1. Defining the Scope of Public Engagement: Examining the “Right Not to Know” in Public Health Genomics.
- Author
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Allen, Clarissa, Sénécal, Karine, and Avard, Denise
- Subjects
COMMUNITY involvement -- Social aspects ,DISCLOSURE laws ,GENOMICS ,SOCIAL participation ,PUBLIC health ,LEGAL rights -- Social aspects ,AUTONOMY (Psychology) ,GENETICS of disease susceptibility ,PATIENT education ,DECISION making ,GENETICS ethics ,MEDICAL ethics ,MEDICAL genetics ,LEGAL status of patients ,PHYSICIAN-patient relations ,PRIVACY ,PUBLIC opinion ,ETHICS - Abstract
The article discusses a reported effort to define the scope of public engagement in regards to a "right not to know" in public health genomics as of March 2014. Autonomy and an individual's rights are addressed in relation to bioethics, personal genetic information, and the promotion of the common good. Transparency and communication are mentioned in regards to democratic participation in health policy decision-making. Disease development and genetic susceptibility are also examined.
- Published
- 2014
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