1. Management of food socialization for children with Prader-Willi Syndrome: An exploration study in Malaysia.
- Author
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Wan PM, Ali A, Mognard E, Jegathesan AJ, Lee SL, Ganesan R, Noor MI, Rochedy A, Valette M, Tauber M, Thong MK, and Poulain JP
- Subjects
- Humans, Malaysia, Female, Male, Child, Socialization, Child, Preschool, Adolescent, Feeding Behavior psychology, Adult, Family psychology, Prader-Willi Syndrome psychology, Prader-Willi Syndrome therapy, Caregivers psychology
- Abstract
This study aims to explore the food management strategies among caregivers/family members of children with Prader-Willi Syndrome (PWS) using the lens of 'familialisation' of a health problem and the sociology of food socialization. Food intake among individuals with PWS is a main concern for parents, caregivers, and medical practitioners as it affects their physical, mental, and social well-being throughout their lives. Earlier studies on PWS and food intake centered around dietary management, dietary intake and growth, nutritional treatment and pharmacological approaches, nutritional phases, and weight gain. However, little has been done to understand the challenges of managing children with PWS from the sociological lens of food management strategies and socialization among families in Malaysia. This study is based on an investigation involving eight children with PWS and 46 family members and caregivers through lab observations and reflexive interviews. Ten food management strategies were identified that were adopted by the caregivers and families, which were influenced by cultural factors, family norms, and formal and informal support systems. The findings will influence future behavioral interventions to ensure the empowerment and well-being of individuals with PWS and their families., Competing Interests: The authors have declared that no competing interests exist., (Copyright: © 2024 Wan et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
- Published
- 2024
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