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51. Psychosocial functioning in adolescents growing up with chronic disease: The Dutch HBSC study

Author

Berkelbach van der Sprenkel, Emma E., primary, Nijhof, Sanne L., additional, Dalmeijer, Geertje W., additional, Onland-Moret, N. Charlotte, additional, de Roos, Simone A., additional, Lesscher, Heidi M. B., additional, van de Putte, Elise M., additional, van der Ent, Cornelis K., additional, Finkenauer, Catrin, additional, and Stevens, Gonneke W. J. M., additional

Published
2021
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53. A widening gap between boys and girls in musculoskeletal complaints, while growing up from age 11 to age 20 - The PIAMA Birth Cohort Study

Author

Picavet, H Susan J, Gehring, Ulrike, van Haselen, Amanda, Koppelman, Gerard H, van de Putte, Elise M, Vader, Sarah, van der Wouden, J Hans C, Schmits, Ruben J H, Smit, Henriette A, Wijga, Alet, IRAS OH Epidemiology Chemical Agents, dIRAS RA-2, One Health Chemisch, LS IRAS EEPI ME (Milieu epidemiologie), Groningen Research Institute for Asthma and COPD (GRIAC), APH - Quality of Care, APH - Aging & Later Life, General practice, IRAS OH Epidemiology Chemical Agents, dIRAS RA-2, One Health Chemisch, and LS IRAS EEPI ME (Milieu epidemiologie)

Subjects
Adult, Male, Adolescent, Logistic regression, upper extremity complaints, Musculoskeletal complaints, Cohort Studies, Young Adult, 03 medical and health sciences, Sex Factors, 0302 clinical medicine, lower extremity complaints, Hypersensitivity, Animals, Humans, Medicine, 030212 general & internal medicine, Child, boys and girls, Asthma, Early onset, Mites, back complaints, business.industry, Incidence, Persistent pain, Incidence (epidemiology), Original Articles, medicine.disease, Anesthesiology and Pain Medicine, Lifestyle factors, children and adolescents, Original Article, Female, Birth cohort, business, Psychosocial, 030217 neurology & neurosurgery, Demography
Abstract

Introduction: The adolescent years represent a key period for the development of musculoskeletal complaints (MSC) and the differences between boys and girls. We evaluated the prevalence and course of MSC and factors associated with MSC while growing up from age 11 to age 20. Methods: Questionnaire-based data at age 11 (n = 2,638), age 14 (n = 2,517), age 17 (n = 2,094) and at age 20 (n = 2,206) from the ongoing Prevention and Incidence of Asthma and Mite Allergy (PIAMA) birth cohort were analyzed. MSC refers to pain of lower back, upper- and/or lower extremities. A multivariable logistic regression analysis was used to evaluate a number of factors in relation to persistent pain (pain reported at three out of four measurements). Results: Prevalence of MSC increased from 14.2% at age 11 to 22.1% at age 20 for boys, and from 17.4% at age 11 to 37.9% at age 20 for girls. Persistent pain was found among 5.1% of the boys and 16.5% of the girls. Being bullied, sleeping problems and tiredness during the day were significantly associated with persistent pain, in both boys and girls, while the latter two were more prevalent among girls. Self-reported (sports-) accidents, and among girls also early onset of puberty, were also significantly associated with persistent pain, but lifestyle factors, such as physical activity and smoking, were not. Conclusion: The prevalence of MSC increases during adolescence, with a widening gap between boys and girls. The factors associated with MSC are similar in boys and girls, though the prevalence of some of these differ by sex. Significance: Measuring a group of youngsters 4 times between age 11 and 20 shows an increase in the percentage reporting musculoskeletal complaints (MSC) with a widening gap between girls and boys, with more pain among girls. Boys and girls do hardly differ with respect to factors associated with MSC, being mainly psychosocial factors and (sports) accidents.

Published
2021

55. Parent-Child Dyadic Coping and Quality of Life in Chronically Diseased Children

Author

Nap-van der Vlist, Merel M., primary, van der Wal, Reine C., additional, Grosfeld, Eva, additional, van de Putte, Elise M., additional, Dalmeijer, Geertje W., additional, Grootenhuis, Martha A., additional, van der Ent, Cornelis K., additional, van den Heuvel-Eibrink, Marry M., additional, Swart, Joost F., additional, Bodenmann, Guy, additional, Finkenauer, Catrin, additional, and Nijhof, Sanne L., additional

Published
2021
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57. Daily life participation in childhood chronic disease: a qualitative study on the child’s and parent’s perspective

Author

Nap-van der Vlist, Merel M, primary, Berkelbach van der Sprenkel, Emma E, additional, Nijhof, Linde N, additional, Grootenhuis, Martha A, additional, van der Ent, Cornelis K, additional, Swart, Joost F, additional, van Royen-Kerkhof, Annet, additional, van Grotel, Martine, additional, van de Putte, Elise M, additional, Nijhof, Sanne L, additional, and Kars, Marijke C, additional

Published
2021
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59. A widening gap between boys and girls in musculoskeletal complaints, while growing up from age 11 to age 20 - the PIAMA birth Cohort study

Author

IRAS OH Epidemiology Chemical Agents, dIRAS RA-2, One Health Chemisch, LS IRAS EEPI ME (Milieu epidemiologie), Picavet, H Susan J, Gehring, Ulrike, van Haselen, Amanda, Koppelman, Gerard H, van de Putte, Elise M, Vader, Sarah, van der Wouden, J Hans C, Schmits, Ruben J H, Smit, Henriette A, Wijga, Alet, IRAS OH Epidemiology Chemical Agents, dIRAS RA-2, One Health Chemisch, LS IRAS EEPI ME (Milieu epidemiologie), Picavet, H Susan J, Gehring, Ulrike, van Haselen, Amanda, Koppelman, Gerard H, van de Putte, Elise M, Vader, Sarah, van der Wouden, J Hans C, Schmits, Ruben J H, Smit, Henriette A, and Wijga, Alet

Published
2021

60. Parent-Child Dyadic Coping and Quality of Life in Chronically Diseased Children

Author

Leerstoel Derks, Work and Organizational Psychology: Occupational Health Psychology, Leerstoel Ellemers, Social identity: Morality and diversity, Leerstoel Finkenauer, Youth in Changing Cultural Contexts, Nap-van der Vlist, Merel M, van der Wal, Reine C, Grosfeld, Eva, van de Putte, Elise M, Dalmeijer, Geertje W, Grootenhuis, Martha A, van der Ent, Cornelis K, van den Heuvel-Eibrink, Marry M, Swart, Joost F, Bodenmann, Guy, Finkenauer, Catrin, Nijhof, Sanne L, Leerstoel Derks, Work and Organizational Psychology: Occupational Health Psychology, Leerstoel Ellemers, Social identity: Morality and diversity, Leerstoel Finkenauer, Youth in Changing Cultural Contexts, Nap-van der Vlist, Merel M, van der Wal, Reine C, Grosfeld, Eva, van de Putte, Elise M, Dalmeijer, Geertje W, Grootenhuis, Martha A, van der Ent, Cornelis K, van den Heuvel-Eibrink, Marry M, Swart, Joost F, Bodenmann, Guy, Finkenauer, Catrin, and Nijhof, Sanne L

Published
2021

61. Headache in girls and boys growing up from age 11 to 20 years: the PIAMA birth cohort study

Author

IRAS OH Epidemiology Chemical Agents, dIRAS RA-2, Wijga, Alet H, Gehring, Ulrike, van de Putte, Elise M, Koppelman, Gerard, Vader, Sarah, Schmits, Ruben J H, Wouden, J Hans C van der, Picavet, H Susan J, IRAS OH Epidemiology Chemical Agents, dIRAS RA-2, Wijga, Alet H, Gehring, Ulrike, van de Putte, Elise M, Koppelman, Gerard, Vader, Sarah, Schmits, Ruben J H, Wouden, J Hans C van der, and Picavet, H Susan J

Published
2021

62. Parent-Child Dyadic Coping and Quality of Life in Chronically Diseased Children

Author

Nap-van der Vlist, Merel M, van der Wal, Reine C, Grosfeld, Eva, van de Putte, Elise M, Dalmeijer, Geertje W, Grootenhuis, Martha A, van der Ent, Cornelis K, van den Heuvel-Eibrink, Marry M, Swart, Joost F, Bodenmann, Guy; https://orcid.org/0000-0003-0964-6409, Finkenauer, Catrin, Nijhof, Sanne L, Nap-van der Vlist, Merel M, van der Wal, Reine C, Grosfeld, Eva, van de Putte, Elise M, Dalmeijer, Geertje W, Grootenhuis, Martha A, van der Ent, Cornelis K, van den Heuvel-Eibrink, Marry M, Swart, Joost F, Bodenmann, Guy; https://orcid.org/0000-0003-0964-6409, Finkenauer, Catrin, and Nijhof, Sanne L

Abstract

Different forms of dyadic coping are associated with positive outcomes in partner relationships, yet little is known about dyadic coping in parent-child relationships. The current research explored the association between parent-child dyadic coping and children's quality of life in 12-18-year old children with a chronic disease (i.e., cystic fibrosis, autoimmune diseases, and children post-cancer treatment). In a sample of 105 parent-child dyads, self-reported forms of dyadic coping (i.e., stress communication, problem-oriented, emotion-oriented, and negative dyadic coping) and children's quality of life were assessed. Children reported more stress communication and negative dyadic coping than their parents, while parents reported more problem-oriented dyadic coping and emotion-oriented dyadic coping than their children. More stress communication of the child was associated with more emotion-oriented dyadic coping and less negative dyadic coping of the parent. More negative dyadic coping of the child was associated with less stress communication, problem-oriented dyadic coping and emotion-oriented dyadic coping of the parent. Additionally, both children's and parents' negative dyadic coping were associated with lower self-reported pediatric quality of life and parents' emotion-oriented dyadic coping was associated with higher pediatric quality of life. These findings emphasize that children and their parents mutually influence each other and that dyadic coping is associated with children's quality of life. Theoretical and practical implications are discussed.

Published
2021

63. Effectiveness of Internet-Based Cognitive Behavior Therapy (Fatigue in Teenagers on the Internet) for Adolescents With Chronic Fatigue Syndrome in Routine Clinical Care: Observational Study

Author

Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Albers, Eline, Nijhof, Linde N, Berkelbach van der Sprenkel, Emma E, van de Putte, Elise M, Nijhof, Sanne L, Knoop, Hans, Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Albers, Eline, Nijhof, Linde N, Berkelbach van der Sprenkel, Emma E, van de Putte, Elise M, Nijhof, Sanne L, and Knoop, Hans

Published
2021

64. A widening gap between boys and girls in musculoskeletal complaints, while growing up from age 11 to age 20 - the PIAMA birth Cohort study

Author

Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Public Health Practice, Public Health Epidemiologie, Picavet, H. Susan J., Gehring, Ulrike, van Haselen, Amanda, Koppelman, Gerard H., van de Putte, Elise M., Vader, Sarah, van der Wouden, J. (Hans) C., Schmits, Ruben J.H., Smit, Henriette A., Wijga, Alet, Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Public Health Practice, Public Health Epidemiologie, Picavet, H. Susan J., Gehring, Ulrike, van Haselen, Amanda, Koppelman, Gerard H., van de Putte, Elise M., Vader, Sarah, van der Wouden, J. (Hans) C., Schmits, Ruben J.H., Smit, Henriette A., and Wijga, Alet

Published
2021

65. Headache in girls and boys growing up from age 11 to 20 years: the Prevention and Incidence of Asthma and Mite Allergy birth cohort study

Author

Onderzoeksgroep 10, Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Wijga, Alet H., Gehring, Ulrike, van de Putte, Elise M., Koppelman, Gerard H., Vader, Sarah, Schmits, Ruben J.H., van der Wouden, Johannes C., Picavet, H. Susan J., Onderzoeksgroep 10, Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Wijga, Alet H., Gehring, Ulrike, van de Putte, Elise M., Koppelman, Gerard H., Vader, Sarah, Schmits, Ruben J.H., van der Wouden, Johannes C., and Picavet, H. Susan J.

Published
2021

66. Parent-Child Dyadic Coping and Quality of Life in Chronically Diseased Children

Author

Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Public Health Epidemiologie, Speerpunt, Zorg en O&O, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Integrale & Alg. Kindergen Patientenzorg, Nap-van der Vlist, Merel M., van der Wal, Reine C., Grosfeld, Eva, van de Putte, Elise M., Dalmeijer, Geertje W., Grootenhuis, Martha A., van der Ent, Cornelis K., van den Heuvel-Eibrink, Marry M., Swart, Joost F., Bodenmann, Guy, Finkenauer, Catrin, Nijhof, Sanne L., Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Public Health Epidemiologie, Speerpunt, Zorg en O&O, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Integrale & Alg. Kindergen Patientenzorg, Nap-van der Vlist, Merel M., van der Wal, Reine C., Grosfeld, Eva, van de Putte, Elise M., Dalmeijer, Geertje W., Grootenhuis, Martha A., van der Ent, Cornelis K., van den Heuvel-Eibrink, Marry M., Swart, Joost F., Bodenmann, Guy, Finkenauer, Catrin, and Nijhof, Sanne L.

Published
2021

67. Role of parents in fatigue of children with a chronic disease: A cross-sectional study

Author

Integrale & Alg. Kindergen Patientenzorg, Child Health, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Revalidatiegeneeskunde Onderzoek, Brain, Speerpunt, Zorg en O&O, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Team 2 Hemat, PMC Medisch specialisten, Public Health Epidemiologie, Kramer, Niels, Nijhof, Sanne L., Van De Putte, Elise M., Ketelaar, Marjolijn, Grootenhuis, Martha A., Van Der Ent, Kors, Swart, Joost F., Van Grotel, Martine, Dalmeijer, Geertje W., Nap-Van Der Vlist, Merel M., Integrale & Alg. Kindergen Patientenzorg, Child Health, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Revalidatiegeneeskunde Onderzoek, Brain, Speerpunt, Zorg en O&O, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Team 2 Hemat, PMC Medisch specialisten, Public Health Epidemiologie, Kramer, Niels, Nijhof, Sanne L., Van De Putte, Elise M., Ketelaar, Marjolijn, Grootenhuis, Martha A., Van Der Ent, Kors, Swart, Joost F., Van Grotel, Martine, Dalmeijer, Geertje W., and Nap-Van Der Vlist, Merel M.

Published
2021

68. Daily life participation in childhood chronic disease: A qualitative study on the child's and parent's perspective

Author

Sociale pediatrie onderzoek 1, Child Health, Speerpunt, Zorg en O&O, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Geneeskunde, Lab Translational Oncology, PMC Medisch specialisten, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Palliatieve Zorg, Cancer, JC onderzoeksprogramma Kanker, Nap-Van Der Vlist, Merel M., Berkelbach Van Der Sprenkel, Emma E., Nijhof, Linde N., Grootenhuis, Martha A., Van Der Ent, Cornelis K., Swart, Joost F., Van Royen-Kerkhof, Annet, Van Grotel, Martine, Van De Putte, Elise M., Nijhof, Sanne L., Kars, Marijke C., Sociale pediatrie onderzoek 1, Child Health, Speerpunt, Zorg en O&O, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Geneeskunde, Lab Translational Oncology, PMC Medisch specialisten, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Palliatieve Zorg, Cancer, JC onderzoeksprogramma Kanker, Nap-Van Der Vlist, Merel M., Berkelbach Van Der Sprenkel, Emma E., Nijhof, Linde N., Grootenhuis, Martha A., Van Der Ent, Cornelis K., Swart, Joost F., Van Royen-Kerkhof, Annet, Van Grotel, Martine, Van De Putte, Elise M., Nijhof, Sanne L., and Kars, Marijke C.

Published
2021

69. Internet and smartphone-based ecological momentary assessment and personalized advice (PROfeel) in adolescents with chronic conditions: A feasibility study

Author

Sociale pediatrie onderzoek 1, Public Health Epidemiologie, Speerpunt, Zorg en O&O, Child Health, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, PMC Medisch specialisten, Immuno/reuma patientenzorg, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Nap-van der Vlist, Merel M., Houtveen, Jan, Dalmeijer, Geertje W., Grootenhuis, Martha A., van der Ent, Cornelis K., van Grotel, Martine, Swart, Joost F., van Montfrans, Joris M., van de Putte, Elise M., Nijhof, Sanne L., Sociale pediatrie onderzoek 1, Public Health Epidemiologie, Speerpunt, Zorg en O&O, Child Health, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, PMC Medisch specialisten, Immuno/reuma patientenzorg, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Nap-van der Vlist, Merel M., Houtveen, Jan, Dalmeijer, Geertje W., Grootenhuis, Martha A., van der Ent, Cornelis K., van Grotel, Martine, Swart, Joost F., van Montfrans, Joris M., van de Putte, Elise M., and Nijhof, Sanne L.

Published
2021

70. Fatigue among children with a chronic disease: A cross-sectional study

Author

Sociale pediatrie onderzoek 1, Public Health Epidemiologie, Speerpunt, Zorg en O&O, Child Health, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Nap-Van Der Vlist, Merel M., Dalmeijer, Geertje W., Grootenhuis, Martha A., Van Der Ent, Kors, Van Den Heuvel-Eibrink, Marry M., Swart, Joost F., Van De Putte, Elise M., Nijhof, Sanne L., Sociale pediatrie onderzoek 1, Public Health Epidemiologie, Speerpunt, Zorg en O&O, Child Health, Longziekten patientenzorg, Speerpunt Child Health, Infection & Immunity, Immuno/reuma patientenzorg, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Nap-Van Der Vlist, Merel M., Dalmeijer, Geertje W., Grootenhuis, Martha A., Van Der Ent, Kors, Van Den Heuvel-Eibrink, Marry M., Swart, Joost F., Van De Putte, Elise M., and Nijhof, Sanne L.

Published
2021

71. Severe Fatigue Is Common Among Pediatric Patients with Primary Immunodeficiency and Is Not Related to Disease Activity

Author

Sociale pediatrie onderzoek 1, Child Health, Activity&Health sectie exercise, Regenerative Medicine and Stem Cells, Immuno/reuma patientenzorg, Infection & Immunity, Integrale & Alg. Kindergen Patientenzorg, Nijhof, Linde N, van Brussel, Marco, Pots, Esther M, van Litsenburg, Raphaële R L, van de Putte, Elise M, van Montfrans, Joris M, Nijhof, Sanne L, Sociale pediatrie onderzoek 1, Child Health, Activity&Health sectie exercise, Regenerative Medicine and Stem Cells, Immuno/reuma patientenzorg, Infection & Immunity, Integrale & Alg. Kindergen Patientenzorg, Nijhof, Linde N, van Brussel, Marco, Pots, Esther M, van Litsenburg, Raphaële R L, van de Putte, Elise M, van Montfrans, Joris M, and Nijhof, Sanne L

Published
2021

75. Physical Treatments Reduce Pain in Children with Tension-Type Headache: A Systematic Review and Meta-Analysis

Author

Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Bot, Maria N., de Wijer, Anton, Pool, Jan, Bronkhorst, Ewald M., Kalaykova, Stanimira Sparreboom, Creugers, Nico Hj, van de Putte, Elise M., Sociale pediatrie onderzoek 1, Child Health, Regenerative Medicine and Stem Cells, Bot, Maria N., de Wijer, Anton, Pool, Jan, Bronkhorst, Ewald M., Kalaykova, Stanimira Sparreboom, Creugers, Nico Hj, and van de Putte, Elise M.

Published
2020

76. Daily life participation in childhood chronic disease: a qualitative study

Author

Sociale pediatrie onderzoek 1, Palliatieve Zorg, Cancer, Child Health, JC onderzoeksprogramma Kanker, Zorg en O&O, Speerpunt, Speerpunt Child Health, Longziekten patientenzorg, Infection & Immunity, Immuno/reuma patientenzorg, PMC Medisch specialisten, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Nap-van der Vlist, Merel M, Kars, Marijke C, Berkelbach van der Sprenkel, Emma E, Nijhof, Linde N, Grootenhuis, Martha A, van Geelen, Stefan M, van der Ent, Cornelis K, Swart, Joost F, van Royen-Kerkhof, Annet, van Grotel, Martine, van de Putte, Elise M, Nijhof, Sanne L, Sociale pediatrie onderzoek 1, Palliatieve Zorg, Cancer, Child Health, JC onderzoeksprogramma Kanker, Zorg en O&O, Speerpunt, Speerpunt Child Health, Longziekten patientenzorg, Infection & Immunity, Immuno/reuma patientenzorg, PMC Medisch specialisten, Regenerative Medicine and Stem Cells, Integrale & Alg. Kindergen Patientenzorg, Nap-van der Vlist, Merel M, Kars, Marijke C, Berkelbach van der Sprenkel, Emma E, Nijhof, Linde N, Grootenhuis, Martha A, van Geelen, Stefan M, van der Ent, Cornelis K, Swart, Joost F, van Royen-Kerkhof, Annet, van Grotel, Martine, van de Putte, Elise M, and Nijhof, Sanne L

Published
2020

78. Mirrored symptoms in mother and child with chronic fatigue syndrome

Author

van de Putte, Elise M., van Doornen, Lorenz J.P., Engelbert, Raoul H.H., Kuis, Wietse, Kimpen, Jan L.L., and Uiterwaal, Cuno S.P.M.

Subjects
Chronic fatigue syndrome -- Case studies
Abstract

OBJECTIVE. Our aim with this study was to assess the relation between chronic fatigue syndrome in adolescents and fatigue and associated symptoms in their fathers and mothers, more specifically the presence of chronic fatigue syndrome-like symptoms and psychologic distress. METHOD. In this cross-sectional study, 40 adolescents with chronic fatigue syndrome according to the Centers for Disease Control and Prevention criteria were compared with 36 healthy control subjects and their respective parents. Questionnaires regarding fatigue (Checklist Individual Strength), fatigue-associated symptoms, and psychopathology (Symptom Checklist-90) were applied to the children and their parents. RESULTS. Psychologic distress in the mother corresponds with an adjusted odds ratio of 5.6 for the presence of CFS in the child. The presence of fatigue in the mother and dimensional assessment of fatigue with the Checklist Individual Strength revealed odds ratios of, respectively, 5.29 and 2.86 for the presence of chronic fatigue syndrome in the child. An increase of 1 SD of the hours spent by the working mother outside the home reduced the risk for chronic fatigue syndrome in their child with 61%. The fathers did not show any risk indicator for chronic fatigue syndrome in their child. CONCLUSIONS. Mothers of adolescents with chronic fatigue syndrome exhibit fatigue and psychologic symptoms similar to their child in contrast with the fathers. The striking difference between the absent association in fathers and the evident association in mothers suggests that the shared symptom complex of mother and child is the result of an interplay between genetic vulnerability and environmental factors. Key Words chronic fatigue syndrome, familial aggregation, family health, risk, psychopathology Abbreviations CFS--chronic fatigue syndrome CDC--Centers for Disease Control and Prevention CIS-20--Checklist Individual Strength SCL-90-R--revised Symptom Checklist CDI--Children's Depression Inventory OR--odds ratio 95% CI--95% confidence interval, A MAJOR CONSENSUS in modern pediatric practice is that a child's health is profoundly influenced by family structure, family dynamics, and family functioning. (1) Nevertheless, remarkably little is known about [...]

Published
2006

84. Daily life participation in childhood chronic disease: a qualitative study

Author

Nap-van der Vlist, Merel M, primary, Kars, Marijke C, additional, Berkelbach van der Sprenkel, Emma E, additional, Nijhof, Linde N, additional, Grootenhuis, Martha A, additional, van Geelen, Stefan M, additional, van der Ent, Cornelis K, additional, Swart, Joost F, additional, van Royen-Kerkhof, Annet, additional, van Grotel, Martine, additional, van de Putte, Elise M, additional, and Nijhof, Sanne L, additional

Published
2019
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85. Exploring key elements of approaches that support childrens' preferences during painful and stressful medical procedures: A scoping review.

Author

Segers, Elisabeth W., Ketelaar, Marjolijn, Taddio, Anna, de Man, Marjorie A.C.P., Schoonhoven, Lisette, van de Putte, Elise M., and van den Hoogen, Agnes

Abstract

Children undergoing medical procedures can experience pain and distress. While numerous interventions exist to mitigate pain and distress, the ability to individualize the intervention to suit the needs and preferences of individual children is emerging as an important aspect of providing family-centered care and shared decision making. To date, the approaches for supporting children to express their preferences have not been systematically identified and described. A scoping review was conducted to identify such approaches and to describe the elements that are included in them. Studies that (a) described approaches with the aim to support children to express their coping preferences during medical procedures; (b) included the option for children to choose coping interventions; (c) included a child (1‐–18 years). Searches were conducted in December 2019 and November 2020 in the following databases: Cinahl, Embase, PubMed and Psycinfo. Thirteen studies were identified that included six distinct approaches. Four important key elements were identified: 1) Aid to express preferences or choice, 2) Information Provision, 3) Assessment of feelings/emotions, 4) Feedback/Reflection and Reward. Identified approaches incorporate components of shared decision-making to support children in expressing their preferences during medical procedures and treatments. Children undergoing medical procedures can be supported in expressing their coping needs and preferences by using components of shared decision-making. [ABSTRACT FROM AUTHOR]

Published
2022
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87. Screening op kindermishandeling : wat levert het op?

Author

Schouten, Maartje C.M., Sittig, Judith S., and Van De Putte, Elise M.

Subjects
Journal Article, English Abstract
Abstract

In the Netherlands, child abuse is a national problem and often not recognized in medical settings. As a consequence, it has become mandatory to use a screening instrument for child abuse at emergency departments and out-of-hours primary care services. Since the revised Reporting Code has come into force, there is renewed interest for a national approach on screening for child abuse. The question is how valid existing screening instruments are and how they help the medical professional to suspect child abuse. In this article, we elaborate on the value of available screening instruments and their consequences for daily practice. Because of the limited validity of available screening instruments, we recommend replacing them with a simple reminder to increase awareness of child abuse. A nationwide approach to child abuse in the medical setting should be implemented, with mandatory training on child abuse as its cornerstone.

Published
2019

89. Fatigue in childhood chronic disease

Author

Nap-Van Der Vlist, Merel M., Dalmeijer, Geertje W., Grootenhuis, Martha A., Van Der Ent, Cornelis K., Van Den Heuvel-Eibrink, Marry M., Wulffraat, Nico M., Swart, Joost F., Van Litsenburg, Raphaële R.L., Van De Putte, Elise M., Nijhof, Sanne L., Nap-Van Der Vlist, Merel M., Dalmeijer, Geertje W., Grootenhuis, Martha A., Van Der Ent, Cornelis K., Van Den Heuvel-Eibrink, Marry M., Wulffraat, Nico M., Swart, Joost F., Van Litsenburg, Raphaële R.L., Van De Putte, Elise M., and Nijhof, Sanne L.

Published
2019

90. Pelvic floor rehabilitation in children with functional LUTD: does it improve outcome?

Author

Incontinentieteam, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Child Health, Ambulante zorg, Kinderbewegingszorg patientenzorg, Urologie Medisch Kinderen, E&R onderzoek, Nieuwhof-Leppink, Anka J., van Geen, Frank Jan, van de Putte, Elise M., Schoenmakers, Marja A.G.C., de Jong, Tom P.V.M., Schappin, Renske, Incontinentieteam, Sociale pediatrie onderzoek 1, Regenerative Medicine and Stem Cells, Child Health, Ambulante zorg, Kinderbewegingszorg patientenzorg, Urologie Medisch Kinderen, E&R onderzoek, Nieuwhof-Leppink, Anka J., van Geen, Frank Jan, van de Putte, Elise M., Schoenmakers, Marja A.G.C., de Jong, Tom P.V.M., and Schappin, Renske

Published
2019

91. Fatigue in childhood chronic disease

Author

Sociale pediatrie onderzoek 1, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zorg en O&O, Speerpunt, Child Health, Speerpunt Child Health, Longziekten patientenzorg, Infection & Immunity, Immunologie/Reumatologie, Cluster B, Immuno/reuma onderzoek 1 (Vastert), Onderzoek, Regenerative Medicine and Stem Cells, Immuno/reuma patientenzorg, Integrale & Alg. Kindergen Patientenzorg, Nap-Van Der Vlist, Merel M., Dalmeijer, Geertje W., Grootenhuis, Martha A., Van Der Ent, Cornelis K., Van Den Heuvel-Eibrink, Marry M., Wulffraat, Nico M., Swart, Joost F., Van Litsenburg, Raphaële R.L., Van De Putte, Elise M., Nijhof, Sanne L., Sociale pediatrie onderzoek 1, Circulatory Health, JC onderzoeksprogramma Cardiovasculaire Epidemiologie, Zorg en O&O, Speerpunt, Child Health, Speerpunt Child Health, Longziekten patientenzorg, Infection & Immunity, Immunologie/Reumatologie, Cluster B, Immuno/reuma onderzoek 1 (Vastert), Onderzoek, Regenerative Medicine and Stem Cells, Immuno/reuma patientenzorg, Integrale & Alg. Kindergen Patientenzorg, Nap-Van Der Vlist, Merel M., Dalmeijer, Geertje W., Grootenhuis, Martha A., Van Der Ent, Cornelis K., Van Den Heuvel-Eibrink, Marry M., Wulffraat, Nico M., Swart, Joost F., Van Litsenburg, Raphaële R.L., Van De Putte, Elise M., and Nijhof, Sanne L.

Published
2019

92. Screening op kindermishandeling: wat levert het op?

Author

Sociale pediatrie onderzoek 1, Arts-assistenten Kinderen, Child Health, Regenerative Medicine and Stem Cells, Ambulante zorg, Schouten, Maartje C.M., Sittig, Judith S., Van De Putte, Elise M., Sociale pediatrie onderzoek 1, Arts-assistenten Kinderen, Child Health, Regenerative Medicine and Stem Cells, Ambulante zorg, Schouten, Maartje C.M., Sittig, Judith S., and Van De Putte, Elise M.

Published
2019

95. Algemene Verordening Gegevensbescherming

Author

Groenewegen, W. Antoinette and van de Putte, Elise M.

Subjects
Medicine(all), humanities
Abstract

As of May 2018, the use of personal data in medical research is regulated under the General Data Protection Regulation (GDPR). While, as before, in principle patients' consent for the use of their personal data is still required, exemptions for medical research still exist. When all of the criteria for the exemptions are met, and the other requirements of the GDPR are adhered to, personal data can be used in medical research without consent. In this paper we present a brief outline of a number of GDPR-related requirements for use of personal data in medical research. Furthermore, we discuss how GDPR interlinks with the Medical Research Involving Human Subjects Act (WMO) and in which areas GDPR remains subject to interpretation. Medical researchers using personal data need to be aware when consent is required and on which grounds personal data can be used without consent in the Netherlands.

Published
2018

96. Algemene verordening gegevensbescherming : Vriend of vijand van onderzoekers?

Author

Antoinette Groenewegen, W. and Van De Putte, Elise M.

Subjects
Medicine(all), humanities
Abstract

As of May 2018, the use of personal data in medical research is regulated under the General Data Protection Regulation (GDPR). While, as before, in principle patients’ consent for the use of their personal data is still required, exemptions for medical research still exist. When all of the criteria for the exemptions are met, and the other requirements of the GDPR are adhered to, personal data can be used in medical research without consent. In this paper we present a brief outline of a number of GDPR-related requirements for use of personal data in medical research. Furthermore, we discuss how GDPR interlinks with the Medical Research Involving Human Subjects Act (WMO) and in which areas GDPR remains subject to interpretation. Medical researchers using personal data need to be aware when consent is required and on which grounds personal data can be used without consent in the Netherlands.

Published
2018

99. Fatigue in childhood chronic disease

Author

Nap-van der Vlist, Merel M, primary, Dalmeijer, Geertje W, additional, Grootenhuis, Martha A, additional, van der Ent, Cornelis K, additional, van den Heuvel-Eibrink, Marry M, additional, Wulffraat, Nico M, additional, Swart, Joost F, additional, van Litsenburg, Raphaële R L, additional, van de Putte, Elise M, additional, and Nijhof, Sanne L, additional

Published
2019
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100. Child abuse inventory at emergency rooms: CHAIN-ER rationale and design

Author

Nieuwenhuis Edward ES, Moons Karel GM, Uiterwaal Cuno SPM, Sittig Judith S, and van de Putte Elise M

Subjects
Pediatrics, RJ1-570
Abstract

Abstract Background Child abuse and neglect is an important international health problem with unacceptable levels of morbidity and mortality. Although maltreatment as a cause of injury is estimated to be only 1% or less of the injured children attending the emergency room, the consequences of both missed child abuse cases and wrong suspicions are substantial. Therefore, the accuracy of ongoing detection at emergency rooms by health care professionals is highly important. Internationally, several diagnostic instruments or strategies for child abuse detection are used at emergency rooms, but their diagnostic value is still unknown. The aim of the study 'Child Abuse Inventory at Emergency Rooms' (CHAIN-ER) is to assess if active structured inquiry by emergency room staff can accurately detect physical maltreatment in children presenting at emergency rooms with physical injury. Methods/design CHAIN-ER is a multi-centre, cross-sectional study with 6 months diagnostic follow-up. Five thousand children aged 0-7 presenting with injury at an emergency room will be included. The index test - the SPUTOVAMO-R questionnaire- is to be tested for its diagnostic value against the decision of an expert panel. All SPUTOVAMO-R positives and a 15% random sample of the SPUTOVAMO-R negatives will undergo the same systematic diagnostic work up, which consists of an adequate history being taken by a pediatrician, inquiry with other health care providers by structured questionnaires in order to obtain child abuse predictors, and by additional follow-up information. Eventually, an expert panel (reference test) determines the true presence or absence of child abuse. Discussion CHAIN-ER will determine both positive and negative predictive value of a child abuse detection instrument used in the emergency room. We mention a benefit of the use of an expert panel and of the use of complete data. Conducting a diagnostic accuracy study on a child abuse detection instrument is also accompanied by scientific hurdles, such as the lack of an accepted reference standard and potential (non-) response. Notwithstanding these scientific challenges, CHAIN-ER will provide accurate data on the predictive value of SPUTOVAMO-R.

Published
2011
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