Alaina, Faerber, Jennifer, Ardalan, Kaveh, Katcoff, Hannah, Klein-Gitelman, Marisa, Rubinstein, Tamar B., Cidav, Zuleyha, Mandell, David S., and Knight, Andrea
- Abstract
ObjectiveTo examine the effect of psychiatric diagnoses on healthcare use in youth with systemic lupus erythematosus (SLE) during their first year of SLE care.MethodsWe conducted a retrospective cohort study using claims from 2000 to 2013 from Clinformatics Data Mart (OptumInsight). Youth aged 10 years to 24 years with an incident diagnosis of SLE (≥ 3 International Classification of Diseases, 9th revision, codes for SLE 710.0, > 30 days apart) were categorized as having: (1) a preceding psychiatric diagnosis in the year before SLE diagnosis, (2) an incident psychiatric diagnosis in the year after SLE diagnosis, or (3) no psychiatric diagnosis. We compared ambulatory, emergency, and inpatient visits in the year after SLE diagnosis, stratified by nonpsychiatric and psychiatric visits. We examined the effect of childhood-onset vs adult-onset SLE by testing for an interaction between age and psychiatric exposure on outcome.ResultsWe identified 650 youth with an incident diagnosis of SLE, of which 122 (19%) had a preceding psychiatric diagnosis and 105 (16%) had an incident psychiatric diagnosis. Compared with those without a psychiatric diagnosis, youth with SLE and a preceding or incident psychiatric diagnosis had more healthcare use across both ambulatory and emergency settings for both nonpsychiatric and psychiatric-related care. These associations were minimally affected by age at time of SLE diagnosis.ConclusionPsychiatric comorbidity is common among youth with newly diagnosed SLE and is associated with greater healthcare use. Interventions to address preceding and incident psychiatric comorbidity may decrease healthcare burden for youth with SLE.
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- 2023
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35. Anxiety and depression in childhood rheumatologic conditions: A topical review
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Cunningham, NatoshiaR, primary, Reid, MalletR, additional, Fabricius, Jacqueline, additional, Danguecan, Ashley, additional, Ardalan, Kaveh, additional, and Knight, Andrea, additional
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- 2021
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36. Parent Perspectives on Addressing Emotional Health for Children and Young Adults With Juvenile Myositis
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Ardalan, Kaveh, primary, Adeyemi, Oluwatosin, additional, Wahezi, Dawn M., additional, Caliendo, Anne E., additional, Curran, Megan L., additional, Neely, Jessica, additional, Kim, Susan, additional, Correll, Colleen K., additional, Brunner, Emily J., additional, and Knight, Andrea M., additional
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- 2020
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37. 2021 American College of Rheumatology/Vasculitis Foundation Guideline for the Management of Kawasaki Disease.
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Gorelik, Mark, Chung, Sharon A., Ardalan, Kaveh, Binstadt, Bryce A., Friedman, Kevin, Hayward, Kristen, Imundo, Lisa F., Lapidus, Sivia K., Kim, Susan, Son, Mary Beth, Sule, Sangeeta, Tremoulet, Adriana H., Van Mater, Heather, Yildirim‐Toruner, Cagri, Langford, Carol A., Maz, Mehrdad, Abril, Andy, Guyatt, Gordon, Archer, Amy M., and Conn, Doyt L.
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RHEUMATOLOGY ,VASCULITIS ,MUCOCUTANEOUS lymph node syndrome ,DISEASE management ,INTRAVENOUS immunoglobulins - Abstract
Objective: To provide evidence‐based recommendations and expert guidance for the management of Kawasaki disease (KD), focusing on clinical scenarios more commonly addressed by rheumatologists. Methods: Sixteen clinical questions regarding diagnostic testing, treatment, and management of KD were developed in the Patient/Population, Intervention, Comparison, and Outcomes (PICO) question format. Systematic literature reviews were conducted for each PICO question. We used the Grading of Recommendations, Assessment, Development and Evaluation method to assess the quality of evidence and formulate recommendations. Each recommendation required consensus from at least 70% of the Voting Panel. Results: We present 1 good practice statement, 11 recommendations, and 1 ungraded position statement to guide the management of KD and clinical scenarios of suspected KD. These recommendations for KD are focused on situations in which input from rheumatologists may be requested by other managing specialists, such as in cases of treatment‐refractory, severe, or complicated KD. The good practice statement affirms that all patients with KD should receive initial treatment with intravenous immunoglobulin (IVIG). In addition, we developed 7 strong and 4 conditional recommendations for the management of KD or suspected KD. Strong recommendations include prompt treatment of incomplete KD, treatment with aspirin, and obtaining an echocardiogram in the setting of unexplained macrophage activation syndrome or shock. Conditional recommendations include use of IVIG with other adjuvant agents for patients with KD and high‐risk features of IVIG resistance and/or coronary artery aneurysms. These recommendations endorse minimizing risk to the patient by using established therapy promptly at disease onset and identifying situations in which adjunctive therapy may be warranted. Conclusion: These recommendations provide guidance regarding diagnostic strategies, use of pharmacologic agents, and use of echocardiography in patients with suspected or confirmed KD. [ABSTRACT FROM AUTHOR]
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- 2022
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38. Anxiety and depression in childhood rheumatologic conditions: A topical review.
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Reid, Mallet, Fabricius, Jacqueline, Danguecan, Ashley, Ardalan, Kaveh, Knight, Andrea, and Cunningham, Natoshia
- Abstract
This topical review summarizes recent literature on mental health symptoms experienced by children diagnosed with rheumatologic conditions including childhood-onset systemic lupus erythematosus (cSLE), juvenile idiopathic arthritis (JIA), and juvenile dermatomyositis (JDM). Studies, while limited, generally indicate that anxiety and depressive symptoms may be more common among children diagnosed with rheumatologic conditions than non-chronically ill children. Although the rates of clinically significant symptoms are not consistently reported across studies, overall anxiety and depressive symptom rates in cSLE vary between 34%–37% and 6.7%–59%, respectively. A recent systematic review of JIA suggests between 7% and 64% of participants experienced elevated anxiety, and between 7% and 36% of participants reported clinically significant depressive symptoms. Approximately 40% of youth with JDM may experience general psychological distress, but more research is needed. In the available literature, there is mixed support for higher rates of anxiety in JIA as compared to cSLE, and higher rates of depressive symptoms in cSLE as compared to JIA, whereas mental health functioning in JDM is less well understood. Mental health functioning in youth with rheumatologic conditions may be related to increased disease-related impairment. Using consistent mental health screening measures with clinically validated cutoffs would enhance insight into the frequency and impact of anxiety and depressive symptoms experienced. Knowledge would also be enhanced by conducting studies with ethnically representative samples to identify potential disparities in care. An improved understanding of mental health functioning in pediatric patients presenting for rheumatologic care may inform the development and testing of tailored and effective treatments. [ABSTRACT FROM AUTHOR]
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- 2021
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39. AB002. Evaluation of the reliability and validity of the Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) in pediatric cutaneous lupus among pediatric dermatologists and rheumatologists
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Kushner, Carolyn J., primary, Tarazi, Meera, additional, Gaffney, Rebecca G., additional, Feng, Rui, additional, Ardalan, Kaveh, additional, Brandling-Bennett, Heather A., additional, Castelo-Soccio, Leslie, additional, Chang, Joyce C., additional, Chiu, Yvonne E., additional, Gmuca, Sabrina, additional, Hunt, Raegan D., additional, Kahn, Philip J., additional, Knight, Andrea M., additional, Mehta, Jay, additional, Pearson, David R., additional, Treat, James R., additional, Wan, Joy, additional, Yeguez, Andrea C., additional, Concha, Josef S. S., additional, Patel, Basil, additional, Okawa, Joyce, additional, Arkin, Lisa M., additional, and Werth, Victoria P., additional
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- 2019
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40. 92 Engaging patients and parents to improve mental health for youth with systemic lupus erythematosus
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Knight, Andrea M, primary, Fawole, Oluwatunmise, additional, Reed, Michelle, additional, Faust, Lauren, additional, Rubinstein, Tamar, additional, Harris, Julia, additional, Hersh, Aimee, additional, Onel, Karen, additional, Lawson, Erica, additional, Ardalan, Kaveh, additional, Morgan, Esi, additional, Paul, Anne, additional, Barlin, Judith, additional, Daly, Paola, additional, Dave, Mitali, additional, Malloy, Shannon, additional, Hume, Shari, additional, Schrandt, Suzanne, additional, Marrow, Laura, additional, Chapson, Angela, additional, Napoli, Donna, additional, Napoli, Michael, additional, Moyer, Miranda, additional, Adamski, Rachel, additional, Delgaizo, Vincent, additional, Rodriguez, Martha, additional, and Scheven, Emily von, additional
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- 2019
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41. Parent Perspectives on Addressing Emotional Health for Children and Young Adults With Juvenile Myositis.
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Ardalan, Kaveh, Adeyemi, Oluwatosin, Wahezi, Dawn M., Caliendo, Anne E., Curran, Megan L., Neely, Jessica, Kim, Susan, Correll, Colleen K., Brunner, Emily J., and Knight, Andrea M.
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MYOSITIS ,INFLAMMATION treatment ,MENTAL health ,RHEUMATOLOGY ,INTERNAL medicine - Abstract
Objective: To assess parent perspectives regarding the emotional health impact of juvenile myositis (JM) on patients and families, and to assess preferences for emotional health screening and interventions. Methods: Parents of children and young adults with JM were purposively sampled for participation in focus groups at the Cure JM Foundation National Family Conference in 2018. Groups were stratified by patient age group (6–12, 13–17, and 18–21 years), and conversations were audiorecorded, transcribed verbatim, and co‐coded via content analysis, with subanalysis by age group. A brief survey assessed preferences for specific emotional health interventions. Results: Forty‐five parents participated in 6 focus groups. Themes emerged within 2 domains: emotional challenges, and screening and interventions. Themes for emotional challenges comprised the impact of JM on: 1) patient emotional health, particularly depression and anxiety; 2) parent emotional health characterized by sadness, grief, anger, guilt, and anxiety; and 3) family dynamics, including significant sibling distress. Subanalysis revealed similar themes across age groups, but the theme of resiliency emerged specifically for young adults. Themes for emotional health screening and interventions indicated potential issues with patient transparency, several barriers to resources, the facilitator role of rheumatology providers, and preferred intervention modalities of online and in‐person resources, with survey responses most strongly supporting child/parent counseling and peer support groups. Conclusion: JM is associated with intense patient and family distress, although resiliency may emerge by young adulthood. Despite existing barriers, increasing access to counseling, peer support groups, and online resources with rheumatology facilitation may be effective intervention strategies. [ABSTRACT FROM AUTHOR]
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- 2021
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42. Psychometric properties of the Children’s Dermatology Life Quality Index in pediatric localized scleroderma
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Ardalan, Kaveh, primary, Switzer, Galen E, additional, Zigler, Christina K, additional, Hershey, Nicole M, additional, and Torok, Kathryn S, additional
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- 2018
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43. Cardiovascular and cerebrovascular comorbidities of juvenile dermatomyositis in US children: an analysis of the National Inpatient Sample
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Silverberg, Jonathan I, primary, Kwa, Lauren, additional, Kwa, Michael C, additional, Laumann, Anne E, additional, and Ardalan, Kaveh, additional
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- 2018
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44. Predictors of Hospitalization, Length of Stay, and Cost of Care Among Adults With Dermatomyositis in the United States
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Kwa, Michael C., primary, Ardalan, Kaveh, additional, Laumann, Anne E., additional, and Silverberg, Jonathan I., additional
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- 2017
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45. Predictors of Longitudinal Quality of Life in Juvenile Localized Scleroderma
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Ardalan, Kaveh, primary, Zigler, Christina K., additional, and Torok, Kathryn S., additional
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- 2017
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46. Validation of International Classification of Diseases Codes for the Epidemiologic Study of Dermatomyositis
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Kwa, Michael C., primary, Ardalan, Kaveh, additional, Laumann, Anne E., additional, Nardone, Beatrice, additional, West, Dennis P., additional, and Silverberg, Jonathan I., additional
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- 2017
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47. Postoperative Spinal Fusion Care in Pediatric Patients.
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Rosenberg, Rebecca E., Ardalan, Kaveh, Wai Wong, Patel, Sonya, Gold-von Simson, Gabrielle, Feldman, David, Lonner, Baron, Petrizzo, Anthony, Poitevien, Patricia, Gertz, Shira J., and Dreyer, Benard
- Abstract
Background: Standardized pediatric hospitalist and orthopaedic co-management of spinal fusion patients may improve quality processes and outcomes. This approach has not been studied in a general academic center. Objective: Estimate relative effects and feasibility of the interventions on quality outcomes, length of stay (LOS), catheter-acquired urinary tract infections (CAUTI), medication errors, and pain scores. Design and Setting: Retrospective cohort using interrupted time series, analyzing data from 83 patients aged 5 to 18 years admitted for posterior spinal fusion (PSF) in 2009 (N = 27), 2010 (N = 28), and 2011 (N = 28) on a children's service at a general academic tertiary care center. Interventions: Multimodal approach to standardizing pediatric PSF postoperative care with interdepartmental development of order sets, clinical care guidelines, and routine pediatric hospitalist co-management of all pediatric PSF patients. Measurements: Chi-square analysis of order set use, guideline use measured by proxy medication and documentation data. ANOVA for comparison of CA UTI and medication error rate and multivariate linear regression of LOS and pain scores. Results: Pediatric hospitalist co-management documentation increased from 64% to 80%. Guideline use increased from 40% to 79%, and order set use was < 15%. CAUTI and medication error ratios remained low. Adjusted mean LOS decreased by 0.8 days (p = 0.039, 95% CI 0.7, 1.1). Pain scores did not differ. Conclusion: Interdisciplinary, clinical guideline development and postoperative co-management significantly decreased hospital LOS in pediatric PSF patients. In a general academic medical center, this change may be attributed to a pediatric hospitalist academic team, a universal co-management process with well-communicated roles, and a pediatric hospital-based physician development of and adherence to standardized practice. [ABSTRACT FROM AUTHOR]
- Published
- 2014
48. Cardiovascular Health in Pediatric Rheumatologic Diseases
- Author
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Ardalan, Kaveh, Lloyd-Jones, Donald M., and Schanberg, Laura E.
- Abstract
Cardiovascular disease risk is evident during childhood for patients with juvenile systemic lupus erythematosus, juvenile dermatomyositis, and juvenile idiopathic arthritis. The American Heart Association defines cardiovascular health as a positive health construct reflecting the sum of protective factors against cardiovascular disease. Disease-related factors such as chronic inflammation and endothelial dysfunction increase cardiovascular disease risk directly and through bidirectional relationships with poor cardiovascular health factors. Pharmacologic and nonpharmacologic interventions to improve cardiovascular health and long-term cardiovascular outcomes in children with rheumatic disease are needed.
- Published
- 2021
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49. Predictors of Longitudinal Quality of Life in Juvenile Localized Scleroderma.
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Ardalan, Kaveh, Zigler, Christina K, and Torok, Kathryn S
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MENTAL health ,QUALITY of life ,SCLERODERMA (Disease) ,LONGITUDINAL method ,RESEARCH funding ,PREDICTIVE tests ,PSYCHOLOGY ,DIAGNOSIS - Abstract
Objective: Localized scleroderma can negatively affect children's quality of life (QoL), but predictors of impact have not been well described. We sought to identify predictors of QoL impact in juvenile localized scleroderma patients.Methods: We analyzed longitudinal data from a single-center cohort of juvenile localized scleroderma patients, using hierarchical generalized linear modeling (HGLM) to identify predictors of QoL impact. HGLM is useful for nested data and allows for evaluation of both time-variant and time-invariant predictors.Results: The number of extracutaneous manifestations (ECMs; e.g., joint contracture and hemifacial atrophy) and female sex predicted negative QoL impact, defined as a Children's Dermatology Life Quality Index score >1 (P = 0.019 for ECMs and P = 0.002 for female sex). As the time since the initial visit increased, the odds of reporting a negative QoL impact decreased (P < 0.001).Conclusion: Our results suggest that ECMs, sex, and time since initial visit are more predictive of QoL impact in localized scleroderma than cutaneous features. Further study is required to determine which ECMs have the most impact on QoL, which factors underlie sex differences in QoL in localized scleroderma, and why increasing the time since the initial visit appears to be protective. An improved understanding of predictors of QoL impact may allow for the identification of patients at risk of poorer outcomes and for the tailoring of treatment and psychosocial support. [ABSTRACT FROM AUTHOR]- Published
- 2016
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50. Longitudinal program evaluation of an inter-institutional mentorship network for pediatric rheumatology using a quality improvement framework.
- Author
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Hayward K, Grom A, Muscal E, Nigrovic PA, Rouster-Stevens KA, Ardalan K, Hiraki L, and Moorthy LN
- Abstract
Background: The American College of Rheumatology (ACR)/Childhood Arthritis and Rheumatology Research Alliance (CARRA) Mentoring Interest Group (AMIGO) is an inter-institutional mentorship program launched to target mentorship gaps within pediatric rheumatology. Initial program evaluation indicated increased mentorship access. Given the small size of the pediatric rheumatology workforce, maintaining a consistent supply of mentors was a potential threat to the longevity of the network. Our aims were to: (i) describe the sustainability of AMIGO over the period 2011-2018, (ii) highlight ongoing benefits to participants, and (iii) describe challenges in the maintenance of a mentorship network., Methods: A mixed-methods approach centered on a quality improvement framework was used to report on process and outcomes measures associated with AMIGO annual cycles., Results: US and Canada Pediatric rheumatology workforce surveys identified 504 possible participants during the time period. As of fall 2018, 331 unique individuals had participated in AMIGO as a mentee, mentor or both for a program response rate of 66% (331/504). Survey of mentees indicated high satisfaction with impact on general career development, research/scholarship and work-life balance. Mentors indicated increased sense of connection to the community and satisfaction with helping mentees despite minimal perceived benefit to their academic portfolios. Based on AMIGO's success, a counterpart program, Creating Adult Rheumatology Mentorship in Academia (CARMA), was launched in 2018., Conclusions: Despite the challenges of a limited workforce, AMIGO continues to provide consistent access to mentorship opportunities for the pediatric rheumatology community. This experience can inform approaches to mentorship gaps in other academic subspecialties., Competing Interests: Declarations Competing interests: All authors have served as either AMIGO founders (PN, EM, LM) or Co-chairs (KR, AG, KH, LH, KA). AG is a member of the ACR Research Committee. Authors EM and LH are members of the ACR Annual Meeting Planning Committee (AMPC). The authors have no financial conflicts of interest relevant to this article to disclose.
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- 2023
- Full Text
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