5 results on '"Ethier A"'
Search Results
2. Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public's perspective.
- Author
-
Cumyn, Annabelle, Barton, Adrien, Dault, Roxanne, Safa, Nissrine, Cloutier, Anne-Marie, and Ethier, Jean-François
- Subjects
INSTRUCTIONAL systems ,QUALITATIVE research ,DEFAULT (Finance) ,EDUCATIONAL planning ,FOCUS groups ,COVID-19 - Abstract
Background: The advent of learning healthcare systems (LHSs) raises an important implementation challenge concerning how to request and manage consent to support secondary use of data in learning cycles, particularly research activities. Current consent models in Quebec were not established with the context of LHSs in mind and do not support the agility and transparency required to obtain consent from all involved, especially the citizens. Therefore, a new approach to consent is needed. Previous work identified the meta-consent model as a promising alternative to fulfill the requirements of LHSs, particularly large-scale deployments. We elicited the public's attitude toward the meta-consent model to evaluate if the model could be understood by the citizens and would be deemed acceptable to prepare for its possible implementation in Quebec.Methods: Eight focus groups, with a total of 63 members of the general public from various backgrounds were conducted in Quebec, Canada, in 2019. Explicit attention was given to literacy levels, language spoken at home and rural vs urban settings. We assessed attitudes, concerns and facilitators regarding key components of the meta-consent model: predefined categories to personalized consent requests, a dynamic web-based infrastructure to record meta-consent, and default settings. To analyse the discussions, a thematic content analysis was performed using a qualitative software.Results: Our findings showed that participants were supportive of this new approach of consent as it promotes transparency and offers autonomy for the management of their health data. Key facilitators were identified to be considered in the implementation of a meta-consent model in the Quebec LHSs: information and transparency, awareness campaigns, development of educational tools, collaboration of front-line healthcare professionals, default settings deemed acceptable by the society as well as close partnerships with recognized and trusted institutions.Conclusions: This qualitative study reveals the openness of a sample of the Quebec population regarding the meta-consent model for secondary use of health data for research. This first exploratory study conducted with the public is an important step in guiding decision-makers in the next phases of implementing the various strategies to support access and use of health data in Quebec. [ABSTRACT FROM AUTHOR]- Published
- 2021
- Full Text
- View/download PDF
3. Informed consent within a learning health system: A scoping review.
- Author
-
Cumyn, Annabelle, Barton, Adrien, Dault, Roxanne, Cloutier, Anne‐Marie, Jalbert, Rosalie, and Ethier, Jean‐François
- Subjects
INFORMED consent (Medical law) ,INSTRUCTIONAL systems ,SCIENCE databases ,GREY literature ,INFORMATION processing - Abstract
Introduction: A major consideration for the implementation of a learning health system (LHS) is consent from participants to the use of their data for research purposes. The main objective of this paper was to identify in the literature which types of consent have been proposed for participation in research observational activities in a LHS. We were particularly interested in understanding which approaches were seen as most feasible and acceptable and in which context, in order to inform the development of a Quebec‐based LHS. Methods: Using a scoping review methodology, we searched scientific and legal databases as well as the gray literature using specific terms. Full‐text articles were reviewed independently by two authors on the basis of the following concepts: (a) LHS and (b) approach to consent. The selected papers were imported in NVivo software for analysis in the light of a conceptual framework that distinguishes various, largely independent dimensions of consent. Results: A total of 93 publications were analysed for this review. Several studies reach opposing conclusions concerning the best approach to consent within a LHS. However, in the light of the conceptual framework we developed, we found that many of these results are distorted by the conflation between various characteristics of consent. Thus, when these characteristics are distinguished, the results mainly suggest the prime importance of the communication process, by contrast to the scope of consent or the kind of action required by participants (opt‐in/opt‐out). We identified two models of consent that were especially relevant for our purpose: metaconsent and dynamic consent. Conclusions: Our review shows the importance of distinguishing carefully the various features of the consent process. It also suggests that the metaconsent model is a valuable model within a LHS, as it addresses many of the issues raised with regards to feasibility and acceptability. We propose to complement this model by adding the modalities of the information process to the dimensions relevant in the metaconsent process. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
4. Promoting Identification and Use of Aid Resources by Caregivers of Seniors: Co-Design of an Electronic Health Tool.
- Author
-
Giroux, Dominique, Tremblay, Mélanie, Latulippe, Karine, Provencher, Véronique, Poulin, Valérie, Giguere, Anik, Dubé, Véronique, Sévigny, Andrée, Guay, Manon, Ethier, Sophie, and Carignan, Maude
- Subjects
SERVICES for caregivers ,CAREGIVERS ,COMPUTER user identification ,ELECTRONIC voting ,INFORMATION architecture ,SOCIAL services ,OLDER people ,COMMUNITY organization - Abstract
Background: The importance of supporting caregivers is recognized in home care for older persons, and facilitating their help-seeking process is a way to meet that need. The use of electronic health (eHealth) is a potentially promising solution to facilitate caregivers' help-seeking process. Objective: The aim of this research was to develop, in partnership with community organizations, health and social service professionals and caregivers, an eHealth tool promoting the earlier identification of needs of older persons and an optimal use of available resources. Methods: To design the tool, 8 co-design sessions (CoDs) were conducted and 3 advisory committees were created (in 11 regions) in Quebec between May 2017 and May 2018. A variety of methods were used, including the sorting method, the use of personas, eHealth tool analysis, brainstorming, sketching, prototyping, and pretesting. Results: A total of 74 co-designers (women n=64 and men n=10) were recruited to participate in the CoDs or the advisory committees. This number allowed for the identification of needs to which the tool must respond and for the identification of its requirements (functionalities and content), as well as for the development of the information architecture. Throughout the study, adjustments were made to the planning of CoD, notably because certain steps required more sessions than expected. Among others, this was true for the identification of functionalities. Conclusions: This study led to the development of an eHealth tool for caregivers of functionally dependent older persons to help them identify their needs and the resources available to meet them. International Registered Report Identifier (IRRID): RR2-10.2196/11634 [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
5. Developing an environmental assessment framework for an insect farm operating in circular economy: The case study of a Montréal (Canada) mealworm farm.
- Author
-
Paris, Nicolas, Fortin, Alexis, Hotte, Noémie, Rasooli Zadeh, Aliyeh, Jain, Sourabh, and Hénault-Ethier, Louise
- Subjects
- *
CIRCULAR economy , *GREENHOUSE gases , *AGRICULTURE , *GREENHOUSE gas mitigation , *FOOD waste as feed - Abstract
The concept of a circular food economy, particularly through insect farming using food waste, has gained increasing attention in recent years. This approach holds the potential to reduce the environmental impacts of food production by repurposing food waste as insect feed, while simultaneously offering an alternative source of protein. Although the environmental advantages of insect farming are well established, limited research exists on insect farming in colder regions with cleaner grid electricity, such as Quebec, Canada. In this paper, a framework is developed to evaluate the greenhouse gas emissions of a mealworm farm within a circular economy context. The benefits of circular economy practices are assessed through multiple different feed acquisition scenarios (virgin feed and feed diverted from composting, anaerobic digestion, and landfilling). Furthermore, the benefits of mealworm farming are assessed through a comparative analysis with other sources of protein. The framework consists of five stages: feed acquisition, transformation, heating, transportation, and fertilizer production. The results show that farming mealworms using virgin feed emits +14.94 Kg CO 2 eq/Kg protein. However, using diverted food waste as feed eliminates the need for conventional waste management and leads to a reduction of greenhouse gas emissions of −1.54, −2.48, and −16.39 Kg CO 2 eq/Kg protein for food waste diverted from composting, anaerobic digestion, and landfilling, respectively. This study highlights that mealworm farming with virgin feed generates lower greenhouse gas emissions compared to beef and pork and is on par with chicken production. Overall, this study demonstrates the environmental superiority of mealworm farming, whether or not food waste is utilized, in a Canadian context. [Display omitted] • Circular economy and insect farming can decrease agriculture's carbon footprint. • Upcycling food waste yields carbon-negative edible insects. • Mealworms fed by diverting organic waste from landfill emit −16 KgCO 2 eq/Kg protein. • Mealworms fed virgin grains emit +15 KgCO 2 eq/Kg protein. • Virgin-grain-fed insects have impacts similar to chicken but lower than beef or pork. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
Catalog
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.