1. Transition to Adult Care in Youth with Epilepsy: One Center's Experience with a Transition Program and Its Integration within Telemedicine
- Author
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Gina L. Jones, Ann C. Modrcin, Ahmed Abdelmoity, Jean-Baptiste Le Pichon, Teresa Hickam, and Courtney Wellman
- Subjects
Medical home ,medicine.medical_specialty ,Telemedicine ,Neurology ,digestive, oral, and skin physiology ,Adult care ,medicine.disease ,03 medical and health sciences ,Epilepsy ,0302 clinical medicine ,Standard care ,030225 pediatrics ,Family medicine ,Pediatrics, Perinatology and Child Health ,medicine ,Neurology (clinical) ,Pediatric Neurology ,Psychology ,Rural population ,030217 neurology & neurosurgery - Abstract
Neurology patients often have disorders that require life-long care and ongoing treatment. The transition of pediatric neurology patients to adult neurology care, particularly in epilepsy, is an evolving concept that is recognized as important for patients and families. Children's Mercy Hospital, Kansas City has an established transition program that has been integrated into the neurology clinic as a part of standard care. Our experience and utilization of a transition program has provided our patients with a unique opportunity, empowering them to navigate their own care and create a seamless transition to adult neurology. Through a collaboration with the American Academy of Pediatrics and the Department of Health Resources and Services Administration, we have proposed a practice model designed to create a medical home for children and youth with epilepsy in rural underserved areas of Kansas. One of the core end points of this study is transition of care for youth with epilepsy using telemedicine. In this article, we describe our experience with a transition program for epilepsy patients and describe the very early implementation of this program to a telemedicine transition program designed for underserved rural populations.
- Published
- 2020