1. The last mile of the way: understanding caregiving in African American families at the end-of-life.
- Author
-
Turner WL, Wallace BR, Anderson JR, and Bird C
- Subjects
- Black or African American statistics & numerical data, Caregivers statistics & numerical data, Family Therapy methods, Female, Georgia epidemiology, Health Services Needs and Demand, Humans, Illinois epidemiology, Male, Minnesota epidemiology, New York epidemiology, North Carolina epidemiology, Patient Acceptance of Health Care statistics & numerical data, Respite Care statistics & numerical data, Social Support, Socioeconomic Factors, Surveys and Questionnaires, Black or African American psychology, Attitude to Death, Caregivers psychology, Family Relations, Patient Acceptance of Health Care ethnology, Respite Care psychology
- Abstract
This research is based on in-depth ethnographic interviews and focus groups with 88 African American family caregivers from various regions of the United States during a stressful time in their family development--caregiving at the end-of-life--and the grieving during the aftermath. The study employed a stratified purposeful sampling strategy. Subjects were African Americans from the Northern, Southern, and Midwestern United States. Formal care is complicated by the distrust that many African Americans hold toward the health care system, which has resulted from years of exclusion, racism and discrimination. The findings highlight the importance of hearing from African American families to gain an understanding of what services, including family therapy and other psychotherapy, they will need during this process.
- Published
- 2004
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