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Background: Great advancements have been made in patient and public involvement (PPI), including the development of guidance on how to conduct, report and evaluate PPI. Despite these efforts, the evidence base remains relatively weak. A substantive methodological development is required. This is particularly important for vulnerable groups within society, for whom PPI can be challenging but has the potential to play a transformative role in shaping research. Objectives: To describe the group dynamic characteristics and immediate impact of PPI from the user representatives' perspective in a case study of refugee involvement in the development of mental health intervention research. To pilot and methodologically appraise the Active Involvement of Users in Research Observation Schedule and Questionnaire. Design: The Active Involvement of Users in Research Observation Schedule and Questionnaire were administered together with a focus group discussion. Setting: 'Refugee Advisors' were involved in the development of a randomized controlled trial protocol evaluating a brief group intervention for refugee children experiencing symptoms of post‐traumatic stress in Sweden. Results: The multi‐method approach demonstrated good feasibility. There were clear examples of how the advisors influenced research development. The advisors described a perceived impact on the research, equality and acceptance, and knowledge gain. A sense of appreciation and empowerment was also interpreted. However, potential issues relating to the relevance of contributions and use of an interpreter were identified. Discussion and conclusion: The methodological approach piloted in this study offers a promising, rigorous way to evaluate PPI. The research tools require further refinement and validation. [ABSTRACT FROM AUTHOR]

Type 2 diabetes is a common chronic disease in middle-aged and older women. The social network, although an important source of support, can place conflicting demands on women who cope with a chronic disorder. Because this paradoxical situation can be a burden for many women a model was constructed to systematically investigate social network demands in women's Type 2 diabetes. In developing the model, network theory provided the framework and an extensive literature review determined which network components should be included. Material from our individual and focus group interviews was used to clarify the model. Traditional gender roles in the home, obligation profiles at the workplace, cultural expectations on women's bodies, and prejudice about the psychological etiology of women's diseases in health care, could all contribute to women's experiencing role conflict in their daily diabetes management. To systematically investigate potential deterrents to women's self-care, questions that address the different components of women's social networks are proposed. [ABSTRACT FROM AUTHOR]