810 results on '"*PARENTS of autistic children"'
Search Results
2. Results in the Existing Literature
- Author
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Bennett, Gabriel, Goodall, Emma, Bennett, Gabriel, Series Editor, and Goodall, Emma, Series Editor
- Published
- 2024
- Full Text
- View/download PDF
3. Factors associated with the unmet needs of parents of children with autism in Qatar.
- Author
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Ekas, Naomi V., Badahbah, Abdallah, and Abdelmoneium, Azza O.
- Subjects
PARENTS of autistic children ,BASIC needs ,WELL-being ,SOCIODEMOGRAPHIC factors ,PSYCHOLOGY of parents ,AUTISTIC children - Abstract
Objective: The current study examined whether the unmet needs of parents of children with autism in Qatar predicted parent well‐being and whether sociodemographic factors and child characteristics were associated with parental unmet needs. Background: Parents of children with autism have unmet needs that may negatively impact family members. There is little research examining unmet needs outside Europe or North America. Method: Participants of this cross‐sectional, correlational study were 41 parents of a child with autism residing in Qatar. Parents completed surveys in Arabic about their sociodemographic characteristics, their unmet needs, their well‐being, social support, and their child's behavior. Results: Regression analyses were performed to test the research questions. Greater unmet needs were a significant predictor of life satisfaction. Child behavior problems were a significant predictor of unmet needs, namely the need for family support and help explaining their child's diagnosis to others. Conclusions: The findings suggest that the unmet needs of parents of children with autism are negatively associated with life satisfaction and are heightened in families where children have more behavior problems. Implications: The Qatar government developed a national plan for autism and our results underscore the need to implement programs to support families of children with autism. An important first step is to ensure that developmentally appropriate information is provided to families and to facilitate connections between families and other stakeholders (e.g., other parents and service providers) in their community. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
4. Issue Information.
- Subjects
FAMILY relations ,PARENTING ,PARENTS of autistic children - Published
- 2024
- Full Text
- View/download PDF
5. Characteristics for Medical Cannabis Treatment Adherence among Autistic Children and Their Families: A Mixed-Methods Analysis.
- Author
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David, Ayelet, Stolar, Orit, Berkovitch, Matitiahu, Kohn, Elkana, Waisman-Nitzan, Michal, Hartmann, Inbar, and Gal, Eynat
- Subjects
- *
MEDICAL marijuana , *PATIENT compliance , *AUTISTIC children , *PARENTS of autistic children , *MIXED methods research - Abstract
Introduction: Medical cannabis treatment for autistic children has recently become popular, and studies have focused on examining the treatment's effects on children's symptom presentation, reported side effects, and dropout rates. However, no previous study has investigated the factors influencing adherence and dropout rates in cannabis treatment. Method: This explanatory sequential mixed-methods study explored these factors by examining the characteristics of 87 autistic children and their families and deepening parents' perspectives and experiences of the 6-month CBD-rich cannabis treatment's benefits and barriers. Results: We found this treatment to have a high (75%) adherence rate, relatively mild side effects, and substantial reported benefits for the children and families. However, this treatment was not free of barriers; the intake regime, some side effects, and in some cases, unrealistic parental expectations made adherence difficult for some families. Conclusion: Our results highlight the importance of providing professional guidance and knowledge to parents of autistic children, enhancing their understanding of the impact of CBD-rich cannabis treatment on their children and expected related challenges, and coordinating realistic treatment expectations. We hope that addressing these important aspects will influence parents' ability to adhere to and enjoy the benefits of cannabis treatment for their autistic children. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
6. "I've grown": Parent's reflections and familial support.
- Author
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Coleman, Heather, Kozachuk, Lindsay, McDermid, Campbell, Duyile, Bisola, Mason, Hollie, Alberque, Kari, and Ozdemir, Merve
- Subjects
AUTISM in children ,AUTISM spectrum disorders ,PARENTS of autistic children ,EXTENDED families ,FAMILY support ,INDIVIDUAL development ,FAMILY relations ,FAMILY roles - Abstract
Objective: We examined the perceived familial support of parents of children with autism spectrum disorder (ASD) to better understand the assistance and gaps they experienced. Background: Previous literature indicated various forms of support, including spousal, extended family members, and siblings. However, limited research considered the support parents experienced from their child with ASD. Method: Using a qualitative methodology involving semistructured interviews, the team interviewed nine parents who had children with ASD. Results: Although most extended family members were seen as supportive, some held a lack of understanding of ASD, posed questions, or made comments that the children were "spoiled." Mothers often took on the role of "educator." The sibling(s) helped with caregiving, but also had their own life experiences to deal with. Regarding the support that the child with ASD provided, parents explained that they had grown into a better person. They were more aware of the challenges other parents faced and held less judgements of others. Conclusion: Overall, parents noted differing familial support needs based on their families' understanding of ASD. They valued the support the child with ASD provided and recognized how they had grown as a person. Implications: Practitioners must continue to learn how to better understand families' experiences and recognize that each family member has differing support roles. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
7. Characteristics of Patience in Parents with Autistic Children: A Phenomenological Study
- Author
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Ahmad Hidayat, Muhammad Azhar, Muhammad Anis, Halim Purnomo, and Rahmad Muliadi
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characteristics of patience self-control ,hardiness ,resilience ,voluntary patience ,parents of autistic children ,autism service center. ,Philosophy. Psychology. Religion - Abstract
The effectiveness of early intervention involving parents determines the success of services for children with autism. The study aims to deepen our understanding of how Muslim parents developed patience in educating, training, and teaching their autistic children. This study used phenomenology to explore the characteristics of patience in Muslim parents with autistic children in a low-income class. Respondents were four mothers who were actively caring for their children and registered with the Autism Service Center, a local autism service center in Riau Province. The findings showed the types of characteristics associated with patience. Parents with moderately autistic children are patient with self-control patterns. At the same time, the characteristics of patience in parents with severely autistic children are patience with patterns of grit, resilience, and hardiness. The overall characteristics of patience cannot be separated from the characteristics of voluntary patience, which come from the belief in Allah. The characteristics of patience contain an active patient characteristic.
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- 2023
- Full Text
- View/download PDF
8. Is it feasible to involve parents of teenagers with ASD in their language teaching? A case study in Greece.
- Author
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Kotsi, Despina and Robles, Bárbara Fernández
- Subjects
- *
PARENTS of autistic children , *GREEK language education , *SECONDARY education , *SPECIAL education teachers - Abstract
Autism spectrum disorder (ASD) as a lifelong neurodevelopmental disorder puts a significant strain on the family. During secondary education, when the brain is rewired, language learning becomes a challenge for ASD students and their parents. Using this as a foundation, this article's main objective is to know the opinions and attitudes that characterize the parents of adolescents with ASD regarding the teaching of the Greek language to their children. Through a descriptive qualitative study, with a semi-structured interview of 32 items (n=30 parents) and an in-depth analysis, this goal has been accomplished. The main conclusion that has been reached is that participants-parents applaud their own assistance in the educational process, claiming though for special education teachers' cooperation, support from the Greek State and availability of specialized staff and resources to carry out smoothly the language learning process, with the aim of optimal outcomes in the linguistic competencies for their ASD adolescents. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
9. Psychological Impact of the COVID-19 Pandemic on Children with Disabilities and Their Families.
- Author
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ELsayed, DOAA SAMY SAEID
- Subjects
CORONAVIRUS diseases ,PANDEMICS ,AUTISM spectrum disorders in children ,AUTISTIC children ,PARENTS of autistic children ,PARENT attitudes - Abstract
The current study aims to reveal the impact of the COVID-19 pandemic on children with autism spectrum disorder (ASD) in Egypt. It also focuses on the perceptions of their parents and the difficulties they faced during the pandemic. The study focused on collecting data from four to ten-year-old autistic children and their families, who frequently attended a day-care center in Cairo, Egypt. qualitative ethnographic method design was used in the study, with qualitative data collected from 20 families using semistructured interviews. The Adaptive Behavior Scale (ABAS-11) was applied and analyzed using content analysis. The findings showed the pandemic had a negative impact on the psychological and behavioral aspects of children with ASD, as well as a negative psychological impact on their families. It calls for the continued need for parents and their children for counseling, guidance, and psychological support. This negative impact on families was because of the parents' lack of knowledge of the characteristics of their child with a disability. The study concluded that it is necessary to train parents on how to deal well with their children with disabilities, an outcome of this study, the researcher launched an initiative called 'The Specialized Mother Initiative' and has invited over 50 Egyptian institutions working with children with disabilities in over 15 governorates. Its aim is to train Egyptian families on the scientific method of dealing with their children with disabilities, and in particular, children with autism. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
10. Correlation between resilience and social support in mothers of young children with autism. Polish perspective
- Author
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Aleksandra A. Buchholz
- Subjects
parents of autistic children ,coping ,psychological resilience ,support ,Medicine ,Psychology ,BF1-990 - Abstract
Background The aim of the study was to analyse the relationship between the level of resilience and the perceived social support, pri-marily emotional and instrumental varieties, among mothers of children with autistic spectrum disorder (ASD). Participants and procedure The study involved 143 individuals aged 26-51 years (M = 38.41, SD = 5.02), mothers of children with ASD. The Berlin Social Support Scales and the Resilience Scale were used as data collection tools. Results There were statistically significant positive correlations between the perceived emotional and instrumental support and all the dimensions of psychological resilience. Conclusions The results are consistent with other results presented in a similar area, but the specific context of this study should be considered – in Poland, the medical model of disability still plays a dominant role, which means that little consideration is given to the needs and problems of families raising a child with disabilities.
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- 2022
- Full Text
- View/download PDF
11. How to Raise Happy Neurofabulous Children : A Parents' Guide
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Katy Elphinstone and Katy Elphinstone
- Subjects
- Children with autism spectrum disorders, Autistic children, Parents of autistic children, Parenting
- Abstract
Parenting can be chaos, a flurry of trial and error, problem-solving, and tears (of difficulty but also of joy!). Katy Elphinstone, an autistic parent who's experienced herself the wonders and the challenges of raising two children, one of whom is autistic, has taken notes on the'do's'and'dont's'of parenting when it comes to neurodivergent children.Supportive and refreshingly direct, Katy's advice can be tailored to you and your child's needs. We know there isn't a'one size fits all'guide to parenting! There's also space to write your thoughts down and organise those tips that work for you.With advice on all the day-to-day experiences such as preparing for school, venturing out to a new place, making friends, and even posing the question,'Can screentime be a positive?', Neurofabulous is the ultimate guide that gives you everything you need to ensure that you and your child thrive.
- Published
- 2024
12. Becoming an Expert Caregiver : How Structural Flaws Shape Autism Carework and Community
- Author
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Cara A. Chiaraluce and Cara A. Chiaraluce
- Subjects
- Parents of autistic children, Autistic children, Autistic children--Care, Autism
- Abstract
“The hardest thing is dealing with the rest of the world. And we kind of accommodate our lives around that. But the rest of the world doesn't.” These poignant words were spoken by Charlotte, a mother and primary caregiver of a five-year-old autistic boy, and her words reference the structural arrangements of our world that shape autism carework today. This book features the voices of fifty primary caregivers of autistic and neurodivergent children who illuminate the process through which laywomen become expert caregivers to provide the best care for their children. Expert caregiving captures an intensification of traditional family carework – meeting dependents'financial, emotional, and physical needs – that transcends the walls of one's private home and family and challenges the strict boundaries between many worlds: lay and professional, family and work, private and public, medical and social, and individual and society. The process of becoming an expert caregiver spotlights several interesting paradoxes in sociological literature, particularly regarding gender, family, and medicalization, and often forgotten structural flaws in “the rest of the world.” Throughout the chapters in this book, the expert caregiver is one person who faces unbelievably daunting tasks of filling or reforming persistent institutional gaps, primarily in education and health care, and subverting ableist cultural norms. Without institutional support, answers to their questions, or pragmatic avenues to access resources, lay caregivers become the experts. Their trials and tribulations, especially when navigating the boundaries of professional/lay and private/public worlds, illuminate a type of carework that is increasingly relevant to a growing number of young families caring for neurodivergent, disabled, medically fragile, and/or chronically ill children. These stories offer a vivid picture of the often invisible complex challenges and structural forces that drive individuals to become expert caregivers in the first place.
- Published
- 2024
13. Magnificent Minds : The New Whole-Child Approach to Autism
- Author
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Suzanne Goh, MD and Suzanne Goh, MD
- Subjects
- Autism in children, Autistic children--Care, Parents of autistic children
- Abstract
An essential primer based on a renowned new model of care that is comprehensive and research based, while honoring the uniqueness of every childAn estimated one in thirty-six children in the United States is diagnosed with autism. New research has shed light on the many factors that determine a child's trajectory—but many parents are still navigating this complex terrain without a road map. Pediatric neurologist Dr. Suzanne Goh has spent decades working with autistic children, and in this practical and research-based guide she shares her renowned and revolutionary model of care: an innovative, whole-child approach that combines optimal medical treatment with the most effective strategies for advancing cognition, communication, and behavior.Demystifying a wide range of diagnostics and therapies and offering new insights into the neurological, biochemical, behavioral, and social factors that play a role in successful outcomes, the book is an essential resource for understanding all of autism—a strengths-based approach that helps parents design a comprehensive treatment plan. It is also a celebration of what each autistic person brings to the world—and how parents can best nurture the remarkable uniqueness of their child while setting them up for the future they envision.
- Published
- 2024
14. Parenting at the Intersections : Raising Neurodivergent Children of Color
- Author
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Jaya Ramesh, Priya Saaral, Bayo Akomolafe, Jaya Ramesh, Priya Saaral, and Bayo Akomolafe
- Subjects
- Parents of autistic children, Race awareness in children, Parenting, Parents of children with mental disabilities, Parents of exceptional children, Parents of children with attention-deficit hyperac, Parents of children with disabilities
- Abstract
'This is an invaluable, nuanced, and deeply needed guide to parenting diverse children as we move, together, toward a future in which all brains and bodies are supported—and belong.'—Jessica McCabe, How to ADHDWhat if parenting were an act of social justice? In this part story-telling, part self-inquiry book, authors and therapists Jaya Ramesh and Priya Saaral situate parenting children of color with neurodivergence within the context of various interlocking systems of oppression including settler colonialism, White supremacy, ableism, and capitalism. These intersections engender isolation and loneliness. Using the voices of parents on the front lines and other experts, Parenting at the Intersections offer an invitation to parents to slow down and reflect on their own parenting journeys.When parents can be given space to listen to their own voices, to connect with their children, and find community with others, they can find the most radical ways to disrupt systems of oppression.
- Published
- 2024
15. Parents' Experiences of How Healthcare Professionals Communicate with Autistic Children.
- Author
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Westaway, Anna
- Subjects
- *
PARENTS of autistic children , *PHYSICIAN-patient relations , *COMMUNICATION styles , *PHYSICIANS' attitudes , *MEDICAL care - Abstract
Autistic children may have increased healthcare requirements as well as a range of communication difficulties and needs. However, there are reports in the literature that their healthcare experiences are not always satisfactory. Using qualitative research methodology and content analysis, this study aimed to investigate parents' experiences of the ways in which healthcare professionals communicate and interact with autistic children and identifies the different communicative styles that parents consider to be successful or unsuccessful. Parents also describe these styles in terms of the impact that they have on children and also on parents themselves. These findings are discussed in relation to the existing literature around communication in healthcare, with recommendations for how parental experiences can be used to inform future healthcare practice for autistic children. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
16. Correlation between resilience and social support in mothers of young children with autism. Polish perspective.
- Author
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Buchholz, Aleksandra A.
- Subjects
- *
AUTISTIC children , *CHILDREN with disabilities , *CHILDREN with autism spectrum disorders , *PSYCHOLOGICAL resilience , *SOCIAL support , *AUTISM in children - Abstract
background The aim of the study was to analyse the relationship between the level of resilience and the perceived social support, primarily emotional and instrumental varieties, among mothers of children with autistic spectrum disorder (ASD). participants and procedure The study involved 143 individuals aged 26-51 years (M = 38.41, SD = 5.02), mothers of children with ASD. The Berlin Social Support Scales and the Resilience Scale were used as data collection tools. results There were statistically significant positive correlations between the perceived emotional and instrumental support and all the dimensions of psychological resilience. conclusions The results are consistent with other results presented in a similar area, but the specific context of this study should be considered -- in Poland, the medical model of disability still plays a dominant role, which means that little consideration is given to the needs and problems of families raising a child with disabilities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
17. Challenges and coping strategies of parents of children with autism on the Kenyan coast
- Author
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Gona, J K, Newton, C R, Rimba, K K, Mapenzi, R, Kihara, M, Vijver, F V, and Abubakar, A
- Published
- 2016
18. The Behavior Analyst's Guide to Working with Parents : Acceptance and Commitment Training for Effective Parental Collaboration in Treatment
- Author
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Alyssa Wilson and Alyssa Wilson
- Subjects
- Child psychotherapy--Parent participation, Autistic children--Behavior modification, Behavior therapy for children--Study and teaching, Acceptance and commitment therapy, Parents of autistic children
- Abstract
Learn powerful ACT training skills to foster parental collaboration and achieve therapeutic goals. As a board-certified behavior analyst (BCBA) working in the field, you understand how essential it is to enlist the support of parents when working with autistic children. This book offers proven-effective acceptance and commitment therapy (ACT) training skills to get parents on the same page and working with you to achieve measurable results.The Behavior Analyst's Guide to Working with Parents offers a comprehensive conceptual framework for using ACT in parent training contexts. With this clinical guide, you will find a brief overview of relational frame theory (RFT), rule governance, and how these core concepts and principles align within the ACT model. The book also provides:Empirical evidence for using ACT within parent training contextsVirtue-based ethics and specific BACB® ethical codes to considerStep-by-step processes for using ACT in parent training contextsInformed consent processes Finally, you'll find an overview of specific ACT components that highlight detailed assessment considerations and metaphor development for each component—such as present moment awareness, acceptance, flexible perspective taking, and values-based action.If you're looking for strategies to improve parental collaboration, this book has everything you need to get started.
- Published
- 2023
19. Where Do I Start? : How to Navigate the Emotional Journey of Autism Parenting
- Author
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Kate Laine-Toner and Kate Laine-Toner
- Subjects
- Autistic children, Children with autism spectrum disorders, Parents of autistic children, Child rearing
- Abstract
Recognising that your child is autistic is a pivotal moment for parents and carers. While it can lead to positives in terms of understanding behaviour and accessing support, the diagnostic process itself can be a huge source of anxiety, stress, guilt and worry.But it's going to be ok - because right here you have the ultimate guidebook to navigating the emotions and challenges that these early stages present.From weathering the initial impact of a potential diagnosis, to self-care strategies and finding new parameters for success, reading this book is like being taken by the hand and shown how to look after your own mental health while supporting your child. Each chapter is full of guidance from someone who's been where you are now, and tells you what you really need to know so you can journey from panic and uncertainty to confidence, acceptance and strength.
- Published
- 2023
20. I Will Die On This Hill : Autistic Adults, Autism Parents, and the Children Who Deserve a Better World
- Author
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Meghan Ashburn, Jules Edwards, Meghan Ashburn, and Jules Edwards
- Subjects
- Social justice, Parents of autistic children, Autistic people
- Abstract
There is a significant divide between autistic advocates and parents of autistic children. Parents may feel attacked for their lack of understanding, and autistic adults who offer insight and guidance are also met with hostility and rejection. Meghan Ashburn, a mother of two autistic boys, and Jules Edwards, an autistic parent, were no strangers to this tension and had an adversarial relationship when they first met. Over time, the two resolved their differences and are now co-conspirators in the pursuit of disability justice. This book unites both perspectives, exploring the rift between these communities and encouraging them to work towards a common goal. It provides context to dividing issues, and the authors use their experience to illustrate where they've messed up, where they've got things right, and what they've learned along the way.
- Published
- 2023
21. Parent's Quick Start Guide to Autism
- Author
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Noelle Balsamo, James W. Forgan, Noelle Balsamo, and James W. Forgan
- Subjects
- Parenting, Parents of autistic children, Autistic children--Care, Autism in children--Treatment
- Abstract
Parent's Quick Start Guide to Autism provides parents and caregivers with an immediate overview of autism spectrum disorder (ASD) and steps they can take to support and encourage their child.Each chapter is packed with detailed and helpful information, covering what to do at home and at school, how to avoid common mistakes, and how (and when) to seek professional help. Summary and resource sections at the end of each chapter give quick guidance to busy readers. Topics include occupational therapy, applied behavior analysis (ABA), cognitive behavioral therapy (CBT), interventions, and more.Offering straightforward, easy to understand, and evidence-based information, this book is a go-to resource for caregivers parenting a child with autism.
- Published
- 2022
22. Autistic Logistics, Second Edition : A Parent's Guide to Tackling Bedtime, Toilet Training, Meltdowns, Hitting, and Other Everyday Challenges
- Author
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Kate Wilde and Kate Wilde
- Subjects
- Autistic children, Child rearing, Parents of autistic children, Children with autism spectrum disorders
- Abstract
Have you ever wished there was a manual for parenting children on the autism spectrum? This book provides just that, offering clear, precise, step-by-step advice on everything you want to know, including: - How to toilet train your child without pushing or pressuring- How to get your child to sleep in their own bed and through the night- What to do when your child misbehaves/ lashes out, hits or bites- How to introduce new foods without a fightThis updated edition is based on Kate Wilde's decades of experience and the latest autism research. Tackling a wide range of common parenting milestones, the book offers tried-and-tested techniques to help you transform the challenges of home life and create harmony. Catering to all age ranges and points on the spectrum, this book will be invaluable to parents, caregivers, teachers and teaching assistants.
- Published
- 2022
23. Supporting Autistic Children at Home : A Practical Guide for Parents and Caregivers
- Author
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Dawn Connor and Dawn Connor
- Subjects
- Parents of autistic children, Autistic children
- Abstract
This practical guide offers a wealth of advice to support parents and caregivers who have an autistic child within their family. It provides accessible and straightforward information on the topics that matter most, from initial questions around diagnosis, to providing the best home support. Chapters also debunk myths commonly held about autism and signpost appropriate support mechanisms, including ideas to help with sleep, diet, sensory sensitivities, social interactions, communication, and much more. The emphasis throughout is on offering practical strategies to give much-needed, meaningful support to the child's main caregivers and other family members, in an easily digestible format.Written from the author's joint perspective as a qualified teacher with an expertise in autism, and as a grandmother of an autistic grandchild, this book is an essential guide for parents and caregivers, created by someone who understands and appreciates what it is like to walk in their shoes.
- Published
- 2022
24. Autism Abracadabra : Seven Magic Ingredients to Help Develop Your Child’s Interactive Attention Span
- Author
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Kate Wilde and Kate Wilde
- Subjects
- Games, Children with autism spectrum disorders, Parents of autistic children, Parenting
- Abstract
Don't you wish there was a'magic'formula for activities and games that...- Your loved one on the autism spectrum actually wants to participate in? - Develops their interactive attention span and socialization? There is! Designed around common special interests enjoyed by autistic people, this book includes over 180 activities for families to do together to help strengthen relationships and develop social skills. Kate shows how seven magic ingredients for optimal game-playing can be applied to a range of themes, from trains and planes to household appliances, the human body to animals and insects, TV and film characters, and what's more, how you can introduce your loved one's favorite topics. She shares'Presto Chango'beliefs - the five mindsets you need to power activities - as well as how to understand the magic of timing and knowing when to start and stop an activity based on your loved one's cues.
- Published
- 2022
25. Don't judge us' : autistic bolters' parents
- Author
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Boland, Kristie
- Published
- 2023
26. ىوتسم ةبلاصلا ةيسفتلا ىدل ءايلوأ لافطأ دحوتلا ةسارد ةيناديم زكرملاب يسفنلإ يجوغاديبلا ساسبرودق' ةيلاوب طاوغلأا
- Author
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فاصفصوب ريبورلا and بياعلا دبع رداقلا
- Subjects
- *
PARENTS of autistic children , *PSYCHOLOGICAL distress , *PSYCHOLOGICAL research , *PSYCHOLOGICAL resilience , *PSYCHOLOGICAL stress - Published
- 2022
27. How did autistic children, and their parents, experience school transition during the Covid‐19 pandemic?
- Author
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Code, Aimee, Fox, Laura, Asbury, Kathryn, and Toseeb, Umar
- Subjects
- *
EDUCATION of autistic children , *PARENTS of autistic children , *EDUCATIONAL change , *COVID-19 pandemic , *QUALITATIVE research - Abstract
Due to the Covid‐19 pandemic, the start of the academic year in September 2020 was a unique time for those transitioning to a new school. This study aimed to explore the experiences of parents who supported autistic children making a range of different school transitions in 2020. Semi‐structured interviews were carried out with 13 parents of autistic children in the UK, and data were analyzed with reflexive thematic analysis. For some parents, the Covid‐19 pandemic negatively impacted on aspects of school transitions. However, other parents expressed the view that these same circumstances created opportunities to approach the school transition in a unique, improved manner. This article sheds light on the heterogeneity of experiences and perceptions of parents of autistic children, and highlights the need to examine the impact of Covid‐19 on school transitions, including practices that it may be advantageous to retain. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
28. Coaching Parents of Young Children with Autism : Promoting Connection, Communication, and Learning
- Author
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Sally J. Rogers, Laurie A. Vismara, Geraldine Dawson, Sally J. Rogers, Laurie A. Vismara, and Geraldine Dawson
- Subjects
- Parents of autistic children, Autism in children
- Abstract
A growing body of evidence supports the benefits of high-quality parent interventions for building social and communication skills in 0- to 5-year-olds with autism spectrum disorder (ASD). How can clinicians coach parents to effectively incorporate learning opportunities into daily routines at home? From preeminent experts, this practical book explores the role of the coach and reviews the'whats,''whys,'and'how-tos'of successful collaboration with parents. Topics include structuring coaching sessions, identifying children's needs, facilitating playful engagement, and deepening parents'understanding of how they can boost skills development during everyday activities. Seventeen reproducible handouts and forms include the multipage P-ESDM Infant–Toddler Curriculum Checklist, ideal for use in telehealth assessments. Purchasers get access to a webpage where they can download and print the reproducible materials in a convenient 8 1/2'x 11'size.
- Published
- 2021
29. Sincerely, Your Autistic Child : What People on the Autism Spectrum Wish Their Parents Knew About Growing Up, Acceptance, and Identity
- Author
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Autistic Women and Nonbinary Network, Emily Paige Ballou, Sharon daVanport, Autistic Women and Nonbinary Network, Emily Paige Ballou, and Sharon daVanport
- Subjects
- Parents of autistic children, Autistic children, Autism spectrum disorders, Friendship in children
- Abstract
A diverse collection of autistic voices that highlights how parents can avoid common mistakes and misconceptions, and make their child feel truly accepted, valued, and celebrated for who they are.Most resources available for parents come from psychologists, educators, and doctors, offering parents a narrow and technical approach to autism. Sincerely, Your Autistic Child represents an authentic resource for parents written by autistic people themselves.From childhood and education to culture, gender identity, and sexuality, this anthology tackles the everyday joys and challenges of growing up while honestly addressing the emotional needs, sensitivity, and vibrancy of autistic kids, youth, and young adults. Contributors reflect on what they have learned while growing up on the autism spectrum and how parents can avoid common mistakes and overcome challenges while raising their child.Part memoir, part guide, and part love letter, Sincerely, Your Autistic Child is an indispensable collection that invites parents and allies into the unique and often unheard experiences of autistic children and teens.
- Published
- 2021
30. Turn Autism Around : An Action Guide for Parents of Young Children with Early Signs of Autism
- Author
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Mary Lynch Barbera, Ph.D and Mary Lynch Barbera, Ph.D
- Subjects
- Behavioral assessment of children, Behavior therapy for children, Verbal behavior, Autistic children--Care, Parents of autistic children
- Abstract
This is the first book of its kind that calls attention to an important fact: parents can make a tremendous impact on their child through behavioral practices taught at home. Dr. Barbera has created a tool kit that any parent can use to help remediate--and in some cases eliminate-some symptoms of autism and other developmental delays in young children, even in as little as 15 minutes a day.Developmental delays and signs of autism usually show up before 18 months of age, yet children are often not diagnosed until they are 4 or 5 years old. In Turn Autism Around, Dr. Mary Barbera explains why parents can't afford to worry and wait in long lines for evaluations and treatment while not knowing how to help their children. She empowers parents, caregivers, and early intervention professionals to regain hope and take back control with simple strategies to dramatically improve outcomes for their children.Dr. Barbera has created a new approach to teaching kids with developmental delays that uses the science of Applied Behavior Analysis (ABA) married with a positive, child-friendly methodology that any parent can use--whether or not their child has delays--to learn to teach communication skills, socialization strategies, as well as tackle sleep, eating, potty training, and behavior challenges in a positive, effective, and lasting way. Turn Autism Around is the first book of its kind that calls attention to an important fact: parents can make a tremendous impact on their child's development through behavioral practices taught at home, even in as little as 15 minutes a day. Her program shows these autism and developmental delays can be remediated, and in some cases, delays can be caught up altogether, if parents intervene while the child is young. This book is for parents of young children aged one-to-five years who are passionate about helping their child as well as learning how they can change the trajectory of their child's and family's life.
- Published
- 2021
31. Visualising 'Unacceptable' lives?: The moving story of 'Hikari to tomo ni' [With the light: raising an autistic child] (2001-2010)
- Author
-
Bryce, Mio, Matthews, Nicole, and Takeyama, Yuki
- Published
- 2014
32. Teaching the skill of speaking to an autistic learner: A case study
- Author
-
Krzysztof Polok and Magdalena Sadlik
- Subjects
SEN ,autism spectrum disorders ,English language teaching/learning ,interactive methods ,Asperger’s Syndrome ,parents of autistic children ,Language. Linguistic theory. Comparative grammar ,P101-410 - Abstract
This paper reports the findings of research that the author conducted in order to investigate the development of English communication skills in learners with autistic spectrum disorders. Information and background about the issue is followed by a brief analysis of theory as presented in the literature. In the first part of the paper, the authors examine the relationship between appropriate therapy, understanding the disorder, using specific teaching methods, and the effective learning of communication skills in English. As shown in the literature, learning a language can bring therapeutic benefits and the use of particular teaching techniques has great effects on the development of English communication skills in autistic children. Furthermore, the subsequent part of the paper presents the results of the author's work with a student suffering from Asperger's syndrome. The paper ends with conclusions drawn as a result of the case study.
- Published
- 2022
- Full Text
- View/download PDF
33. We Walk : Life with Severe Autism
- Author
-
Amy S. F. Lutz and Amy S. F. Lutz
- Subjects
- Autism--Social aspects, Autistic people--Family relationships, Parents of autistic children
- Abstract
In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience—the positive and the negative—as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly—and humanly—examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the'quirky geniuses'featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.
- Published
- 2020
34. What Science Tells Us About Autism Spectrum Disorder : Making the Right Choices for Your Child
- Author
-
Raphael A. Bernier, Geraldine Dawson, Joel T. Nigg, Raphael A. Bernier, Geraldine Dawson, and Joel T. Nigg
- Subjects
- Parents of autistic children, Children with autism spectrum disorders
- Abstract
What have scientists learned about the causes of autism spectrum disorder? Why do different kids have such different symptoms, and what are the best ways to deal with them? Will there ever be a cure? From leading autism researchers, this accessible guide helps you put the latest advances to work for your unique child. Separating fact from fiction about causes, treatments, and prevention, the book guides you to make lifestyle choices that support the developing brain. From the impact of sleep, exercise, diet, and technology, to which type of professional help might be the right fit, the authors cover it all with expertise and compassion. Learn about the choices you face--and the steps you can take--to build a happier, healthier life for your child and family. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category
- Published
- 2020
35. Travelling by Train : The Journey of an Autistic Mother
- Author
-
Laurie Morgen and Laurie Morgen
- Subjects
- Autistic children--Family relationships, Autistic people--Personal narratives, Parents of autistic children
- Abstract
A mother's fight for her children. Behind clinical approaches to autism are real human beings with real lives. This is just one of them. Written by an autistic parent, this book looks at the situation they faced when playing a game where nobody told them the rules. What would you do when faced with such circumstances? What would you do to fight a system that assumes guilt until innocence can be proved? How would you fight for your children's right to a family life when your approach to life is to simply tell the truth? This is a story of resilience and determination in the face of great odds, driven by a mother's love for her children.
- Published
- 2020
36. Launching Your Autistic Youth to Successful Adulthood : Everything You Need to Know About Promoting Independence and Planning for the Future
- Author
-
Katharina Manassis and Katharina Manassis
- Subjects
- Autistic children, Parents of autistic children
- Abstract
The transition from high school to adulthood is one of the most challenging times for young people on the autism spectrum. What will happen when all their familiar teachers, educational assistants and friends disappear after graduation? Who will replace them in the adult world? How will they manage this drastic change? Drawing on her experiences as the mother of a child on the autism spectrum and a child psychiatrist, Katharina Manassis shares common transition-related challenges and offers real solutions for each. The book helps parents and teens plan for every stage of the journey. The book includes discussion of what a successful transition means and how to set realistic goals. It explores specific aspects of the transition such as employment, independence and social life, and looks at how to address long-term concerns such as living arrangements and financial support.
- Published
- 2020
37. Parents' Perceptions Regarding the Effectiveness of Dental Desensitization for Children with Autism Spectrum Disorder.
- Author
-
Julie Cai, Habib, Dora, Bedos, Christophe, and Ferraz dos Santos, Beatriz
- Subjects
- *
CHILDREN with autism spectrum disorders , *DESENSITIZATION (Psychotherapy) , *PARENTS of autistic children , *PEDIATRIC dentistry , *ORAL health - Abstract
Purpose: Desensitization is o behavior guidance technique that has been used to help improve behavior and capacity to receive dental core in patients with outism spectrum disorder (ASD). The purpose of this study was to elicit porentf perspectives regarding the effectiveness, beneDts, and barriers associated with desensitization. Methods: A qualitative descriptive approach was used. Participants included parents of children with ASD who received regular dental core in o pediatric hospital. Doto were collected through individual in-depth semi-structured interviews. All interviews were audio-recorded to be tronscribed verbatim and analyzed using a thematic approach. Results: Thirteen parents were interviewed. The Dndings indicate that desensitizotion improved childreris dental core experience, os the repetition of appointments allowed them to develop familiarity in the clinical setting, reduced their stress ond anxiety, and consequently treatment acceptance. However, parents described certain barriers to desensitization, including the organization and burden of frequent appointments and structural and flnancial issues. os the cost associated with desensitization visits was not covered by Medicare/Medicaid. Conclusion: Desensitization is seen by parents as on important avenue for improving dental encounters for children with outism spectrum disorder. [ABSTRACT FROM AUTHOR]
- Published
- 2022
38. Teaching the skill of speaking to an autistic learner: A case study.
- Author
-
Polok, Krzysztof and Sadlik, Magdalena
- Subjects
ENGLISH language ,COMMUNICATIVE competence ,ASPERGER'S syndrome ,AUTISM spectrum disorders ,QUESTIONNAIRES - Abstract
Copyright of Językoznawstwo is the property of Akademii Humanistyczno-Ekonomicznej and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2022
- Full Text
- View/download PDF
39. Development of Autism Support Groups in Sikh Community of Canada- Case Studies.
- Author
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Pasricha, Mehak, Gupta, Mahima, and Bhandari, Meena
- Subjects
AUTISTIC children ,PARENTS of autistic children ,CHILDREN with autism spectrum disorders ,IMMIGRANTS ,SIKHS ,COMMUNITY support - Abstract
Introduction- This paper is an attempt to understand the struggles and challenges of Sikh parents who migrated to Canada and are raising their autistic child. The researcher tried to understand and find how difficult it was for parents personally and socially. What kind of and how much help from the community support systems was available to such parents. Methods- The researcher went through all the available online platforms where these parents have made their existence visible to the world, be it YouTube, Twitter, Facebook, Instagram handles and established autism support groups of Canada. Secondary research of Canadian medical websites and Canada National Public Health Services was also taken up. Findings- It has been found that though the number of Sikh migrants in Canada is quite high and the community has a very powerful existence there, all this has not led to the development of strong community support systems to help autistic children or their parents. Infact, within the community, the disability is treated like a taboo which makes communication among the community members more difficult. The diagnosis, in fact, becomes a reason for shame and guilt for parents. However, some parents are not only raising their autistic children well but are also embarking on a journey to create a strong community support system, to help children with autism and their parents. They are not only creating awareness but an acceptance for autism. Conclusion- Community Support Systems are a big help and they should be created by the community members. Disability should not be treated as a taboo. Community members have to come together to help each other. Community support systems are in fact a ready available source of help, security, health and mental peace. [ABSTRACT FROM AUTHOR]
- Published
- 2022
40. Seeing Autism Through Parents’ Feedback, Sketchnotes, Technology, and Evidence-based Practices
- Author
-
Demetria Ennis-Cole and Demetria Ennis-Cole
- Subjects
- Parents of autistic children, Autism spectrum disorders in children, Autistic children
- Abstract
Seeing Autism is a comprehensive but easy-to-understand guidebook for caretakers, parents, educators, counselors, therapists, and researchers on various aspects of rearing and supporting children with autism spectrum disorder. It provides textual and visual information on technology tools, symptoms, diagnosis, auditory, sensory, visual, physical, and educational issues, as well as strategies and practices to help children on the Autism Spectrum reach their potential. Seeing Autism uniquely capitalizes on sketchnotes, a visual thinking tool, to communicate information and practices. Sketchnotes provide a unique space that can help the reader think differently, generate a variety of ideas, explore alternatives, and develop constructive points for expressing ideas and developing visual communication aids. This book will assist parents, educators, and professionals in schools (counselors, school psychologists, librarians) who work with childrendiagnosed with ASD; it will help readers increase their knowledge of autism and gain an appreciation for evidence-based practices and forms of technology that can be used to support learners on the autism spectrum. “This book is a call to arms and is as much a resource for the family friend as it is for the provider coming to the home. In the book Seeing Autism, Dr. Demetria Ennis-Cole helps individuals gain an incredible perspective and learn the struggles, challenges and joys of families rearing children, teens and adults on the spectrum. This book covers the entire spectrum and is a fantastic mix of research, parent perspective, and even sketchnotes for visual learners. The material is well-balanced and is a great resource to support individuals on the spectrum at home, in the community or in the classroom.'Brad McGarryFather, Speaker, Author and Director of the Autism Initiative at Mercyhurst University
- Published
- 2019
41. The Little Book of Autism FAQs : How to Talk with Your Child About Their Diagnosis and Other Conversations
- Author
-
Davida Hartman and Davida Hartman
- Subjects
- Parents of autistic children, Autistic children--Family relationships, Autism in children, Children
- Abstract
Empowering and practical, this guide is the perfect companion for parents who are finding it difficult to tell their children about their autism diagnosis. It provides a realistic yet uplifting approach to autism, treating it not as a disability but as a difference.Not telling children about their autism diagnosis can have a significant negative impact on their mental health; by equipping parents with a language of positivity around autism, the book will make a difference to many children on the spectrum. It advises on how and when to talk to autistic children with both high and low care needs, and provides guidance on supporting children's relationships with peers at school, as well as how to broach the conversation with the child's siblings.Concise and easy to read, The Little Book of Autism FAQs answers parents'questions with accessible language, preparing them to approach this difficult conversation in a constructive manner.
- Published
- 2019
42. Parenting Like a Ninja : An Autism Mom's Guide to Professional Productivity
- Author
-
Faith Clarke and Faith Clarke
- Subjects
- Parenting, Parents of autistic children, Autistic children, Mothers of autistic children
- Abstract
Parenting Like a Ninja is an authentic discussion of the complexity faced by working autism moms, with clear steps to increase energy and productivity in all areas of work and life. As a mommy of a child with autism, the daily reality of food wars, tantrums, a steady variety of body fluids, erratic non-sleep, and the revolving door of therapists is just exhausting. Autism moms keep it together, but sometimes, they just want the relentless pace of chaotic activity to stop so they can figure out the rest of their life, move ahead with their professional dreams, and just be more productive. In Parenting Like a Ninja, Faith Clarke walks moms through well-established principles of psychological well-being and thriving to create balance and energize their professional productivity, so they can build more of what they have been looking for professionally, all while being able to nurture their child's well-being.
- Published
- 2019
43. Saving My Sons : A Journey with Autism
- Author
-
Ilana Gerschlowitz, Marion Scher, Ilana Gerschlowitz, and Marion Scher
- Subjects
- Autism in children, Autistic people--Family relationships, Autistic children--Biography, Parents of autistic children
- Abstract
Ilana and Martin Gerschlowitz were an ordinary South African couple – young, newly married with bright, promising futures – that is, before autism came knocking on their door. Saving My Sons tells of a journey few parents would ever want to encounter. Unwilling to accept the hopelessness of an autism prognosis, the couple set out to rescue their son from the fortress that kept him from them. Never giving up, Ilana spent every waking moment researching the illness until she found answers. Subsequently, drawing from international experts, she has gone on to help countless children facing learning challenges. When autism struck again, threatening another son's future, their mission became clear. This was not a fight they were prepared to lose. You can't read this book and remain untouched by the tenacity of a mother fighting to give her children their best lives, achieving the impossible and beyond.
- Published
- 2019
44. MMR uptake in Somerset following the 2009 national catch-up campaign : factors affecting parents' decisions to accept or decline immunisation
- Author
-
Yates, Julie F., Shepherd, Ashley, and Malcolm, Cari
- Subjects
614.5 ,MMR ,Immunisation ,Uptake ,Decision making ,Attitudes ,Perceptions ,Parents ,Risk ,Autism ,Responsibility ,Vaccination of infants ,Combined vaccines ,Combined vaccines--England--Public opinion ,Parents of autistic children - Abstract
Introduction and Background: Measles, mumps and rubella (MMR) are infectious diseases, primarily of childhood, which cause significant mortality and morbidity globally. These infections are, however, vaccine preventable and there is potential for them to be eradicated worldwide through the strategic use of organised population immunisation programmes. Following the introduction of the MMR vaccination in the UK in 1988, uptake was initially good and a high level of population vaccination coverage was achieved. This was sustained until 1998 when a study by Dr Wakefield and colleagues was published in the Lancet suggesting the theoretical possibility of an association between MMR and Autism/bowel disease. Intense media coverage followed, uptake of MMR vaccine fell to less than 80% in Somerset, and community outbreaks of measles, which had almost been eliminated in the UK, began to reappear. The Wakefield study was subsequently discredited and was eventually retracted by the Lancet in 2010. In August 2008 the Chief Medical Officer announced a national MMR catch-up campaign, targeting all children between the age of 13 months and 18 years who had either not been vaccinated against measles, mumps and rubella, or had only partial immunisation. These children were invited again for vaccination and the campaign was completed in January 2009. This study was undertaken to explore, in depth, the quantitative data available in respect of the uptake of MMR at the time of the 2009 campaign, and also to provide new qualitative data in relation to the attitudes, beliefs and experience of MMR and immunisation services of parents who continued to decline MMR for their children after the 2009 campaign, in order to identify factors which affected parental decision-making, add to the wider knowledge base, and to use this knowledge to improve the future development of immunisation services in Somerset. Methods: The overall objective of the study was to investigate a number of social, demographic and geographic characteristics of parents and children associated with MMR uptake, to compare these characteristics within and between defined sub-sets of the Somerset population, and to explore the basis on which parents in Somerset make decisions in relation to MMR immunisation. The study design adopted was a ‘mixed methods’ approach comprising of a cross-sectional design with three sequential phases - an exploration of baseline epidemiological data; a survey conducted with parents of children who remained unimmunised after 2009; and finally, semi-structured interviews with a sub-set of these parents. Results: The key findings from the study are: Parents who decline MMR for their children are not a homogenous group, but consist of a number of sub-groups each of which have different motives, decision pathways and predicted outcomes in relation to potential to change their mind and accept MMR There are differences in geographic distribution between the two age groups investigated Whilst the ‘Wakefield’ study did, and still does have, an impact, it is not the only or most important factor in their continuing decision-making. There is evidence that health professionals have a key role in addressing parental concerns in respect of immunisation. GP practice was the most significant factor associated with uptake in the Phase 1 study, and this was further confirmed in interviews with parents. Parents make decisions through engagement, through communicating and relating to others and this offers a potential mechanism for health professionals to influence decisions through open engagement with parents. Discussion and Conclusions: Three parent sub-groups were identified (Single Vaccines; Medical Comorbidities and Natural Health). These sub-groups were further investigated and factors associated with the decision-making pathways of each group were identified. This resulted in the development of the ‘MMR Parent Engagement Framework’ as a tool for use by professionals in planning their interactions with parents to improve and encourage more open dialogue in order to positively influence parental decision-making in relation to accepting MMR or other vaccinations. From a commissioning perspective, embedding frameworks such as this in service specifications offers a more cost-effective approach to improving immunisation uptake than funding large, poorly targeted catch-up campaigns. It is therefore recommended that further research is undertaken to provide evidence of the effectiveness of the approach in practice, and to inform future commissioning decisions. Additional recommendations to improve the effectiveness and delivery of immunisation services are also made in respect of GP Practice specific factors, independent schools, ethnic minority communities, vaccine overload, media, and data validation. The study has already directly influenced changes in current practice at both a local and a national level.
- Published
- 2015
45. Coping Strategies For Parents Of Children With Autism - A proposed Family Counseling Program Model -.
- Abstract
The study aims to identify the extent to which a proposed family counseling program contributes to developing coping strategies for parents with their autistic children, assessing their skills in interacting with their children, and studying their differences on the scale of coping. Follow the experimental approach that targeted: (15) father and mother of an autistic child, whose children range in age (4-10 years), registered in the psycho-pedagogical center for mentally handicapped children in Oran. A standardized coping strategies scale (CISS) was used on the Algerian environment (CRASC 2006), and its dimensions and paragraphs were re-modified by the researcher. In addition, an instructional program was built that measures parents' treatment of their autistic children, consisting of (15) counseling sessions. The results of the study reported an increase in the level of parents 'skills in dealing with their children and showed their positive appreciation, and their scores increased on the scale used in the post application, by employing the positive strategies of: (changing the position, solving the problem, cognitive reconstruction of the situation), and they showed acceptance of their children's unifying behavior. [ABSTRACT FROM AUTHOR]
- Published
- 2021
46. Fifteen Things They Forgot to Tell You About Autism : The Stuff That Transformed My Life As an Autism Parent
- Author
-
Debby Elley and Debby Elley
- Subjects
- Autism in children, Parents of autistic children
- Abstract
Alec and Bobby are twins with autism, but nobody could ever say they are the same. Here, their mum gives a down-to-earth account of their family life, proving that autism is not one-size-fits-all. This honest and funny book shares experience and advice, and most of all, it celebrates family life that touches on all points of the autism spectrum.
- Published
- 2018
47. Coming Home to Autism : A Room-by-Room Approach to Supporting Your Child at Home After ASD Diagnosis
- Author
-
Tara Leniston, Rhian Grounds, Tara Leniston, and Rhian Grounds
- Subjects
- Child rearing, Children with autism spectrum disorders--Home care, Parents of autistic children
- Abstract
This friendly book offers a blueprint for family life with autism by using rooms inthe home to represent key developmental areas. There are ideas and routines totry at home, including advice on toilet training, diet and nutrition, sensory play,and much more, and you can dip in and out of chapters as you need information.
- Published
- 2018
48. A Guide to Programs for Parenting Children with Autism Spectrum Disorder, Intellectual Disabilities or Developmental Disabilities : Evidence-Based Guidance for Professionals
- Author
-
John R. Lutzker, Katelyn M. Guastaferro, John R. Lutzker, and Katelyn M. Guastaferro
- Subjects
- Parents of autistic children, Autistic children--Care
- Abstract
This book provides a comprehensive outline of the major parent training programs for parents of children with intellectual or developmental disabilities (IDD), including Autism Spectrum Disorder.Parents or primary caregivers spend the most time with a child, and training them in behaviour management and intervention strategies is critical to improving a child's behaviour, to helping them to learn new skills, and to reduce parental stress. Authored by eminent specialists in the field and written for researchers and clinicians supporting or treating families, each chapter focuses on one of the key evidence-based parent training programs - from Incredible Years® and Positive Family Intervention through to Pivotal Response Treatment and Acceptance and Commitment Therapy. Each chapter provides a breakdown that features an introduction to the model, evidence for the model, a full description of the model, a discussion of implementation and dissemination efforts, and concluding comments. Grounded in research, this definitive overview provides the evidence and guidance required for anyone considering investing in or running a parenting program.
- Published
- 2018
49. Caring for Autism : Practical Advice From a Parent and Physician
- Author
-
Michael A. Ellis DO and Michael A. Ellis DO
- Subjects
- Autism in children, Autistic children--Care, Parents of autistic children
- Abstract
When a professional states,'Your child has Autism Spectrum Disorder (ASD)', it is enough to make your whole world fall apart. What does it mean to be on the autism spectrum? How will this affect your child's life, your life, the life of your family, and others you interact with? What sorts of medications, therapies, and alternative methods are used to help manage the disorder? What are the financial and legal ramifications? How will this affect schooling, your spiritual growth, and everyday life? These are just a few of the questions that will rapidly cross your mind. Caring for Autism: Practical Advice from a Parent and Physician delves into all these questions and more. As the father of a daughter with ASD and as a trained psychiatrist who specializes in ASD, Dr. Michael A. Ellis provides a holistic view of what comes after diagnosis. In user-friendly tones, he answers the most commonly asked questions about what it's actually like to live with ASD, what medications and therapies are available, and the global impact it has on the child's environment. With the help of his wife, Lori Layton Ellis, to provide a mother's perspective, Dr. Ellis shares personal stories of their 10-year journey in order to provide insight and support for anyone - patient, parent, caregiver - traversing the difficulties of autism.
- Published
- 2018
50. Handbook of Parent-Implemented Interventions for Very Young Children with Autism
- Author
-
Michael Siller, Lindee Morgan, Michael Siller, and Lindee Morgan
- Subjects
- Autism spectrum disorders--Treatment, Autism in children--Treatment, Parents of autistic children
- Abstract
This handbook offers practical strategies and evidence-based parent-implemented interventions for very young children with autism spectrum disorder (ASD). It explores this important subject within the context of rapidly increasing numbers of toddlers who are diagnosed with ASD during the second year of life. The handbook discusses how parents of young children with ASD can effectively be supported, taught, and coached to implement evidence-based parenting strategies and intervention techniques, and describes a broad range of developmentally appropriate programs at the family, community, and service delivery levels. In addition, the handbook examines individual differences in parenting cognitions, emotions, and practices and proposes strategies for supporting the varying capacities of diverse families to meet the needs of young children with ASD. Chapters provide diverse coverage, spanning cultural/socio-economic differences as well as differences in family structure; parenting cognitions, emotions, and practices; parental learning styles; and access to social support. Featured topics include: Supporting families of high-risk infants who have an older sibling with ASD.The use of video feedback strategies in parent-mediated early ASD intervention. The Incredible Years (IY) Parent Program for preschool children with ASD and language delays. Self-help for parents of children with ASD. The Family Implemented TEACCH for Toddlers (FITT) support model. Parent-implemented interventions for underserved families in Taiwan. Family and provider-based interventions in South Asia. The Handbook of Parent-Implemented Interventions for Very Young Children with Autism is a must-have resource for researchers, clinicians/professionals, and graduate students in clinical child, school, anddevelopmental psychology, family studies, behavioral therapy, and social work as well as rehabilitation medicine/therapy, child and adolescent psychiatry, pediatrics, and special education/educational psychology.
- Published
- 2018
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