577 results on '"Knoppers, Bartha M."'
Search Results
52. The concept of humanity and biogenetics
53. Preconception care and genetic risk: ethical issues
54. Harmonised consent in international research consortia: an impossible dream?
55. Genomic databases access agreements: legal validity and possible sanctions
56. A map of human genome variation from population-scale sequencing
57. International ethics harmonization and the global alliance for genomics and health
58. List of Contributors
59. Beyond ELSIs
60. Our social genome?
61. Monetary payments for the procurement of oocytes for stem cell research: In search of ethical and political consistency
62. The International HapMap Project
63. The global emergence of epidemiological biobanks: opportunities and challenges
64. Publishing SNP Genotypes of Human Embryonic Stem Cell Lines: Policy Statement of the International Stem Cell Forum Ethics Working Party
65. Disclosure and management of research findings in stem cell research and banking: policy statement
66. Paediatric biobanks: What makes them so unique?
67. Sustained interaction: the new normal for stem cell repositories?
68. Is rigorous retrospective harmonization possible? Application of the DataSHaPER approach across 53 large studies
69. Open access as benefit sharing? The example of publicly funded large-scale genomic databases
70. The Right to Benefit from Science and Its Implications for Genomic Data Sharing
71. Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences
72. Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe
73. Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies
74. DataSHIELD: resolving a conflict in contemporary bioscience—performing a pooled analysis of individual-level data without sharing the data
75. International network of cancer genome projects
76. The impact of reporting magnetic resonance imaging incidental findings in the Canadian alliance for healthy hearts and minds cohort.
77. Beyond the permissibility of embryonic and stem cell research: substantive requirements and procedural safeguards
78. Pharmacogenomic data sample collection and storage: ethical issues and policy approaches
79. Locus-Specific Databases: From Ethical Principles to Practice
80. Regulatory approaches to reproductive genetic testing
81. Physicians, genetics and life insurance
82. Emerging issues in paediatric health research consent forms in Canada: working towards best practices
83. Les enfants, les incapables et la genetique.
84. Ethics & Governance for the Canadian Open Neuroscience Platform (CONP)
85. Privacy-Preserving Linkage of Genomic and Clinical Data Sets
86. The Human Right to Science and the Regulation of Human Germline Engineering
87. Information génétique : qualification et communication en droit québécois
88. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons
89. Organizational challenges to equity in the delivery of services within a new personalized risk-based approach to breast cancer screening
90. Ethical dimensions of genetics in pediatric neurology: A look into the future
91. Challenges of mental illness: Genetics and Mental Illness
92. Chapter 10 - Data Sharing and Privacy
93. 'Matching' Consent to Purpose: The Example of the Matchmaker Exchange
94. Whole genome sequencing resource identifies 18 new candidate genes for autism spectrum disorder
95. Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations
96. The Genomic Commons
97. A roadmap for restoring trust in Big Data
98. Bridging Stem Cell Research and Medicine: a Learning Health System
99. Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations
100. Key Implications of Data Sharing in Pediatric Genomics
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