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29. Abstract C47: Hispanic/Latino lung cancer patients overcoming barriers for accessing cancer care: A qualitative study

Author

Alago, William, primary, Shuk, Elyse, additional, Moss, Ana-Motta, additional, Brandon, George, additional, Aragones, Abraham, additional, Franco, Idalid, additional, Valentin, Roberto, additional, Akinsemoyin, Mutiat A., additional, Rodriguez, Melissa, additional, Velez, Hector, additional, Barretto, Tyler, additional, Castaneda, Uriel, additional, and Ostroff, Jamie, additional

Published
2014
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31. Association of socioeconomic and practical unmet needs with self-reported nonadherence to cancer treatment appointments in low-income Latino and Black cancer patients.

Author

Costas-Muniz, Rosario, Leng, Jennifer, Aragones, Abraham, Ramirez, Julia, Roberts, Nicole, Mujawar, Mohammed Imran, and Gany, Francesca

Subjects
TUMOR treatment, BLACK people, CANCER patients, CONFIDENCE intervals, HISPANIC Americans, INCOME, MEDICAL appointments, MEDICAL needs assessment, MEDICAL cooperation, PATIENT compliance, PUBLIC welfare, QUESTIONNAIRES, RESEARCH, RESEARCH funding, SELF-evaluation, SOCIOECONOMIC factors, DATA analysis software, DESCRIPTIVE statistics, ODDS ratio
Abstract

Objective.Treatment adherence, with minimal numbers of missed appointments, is an important determinant of survival among cancer patients. This study aims to determine if unmet financial, logistic, and supportive care needs predict self-reported adherence to cancer treatment appointments of chemotherapy and/or radiation among low-income ethnic minority patients. Design.The sample included 1098 underserved Latino and Black patients recruited from cancer clinics in New York City through the Cancer Portal Project. Participants completed a survey which included sociodemographic, health-related questions and a needs assessment, in their preferred language. Patients’ adherence to chemotherapy and/or radiation treatment appointments was assessed using a self-report. Results.A sample of 1098 patients (581 Latino and 517 Black cancer patients) was recruited. Forty-two Latino cancer patients (7.4%) and 78 Black cancer patients (15.5%) reported missing treatment appointments. Patients, who experienced four or more unmet needs (odds ratios [OR] = 2.02–3.36), and those with unmet housing needs (OR = 3.10–3.31), were more likely to report missing cancer treatment appointments, regardless of their ethnicity/race. Black patients with unmet supportive care (OR = 2.27) and health insurance needs (OR = 3.80) were more likely to miss appointments. Amongst Latinos, legal health-related issues (OR = 2.51) was a significant predictor of missed appointments. Conclusions.Among ethnic minority cancer patients, unmet socioeconomic and supportive care needs, housing needs in particular, predicted patient-reported missed radiation, and/or chemotherapy appointments. Future research should focus on exploring the impact of practical and supportive unmet needs on adherence and development of interventions aiming to improve cancer treatment adherence. [ABSTRACT FROM PUBLISHER]

Published
2016
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35. Validation of the Spanish translation of the Patient Assessment of Chronic Illness Care (PACIC) survey.

Author

Aragones A, Schaefer EW, Stevens D, Gourevitch MN, Glasgow RE, and Shah NR

Subjects
Chronic Disease, Cross-Sectional Studies, Data Collection, Diabetes Mellitus, Humans, Delivery of Health Care standards, Language, Patient Satisfaction, Reproducibility of Results, Surveys and Questionnaires
Abstract

Introduction: The Patient Assessment of Chronic Illness Care (PACIC) survey is a patient-centered instrument for evaluating the quality and patient-centeredness of chronic illness care received according to the Chronic Care Model paradigm. This study validates the Spanish translation of the PACIC in an urban, Spanish-speaking population., Methods: One hundred Spanish-speaking patients with diabetes completed the translated PACIC and sociodemographic and cultural questionnaires. Test-retest reliability was assessed in a subset of 20 patients who completed the questionnaire 2 to 4 months later. Internal consistency was evaluated with Cronbach alpha. PACIC score and subscale associations with sociodemographic characteristics were examined., Results: Test-retest reliability for the overall translated PACIC scale was 0.77. Scores were not associated with patient sociodemographic characteristics, including age, country of birth, years living in the United States, or education level (P >.05)., Conclusion: The Spanish translation of the PACIC survey demonstrated high reliability, internal consistency, and test-retest reliability. Scores showed no association with sociodemographic or cultural characteristics. The Spanish version can reliably be used to assess care delivered according to the Chronic Care Model in a heterogeneous Spanish-speaking population.

Published
2008

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