Caroline Alleaume, Angela G. E. M. de Boer, Alain Paraponaris, Sietske J. Tamminga, Nick Van Campenhout, Elke Van Hoof, Steffen Torp, Marja-Liisa Lindbohm, Linda Sharp, Department of Health, Social & Welfare Studies [Tønsberg, Norway], University of South-Eastern Norway (USN), Aix-Marseille Sciences Economiques (AMSE), École des hautes études en sciences sociales (EHESS)-Aix Marseille Université (AMU)-École Centrale de Marseille (ECM)-Centre National de la Recherche Scientifique (CNRS), Observatoire régional de la santé Provence-Alpes-Côte d'Azur [Marseille] (ORS PACA), Faculty of Psychology and Education Sciences [Brussels, Belgium], Vrije Universiteit [Brussels] (VUB), Finnish Institute of Occupational Health [Helsinki, Finland], University of Tampere [Finland], Coronel Institute of Occupational Health [Amsterdam, The Netherlands] (Academic Medical Center), Amsterdam Public Health Research Institute [The Netherlands], Sciences Economiques et Sociales de la Santé & Traitement de l'Information Médicale (SESSTIM - U1252 INSERM - Aix Marseille Univ - UMR 259 IRD), Institut de Recherche pour le Développement (IRD)-Aix Marseille Université (AMU)-Institut National de la Santé et de la Recherche Médicale (INSERM), Institute of Health & Society [Newcastle upon Tyne, UK], Newcastle University [Newcastle], Brussels Heritage Lab, Psychology, Brain, Body and Cognition, Clinical and Lifespan Psychology, Faculty of Law and Criminology, University College of Southeast Norway (USN), ORS PACA, École des hautes études en sciences sociales (EHESS)-École Centrale de Marseille (ECM)-Centre National de la Recherche Scientifique (CNRS)-Aix Marseille Université (AMU), Vrije Universiteit Brussel (VUB), National Cancer Registry Ireland (NCRIE), KOm op tegen Kanker, Flemish Cancer League (Belgium) Nordic Cancer Union (Finland) Finnish Work Environment Fund (Finland) Finnish Cancer Organisations (Finland) National Cancer Institute (Institut National du Cancer, France) Health Research Board (Ireland) Irish Cancer Society (Ireland) Prostate Cancer UK (Ireland) Health Research Board (UK) Irish Cancer Society (UK) Prostate Cancer UK (UK) Dutch Cancer Society (Netherlands) Norwegian Cancer Society (Norway), Lhuillier, Elisabeth, Coronel Institute of Occupational Health, APH - Societal Participation & Health, APH - Quality of Care, and CCA - Cancer Treatment and Quality of Life
International audience; Purpose To describe: (i) patterns of self-employment and social welfare provisions for self-employed and salaried workers in several European countries; (ii) work-related outcomes after cancer in self-employed people and to compare these with the work-related outcomes of salaried survivors within each sample; and (iii) work-related outcomes for self-employed cancer survivors across countries. Methods Data from 11 samples from seven European countries were included. All samples had cross-sectional survey data on work outcomes in self-employed and salaried cancer survivors who were working at time of diagnosis (n = 22–261 self-employed/101–1871 salaried). The samples included different cancers and assessed different outcomes at different times post-diagnosis. Results Fewer self-employed cancer survivors took time off work due to cancer compared to salaried survivors. More self-employed than salaried survivors worked post-diagnosis in almost all countries. Among those working at the time of survey, self-employed survivors had made a larger reduction in working hours compared to pre-diagnosis, but they still worked more hours per week post-diagnosis than salaried survivors. The self-employed had received less financial compensation when absent from work post-cancer, and more self-employed, than salaried, survivors reported a negative financial change due to the cancer. There were differences between self-employed and salaried survivors in physical job demands, work ability and quality-of-life but the direction and magnitude of the differences differed across countries. Conclusion Despite sample differences, self-employed survivors more often continued working during treatment and had, in general, worse financial outcomes than salaried cancer survivors. Other work-related outcomes differed in different directions across countries.