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63. Family's role in long‐term care—A qualitative study of Finnish family members' experiences on supporting the functional ability of an older relative.

Author

Lehto‐Niskala, Vilhelmiina, Jolanki, Outi, and Jylhä, Marja

Subjects
SOCIAL participation, SOCIAL support, FUNCTIONAL status, RESEARCH methodology, INTERVIEWING, ACTIVITIES of daily living, FAMILY roles, FAMILY attitudes, QUALITATIVE research, RESEARCH funding, THEMATIC analysis, JUDGMENT sampling, LONG-term health care, OLD age
Abstract

Family members are important providers of care for older people. In residential long‐term care, however, their role is not always simple and straightforward: responsibility for care provision rests officially with staff members, but in practice family members often contribute to providing care. The main reason for admission to long‐term care is functional decline. At the same time, the maintenance of functional ability is a central goal in long‐term care. It is therefore reasonable to assume that functional ability is also an important factor in the relationship between family members and long‐term care residents. This study aims to explore how family members experience their role in supporting the functional ability of older relatives in residential long‐term care. With the approval of the local hospital district's ethics committee, we conducted semi‐structured interviews with family members (n = 16) in Finland in 2016. Thematic data analysis showed that family members supported the functional ability of their older parent or spouse by organising and monitoring care and by bringing forth their relative's personal needs and wishes. They often saw their role alongside staff members as ambiguous, and their understanding of the scope of support for functioning extended beyond physical everyday tasks. In their talk, family members broadened the concept of functional ability from daily chores and independence to meaningful social relations and acknowledgement of person's individual background and preferences. Family members' views offer valuable insights into residents' personal needs, values and preferences and in doing so help care workers to support their functional ability with a person‐centred care approach. [ABSTRACT FROM AUTHOR]

Published
2022
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65. Vanhuus ja sosiaalinen kuolema : Sosiaalisen kuoleman käsite vanhojen ihmisten haastattelupuheessa

Author

Pirhonen, Jari Pentti Tapio, Seppänen, Marjaana, Pietilä, Ilkka, Tuominen, Katariina, Jylhä, Marja, Sosiaalityö, Helsinki Inequality Initiative (INEQ), Valtiotieteellinen tiedekunta, Yhteiskuntapolitiikka, and Ikääntymisen ja hoivan tutkimuksen huippuyksikkö

Subjects
5142 Sosiaali- ja yhteiskuntapolitiikka
Abstract

Fyysisen kuoleman rinnalla puhutaan sosiaalisesta kuolemasta, jolla viitataan siihen, ettei henkilöä syystä tai toisesta pidetä enää vuorovaikutuksen arvoisena (Brannelly 2011). Yleensä käsitettä on käytetty viittaamaan yksittäisen ihmisen liukumiseen sosiaalisen yhteisön ulkopuolelle. Laajempi tulkinta käsitteestä johtaa ajattelemaan, että yksilöiden ohella myös kokonaisia ihmisryhmiä voidaan työntää vuorovaikutuksen ulkopuolelle, ja siis jopa pitää sosiaalisessa mielessä kuolleina (Králová 2015).

Published
2021

75. Additional file 1 of Effect of aging on the transcriptomic changes associated with the expression of the HERV-K (HML-2) provirus at 1q22

Author

Arttu Autio, Nevalainen, Tapio, Binisha H. Mishra, Jylhä, Marja, Flinck, Heini, and Hurme, Mikko

Abstract

Additional file 1: Table S1. Genes that had the highest correlation (Pearson correlation coefficient > 0.95) with 1q22 expression. Both positive and negative correlation are included. There is no overlap in these genes between the age groups. Figure S1. Q-Q plot of the HERV-K (HML-2) provirus at 1q22 expression across nonagenarian samples against normal distribution. The plot as well as a Shapiro-Wilk test (p-value = 0.58) support that the distribution of the expression of 1q22 in the studied samples approximates normal distribution. Figure S2. Q-Q plot of the HERV-K (HML-2) provirus at 1q22 expression across young samples against normal distribution. The plot as well as a Shapiro-Wilk test (p-value = 0.32) support that the distribution of the expression of 1q22 in the studied samples approximates normal distribution.

Published
2020
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93. Kuolemaan valmistautuminen toimijuutena vanhuudessa.

Author

Pirhonen, Jari, Jylhä, Marja, and Pietilä, Ilkka

Abstract

Copyright of Sosiologia is the property of Westermarck Society and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Published
2022

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