Cieza, Alarcos, Anczewska, Marta, Ayuso Mateos, José Luis, Baker, Mary, Bickenbach, Jerome, Chatterji, Somnath, Hartley, Sally, Leonardi, Matilde A., Pitkänen, Tuuli, Coenen, Michaela, Gall, Heinrich, Kollerits, Barbara, Sabariego, Carla, Cabello, María, Mellor, Blanca, Vigil, Jordi, Cerniauskaite, Milda, Covelli, Venusia, Giovannetti, Ambra, Quintas, Rui, Raggi, Alberto, Schiavolin, Silvia, Ballert, Carolina, Brach, Mirjam, Lückenkemper, Miriam, Benbow, Alastair, Hawrot, Tadeusz, Charzyńska, Katarzyna, Chrostek, Anna, ͆witaj, Piotr, Roszczyńska-Michta, Joanna, Waszkiewicz, Justyna, Finocchiaro, Carla, Cogoni, Serena, Holopainen, Antti, Jokela, Kirsi, Kaskela, Teemu, Levola, Jonna, Tourunen, Jouni, UAM. Departamento de Psiquiatría, and Instituto de Investigación del Hospital de La Princesa (IP)
Objective To test the hypothesis of ‘horizontal epidemiology’, i.e. that psychosocial difficulties (PSDs), such as sleep disturbances, emotional instability and difficulties in personal interactions, and their environmental determinants are experienced in common across neurological and psychiatric disorders, together called brain disorders. Study Design A multi-method study involving systematic literature reviews, content analysis of patientreported outcomes and outcome instruments, clinical input and a qualitative study was carried out to generate a pool of PSD and environmental determinants relevant for nine different brain disorders, namely epilepsy, migraine, multiple sclerosis, Parkinson’s disease, stroke, dementia, depression, schizophrenia and substance dependency. Information from these sources was harmonized and compiled, and after feedback from external experts, a data collection protocol including PSD and determinants common across these nine disorders was developed. This protocol was implemented as an interview in a cross-sectional Objective To test the hypothesis of ‘horizontal epidemiology’, i.e. that psychosocial difficulties (PSDs), such as sleep disturbances, emotional instability and difficulties in personal interactions, and their environmental determinants are experienced in common across neurological and psychiatric disorders, together called brain disorders. Study Design A multi-method study involving systematic literature reviews, content analysis of patientreported outcomes and outcome instruments, clinical input and a qualitative study was carried out to generate a pool of PSD and environmental determinants relevant for nine different brain disorders, namely epilepsy, migraine, multiple sclerosis, Parkinson’s disease, stroke, dementia, depression, schizophrenia and substance dependency. Information from these sources was harmonized and compiled, and after feedback from external experts, a data collection protocol including PSD and determinants common across these nine disorders was developed. This protocol was implemented as an interview in a cross-sectional, The PARADISE project is supported by the Coordination Theme 1 (Health) of the European Community’s FP7, Grant Agreement No. HEALTHF2- 2009-241572.