1. Development of a vision-related quality of life instrument for children ages 8-18 years for use in juvenile idiopathic arthritis-associated uveitis.
- Author
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Angeles-Han ST, Griffin KW, Harrison MJ, Lehman TJ, Leong T, Robb RR, Shainberg M, Ponder L, Lenhart P, Hutchinson A, Srivastava SK, Prahalad S, Lambert SR, and Drews-Botsch C
- Subjects
- Adolescent, Case-Control Studies, Child, Contrast Sensitivity, Eye Movement Measurements, Eye Movements, Female, Georgia, Humans, Male, Predictive Value of Tests, Reproducibility of Results, Severity of Illness Index, Uveitis etiology, Uveitis physiopathology, Uveitis psychology, Vision Disorders etiology, Vision Disorders physiopathology, Vision Disorders psychology, Vision Tests, Arthritis, Juvenile complications, Quality of Life, Surveys and Questionnaires, Uveitis diagnosis, Vision Disorders diagnosis, Visual Acuity
- Abstract
Objective: To determine the validity and reliability of a novel questionnaire to measure vision-related quality of life (VRQOL) in children ages 8-18 years for use in juvenile idiopathic arthritis (JIA)-associated uveitis: the Effects of Youngsters' Eyesight on Quality of Life (EYE-Q)., Methods: Several steps validated the EYE-Q. We interviewed experts and children on how vision affects a child's activities. We developed new items and selected relevant items from existing instruments. We administered initial versions of the EYE-Q to normal-sighted children and those with JIA-associated uveitis. For this study, children with various (or no) ocular conditions were recruited from a clinical population. Visual acuity and contrast sensitivity were performed, and the EYE-Q and Pediatric Quality of Life Inventory (PedsQL) were administered. The EYE-Q was repeated 10 days later. Patients, parents, and physicians rated vision severity., Results: Of 120 patients, 48% were female, 46.7% had no visual impairment, and 53.3% had bilateral eye involvement. The mean age was 11.3 years. There were significant differences in the measures based on visual acuity (P < 0.001). Children with more severe visual acuity and bilateral eye involvement had worse EYE-Q scores (P < 0.001). There were significant associations between the EYE-Q and PedsQL (r = 0.375), repeat EYE-Q (r = 0.864), and clinical measures of ocular disease (r = -0.620)., Conclusions: Our study provides evidence of the validity and reliability of the EYE-Q in the measurement of VRQOL. The EYE-Q may complement clinical measures of visual impairment and overall QOL and become an important tool in the assessment of QOL in JIA-associated uveitis., (Copyright © 2011 by the American College of Rheumatology.)
- Published
- 2011
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