401. Maternal stress and coping when a child is fed enterally
- Author
-
Baack, Cathryn J.
- Subjects
- Health Sciences, Nursing, home enteral nutrition, stress and coping
- Abstract
While there is extensive literature on parental stress associated with parenting a child with special health needs, few researchers have looked specifically at the stress associated with parenting a child fed enterally. The purpose of this study was to explore the stressors experienced by mothers of children who were being fed enterally and the coping strategies and resources available to them by employing an exploratory/descriptive design. Data were obtained during face-to-face interviews, or interviews conducted via mail, employing a list of open-ended questions about caring for an infant/child who is fed enterally and a demographic questionnaire filled out by the mothers. A convenient sample of 40 mothers of children who were being fed enterally was recruited for the study. Through content analysis of the data from this sample of mothers, the negative and positive aspects of home enteral nutrition (HEN) and the stressors and coping strategies were delineated. Mothers identified several important stressors. These included the social stigma associated with HEN, managing the equipment, negative emotions associated with the process, and physical problems. Mothers did perceive that their children were now able to receive appropriate nutrition and thus, sustain physical growth and development. Coping strategies identified by the mothers included: seeking social support, seeking assistance from health professionals, being flexible with the child’s HEN schedule, and taking the time to care for themselves. The stressors and coping strategies faced by mothers of children on HEN are multidimensional and encompass social and psychological components. By identifying the specific areas of stress that mothers of children on HEN deal with on a daily basis, nurses and other professionals can develop interventions that help to decrease the effect of the negative stressors. A better understanding of the ways mothers cope with these stressors allows for more accurate evaluations of these interventions. Appropriate interventions that lessen stress and allow for better coping will create the best possible environment for the feeding process to occur. This ultimately benefits the child by making the feeding process more pleasurable for both mother and child.
- Published
- 2006