1. Health Care Professionals' Awareness of a Child's Impending Death.
- Author
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Kobler, Kathie, Bell, Cynthia, Kavanaugh, Karen, Gallo, Agatha M., Corte, Colleen, and Vincent, Catherine
- Subjects
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ATTITUDE (Psychology) , *AUDIT trails , *COGNITION , *CONCEPTUAL structures , *DECISION making , *EXPERIENTIAL learning , *INTERVIEWING , *MATHEMATICAL models , *RESEARCH methodology , *CASE studies , *MEDICAL personnel , *MEDICAL records , *SCIENTIFIC observation , *PALLIATIVE treatment , *PEDIATRICS , *PROFESSIONS , *QUESTIONNAIRES , *STATISTICAL sampling , *UNCERTAINTY , *WORK , *DECISION making in clinical medicine , *QUALITATIVE research , *THEORY , *JUDGMENT sampling , *THEMATIC analysis , *DISEASE progression , *ACQUISITION of data methodology , *FIELD notes (Science) - Abstract
Health care professionals' (HCPs) experiences during early pediatric end-of-life care were explored using a theory-building case study approach. Multiple data collection methods including observation, electronic medical record review, and semi-structured interviews were collected with 15 interdisciplinary HCPs across four cases. Within- and across-case analyses resulted in an emerging theory. HCPs' initial awareness of a child's impending death is fluid, ongoing, and informed through both relational and internal dimensions. Initial cognitive awareness is followed by a deeper focus on the child through time-oriented attention to the past, present, and future. HCPs engage in a "delicate dance of figuring out" key issues. Awareness was exemplified through four themes: professional responsibility, staying connected, grounded uncertainty, and holding in. The emerging theoretical model provides a framework for HCPs to assess their ongoing awareness, identify personal assumptions, and inform gaps in understanding when facilitating early end-of-life care discussions with families. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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