1. VOCAL (Views of Ovarian Cancer Patients and Their Caregivers--How Maintenance Therapy Affects Their Lives) Study: Cancer-related Burden and Quality of Life of Caregivers.
- Author
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Shukla, Soham, de Courcy, Joanna, Ellis, Hilary, Milligan, Gary, Taylor-Whiteley, Teresa, Golembesky, Amanda, Chase, Dana, and Wethington, Stephanie L.
- Subjects
CANCER patient psychology ,CAREGIVER attitudes ,OVARIAN tumors ,BURDEN of care ,CONFERENCES & conventions ,PATIENTS' attitudes ,PSYCHOLOGY of caregivers - Abstract
Background: Caregivers for patients with ovarian cancer (OC) often carry a considerable emotional and financial burden. Objective: This analysis evaluated sociodemographic characteristics and cancer-related burden in caregivers of patients with OC. Methods: Adult caregivers of US patients with OC identified through patient advocacy groups, physicians, and panel groups completed online/paper surveys (English/Spanish). Outcomes included caregiver responsibilities, human impact (Zarit Burden Interview questionnaire), health-related quality of life (CarerQol-7D and EQ-5D-3L questionnaires), work impact, and financial impact. Results: Caregivers (n=80) were diverse in age (mean, 47.3 y; range, 19-75 y), patient treatment (surveillance, 42%; IV treatment, 25%; daily pills, 23%; chemotherapy, 10%), and ethnicity (most common: White, 55%; Black, 20%; Hispanic/Latino, 10%). They were mainly partners/adult children of patients (85%). Most caregivers reported working/studying (64%) alongside caring. Despite providing support for a mean of 26.9 months, caregivers rarely received financial support (10%), and most household medical expenses were spent on the patient (mean monthly household medical costs, $263.00; mean monthly patient medical costs, $213.40). To provide care, 25% of caregivers changed living arrangements. Emotional (92%) and logistical supports (travel, 74%; shopping, 69%; preparing meals, 62%) were most frequent, often at high/substantial levels (emotional, 71%; travel, 55%; shopping, 53%; preparing meals, 40%). Most nonresident caregivers (19%) travelled by car (73%) and often over 5 miles (53%) to provide support. Caregivers reported moderate/extreme anxiety/depression (55%) and moderate/severe burden of care (33%). Mean CarerQol-7D utility score for informal care situation was 73.8 (range, 0-100; best-worst informal care situation), and 52% were physically healthy. Conclusions: Caregivers of patients with OC reported burdens including anxiety/depression, work/financial impact, and quality-of-life impairment. Further investigations are needed to determine effects of specific patient treatments on caregivers and interventions to assist in providing care. Additionally, future research could assess caregiver burden by patient and disease characteristics. Funding: This study (214511) was sponsored by GSK, Waltham, MA. Editorial support for the original abstract was provided by Fishawack Health and funded by GSK. The editorial and reformatting support for this encore abstract was funded by GSK (Waltham, MA) and provided by Ashfield MedComms, an Inizio company. Data p [ABSTRACT FROM AUTHOR]
- Published
- 2023