134 results on '"Gwynne, Kylie"'
Search Results
102. Screening for Atrial Fibrillation:A Report of the AF-SCREEN International Collaboration
- Author
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Freedman, Ben, Camm, John, Calkins, Hugh, Healey, Jeffrey S, Rosenqvist, Mårten, Wang, Jiguang, Albert, Christine M, Anderson, Craig S, Antoniou, Sotiris, Benjamin, Emelia J, Boriani, Giuseppe, Brachmann, Johannes, Brandes, Axel, Chao, Tze-Fan, Conen, David, Engdahl, Johan, Fauchier, Laurent, Fitzmaurice, David A, Friberg, Leif, Gersh, Bernard J, Gladstone, David J, Glotzer, Taya V, Gwynne, Kylie, Hankey, Graeme J, Harbison, Joseph, Hillis, Graham S, Hills, Mellanie T, Kamel, Hooman, Kirchhof, Paulus, Kowey, Peter R, Krieger, Derk, Lee, Vivian W Y, Levin, Lars-Åke, Lip, Gregory Y H, Lobban, Trudie, Lowres, Nicole, Mairesse, Georges H, Martinez, Carlos, Neubeck, Lis, Orchard, Jessica, Piccini, Jonathan P, Poppe, Katrina, Potpara, Tatjana S, Puererfellner, Helmut, Rienstra, Michiel, Sandhu, Roopinder K, Schnabel, Renate B, Siu, Chung-Wah, Steinhubl, Steven, Svendsen, Jesper H, Svennberg, Emma, Themistoclakis, Sakis, Tieleman, Robert G, Turakhia, Mintu P, Tveit, Arnljot, Uittenbogaart, Steven B, Van Gelder, Isabelle C, Verma, Atul, Wachter, Rolf, Yan, Bryan P, Freedman, Ben, Camm, John, Calkins, Hugh, Healey, Jeffrey S, Rosenqvist, Mårten, Wang, Jiguang, Albert, Christine M, Anderson, Craig S, Antoniou, Sotiris, Benjamin, Emelia J, Boriani, Giuseppe, Brachmann, Johannes, Brandes, Axel, Chao, Tze-Fan, Conen, David, Engdahl, Johan, Fauchier, Laurent, Fitzmaurice, David A, Friberg, Leif, Gersh, Bernard J, Gladstone, David J, Glotzer, Taya V, Gwynne, Kylie, Hankey, Graeme J, Harbison, Joseph, Hillis, Graham S, Hills, Mellanie T, Kamel, Hooman, Kirchhof, Paulus, Kowey, Peter R, Krieger, Derk, Lee, Vivian W Y, Levin, Lars-Åke, Lip, Gregory Y H, Lobban, Trudie, Lowres, Nicole, Mairesse, Georges H, Martinez, Carlos, Neubeck, Lis, Orchard, Jessica, Piccini, Jonathan P, Poppe, Katrina, Potpara, Tatjana S, Puererfellner, Helmut, Rienstra, Michiel, Sandhu, Roopinder K, Schnabel, Renate B, Siu, Chung-Wah, Steinhubl, Steven, Svendsen, Jesper H, Svennberg, Emma, Themistoclakis, Sakis, Tieleman, Robert G, Turakhia, Mintu P, Tveit, Arnljot, Uittenbogaart, Steven B, Van Gelder, Isabelle C, Verma, Atul, Wachter, Rolf, and Yan, Bryan P
- Abstract
Approximately 10% of ischemic strokes are associated with atrial fibrillation (AF) first diagnosed at the time of stroke. Detecting asymptomatic AF would provide an opportunity to prevent these strokes by instituting appropriate anticoagulation. The AF-SCREEN international collaboration was formed in September 2015 to promote discussion and research about AF screening as a strategy to reduce stroke and death and to provide advocacy for implementation of country-specific AF screening programs. During 2016, 60 expert members of AF-SCREEN, including physicians, nurses, allied health professionals, health economists, and patient advocates, were invited to prepare sections of a draft document. In August 2016, 51 members met in Rome to discuss the draft document and consider the key points arising from it using a Delphi process. These key points emphasize that screen-detected AF found at a single timepoint or by intermittent ECG recordings over 2 weeks is not a benign condition and, with additional stroke factors, carries sufficient risk of stroke to justify consideration of anticoagulation. With regard to the methods of mass screening, handheld ECG devices have the advantage of providing a verifiable ECG trace that guidelines require for AF diagnosis and would therefore be preferred as screening tools. Certain patient groups, such as those with recent embolic stroke of uncertain source (ESUS), require more intensive monitoring for AF. Settings for screening include various venues in both the community and the clinic, but they must be linked to a pathway for appropriate diagnosis and management for screening to be effective. It is recognized that health resources vary widely between countries and health systems, so the setting for AF screening should be both country- and health system-specific. Based on current knowledge, this white paper provides a strong case for AF screening now while recognizing that large randomized outcomes studies would be helpful to strengthen
- Published
- 2017
103. Screening for Atrial Fibrillation A Report of the AF-SCREEN International Collaboration
- Author
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Freedman, Ben, Camm, John, Calkins, Hugh, Healey, Jeffrey S., Rosenqvist, Marten, Wang, Jiguang, Albert, Christine M., Anderson, Craig S., Antoniou, Sotiris, Benjamin, Emelia J., Boriani, Giuseppe, Brachmann, Johannes, Brandes, Axel, Chao, Tze-Fan, Conen, David, Engdahl, Johan, Fauchier, Laurent, Fitzmaurice, David A., Friberg, Leif, Gersh, Bernard J., Gladstone, David J., Glotzer, Taya V., Gwynne, Kylie, Hankey, Graeme J., Harbison, Joseph, Hillis, Graham S., Hills, Mellanie T., Kamel, Hooman, Kirchhof, Paulus, Kowey, Peter R., Krieger, Derk, Lee, Vivian W. Y., Levin, Lars-Åke, Lip, Gregory Y. H., Lobban, Trudie, Lowres, Nicole, Mairesse, Georges H., Martinez, Carlos, Neubeck, Lis, Orchard, Jessica, Piccini, Jonathan P., Poppe, Katrina, Potpara, Tatjana S., Puererfellner, Helmut, Rienstra, Michiel, Sandhu, Roopinder K., Schnabel, Renate B., Siu, Chung-Wah, Steinhubl, Steven, Svendsen, Jesper H., Svennberg, Emma, Themistoclakis, Sakis, Tieleman, Robert G., Turakhia, Mintu P., Tveit, Arnljot, Uittenbogaart, Steven B., Van Gelder, Isabelle C., Verma, Atul, Wachter, Rolf, Yan, Bryan P., Freedman, Ben, Camm, John, Calkins, Hugh, Healey, Jeffrey S., Rosenqvist, Marten, Wang, Jiguang, Albert, Christine M., Anderson, Craig S., Antoniou, Sotiris, Benjamin, Emelia J., Boriani, Giuseppe, Brachmann, Johannes, Brandes, Axel, Chao, Tze-Fan, Conen, David, Engdahl, Johan, Fauchier, Laurent, Fitzmaurice, David A., Friberg, Leif, Gersh, Bernard J., Gladstone, David J., Glotzer, Taya V., Gwynne, Kylie, Hankey, Graeme J., Harbison, Joseph, Hillis, Graham S., Hills, Mellanie T., Kamel, Hooman, Kirchhof, Paulus, Kowey, Peter R., Krieger, Derk, Lee, Vivian W. Y., Levin, Lars-Åke, Lip, Gregory Y. H., Lobban, Trudie, Lowres, Nicole, Mairesse, Georges H., Martinez, Carlos, Neubeck, Lis, Orchard, Jessica, Piccini, Jonathan P., Poppe, Katrina, Potpara, Tatjana S., Puererfellner, Helmut, Rienstra, Michiel, Sandhu, Roopinder K., Schnabel, Renate B., Siu, Chung-Wah, Steinhubl, Steven, Svendsen, Jesper H., Svennberg, Emma, Themistoclakis, Sakis, Tieleman, Robert G., Turakhia, Mintu P., Tveit, Arnljot, Uittenbogaart, Steven B., Van Gelder, Isabelle C., Verma, Atul, Wachter, Rolf, and Yan, Bryan P.
- Abstract
Approximately 10% of ischemic strokes are associated with atrial fibrillation (AF) first diagnosed at the time of stroke. Detecting asymptomatic AF would provide an opportunity to prevent these strokes by instituting appropriate anticoagulation. The AF-SCREEN international collaboration was formed in September 2015 to promote discussion and research about AF screening as a strategy to reduce stroke and death and to provide advocacy for implementation of country-specific AF screening programs. During 2016, 60 expert members of AF-SCREEN, including physicians, nurses, allied health professionals, health economists, and patient advocates, were invited to prepare sections of a draft document. In August 2016, 51 members met in Rome to discuss the draft document and consider the key points arising from it using a Delphi process. These key points emphasize that screen-detected AF found at a single timepoint or by intermittent ECG recordings over 2 weeks is not a benign condition and, with additional stroke factors, carries sufficient risk of stroke to justify consideration of anticoagulation. With regard to the methods of mass screening, handheld ECG devices have the advantage of providing a verifiable ECG trace that guidelines require for AF diagnosis and would therefore be preferred as screening tools. Certain patient groups, such as those with recent embolic stroke of uncertain source (ESUS), require more intensive monitoring for AF. Settings for screening include various venues in both the community and the clinic, but they must be linked to a pathway for appropriate diagnosis and management for screening to be effective. It is recognized that health resources vary widely between countries and health systems, so the setting for AF screening should be both country-and health system-specific. Based on current knowledge, this white paper provides a strong case for AF screening now while recognizing that large randomized outcomes studies would be helpful to strengthen the, Funding Agencies|Bayer HealthCare; Bristol-Myers Squibb/Pfizer; Daiichi Sankyo; Medtronic; C-SPIN (Canadian Stroke Prevention Intervention Network); Zenicor; iRhythm
- Published
- 2017
- Full Text
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104. Screening for Atrial Fibrillation
- Author
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Freedman, Ben, primary, Camm, John, additional, Calkins, Hugh, additional, Healey, Jeffrey S., additional, Rosenqvist, Mårten, additional, Wang, Jiguang, additional, Albert, Christine M., additional, Anderson, Craig S., additional, Antoniou, Sotiris, additional, Benjamin, Emelia J., additional, Boriani, Giuseppe, additional, Brachmann, Johannes, additional, Brandes, Axel, additional, Chao, Tze-Fan, additional, Conen, David, additional, Engdahl, Johan, additional, Fauchier, Laurent, additional, Fitzmaurice, David A., additional, Friberg, Leif, additional, Gersh, Bernard J., additional, Gladstone, David J., additional, Glotzer, Taya V., additional, Gwynne, Kylie, additional, Hankey, Graeme J., additional, Harbison, Joseph, additional, Hillis, Graham S., additional, Hills, Mellanie T., additional, Kamel, Hooman, additional, Kirchhof, Paulus, additional, Kowey, Peter R., additional, Krieger, Derk, additional, Lee, Vivian W. Y., additional, Levin, Lars-Åke, additional, Lip, Gregory Y. H., additional, Lobban, Trudie, additional, Lowres, Nicole, additional, Mairesse, Georges H., additional, Martinez, Carlos, additional, Neubeck, Lis, additional, Orchard, Jessica, additional, Piccini, Jonathan P., additional, Poppe, Katrina, additional, Potpara, Tatjana S., additional, Puererfellner, Helmut, additional, Rienstra, Michiel, additional, Sandhu, Roopinder K., additional, Schnabel, Renate B., additional, Siu, Chung-Wah, additional, Steinhubl, Steven, additional, Svendsen, Jesper H., additional, Svennberg, Emma, additional, Themistoclakis, Sakis, additional, Tieleman, Robert G., additional, Turakhia, Mintu P., additional, Tveit, Arnljot, additional, Uittenbogaart, Steven B., additional, Van Gelder, Isabelle C., additional, Verma, Atul, additional, Wachter, Rolf, additional, Yan, Bryan P., additional, Al Awwad, A, additional, Al-Kalili, F, additional, Berge, T, additional, Breithardt, G, additional, Bury, G, additional, Caorsi, WR, additional, Chan, NY, additional, Chen, SA, additional, Christophersen, I, additional, Connolly, S, additional, Crijns, H, additional, Davis, S, additional, Dixen, U, additional, Doughty, R, additional, Du, X, additional, Ezekowitz, M, additional, Fay, M, additional, Frykman, V, additional, Geanta, M, additional, Gray, H, additional, Grubb, N, additional, Guerra, A, additional, Halcox, J, additional, Hatala, R, additional, Heidbuchel, H, additional, Jackson, R, additional, Johnson, L, additional, Kaab, S, additional, Keane, K, additional, Kim, YH, additional, Kollios, G, additional, Løchen, ML, additional, Ma, C, additional, Mant, J, additional, Martinek, M, additional, Marzona, I, additional, Matsumoto, K, additional, McManus, D, additional, Moran, P, additional, Naik, N, additional, Ngarmukos, T, additional, Prabhakaran, D, additional, Reidpath, D, additional, Ribeiro, A, additional, Rudd, A, additional, Savalieva, I, additional, Schilling, R, additional, Sinner, M, additional, Stewart, S, additional, Suwanwela, N, additional, Takahashi, N, additional, Topol, E, additional, Ushiyama, S, additional, Verbiest van Gurp, N, additional, Walker, N, additional, and Wijeratne, T, additional
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- 2017
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105. Developing the rural health workforce to improve Australian Aboriginal and Torres Strait Islander health outcomes: a systematic review
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Gwynne, Kylie, primary and Lincoln, Michelle, additional
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- 2017
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106. ‘I miss my family, it's been a while…’ A qualitative study of clinicians who live and work in rural/remote Australian Aboriginal communities
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Irving, Michelle, primary, Short, Stephanie, additional, Gwynne, Kylie, additional, Tennant, Marc, additional, and Blinkhorn, Anthony, additional
- Published
- 2016
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107. Outcomes of a co-designed, community-led oral health promotion program for Aboriginal children in rural and remote communities in New South Wales, Australia.
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Dimitropoulos, Yvonne, Holden, Alexander, Gwynne, Kylie, Loc Do, Byun, Roy, and Woosung Sohn
- Abstract
Objective: Improving the oral health of Aboriginal children is an Australian priority. Public policy recommends the development of evidence-based, culturally competent oral health promotion programs. Positive health outcomes are more likely for Aboriginal people when programs are co-designed with the community and tailored to local needs. This study aims to determine the impact of a community-led oral health promotion program for Aboriginal children in rural and remote communities. Basic research design: Consecutive surveys. Baseline data were collected on the oral health of Aboriginal children aged five-12 years in rural and remote communities in Central Northern New South Wales in 2014. Then, an evidence-based oral health promotion program was co-designed with local Aboriginal communities. It included daily toothbrushing, water bottle program, regular application of fluoride varnish, regular distribution of toothbrushes and fluoride toothpaste and dental health education and commenced in 2016 in three schools in the region. In 2018, oral health status and oral hygiene behaviours of participating children were compared against baseline data to evaluate the program. Results: There was a significant reduction in tooth decay, plaque scores and gingivitis. The mean number of teeth affected by tooth decay was 4.13, compared to 5.31 in 2014. An increase was also seen in positive oral hygiene behaviour. Conclusions: The co-design elements of the program are critical to its success. Engaging local Aboriginal communities to co-design and deliver oral health promotion can reduce the burden of tooth decay experienced by Aboriginal children. [ABSTRACT FROM AUTHOR]
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- 2020
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108. Opportunistic screening to detect atrial fibrillation in Aboriginal adults in Australia
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Gwynne, Kylie, primary, Flaskas, Yvonne, additional, O'Brien, Ciaran, additional, Jeffries, Thomas Lee, additional, McCowen, Debbie, additional, Finlayson, Heather, additional, Martin, Tanya, additional, Neubeck, Lis, additional, and Freedman, Ben, additional
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- 2016
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109. Client perspectives on an Aboriginal community led oral health service in rural Australia
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Irving, Michelle, primary, Gwynne, Kylie, additional, Angell, Blake, additional, Tennant, Marc, additional, and Blinkhorn, Anthony, additional
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- 2016
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110. Client perspectives on an Aboriginal community led oral health service in rural Australia.
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Irving, Michelle, Gwynne, Kylie, Angell, Blake, Tennant, Marc, and Blinkhorn, Anthony
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PATIENT satisfaction , *CHI-squared test , *COMMUNITY health services , *FACIAL pain , *HEALTH services accessibility , *INDIGENOUS peoples , *ORAL hygiene , *PARENTS , *PROBABILITY theory , *QUESTIONNAIRES , *RESEARCH funding , *RURAL health services , *SURVEYS , *TOOTH care & hygiene , *DENTAL extraction , *CULTURAL awareness , *HEALTH literacy , *DATA analysis software , *PATIENTS' attitudes , *DESCRIPTIVE statistics - Abstract
Objective An oral health service was implemented, using a unique community development approach, for Northern NSW Australian Aboriginal communities in 2013-14. This study examined the views of children (and parents) who accessed the service, including: the extent of reported dental problems, oral health knowledge, attitudes and behaviour, accessibility of oral health services, satisfaction and cultural sensitivity of the service. Methods A survey of the children who accessed this service was conducted between October 2014 and December 2014. Results A total of 49 (71%) Aboriginal children aged 4-14 (or parents of), provided responses to the survey. All agreed that healthy teeth were important (100%), but many thought oral disease leading to extraction was normal (68%). High levels of oral pain were reported (66%), half (53%) reported brushing morning and night. Access to the new dental health service was reported as 'easy' (92%). Many walked (47%) or were driven (35%) in <30 min (90%). All respondents were happy with their dental treatment, and that their Aboriginal heritage was respected by the oral health team (100%). Conclusion The implementation of a new community led oral health service to Northern NSW Aboriginal communities was shown here to be well-utilised, respected and in an area of high need. The collaborative approach could be continued to be utilised to implement targeted, community led health promotion programs to facilitate and encourage better oral health practices for the Aboriginal children in these communities. [ABSTRACT FROM AUTHOR]
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- 2017
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111. Drinking fountains in every town won't fix all our water issues - but it's a healthy start.
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Skinner, John Charles, Gwynne, Kylie, and Calma, Tom
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FOUNTAINS ,CITIES & towns ,COMMUNITIES ,DRINKING water quality ,GROUNDWATER - Abstract
Water plays a significant role in Aboriginal culture. Walgett residents say the water is unsafe to drink and they're backed by scientists from the George Institute who report an urgent need to address drinking water quality. [Extracted from the article]
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- 2023
112. Research Priorities for Atrial Fibrillation in Australia: A Statement From the Australian Cardiovascular Alliance Clinical Arrhythmia Theme.
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Elliott, Adrian D., Middeldorp, Melissa E., McMullen, Julie R., Fatkin, Diane, Thomas, Liza, Gwynne, Kylie, Hill, Adam P., Shang, Catherine, Hsu, Meng-Ping, Vandenberg, Jamie I., Kalman, Jonathan M., and Sanders, Prashanthan
- Abstract
Atrial fibrillation (AF) is highly prevalent in the Australian community, ranking amongst the highest globally. The consequences of AF are significant. Stroke, dementia and heart failure risk are increased substantially, hospitalisations are amongst the highest for all cardiovascular causes, and Australians living with AF suffer from substantial symptoms that impact quality of life. Australian research has made a significant impact at the global level in advancing the care of patients living with AF. However, new strategies are required to reduce the growing incidence of AF and its associated healthcare demand. The Australian Cardiovascular Alliance (ACvA) has led the development of an arrhythmia clinical theme with the objective of tackling major research priorities to achieve a reduction in AF burden across Australia. In this summary, we highlight these research priorities with particular focus on the strengths of Australian research and the strategies needed to move forward in reducing incident AF and improving outcomes for those who live with this chronic condition. [ABSTRACT FROM AUTHOR]
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- 2024
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113. Screening for Atrial Fibrillation
- Author
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Freedman, Ben, Camm, John, Calkins, Hugh, Healey, Jeffrey S., Rosenqvist, Mårten, Wang, Jiguang, Albert, Christine M., Anderson, Craig S., Antoniou, Sotiris, Benjamin, Emelia J., Boriani, Giuseppe, Brachmann, Johannes, Brandes, Axel, Chao, Tze-Fan, Conen, David, Engdahl, Johan, Fauchier, Laurent, Fitzmaurice, David A., Friberg, Leif, Gersh, Bernard J., Gladstone, David J., Glotzer, Taya V., Gwynne, Kylie, Hankey, Graeme J., Harbison, Joseph, Hillis, Graham S., Hills, Mellanie T., Kamel, Hooman, Kirchhof, Paulus, Kowey, Peter R., Krieger, Derk, Lee, Vivian W. Y., Levin, Lars-Åke, Lip, Gregory Y. H., Lobban, Trudie, Lowres, Nicole, Mairesse, Georges H., Martinez, Carlos, Neubeck, Lis, Orchard, Jessica, Piccini, Jonathan P., Poppe, Katrina, Potpara, Tatjana S., Puererfellner, Helmut, Rienstra, Michiel, Sandhu, Roopinder K., Schnabel, Renate B., Siu, Chung-Wah, Steinhubl, Steven, Svendsen, Jesper H., Svennberg, Emma, Themistoclakis, Sakis, Tieleman, Robert G., Turakhia, Mintu P., Tveit, Arnljot, Uittenbogaart, Steven B., Van Gelder, Isabelle C., Verma, Atul, Wachter, Rolf, Yan, Bryan P., Al Awwad, A, Al-Kalili, F, Berge, T, Breithardt, G, Bury, G, Caorsi, WR, Chan, NY, Chen, SA, Christophersen, I, Connolly, S, Crijns, H, Davis, S, Dixen, U, Doughty, R, Du, X, Ezekowitz, M, Fay, M, Frykman, V, Geanta, M, Gray, H, Grubb, N, Guerra, A, Halcox, J, Hatala, R, Heidbuchel, H, Jackson, R, Johnson, L, Kaab, S, Keane, K, Kim, YH, Kollios, G, Løchen, ML, Ma, C, Mant, J, Martinek, M, Marzona, I, Matsumoto, K, McManus, D, Moran, P, Naik, N, Ngarmukos, T, Prabhakaran, D, Reidpath, D, Ribeiro, A, Rudd, A, Savalieva, I, Schilling, R, Sinner, M, Stewart, S, Suwanwela, N, Takahashi, N, Topol, E, Ushiyama, S, Verbiest van Gurp, N, Walker, N, and Wijeratne, T
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114. Letter to the Editor.
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Skinner, John, Dimitropoulos, Yvonne, Rambaldini, Boe, Gwynne, Kylie, Calma, Tom, and Parter, Carmen
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- 2021
115. A Qualitative Study of Aboriginal Peoples’ Health Care Experiences With Chronic Obstructive Pulmonary Disease.
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Meharg, David P., Dennis, Sarah M., McNab, Justin, Gwynne, Kylie G., Jenkins, Christine R., Maguire, Graeme P., Jan, Stephen, Shaw, Tim, McKeough, Zoe, Rambaldini, Boe, Lee, Vanessa, McCowen, Debbie, Newman, Jamie, Longbottom, Hayley, Eades, Sandra, and Alison, Jennifer A.
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- *
CHRONIC obstructive pulmonary disease , *OBSTRUCTIVE lung diseases , *COMMUNITY health services , *ABORIGINAL Australians , *INDIGENOUS peoples - Abstract
Aboriginal Australians experience a high prevalence of chronic obstructive pulmonary disease (COPD), with high rates of potentially preventable hospitalisations. However, little is known about Aboriginal peoples’ experiences of living with COPD and how they navigate health care systems. This study used thematic analysis and Aboriginal methodology to explore Aboriginal peoples’ lived experiences of COPD, their health care journey from receiving a diagnosis of COPD to the clinical management, and the impact of COPD on their daily lives. We conducted in-depth semi-structured interviews over a 6-month period with 18 Aboriginal adults diagnosed with COPD from four Aboriginal Community Controlled Health Services (ACCHS) in New South Wales, Australia. Reflexive thematic analysis was employed to ensure rigour. The findings revealed deeply personal and reflective stories shaped by historical, social, and cultural realities of Aboriginal peoples living with COPD. Four themes were identified characterising their experiences. Based on the findings, the following guidance is provided on future COPD care for Aboriginal peoples: Better alignment of existing COPD management with Aboriginal peoples’ cultural contexts and perspectives to improve access to culturally safe care; Increased funding for ACCHS to enhance COPD management, such as early detection through case finding and access to ACCHS-led pulmonary rehabilitation; Engaging family members in COPD management and providing culturally centred COPD education that facilitates discussions and builds health literacy and self-management skills; Implementing health promotion initiatives to increase awareness and counteract fear and shame to improve early COPD detection. [ABSTRACT FROM AUTHOR]
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- 2024
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116. eP513 - A pathway to precision medicine for Aboriginal Australians: a study protocol.
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Cheng, Yeu-Yao (Kevin), Nunn, Jack, Skinner, John, Rambaldini, Boe, Boughtwood, Tiffany, Calma, Tom, Brown, Alex, Meldrum, Cliff, Dinger, Marcel, Byrne, Jennifer, McCowen, Debbie, Potter, Jayden, Faires, Kerry, Cooper, Sandra, and Gwynne, Kylie
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- *
ABORIGINAL Australians , *INDIVIDUALIZED medicine - Published
- 2021
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117. Screening for Atrial Fibrillation: A Report of the AF-SCREEN International Collaboration
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Ben Freedman, John Camm, Hugh Calkins, Jeffrey S. Healey, Mårten Rosenqvist, Jiguang Wang, Christine M. Albert, Craig S. Anderson, Sotiris Antoniou, Emelia J. Benjamin, Giuseppe Boriani, Johannes Brachmann, Axel Brandes, Tze-Fan Chao, David Conen, Johan Engdahl, Laurent Fauchier, David A. Fitzmaurice, Leif Friberg, Bernard J. Gersh, David J. Gladstone, Taya V. Glotzer, Kylie Gwynne, Graeme J. Hankey, Joseph Harbison, Graham S. Hillis, Mellanie T. Hills, Hooman Kamel, Paulus Kirchhof, Peter R. Kowey, Derk Krieger, Vivian W. Y. Lee, Lars-Åke Levin, Gregory Y. H. Lip, Trudie Lobban, Nicole Lowres, Georges H. Mairesse, Carlos Martinez, Lis Neubeck, Jessica Orchard, Jonathan P. Piccini, Katrina Poppe, Tatjana S. Potpara, Helmut Puererfellner, Michiel Rienstra, Roopinder K. Sandhu, Renate B. Schnabel, Chung-Wah Siu, Steven Steinhubl, Jesper H. Svendsen, Emma Svennberg, Sakis Themistoclakis, Robert G. Tieleman, Mintu P. Turakhia, Arnljot Tveit, Steven B. Uittenbogaart, Isabelle C. Van Gelder, Atul Verma, Rolf Wachter, Bryan P. Yan, A Al Awwad, F Al-Kalili, T Berge, G Breithardt, G Bury, WR Caorsi, NY Chan, SA Chen, I Christophersen, S Connolly, H Crijns, S Davis, U Dixen, R Doughty, X Du, M Ezekowitz, M Fay, V Frykman, M Geanta, H Gray, N Grubb, A Guerra, J Halcox, R Hatala, H Heidbuchel, R Jackson, L Johnson, S Kaab, K Keane, YH Kim, G Kollios, ML Løchen, C Ma, J Mant, M Martinek, I Marzona, K Matsumoto, D McManus, P Moran, N Naik, T Ngarmukos, D Prabhakaran, D Reidpath, A Ribeiro, A Rudd, I Savalieva, R Schilling, M Sinner, S Stewart, N Suwanwela, N Takahashi, E Topol, S Ushiyama, N Verbiest van Gurp, N Walker, T Wijeratne, Freedman, Ben [0000-0002-3809-2911], Albert, Christine M [0000-0002-2081-1121], Benjamin, Emelia J [0000-0003-4076-2336], Brandes, Axel [0000-0001-9145-6887], Engdahl, Johan [0000-0002-1677-7215], Friberg, Leif [0000-0002-7453-0157], Gwynne, Kylie [0000-0002-6897-4528], Hankey, Graeme J [0000-0002-6044-7328], Kirchhof, Paulus [0000-0002-1881-0197], Lee, Vivian WY [0000-0001-5802-8899], Lowres, Nicole [0000-0001-9061-3406], Martinez, Carlos [0000-0001-6498-6428], Orchard, Jessica [0000-0002-5702-7277], Rienstra, Michiel [0000-0002-2581-070X], Wachter, Rolf [0000-0003-2231-2200], Apollo - University of Cambridge Repository, Cardiovascular Centre (CVC), ACS - Heart failure & arrhythmias, APH - Personalized Medicine, and Graduate School
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Benign condition ,Internationality ,Cost effectiveness ,ANTITHROMBOTIC THERAPY ,Delphi method ,Review ,030204 cardiovascular system & hematology ,law.invention ,ARTERY-BYPASS GRAFT ,COST-EFFECTIVENESS ,03 medical and health sciences ,0302 clinical medicine ,White paper ,616 Diseases ,Randomized controlled trial ,law ,Risk Factors ,Physiology (medical) ,Atrial Fibrillation ,Journal Article ,Medicine ,ORAL ANTICOAGULATION ,atrial fibrillation ,screening ,stroke ,Cardiology and Cardiovascular Medicine ,Humans ,Mass Screening ,030212 general & internal medicine ,HIGH-RISK PATIENTS ,Stroke ,Mass screening ,CRYPTOGENIC STROKE ,business.industry ,LONG-TERM MORTALITY ,STROKE PREVENTION ,Atrial fibrillation ,AF, Atrial Fibrillation, screening, stroke ,RANDOMIZED CONTROLLED-TRIAL ,medicine.disease ,3. Good health ,TRANSIENT ISCHEMIC ATTACK ,Health ,RC Internal medicine ,Medical emergency ,business - Abstract
Approximately 10% of ischemic strokes are associated with atrial fibrillation (AF) first diagnosed at the time of stroke. Detecting asymptomatic AF would provide an opportunity to prevent these strokes by instituting appropriate anticoagulation. The AF-SCREEN international collaboration was formed in September 2015 to promote discussion and research about AF screening as a strategy to reduce stroke and death and to provide advocacy for implementation of country-specific AF screening programs. During 2016, 60 expert members of AF-SCREEN, including physicians, nurses, allied health professionals, health economists, and patient advocates, were invited to prepare sections of a draft document. In August 2016, 51 members met in Rome to discuss the draft document and consider the key points arising from it using a Delphi process. These key points emphasize that screen-detected AF found at a single timepoint or by intermittent ECG recordings over 2 weeks is not a benign condition and, with additional stroke factors, carries sufficient risk of stroke to justify consideration of anticoagulation. With regard to the methods of mass screening, handheld ECG devices have the advantage of providing a verifiable ECG trace that guidelines require for AF diagnosis and would therefore be preferred as screening tools. Certain patient groups, such as those with recent embolic stroke of uncertain source (ESUS), require more intensive monitoring for AF. Settings for screening include various venues in both the community and the clinic, but they must be linked to a pathway for appropriate diagnosis and management for screening to be effective. It is recognized that health resources vary widely between countries and health systems, so the setting for AF screening should be both country- and health system-specific. Based on current knowledge, this white paper provides a strong case for AF screening now while recognizing that large randomized outcomes studies would be helpful to strengthen the evidence base.
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- 2017
118. Co-designing policy with Aboriginal and Torres Strait Islander peoples: a protocol.
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Fono M, Rambaldini B, Christie V, and Gwynne K
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- Humans, Australia, Qualitative Research, Research Design, Australian Aboriginal and Torres Strait Islander Peoples, Health Policy, Health Services, Indigenous organization & administration, Policy Making
- Abstract
Objectives and importance of study: In the public service context, co-design is novel and ever-expanding. Co-design brings together decision-makers and people impacted by a problem to unpack the problem and design solutions together. Government agencies are increasingly adopting co-design to understand and meet the unique needs of priority populations. While the literature illustrates a progressive uptake of co-design in service delivery, there is little evidence of co-design in policy development. We propose a qualitative study protocol to explore and synthesise the evidence (literary, experiential and theoretical) of co-design in public policy. This can inform a framework to guide policymakers who co-design health policy with Aboriginal and Torres Strait Islander people. Methods: The study design is informed by a critical qualitative approach that comprises five successive stages. The study commences with the set-up of a co-design brains trust (CBT), comprising people with lived experience of being Aboriginal and Torres Strait Islander who have either co-designed with public agencies and/or have health policymaking expertise (stage 1) The brains trust will play a key role in guiding the protocol's methodology, data collection, reporting and co-designing a 'Version 1' framework to guide policymakers in co-designing health policy with Aboriginal and Torres Strait Islander people (the framework). Two realist evaluations will explore co-design in health policy settings to understand how co-design works for whom, under what circumstances, and how (stages 2 and 3) The findings of the realist evaluations will guide the CBT in developing the framework (stage 4). A process evaluation of the CBT setup and framework development will assess the degree to which the CBT achieved its intended objectives (stage 5). Conclusion: The proposed study will produce much-needed evidence to guide policymakers to share decision-making power and privilege the voices of Aboriginal and Torres Strait Islander people when co-designing health policy. Learnings from this translational research will be shared via the CBT, academic papers, conference presentations and policy briefings., Competing Interests: None declared
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- 2024
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119. Aboriginal and Torres Strait Islander peoples.
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Cross C, Christie V, Holt L, Rambaldini B, Ward K, Skinner J, Henson C, McCowen D, Benrimoj SC, Dineen-Griffin S, and Gwynne K
- Abstract
BackgroundIn Australia, medications can be prescribed by medical practitioners, dentists, nurses, and dispensed by pharmacists. Until recently, pharmacists have been limited to prescribing Schedule 2 and 3 medications, and optometrists, podiatrists, and nurse practitioners can prescribe medications under their scope of practice in some areas of Australia. Recently, the New South Wales (NSW) Government initiated a trial where approved pharmacists in NSW and Australian Capital Territory have an expanded scope of practice to prescribe further medications for urinary tract infections, dermatology conditions (mild to moderate atopic dermatitis, herpes zoster (shingles), impetigo, and mild plaque psoriasis), and resupply of contraceptives. This protocol is for a sub-study of the larger research trial and will explore the perspectives of Aboriginal and Torres Strait Islander peoples and communities including clinicians, healthcare services, and community members about the expanded scope of pharmacists' practice.Methods and analysisYarning circles (group) and individual yarns (semi-structured interviews) will be conducted with leaders, clinicians working with Aboriginal and Torres Strait Islander peoples (general practitioners, nurses, Aboriginal health workers, community pharmacists), Aboriginal Elders, and community members to understand perspectives of the risks, benefits, opportunities, and issues associated with pharmacists prescribing for these specific conditions. Ethics approval was obtained through the Aboriginal Health and Medical Research Council of NSW.ConclusionThe findings of this sub-study will clarify Aboriginal and Torres Strait Islander peoples' unique perspectives, including perception of risks and opportunities.
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- 2024
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120. The Effectiveness of Clinician-Led Community-Based Group Exercise Interventions on Health Outcomes in Adults with Type 2 Diabetes Mellitus: A Systematic Review and Meta-Analysis.
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White L, Kirwan M, Christie V, Hurst L, and Gwynne K
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- Humans, Exercise, Adult, Exercise Therapy methods, Physical Fitness, Diabetes Mellitus, Type 2 therapy
- Abstract
This systematic review and meta-analysis evaluated the combined effects of clinician-led and community-based group exercise interventions on a range of health outcomes in adults with type 2 diabetes mellitus. Our literature search spanned Medline, Scopus, PubMed, Embase, and CINAHL databases, focusing on peer-reviewed studies published between January 2003 and January 2023. We included studies involving participants aged 18 years and older and articles published in English, resulting in a dataset of eight studies with 938 participants. Spanning eight peer-reviewed studies with 938 participants, the analysis focused on the interventions' impact on glycemic control, physical fitness, and anthropometric and hematological measurements. Outcomes related to physical fitness, assessed through the six-minute walk test, the 30 s sit-to-stand test, and the chair sit-and-reach test, were extracted from five studies, all of which reported improvements. Anthropometric outcomes from seven studies highlighted positive changes in waist circumference and diastolic blood pressure; however, measures such as body mass index, systolic blood pressure, weight, and resting heart rate did not exhibit significant changes. Hematological outcomes, reviewed in four studies, showed significant improvements in fasting blood glucose, triglycerides, and total cholesterol, with glycemic control evidenced by reductions in HbA1c levels, yet LDL and HDL cholesterol levels remained unaffected. Ten of the fifteen outcome measures assessed showed significant enhancement, indicating that the intervention strategies implemented may offer substantial health benefits for managing key type 2 diabetes mellitus-related health parameters. These findings in combination with further research, could inform the refinement of physical activity guidelines for individuals with type 2 diabetes mellitus, advocating for supervised group exercise in community settings.
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- 2024
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121. The Effect of Community-Based Exercise on Health Outcomes for Indigenous Peoples with Type 2 Diabetes: A Systematic Review.
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Hurst L, Kirwan M, Christie V, Cross C, Baylis S, White L, and Gwynne K
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- Humans, Outcome Assessment, Health Care, Quality of Life, Diabetes Mellitus, Type 2 therapy, Indigenous Peoples
- Abstract
Indigenous peoples globally experience a high burden of type 2 diabetes in comparison to non-Indigenous peoples. While community-based exercise interventions designed for type 2 diabetes (T2D) management have garnered success in non-Indigenous populations, they likely require adjustments to meet the needs of Indigenous people. This systematic review aims to determine if health outcomes in Indigenous peoples with T2D could be improved by community-based exercise programmes and the features of those programmes that best meet their needs. The CINAHL, Embase, Informit Indigenous Collection, Medline, PubMed, Scopus, SportDiscus, and Web of Science databases have been searched to identify peer-reviewed literature with original outcome data that report on the health effects of community-based exercise interventions for the management of T2D among Indigenous peoples. The Mixed Methods Appraisal Tool and Indigenous Community Engagement Tool were implemented to assess methodological quality. Three moderate-to-high-quality studies were selected for review, including participants of Polynesian or Native American Zuni Indian descent. Results indicated positive effects of group exercise on glycated haemoglobin (HbA1c), body mass index, body weight, total cholesterol, blood pressure, quality of life, and patient activation levels in high-adhering participants. This review concludes that community-based exercise interventions may improve health outcomes for Indigenous adults with T2D when conducted with strong community engagement.
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- 2024
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122. Genomics and inclusion of Indigenous peoples in high income countries.
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Gwynne K, Jiang S, Venema R, Christie V, Boughtwood T, Ritha M, Skinner J, Ali N, Rambaldini B, and Calma T
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- Humans, Developed Countries, Retrospective Studies, Databases, Factual, Genomics, Indigenous Peoples genetics
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Genomics research related to Indigenous people has been at worst exploitative and at best, retrospectively on a journey to improve effective engagement of Indigenous individuals and communities. Genomics can positively impact all stages of clinical management, and to improve genomic effectiveness researchers aggregate genomic data from diverse global sub-populations, such as shared ancestry groupings, as people within these groupings will have a greater proportion of shared DNA traits. While genomics is already being used worldwide to improve lives, its utility and effectiveness has not been maximized for individuals with Indigenous ancestry. Several large datasets of human genetic variation have been made publicly available, of which the most widely used is the Genome Aggregation Database (gnomAD), but none of these databases currently contain any population-specific data for Indigenous populations. There are many reasons why Indigenous people have been largely left out of genomics research and, because of this, miss out on the benefits offered. It is also clear that if research is to be effective, it needs to be done 'with' and not 'on' Indigenous communities. This systematic review of the literature regarding Indigenous peoples (in high income countries) and genomics aims to review the existing literature and identify areas of strength and weakness in study design and conduct, focusing on the effectiveness of Indigenous community engagement., (© 2023. The Author(s).)
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- 2023
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123. Does breast cancer policy meet the needs of Aboriginal and Torres Strait Islander women in Australia? a review.
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Christie V, Riley L, Green D, Snook K, Henningham M, Rambaldini B, Amin J, Pyke C, Varlow M, Goss S, Skinner J, O'Shea R, McCowen D, and Gwynne K
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- Humans, Female, Australian Aboriginal and Torres Strait Islander Peoples, Australia, Surveys and Questionnaires, Policy, Breast Neoplasms therapy, Health Services, Indigenous
- Abstract
Objective: To evaluate if existing Australian public policy related to screening, diagnosis, treatment and follow up care for breast cancer addresses the needs of and outcomes for Indigenous
1 women?, Methods: This review of policy employed a modified Delphi method via an online panel of experts (n = 13), who were purposively recruited according to experience and expertise. A series of online meetings and online surveys were used for data collection. The aims of the study were to: Identify all existing and current breast cancer policy in Australia; Analyse the extent to which consideration of Indigenous peoples is included in the development, design and implementation of the policy; and Identify policy gaps and make recommendations as to how they could be addressed. The policies were evaluated using 'A Guide to Evaluation under the Indigenous Evaluation Strategy, 2020'., Results: A list of current breast cancer policies (n = 7) was agreed and analysed. Five draft recommendations to improve breast cancer outcomes for Indigenous women were developed and refined by the panel., Conclusions: Current breast cancer policy in Australia does not address the needs of Indigenous women and requires change to improve outcomes., (© 2023. The Author(s).)- Published
- 2023
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124. "Everyone needs a Deb": what Australian indigenous women say about breast cancer screening and treatment services.
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Christie V, Green D, Skinner J, Riley L, O'Shea R, Littlejohn K, Pyke C, McCowen D, Rambaldini B, and Gwynne K
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- Female, Humans, Australia epidemiology, Early Detection of Cancer, Australian Aboriginal and Torres Strait Islander Peoples, Breast Neoplasms diagnosis, Breast Neoplasms therapy, Health Services, Indigenous
- Abstract
Background: Breast cancer continues to be the second most diagnosed cancer overall and the most diagnosed cancer for women in Australia. While mortality rates overall have declined in recent years, Indigenous women continue to be diagnosed at more marginal rates (0.9 times) and are more likely to die (1.2 times). The literature provides a myriad of reasons for this; however, the voices of Indigenous women are largely absent. This study sets out to understand what is happening from the perspectives of Australian Indigenous women with a view to charting culturally safer pathways that improve participation in screening and treatment by Indigenous women., Methods: This co-design study was conducted using semi-structured, in-depth interviews and focus group discussions. Recruitment of study participants was via snowball sampling. Participants were subsequently consented into the study through the Aboriginal Health Service and the research team. Interviews were audio recorded and transcribed verbatim, and data coded in NVivo12 using inductive thematic analysis., Results: A total of 21 Indigenous women and 14 health service providers were interviewed predominantly from the same regional/rural area in NSW, with a small proportion from other states in Australia. Six major themes were identified: Access, Awareness, Community and Family, Lack of control, Negative feelings and associations and Role of services., Conclusion: To improve access and participation of Indigenous women and ultimately improve mortality rates, breast cancer services must explicitly address cultural and community needs., (© 2023. The Author(s).)
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- 2023
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125. Ear and hearing care programs for First Nations children: a scoping review.
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Nash K, Macniven R, Clague L, Coates H, Fitzpatrick M, Gunasekera H, Gwynne K, Halvorsen L, Harkus S, Holt L, Lumby N, Neal K, Orr N, Pellicano E, Rambaldini B, and McMahon C
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- Child, Humans, Time Factors, Healthcare Disparities ethnology, Developed Countries economics, Developed Countries statistics & numerical data, Health Services Accessibility economics, Health Services Accessibility statistics & numerical data, Hearing Loss diagnosis, Hearing Loss epidemiology, Hearing Loss ethnology, Hearing Loss therapy, Indigenous Peoples statistics & numerical data, Otitis Media diagnosis, Otitis Media epidemiology, Otitis Media ethnology, Otitis Media therapy, Culturally Competent Care ethnology, Culturally Competent Care statistics & numerical data
- Abstract
Background: Ear and hearing care programs are critical to early detection and management of otitis media (or middle ear disease). Otitis media and associated hearing loss disproportionately impacts First Nations children. This affects speech and language development, social and cognitive development and, in turn, education and life outcomes. This scoping review aimed to better understand how ear and hearing care programs for First Nations children in high-income colonial-settler countries aimed to reduce the burden of otitis media and increase equitable access to care. Specifically, the review aimed to chart program strategies, map the focus of each program against 4 parts of a care pathway (prevention, detection, diagnosis/management, rehabilitation), and to identify the factors that indicated the longer-term sustainability and success of programs., Method: A database search was conducted in March 2021 using Medline, Embase, Global Health, APA PsycInfo, CINAHL, Web of Science Core Collection, Scopus, and Academic Search Premier. Programs were eligible or inclusion if they had either been developed or run at any time between January 2010 to March 2021. Search terms encompassed terms such as First Nations children, ear and hearing care, and health programs, initiatives, campaigns, and services., Results: Twenty-seven articles met the criteria to be included in the review and described a total of twenty-one ear and hearing care programs. Programs employed strategies to: (i) connect patients to specialist services, (ii) improve cultural safety of services, and (iii) increase access to ear and hearing care services. However, program evaluation measures were limited to outputs or the evaluation of service-level outcome, rather than patient-based outcomes. Factors which contributed to program sustainability included funding and community involvement although these were limited in many cases., Conclusion: The result of this study highlighted that programs primarily operate at two points along the care pathway-detection and diagnosis/management, presumably where the greatest need lies. Targeted strategies were used to address these, some which were limited in their approach. The success of many programs are evaluated as outputs, and many programs rely on funding sources which can potentially limit longer-term sustainability. Finally, the involvement of First Nations people and communities typically only occurred during implementation rather than across the development of the program. Future programs should be embedded within a connected system of care and tied to existing policies and funding streams to ensure long term viability. Programs should be governed and evaluated by First Nations communities to further ensure programs are sustainable and are designed to meet community needs., (© 2023. The Author(s).)
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- 2023
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126. How Older Indigenous Women Living in High-Income Countries Use Digital Health Technology: Systematic Review.
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Henson C, Chapman F, Shepherd G, Carlson B, Rambaldini B, and Gwynne K
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- Female, Humans, Biomedical Technology, Delivery of Health Care, Developed Countries, Indigenous Peoples, Digital Technology
- Abstract
Background: Research associated with digital health technologies similar to the technologies themselves has proliferated in the last 2 decades. There are calls for these technologies to provide cost-effective health care for underserved populations. However, the research community has also underserved many of these populations. Older Indigenous women are one such segment of the population., Objective: Our objective is to systematically review the literature to consolidate and document what we know about how older Indigenous women living in high-income countries use digital health technology to enhance their health., Methods: We analyzed the peer-reviewed literature by systematically searching 8 databases in March 2022. We included studies published between January 2006 and March 2022 with original data specific to older Indigenous women from high-income countries that reported on the effectiveness, acceptability, and usability of some user-focused digital health technology. We incorporated 2 measures of quality for each study. We also conducted a thematic analysis and a lived experience analysis, which examined each paper from the perspectives of older Indigenous women. We followed the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) guidelines in this study., Results: Three papers met the inclusion criteria. The key findings were that older Indigenous women do not see themselves reflected in mainstream health messaging or other digital health offerings. They prefer an approach that considers their uniqueness and diversity. We also identified 2 significant gaps in the literature. First, research reporting on older Indigenous women from high-income countries' experiences with digital health technology is minimal. Second, the limited research related to older Indigenous women has not consistently engaged Indigenous people in the research process or governance., Conclusions: Older Indigenous women want digital health technologies to respond to their needs and preferences. Research is needed to understand their requirements and preferences to ensure equity as we move toward greater adoption of digital health technology. Engaging older Indigenous women throughout the research is essential to ensuring that digital health products and services are safe, usable, effective, and acceptable for older Indigenous women., (©Connie Henson, Felicity Chapman, Gina Shepherd, Bronwyn Carlson, Boe Rambaldini, Kylie Gwynne. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 18.04.2023.)
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- 2023
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127. A mixed methods study of Aboriginal health workers' and exercise physiologists' experiences of co-designing chronic lung disease 'yarning' education resources.
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Meharg DP, Dennis SM, McNab J, Gwynne KG, Jenkins CR, Maguire GP, Jan S, Shaw T, McKeough Z, Rambaldini B, Lee V, McCowen D, Newman J, Monaghan S, Longbottom H, Eades SJ, and Alison JA
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- Humans, Australian Aboriginal and Torres Strait Islander Peoples, Patient Education as Topic, Health Services, Indigenous, Lung Diseases therapy, Pulmonary Disease, Chronic Obstructive therapy
- Abstract
Background: Despite the high incidence of chronic obstructive pulmonary disease (COPD) in Aboriginal communities in Australia, Aboriginal Health Workers (AHWs) have limited knowledge about effective management., Aim: To evaluate an online education program, co-designed with AHWs and exercise physiologists (EPs) or physiotherapists (PTs), to increase knowledge about COPD and its management., Methods: AHWs and EPs from four Aboriginal Community Controlled Health Services (ACCHS) were recruited. An Aboriginal researcher and a physiotherapist experienced in COPD management and pulmonary rehabilitation (PR) delivered seven online education sessions. These sessions used co-design principles and an Aboriginal pedagogy framework '8 Ways of learning', which incorporates Aboriginal protocols and perspectives to realign teaching techniques and strengthen learning outcomes. Topics covered were: How the lungs work; What is COPD; Medications and how to use inhalers and COPD Action Plans; Why exercise is important; Managing breathlessness; Healthy eating; Managing anxiety and depression. After each session, AHWs with support from EPs, co-designed education 'yarning' resources using Aboriginal ways of learning to ensure topics were culturally safe for the local Aboriginal community and practiced delivering this at the following session. At the end of the program participants completed an anonymous online survey (5-point Likert scale) to assess satisfaction, and a semi-structured interview about their experience of the online education., Results: Of the 12 participants, 11 completed the survey (7 AHWs, 4 EPs). Most (90%) participants strongly agreed or agreed that the online sessions increased knowledge and skills they needed to support Aboriginal patients with COPD. All (100%) participants felt: their cultural perspectives and opinions were valued and that they were encouraged to include cultural knowledge. Most (91%) reported that delivering their own co-designed yarning scripts during the online sessions improved their understanding of the topics. Eleven participants completed semi-structured interviews about participating in online education to co-design Aboriginal 'yarning' resources. Themes identified were: revealing the Aboriginal lung health landscape; participating in online learning; structuring the online education sessions; co-designing with the facilitators., Conclusions: Online education using co-design and 8 Ways of learning was rated highly by AHWs and EPs for improving COPD knowledge and valuing cultural perspectives. The use of co-design principles supported the cultural adaptation of COPD resources for Aboriginal people with COPD., Trial Registration: PROSPERO (registration number: CRD42019111405)., (© 2023. The Author(s).)
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- 2023
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128. Implementing evidence into practice to improve chronic lung disease management in Indigenous Australians: the breathe easy, walk easy, lungs for life (BE WELL) project (protocol).
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Meharg DP, Jenkins CR, Maguire GP, Jan S, Shaw T, Dennis SM, McKeough Z, Lee V, Gwynne KG, McCowen D, Rambaldini B, and Alison JA
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- Humans, Australia, Cohort Studies, Disease Management, Lung, Quality of Life, Australian Aboriginal and Torres Strait Islander Peoples, Multicenter Studies as Topic, Health Services, Indigenous, Pulmonary Disease, Chronic Obstructive rehabilitation
- Abstract
Background: Strong evidence exists for the benefits of pulmonary rehabilitation (PR) for people with chronic obstructive pulmonary disease (COPD), however the availability of culturally safe PR for Aboriginal and Torres Strait Islander (Indigenous) Peoples is limited. The study aims to determine whether PR can be implemented within Aboriginal Community Controlled Health Services (ACCHS) to improve outcomes for Indigenous people with COPD., Methods: Multi-centre cohort study using participatory action research guided by the Knowledge-to-Action Framework. ACCHS supportive of enhancing services for chronic lung disease will be recruited. Aboriginal Health Workers (AHW) and the exercise physiologist (EP) or physiotherapist (PT) within these ACCHS will attend a workshop aimed at increasing knowledge and skills related to management of COPD and the provision of PR. Indigenous people with COPD will be invited to attend an 8-week, twice weekly, supervised PR program., Outcomes: AHW, EP/PT knowledge, skills and confidence in the assessment and management of COPD will be measured before and immediately after the BE WELL workshop and at 3, 6 and 12 months using a survey. PR participant measures will be exercise capacity (6-minute walk test (6MWT), health-related quality of life and health status at commencement and completion of an 8-week PR program. Secondary outcomes will include: number, length and cost of hospitalisations for a COPD exacerbation in 12-months prior and 12-months post PR; local contextual factors influencing implementation of PR; specific respiratory services provided by ACCHS to manage COPD prior to project commencement and at project completion. Repeated measures ANOVA will be used to evaluate changes in knowledge and confidence over time of AHWs and EP/PTs. Paired t-tests will be used to evaluate change in patient outcomes from pre- to post-PR. Number of hospital admissions in the 12 months before and after the PR will be compared using unpaired t-tests., Discussion: Pulmonary rehabilitation is an essential component of best-practice management of COPD and is recommended in COPD guidelines. Indigenous peoples have limited access to culturally safe PR programs. This study will evaluate whether PR can be implemented within ACCHS and improve outcomes for Indigenous people with COPD. Trial registration Australian New Zealand Clinical Trials Registry (ANZCTR) ACTRN12617001337369, Registered 2nd September 2017 https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=373585&isClinicalTrial=False., (© 2022. The Author(s).)
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- 2022
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129. Retention of the Aboriginal Health, Ageing, and Disability Workforce: Protocol for a Mixed Methods Study.
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Gilroy J, Bulkeley K, Talbot F, Gwynn J, Gwynne K, Henningham M, Alcorso C, Rambaldini B, and Lincoln M
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Background: Despite a plethora of research into Aboriginal employment and recruitment, the extent and nature of the retention of frontline Aboriginal people in health, ageing, and disability workforces are currently unknown. In this application, frontline service delivery is defined as Aboriginal people who are paid employees in the health, ageing, and disability service sectors in roles that involve direct client, participant, or patient contact. There is a need to identify the factors that inhibit (push) and promote (pull) staff retention or departure of this workforce from the sectors. This study will provide additional insight about this topic., Objective: The objective of this project is to uncover the factors that influence the retention of frontline Aboriginal workers in the health, ageing, and disability workforces in New South Wales (NSW) who do not have university qualifications. The aim of the proposed project aims to discover the push and pull factors for the retention of the frontline Aboriginal workforce in the health, ageing, and disability sectors in NSW in relation to their role, employment, and community and design evidence-based strategies for retaining the Aboriginal frontline workforce in the health, ageing, and disability sectors in NSW., Methods: The proposed research will use a mixed methods approach, collecting both quantitative and qualitative data via surveys and interviews to capture and represent the voices and perspectives of Aboriginal people in a way that the participants chose., Results: Indigenous research methodologies are a growing field in Aboriginal health research in Australia. A key strength of this study is that it is led by Aboriginal scholars and Aboriginal controlled organizations that apply an Indigenous methodological framework throughout the research process., Conclusions: This study uses a mixed methods design. The survey and interview questions and model were developed in partnership with Aboriginal health, ageing, and disability service workers rather than relying only on research publications on the workforce, government policies, and human resources strategies. This design places a strong emphasis on generalizable findings together with an inductive approach that explores employers and workers' lived experience of the Aboriginal health workforce in NSW. Excluding workers who have graduated from university places a strong focus on the workforce who have obtained either school or Technical and Further Education or registered training organizations qualifications. Data collection was conducted during the COVID-19 pandemic, and results will include the unique experiences of Aboriginal workers and employers delivering services in an extremely challenging organizational, community, and personal context., International Registered Report Identifier (irrid): PRR1-10.2196/25261., (©John Gilroy, Kim Bulkeley, Folau Talbot, Josephine Gwynn, Kylie Gwynne, Mandy Henningham, Caroline Alcorso, Boe Rambaldini, Michelle Lincoln. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 28.05.2021.)
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- 2021
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130. Atrial Fibrillation in Indigenous Australians: A Multisite Screening Study Using a Single-Lead ECG Device in Aboriginal Primary Health Settings.
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Gwynn J, Gwynne K, Rodrigues R, Thompson S, Bolton G, Dimitropoulos Y, Dulvari N, Finlayson H, Hamilton S, Lawrence M, MacNiven R, Neubeck L, Rambaldini B, Taylor K, Wright D, and Freedman B
- Subjects
- Atrial Fibrillation diagnosis, Cross-Sectional Studies, Female, Humans, Male, Middle Aged, New South Wales epidemiology, Prevalence, Atrial Fibrillation ethnology, Electrocardiography, Health Services, Indigenous organization & administration, Mass Screening methods, Native Hawaiian or Other Pacific Islander
- Abstract
Background: Circulatory diseases continue to be the greatest cause of mortality for Australian Aboriginal and Torres Strait Islander people, and a major cause of persistently lower life expectancy compared with non-Aboriginal Australians. The limited information that exists on atrial fibrillation (AF) prevalence in Aboriginal and Torres Strait Islander communities is mostly based on hospital admission data. This shows AF as principal or additional admission diagnosis was 1.4 times higher compared to non-Aboriginal Australians, a higher incidence of AF across the adult life span after age 20 years and a significantly higher prevalence among younger patients. Our study estimates the first national community prevalence and age distribution of AF (including paroxysmal) in Australian Aboriginal people. A handheld single-lead electrocardiograph (ECG) device (iECG), known to be acceptable in this population, was used to record participant ECGs., Methods: This co-designed, descriptive cross-sectional study was conducted in partnership with 16 Aboriginal Community Controlled Health organisations at their facilities and/or with their services delivered elsewhere. The study was also conducted at one state community event. Three (3) Australian jurisdictions were involved: New South Wales, Western Australia and the Northern Territory. Study sites were located in remote, regional and urban areas. Opportunistic recruitment occurred between June 2016 and December 2017. People <45 years of age were excluded., Results: Thirty (30) of 619 Aboriginal people received a 'Possible AF' and 81 an 'Unclassified' result from a hand-held smartphone ECG device. A final diagnosis of AF was made in 29 participants (4.7%; 95%CI 3.0-6.4%), 25 with known AF (five paroxysmal), and four with previously unknown AF. Three (3) of the four with unknown AF were aged between 55-64 years, consistent with a younger age of AF onset in Aboriginal people. Estimated AF prevalence increased with age and was higher in those aged >55 years than the general population (7.2% compared with 5.4%). Slightly more men than women were diagnosed with AF., Conclusions: This study is a significant contribution to the evidence which supports screening for AF in Aboriginal and Torres Strait Islander people commencing at a younger age than as recommended in the Australian guidelines (>65 years). We recommend the age of 55 years. Consideration should be given to the inclusion of AF screening in the Australian Government Department of Health annual 'Aboriginal and Torres Strait Islander Health Assessment'., Clinical Trial Registration: ACTRN12616000459426., (Copyright © 2020 Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS) and the Cardiac Society of Australia and New Zealand (CSANZ). All rights reserved.)
- Published
- 2021
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131. A graduate oral health therapist program to support dental service delivery and oral health promotion in Aboriginal communities in New South Wales, Australia.
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Skinner J, Dimitropoulos Y, Moir R, Johnson G, McCowen D, Rambaldini B, Yaacoub A, and Gwynne K
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- Child, Humans, New South Wales, Northern Territory, Pediatric Obesity, Australian Aboriginal and Torres Strait Islander Peoples, Dental Care, Health Promotion, Oral Health, Rural Health Services
- Abstract
Introduction: The early closure of the Voluntary Dental Graduate Year Program and the Oral Health Therapy Graduate Year Program by the Australian Government adversely impacted New South Wales (NSW) Aboriginal Community Controlled Health Services (ACCHSs). This led to the co-design of a small-scale oral health therapy graduate year program for ACCHSs known as the Dalang Project, which enabled oral health therapists to engage with local Aboriginal communities and implement culturally competent, practical and evidence-based oral health promotion activities. This article provides an overview of the Dalang Project and its evaluation., Methods: All graduates of the Dalang Project were invited via email and social media to complete an online survey. The survey included questions about their year in the Dalang Project, why they applied, what they liked and disliked about the project, where they planned to work post-placement, and examples of the most significant changes they observed in the communities where they were placed. Host sites were also surveyed and data were collated on clinical services performed as well as oral health promotion activity., Results: Prior to commencing the Dalang Project only 4 of the 15 respondents came from rural or regional areas. Nine of the 15 respondents were considering working in a regional, rural or remote area prior to applying for the Dalang Project. Twelve respondents were working at the time of the survey and half were working in regional, rural or remote locations in NSW and one in the Northern Territory. All reported that they would be more likely to work in an ACCHS as a result of being a part of the Dalang Project. The majority of respondents said they would recommend the program to future graduates. A total of 63 schools, 21 preschools and 15 community health services received regular dental health education through the Dalang Project. A total of 3250 toothbrushes and fluoride toothpastes were distributed to children and families through the Dalang Project. A key part of the program was the installation of refrigerated and filtered water fountains in schools where there was no free filtered or refrigerated water supply. The inclusion of this component in the program was part of the co-design process and links the program to the wider population health strategies in NSW to help prevent childhood obesity., Conclusion: The Dalang Project is an example of a successful co-designed project that has positively impacted oral health service delivery for Aboriginal children and has provided a valuable experience for new graduate oral health therapists working in ACCHSs. Overall, the Dalang Project was found to be a positive professional experience for the oral health therapists with many remaining in rural, remote and regional locations after completing the program.
- Published
- 2021
- Full Text
- View/download PDF
132. A scope of practice comparison of two models of public oral health services for Aboriginal people living in rural and remote communities.
- Author
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Gwynne K, Poppe K, McCowen D, Dimitropoulos Y, Rambaldini B, Skinner J, and Blinkhorn A
- Subjects
- Health Services, Indigenous, Humans, Native Hawaiian or Other Pacific Islander, Oral Health, Public Health, Rural Population, Rural Health Services, Scope of Practice
- Published
- 2021
- Full Text
- View/download PDF
133. A collaboration with local Aboriginal communities in rural New South Wales, Australia to determine the oral health needs of their children and develop a community-owned oral health promotion program.
- Author
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Dimitropoulos Y, Gunasekera H, Blinkhorn A, Byun R, Binge N, Gwynne K, and Irving M
- Subjects
- Adult, Child, Child, Preschool, Community Health Workers, Cooperative Behavior, Dental Care methods, Dental Caries ethnology, Dental Health Surveys, Dietary Sugars, Female, Health Knowledge, Attitudes, Practice, Humans, Male, Middle Aged, New South Wales, Oral Hygiene, Risk Factors, Young Adult, Health Promotion organization & administration, Native Hawaiian or Other Pacific Islander, Oral Health ethnology, Rural Health Services organization & administration, School Health Services organization & administration
- Abstract
Introduction: As part of an oral health service for Aboriginal people in central northern New South Wales (NSW), Australia, oral health promotion was identified as a priority by the local Aboriginal community. The objective of this study was to collaborate with local Aboriginal communities to determine (1) the oral health needs of Aboriginal children aged 5-12 years, (2) the oral health knowledge and attitudes towards oral health of parents/guardians and (3) the perceived barriers and enablers towards oral health promotion for school children by local school staff and community health workers. The results of this collaboration will inform a community-owned oral health promotion program., Methods: Aboriginal children aged 5-12 years enrolled in local schools received a dental screening by a single examiner. The number of decayed, missing and filled teeth of primary and permanent dentition (dmft/DMFT), plaque and gingivitis were recorded. Children completed a questionnaire assessing current oral hygiene practices, dental history and information on their diet. Parents/guardians completed a questionnaire assessing oral health knowledge and attitudes towards oral health. School staff and community health workers completed a questionnaire assessing attitudes, barriers and enablers towards implementing an oral health promotion program in schools., Results: Eighty-eight children, representing 94% of those eligible, were screened, and 78 (82%) completed a questionnaire. The mean dmft/DMFT score was 5.3. Risk factors for dental caries identified included lack of toothbrush ownership (35%), minimal fluoride toothpaste use (24%), limited daily tooth brushing (51%) and frequent consumption of sugary foods (72%) and soft drinks (64%). Questionnaires were completed by 32 parents/guardians and 39 school and community health workers. Parents/guardians had limited oral health knowledge. School and health staff were willing to support a health promotion program to improve dental health of children., Conclusion: Aboriginal children living in rural and remote communities in NSW experience high rates of dental caries. Oral health promotion is urgently required to reduce the burden of dental caries and should address oral hygiene behaviours, fluoride use and access to healthy foods and drinks. Note: This article uses the term 'Aboriginal people' when referring to the first peoples of Australia. This term is inclusive of Australian Aboriginal and Torres Strait Islander people.
- Published
- 2018
- Full Text
- View/download PDF
134. Developing a Sustainable Model of Oral Health Care for Disadvantaged Aboriginal People Living in Rural and Remote Communities in NSW, Using Collective Impact Methodology.
- Author
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Gwynne K, Irving MJ, McCowen D, Rambaldini B, Skinner J, Naoum S, and Blinkhorn A
- Subjects
- Humans, Models, Organizational, New South Wales, Oral Health ethnology, Rural Population, Vulnerable Populations, Dental Care organization & administration, Health Services, Indigenous organization & administration, Native Hawaiian or Other Pacific Islander, Rural Health Services organization & administration
- Abstract
A sustainable model of oral health care for disadvantaged Aboriginal people living in rural and remote communities in New South Wales was developed using collective impact methodology. Collective impact is a structured process which draws together organizations to develop a shared agenda and design solutions which are jointly resourced, measured and reported upon.
- Published
- 2016
- Full Text
- View/download PDF
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