1. Patient focused registries can improve health, care, and science.
- Author
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Nelson, Eugene C., Dixon-Woods, Mary, Batalden, Paul B., Homa, Karen, Van Citters, Aricca D., Morgan, Tamara S., Eftimovska, Elena, Fisher, Elliott S., Ovretveit, John, Harrison, Wade, Lind, Cristin, and Lindblad, Staffan
- Subjects
DATABASE design ,DATABASES ,DECISION support systems ,REPORTING of diseases ,HEALTH care teams ,MEDICAL databases ,INFORMATION storage & retrieval systems ,MEDICAL information storage & retrieval systems ,INTERPROFESSIONAL relations ,MATHEMATICAL models ,EVALUATION of medical care ,MEDICAL personnel ,PATIENT-professional relations ,QUALITY assurance ,SOCIAL networks ,THEORY ,CONTENT mining ,PATIENT-centered care ,PATIENTS' families - Abstract
The authors propose a model of a registry-based, patient-centered learning system (LS) that unites patients, clinicians, and researchers to co-produce better health outcomes, improved services and patient-centered research in Great Britain. Also covered are the key mechanisms that can be utilized to build a registry-based LS including patient and clinical facilitated networks, decision support dashboards, and multistakeholder engagement.
- Published
- 2016
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