1. Leveraging effective clinical registries to advance medical care quality and transparency.
- Author
-
Klaiman T, Pracilio V, Kimberly L, Cecil K, and Legnini M
- Subjects
- Advance Care Planning trends, Case Management organization & administration, Comprehension, Female, Humans, Male, Quality of Health Care trends, Sensitivity and Specificity, United States, Advance Care Planning standards, Information Systems organization & administration, Quality of Health Care standards, Registries
- Abstract
Policy makers, payers, and the general public are increasingly focused on health care quality improvement. Measuring quality requires robust data systems that collect data over time, can be integrated with other systems, and can be analyzed easily for trends. The goal of this project was to study effective tools and strategies in the design and use of clinical registries with the potential to facilitate quality improvement, value-based purchasing, and public reporting on the quality of care. The research team worked with an expert panel to define characteristics of effectiveness, and studied examples of effective registries in cancer, cardiovascular care, maternity, and joint replacement. The research team found that effective registries were successful in 1 or more of 6 key areas: data standardization, transparency, accuracy/completeness of data, participation by providers, financial sustainability, and/or providing feedback to providers. The findings from this work can assist registry designers, sponsors, and researchers in implementing strategies to increase the use of clinical registries to improve patient care and outcomes.
- Published
- 2014
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