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102. Choosing Wisely Italy: online survey on opinions and behaviors of 1006 people and 355 volunteers of healthcare advocacy associations.

Author

Mosconi, Paola, Roberto, Anna, Braga, Franca, Napoli, Lucia, Anelli, Marco, and Colombo, Cinzia

Subjects
*SUBSTANCE abuse, *PUBLIC opinion, *ATTITUDE (Psychology), *CITIZENSHIP, *INTERNET, *PHYSICIAN-patient relations, *PROFESSIONAL associations, *RISK assessment, *SURVEYS, *THERAPEUTICS, *WORLD Wide Web, *EMAIL, *DECISION making in clinical medicine, *SOCIOECONOMIC factors, *ECONOMICS
Abstract

Background In the framework of ' Doing more does not mean doing better - Choosing Wisely Italy ' health professionals, general population and healthcare advocacy associations are widely involved. PartecipaSalute-Mario Negri IRCCS and Altronconsumo organized a survey in order to assess the opinions and behaviors of people toward unnecessary tests and drugs. Methods An online survey was distributed by Altroconsumo to a voluntary panel of 6304 Italian citizens covering the whole of the country and by PartecipaSalute-Mario Negri IRCCS through the PartecipaSalute website, e-mail lists, website articles, lay journals and Facebook. Results In all 1006 people reached by Altroconsumo, and 355 volunteers of healthcare advocacy associations reached by PartecipaSalute responded. Respondents usually decides on their treatment together with the physician, respectively 50% for general population and 64% for volunteers of healthcare advocacy associations. The respondents are aware of the question of over-use of drugs and tests (80%), more often among the volunteers of healthcare advocacy associations (86%). Over-use is considered a problem mostly for economic reasons among the general population, while in the advocacy associations the risks for patients' health is considered more important. Conclusion These findings suggest that patients do not always ask for more, especially if they receive an answer to their questions and clarifications about unnecessary treatments. There is a need for further understanding of the factors influencing decision-making aimed at achieving good care. Engaging the public and patients at all levels of healthcare is essential for a valuable use of health resources. [ABSTRACT FROM AUTHOR]

Published
2019
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103. A European multi-language initiative to make the general population aware of independent clinical research: the European Communication on Research Awareness Need project

Author

Mosconi, Paola, Antes, Gerd, Barbareschi, Giorgio, Burls, Amanda, Demotes-Mainard, Jacques, Chalmers, Iain, Colombo, Cinzia, Garattini, Silvio, Gluud, Christian, Gyte, Gill, Mcllwain, Catherine, Penfold, Matt, Post, Nils, Satolli, Roberto, Valetto, Maria Rosa, West, Brian, Wolff, Stephanie, Mosconi, Paola, Antes, Gerd, Barbareschi, Giorgio, Burls, Amanda, Demotes-Mainard, Jacques, Chalmers, Iain, Colombo, Cinzia, Garattini, Silvio, Gluud, Christian, Gyte, Gill, Mcllwain, Catherine, Penfold, Matt, Post, Nils, Satolli, Roberto, Valetto, Maria Rosa, West, Brian, and Wolff, Stephanie

Abstract

Background: The ECRAN (European Communication on Research Awareness Needs) project was initiated in 2012, with support from the European Commission, to improve public knowledge about the importance of independent, multinational, clinical trials in Europe. Methods: Participants in the ECRAN consortium included clinicians and methodologists directly involved in clinical trials; researchers working in partnership with the public and patients; representatives of patients; and experts in science communication. We searched for, and evaluated, relevant existing materials and developed additional materials and tools, making them freely available under a Creative Commons licence. Results: The principal communication materials developed were: 1. A website (http://ecranproject.eu) in six languages, including a Media centre section to help journalists to disseminate information about the ECRAN project 2. An animated film about clinical trials, dubbed in the 23 official languages of the European Community, and an interactive tutorial 3. An inventory of resources, available in 23 languages, searchable by topic, author, and media type 4. Two educational games for young people, developed in six languages 5. Testing Treatments interactive in a dozen languages, including five official European Community languages 6. An interactive tutorial slide presentation testing viewers' knowledge about clinical trials Conclusions: Over a 2-year project, our multidisciplinary and multinational consortium was able to produce, and make freely available in many languages, new materials to promote public knowledge about the importance of independent and international clinical trials. Sustained funding for the ECRAN information platform could help to promote successful recruitment to independent clinical trials supported through the European Clinical Research Infrastructure Network.

Published
2016

108. A European multi-language initiative to make the general population aware of independent clinical research: the European Communication on Research Awareness Need project

Author

Mosconi, Paola, primary, Antes, Gerd, additional, Barbareschi, Giorgio, additional, Burls, Amanda, additional, Demotes-Mainard, Jacques, additional, Chalmers, Iain, additional, Colombo, Cinzia, additional, Garattini, Silvio, additional, Gluud, Christian, additional, Gyte, Gill, additional, Mcllwain, Catherine, additional, Penfold, Matt, additional, Post, Nils, additional, Satolli, Roberto, additional, Valetto, Maria Rosa, additional, West, Brian, additional, and Wolff, Stephanie, additional

Published
2016
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112. Cross-cultural validation of health literacy measurement tools in Italian oncology patients.

Author

Zotti, Paola, Cocchi, Simone, Polesel, Jerry, Mis, Chiara Cipolat, Bragatto, Donato, Cavuto, Silvio, Conficconi, Alice, Costanzo, Carla, De Giorgi, Melissa, Drace, Christina A., Fiorini, Federica, Gangeri, Laura, Lisi, Andrea, Martino, Rosalba, Mosconi, Paola, Paradiso, Angelo, Ravaioli, Valentina, Truccolo, Ivana, De Paoli, Paolo, and Cipolat Mis, Chiara

Subjects
HEALTH literacy, PSYCHOMETRICS, CANCER patients, ENGLISH language, ITALIAN language, STATISTICAL reliability, PUBLIC health, COMPARATIVE studies, HEALTH status indicators, LANGUAGE & languages, RESEARCH methodology, MEDICAL cooperation, ONCOLOGY, RESEARCH, RESEARCH evaluation, TRANSLATIONS, TUMORS, INFORMATION literacy, EVALUATION research
Abstract

Background: The aim of this study was to assess the psychometric characteristics of four Health Literacy (HL) measurement tools, viz. Newest Vital Sign (NVS), Short Test of Functional Health Literacy in Adults (STOFHLA), Single Item Literacy Screener (SILS) and Single question on Self-rated Reading Ability (SrRA) among Italian oncology patients.Methods: The original version of the tools were translated from the English language into Italian using a standard forward-backward procedure and according to internationally recognized good practices. Their internal consistency (reliability) and validity (construct, convergent and discriminative) were tested in a sample of 245 consecutive cancer patients recruited from seven Italian health care centers.Results: The internal consistency of the STOFHLA-I was Chronbach's α=0.96 and that of NVS-I was α=0.74. The STOFHLA-I, NVS-I, SILS-I and SrRA-I scores were in a good relative correlation and in all tools the discriminative known-group validity was confirmed. The reliability and validity values were similar to those obtained from other cultural context studies.Conclusion: The psychometric characteristics of the Italian version of NVS, STHOFLA, SILS and SrRA were found to be good, with satisfactory reliability and validity. This indicates that they could be used as a screening tool in Italian patients. Moreover, the use of the same cross-cultural tools, validated in different languages, is essential for implementing multicenter studies to measure and compare the functional HL levels across countries. [ABSTRACT FROM AUTHOR]

Published
2017
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113. Authors' response

Author

Zwahlen, Marcel, D'Avanzo, Barbara, Egger, Matthias, Berrino, Franco, Perneger, Thomas, Mosconi, Paola, and Domenighetti, Gianfranco

Subjects
610 Medicine & health, 360 Social problems & social services
Published
2004
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119. Presenting evidence-based health information for people with multiple sclerosis : the IN-DEEP project protocol

Author

Hill, Sophie, Filippini, Graziella, Synnot, Anneliese, Summers, Michael, Beecher, Deirdre, Colombo, Cinzia, Mosconi, Paola, Battaglia, Mario A., Shapland, Sue, Osborne, Richard H., Hawkins, Melanie, Hill, Sophie, Filippini, Graziella, Synnot, Anneliese, Summers, Michael, Beecher, Deirdre, Colombo, Cinzia, Mosconi, Paola, Battaglia, Mario A., Shapland, Sue, Osborne, Richard H., and Hawkins, Melanie

Abstract

Background - Increasingly, evidence-based health information, in particular evidence from systematic reviews, is being made available to lay audiences, in addition to health professionals. Research efforts have focused on different formats for the lay presentation of health information. However, there is a paucity of data on how patients integrate evidence-based health information with other factors such as their preferences for information and experiences with information-seeking. The aim of this project is to explore how people with multiple sclerosis (MS) integrate health information with their needs, experiences, preferences and values and how these factors can be incorporated into an online resource of evidence-based health information provision for people with MS and their families. Methods - This project is an Australian-Italian collaboration between researchers, MS societies and people with MS. Using a four-stage mixed methods design, a model will be developed for presenting evidence-based health information on the Internet for people with MS and their families. This evidence-based health information will draw upon systematic reviews of MS interventions from The Cochrane Library. Each stage of the project will build on the last. After conducting focus groups with people with MS and their family members (Stage 1), we will develop a model for summarising and presenting Cochrane MS reviews that is integrated with supporting information to aid understanding and decision making. This will be reviewed and finalised with people with MS, family members, health professionals and MS Society staff (Stage 2), before being uploaded to the Internet and evaluated (Stages 3 and 4). Discussion - This project aims to produce accessible and meaningful evidence-based health information about MS for use in the varied decision making and management situations people encounter in everyday life. It is expected that the findings will be rel

Published
2012

120. Involving a Citizens’ Jury in Decisions on Individual Screening for Prostate Cancer.

Author

Mosconi, Paola, Colombo, Cinzia, Satolli, Roberto, Carzaniga, Sara, and null, null

Subjects
*DIAGNOSIS, *PROSTATE cancer, *PROSTATE cancer treatment, *PROSTATE-specific antigen, *PUBLIC health, *MEDICAL screening, *MEDICAL education, *NATIONAL health services, *MEDICAL decision making
Abstract

Aims: Most public health agencies and learned societies agree that the prostate-specific antigen (PSA) test in asymptomatic men should not be recommended, on account of its potential for harm. Yet PSA is still widely used as a screening test and is not being abandoned. This remains a significant public health issue, and citizens’ engagement is needed. This study was designed to produce a deliberation on the PSA screening test by a citizens’ jury. Methods: Fifteen citizens were selected and balanced for sex, age, and education. They received an information booklet and participated in a two-day meeting with experts to reach a deliberation on the question “Should the National Health Service discourage or recommend PSA as an individual screening test for prostate cancer in men 55–69 years old?”. A facilitator ran the jurors’ discussion. Results: All except three of the jurors decided that the National Health Service should discourage the use of PSA as an individual screening test for prostate cancer in 55–69 year-old men. The jury was particularly convinced by the uncertainty of the test outcomes, the utility of the test, and its cost/benefit ratio. Before the meeting 60% of jurors would have recommended the test to a relative, and all the male jurors would have done so. After the meeting these percentages fell to 15% and 12%. Conclusions: This experience confirms the feasibility and effectiveness of delegating to a group of citizens the responsibility to decide on public health issues on behalf of the community. Public health authorities should invest in information campaigns aimed at the public and in educational initiatives for physicians. This also provided an opportunity to disseminate information on screening, over-diagnosis, and over-treatment. [ABSTRACT FROM AUTHOR]

Published
2016
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133. Association of Mild Anemia with Cognitive, Functional, Mood and Quality of Life Outcomes in the Elderly: The “Health and Anemia” Study

Author

Lucca, Ugo, primary, Tettamanti, Mauro, additional, Mosconi, Paola, additional, Apolone, Giovanni, additional, Gandini, Francesca, additional, Nobili, Alessandro, additional, Tallone, Maria Vittoria, additional, Detoma, Paolo, additional, Giacomin, Adriano, additional, Clerico, Mario, additional, Tempia, Patrizia, additional, Guala, Adriano, additional, Fasolo, Gilberto, additional, and Riva, Emma, additional

Published
2008
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139. Reply of the authors

Author

Vercellini, Paolo, primary, Giorgi, Olga De, additional, Stellato, Giovanna, additional, Vicentini, Sarah, additional, Crosignani, Pier Giorgio, additional, and Mosconi, Paola, additional

Published
2002
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144. Multiple Sclerosis Quality of Life-54--Italian Version

Author

Solari, Alessandra, primary, Filippini, Graziella, additional, Mendozzi, Laura, additional, Ghezzi, Angelo, additional, Cifani, Stefania, additional, Barbieri, Elena, additional, Baldini, Silvana, additional, Salmaggi, Andrea, additional, La Mantia, Loredana, additional, Farinotti, Mariangela, additional, Caputo, Domenico, additional, and Mosconi, Paola, additional

Published
1999
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149. The patient's point of view

Author

Mosconi, Paola, primary, Aloe, Ferrucio, additional, Bruno, Giovanna, additional, Nitti, Paolo, additional, Crotti, Nadia, additional, Rossi, Cristiana, additional, Burrone, Ada, additional, Fromento, Giovanna, additional, Gangale, MariaElisabetta, additional, Scandurra, RobertaCiurekgian, additional, Serrano, Margherita, additional, Sorrentino, Rosanna, additional, Brambilla, Lidia, additional, Cagnetta, Mariella, additional, D'Errico, Irvana, additional, De Bellis, Maria, additional, Carneglia, Adriana, additional, Falcone, Vienna, additional, Fossati, MariaCristina, additional, Galli, AnnaMancuso, additional, Lepore, Ornella, additional, Magarelli, Antonia, additional, Mandelli, Lina, additional, Marini, Luciana, additional, Milella, Teresa, additional, Mori, Vincenza, additional, Peschiulli, Adriana, additional, Polenghi, MariaPia, additional, Trisciuoglio, Maria, additional, Villa, Mariangela, additional, Ferrari, Luisella, additional, Nencini, Giovanna, additional, Gastaldi, Stefano, additional, Valera, Luigi, additional, Catania, Salvo, additional, and Nosenzo, MariaAntonietta, additional

Published
1995
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