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153. Co-production Methods in Health Research

Author

Astell, Arlene J., Fels, Deborah I., Chen, Sheying, Series Editor, Powell, Jason L., Series Editor, Sixsmith, Andrew, editor, Sixsmith, Judith, editor, Mihailidis, Alex, editor, and Fang, Mei Lan, editor

Published
2021
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155. Knowledge Mobilization for an Engaged Researcher

Author

Gontcharov, Igor, Kobayashi, Karen, Grenier, Amanda, Chen, Sheying, Series Editor, Powell, Jason L., Series Editor, Sixsmith, Andrew, editor, Sixsmith, Judith, editor, Mihailidis, Alex, editor, and Fang, Mei Lan, editor

Published
2021
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165. Co-production methods in health research

Author

Deborah I. Fels, Arlene Astell, Sixsmith, Andrew, Sixsmith, Judith, Mihailidis, Alex, and Fang, Mei Lan

Subjects
Service (business), Knowledge management, Health innovation, business.industry, media_common.quotation_subject, Participatory design, Production (economics), Business, Creativity, Productivity, media_common, Interactive Learning, User-centered design
Abstract

Successful health innovation requires more than the creation of a new treatment, service, or technology. It also involves gaining an understanding of the needs of the intended recipients or users of the innovation and the environment in which the innovation is going to be introduced. Innovating with the intended users or recipi- ents of new health products is crucial for maximizing the chances of adoption and uptake of new ideas and technologies. Such co-production requires careful planning and facilitation to ensure productive partnerships and involvement of all parties affected by the health innovation. This chapter contains key ideas to help research- ers co-produce health innovations with intended recipients or users of new products or services:\ud • Prerequisites for co-production.\ud • Determining appropriate user-centered methods.\ud • Collecting and analyzing the data.\ud • Integrating results into design.

Published
2021

166. Exploring traditional end-of-life beliefs, values, expectations, and practices among Chinese women living in England: Informing culturally safe care.

Author

Fang ML, Malcoe LH, Sixsmith J, Wong LY, and Callender M

Subjects
Acculturation, Adult, China ethnology, Communication Barriers, Culturally Competent Care methods, England, Family psychology, Female, Gender Identity, Humans, Interviews as Topic, Language, Middle Aged, Qualitative Research, Spirituality, Terminal Care standards, Attitude to Death ethnology, Attitude to Health ethnology, Culturally Competent Care standards, Family ethnology, Home Care Services statistics & numerical data, Terminal Care psychology
Abstract

Objective: This study explores the end-of-life (EoL) beliefs, values, practices, and expectations of a select group of harder-to-reach Chinese women living in England., Method: A cultural safety approach was undertaken to interpret 11 in-depth, semistructured interviews. Interviews were conducted in Mandarin and Cantonese. Transcripts were translated and back-translated by two researchers. Findings were analyzed using the technical analytical principles of grounded theory., Results: The key themes generated from our analysis include: acculturation; differential beliefs and norms in providing care: family versus health services; language and communication; Eastern versus Western spiritual practices and beliefs; and dying, death, and the hereafter., Significance of Results: End-of-life discussions can be part of an arduous, painful, and uncomfortable process, particularly for migrants living on the margins of society in a new cultural setting. For some Chinese people living in the United Kingdom, end-of-life care requires attention to acculturation, particularly Western versus Eastern beliefs on religion, spirituality, burial practices, and provision of care, and the availability of culturally specific care, all of which encompass issues related to gender. Stories of a purposive sample of Chinese women were viewed through a cultural safety lens to gain a deeper understanding of how social and cultural norms and expectations, in addition to the pressures of acculturation, impact gendered roles and responsibilities. The analysis revealed variations between/within Eastern and Western culture that resulted in pronounced, and oftentimes gendered, differences in EoL care expectations.

Published
2015
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