6 results on '"Infrastructures"'
Search Results
2. One for All, All for One? Containing the Promise of Solidarity in Precision Medicine.
- Author
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Van Hoyweghen, Ine and Aarden, Erik
- Subjects
- *
PATIENT participation , *INDIVIDUALIZED medicine , *PUBLIC health , *MEDICAL care , *GENOMES , *RESEARCH funding , *TRUST - Abstract
This article addresses the challenges solidarity poses for the development of Precision Medicine (PM). Solidarity is invoked in calls for a new 'social contract' for PM, seeking to promote participation in PM by emphasizing reciprocity between contributions to and benefits from this new branch of medicine. In this context, there is a need for further conceptualization with regard to what qualifies as solidarity and how solidarity is performed in Precision Medicine initiatives. We address these conceptual gaps that have important practical implications for PM's development, most notably for agendas of public engagement and trust. We argue that solidarity does not only represent a value but also takes on infrastructural forms, shaping how PM is practiced in, for example, healthcare delivery systems. Next, we empirically probe how solidarity is invoked in PM initiatives in the United States ('All of Us'-Program) and Europe (the UK 100,000 Genomes Project and the French 2025 Genomics Plan). Based on this analysis, we argue that the infrastructural dimension of solidarity forms a vital precondition to build trust in PM. Echoing the famous motto of The Three Musketeers, 'One for all, all for one', PM policies cannot just proclaim solidarity for the gathering of data alone ('One for all') without caring about delivery of benefits of PM ('All for one'). We conclude by proposing an empirical research agenda for studying infrastructural formations to secure solidarity in the implementation of PM practices across national contexts. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
3. How EUNET Hacked European Digital Networks and Disappeared.
- Subjects
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COMPUTER networks , *COMPUTER hacking , *INFRASTRUCTURE (Economics) , *PARTICIPATORY culture , *INFORMATION economy , *KNOWLEDGE transfer , *CYBERTERRORISM , *FOLKLORE - Abstract
This is the story of how Unix users hacked the European data networks competition in the 1980s, by using and appropriating common resources for their own experimental and operational needs while planting the seeds of participatory digital culture, both within and outside of the European Union's tech policies frame, both in prominent roles and behind the scenes of the "standards wars". I analyze how they were acknowledged among international computer networks, focusing on EUNET (1982–1992), a pioneering Internet provider in Europe. I show that Unix culture, beyond technical arguments, was reframed through their institutional relationships, when EUNET were courted by the EU tech programs to help develop a digital infrastructure for the knowledge sector. Eventually, the organization contributed but also profited from this alliance, before turning towards the new business of computerized telecom networks, illustrating the transfers between the knowledge institutions and the knowledge economy. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
4. Priorities for research on environment, climate and health, a European perspective.
- Author
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Drakvik E, Kogevinas M, Bergman Å, Devouge A, and Barouki R
- Subjects
- Cities, Europe, Humans, Urbanization, Climate Change, Ecosystem
- Abstract
Climate change, urbanisation, chemical pollution and disruption of ecosystems, including biodiversity loss, affect our health and wellbeing. Research is crucial to be able to respond to the current and future challenges that are often complex and interconnected by nature. The HERA Agenda, summarised in this commentary, identifies six thematic research goals in the environment, climate and health fields. These include research to 1) reduce the effects of climate change and biodiversity loss on health and environment, 2) promote healthy lives in cities and communities, 3) eliminate harmful chemical exposures, 4) improve health impact assessment and implementation research, 5) develop infrastructures, technologies and human resources and 6) promote research on transformational change towards sustainability. Numerous specific recommendations for research topics, i.e., specific research goals, are presented under each major research goal. Several methods were used to define the priorities, including web-based surveys targeting researchers and stakeholder groups as well as a series of online and face-to-face workshops, involving hundreds of researchers and other stakeholders. The results call for an unprecedented effort to support a better understanding of the causes, interlinkages and impacts of environmental stressors on health and the environment. This will require breakdown of silos within policies, research, actors as well as in our institutional arrangements in order to enable more holistic approaches and solutions to emerge. The HERA project has developed a unique and exciting opportunity in Europe to consensuate priorities in research and strengthen research that has direct societal impact., (© 2022. The Author(s).)
- Published
- 2022
- Full Text
- View/download PDF
5. An updated strategic research agenda for the integration of radioecology in the european radiation protection research.
- Author
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Gilbin, Rodolphe, Arnold, Thuro, Beresford, Nicholas A., Berthomieu, Catherine, Brown, Justin E., de With, Govert, Horemans, Nele, Madruga, Maria José, Masson, Olivier, Merroun, Mohammed, Michalik, Boguslav, Muikku, Maarit, O'Toole, Simon, Mrdakovic Popic, Jelena, Nogueira, Pedro, Real, Almudena, Sachs, Susanne, Salbu, Brit, Stark, Karolina, and Steiner, Martin
- Subjects
- *
RADIATION protection , *EUROPEAN integration , *RADIOECOLOGY , *SCIENTIFIC community , *ENVIRONMENTAL exposure - Abstract
The ALLIANCE Strategic Research Agenda (SRA) for radioecology is a living document that defines a long-term vision (20 years) of the needs for, and implementation of, research in radioecology in Europe. The initial SRA, published in 2012, included consultation with a wide range of stakeholders (Hinton et al., 2013). This revised version is an update of the research strategy for identified research challenges, and includes a strategy to maintain and develop the associated required capacities for workforce (education and training) and research infrastructures and capabilities. Beyond radioecology, this SRA update constitutes a contribution to the implementation of a Joint Roadmap for radiation protection research in Europe (CONCERT, 2019a). This roadmap, established under the H2020 European Joint Programme CONCERT, provides a common and shared vision for radiation protection research, priority areas and strategic objectives for collaboration within a European radiation protection research programme to 2030 and beyond. Considering the advances made since the first SRA, this updated version presents research challenges and priorities including identified scientific issues that, when successfully resolved, have the potential to impact substantially and strengthen the system and/or practice of the overall radiation protection (game changers) in radioecology with regard to their integration into the global vision of European research in radiation protection. An additional aim of this paper is to encourage contribution from research communities, end users, decision makers and other stakeholders in the evaluation, further advancement and accomplishment of the identified priorities. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
6. Assembling airspace: The Single European Sky and contested transnationalities of European air traffic management.
- Author
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Lawless C
- Subjects
- Europe, European Union, Politics, Technology
- Abstract
The Single European Sky (SES) encompasses a series of legislative and regulatory measures reflecting a vision for reforming Air Traffic Management (ATM) in Europe to ultimately transcend national control of airspace. This article considers SES via the conceptual framing of the sociotechnical imaginary, and finds that the embedded, distributed and interpretive character of European ATM invites further conceptualization around how actors may need to engage with infrastructural imaginaries. How is an imaginary perceived and interpreted across its spatial reach? How do the standpoints, interests and interpretations of different groups embedded within infrastructural space play a role in the construction of that spatiality and envisioned territorial assemblages? Do these standpoints and interpretations extend to the perceived imaginings of others, and what might this imply for how sociotechnical imaginaries and spatialities are co-produced? The article outlines the history of European ATM through to the current status of SES. By describing contested negotiations involving the European Union, Eurocontrol, state bodies and organized labour, SES is used as a case study to demonstrate how relations between national sovereignty and transnational governance can be imagined in different ways through ATM. The article identifies a series of interactions and tensions between interpretations of SES, involving instances of perceived appropriation by some stakeholders on the part of others and concerns over emergent risks and uncertainties. The study identifies how relations and interpretations between stakeholders, states and transnational bodies shape and are shaped by the discursive and material projection of assemblages of technology, data, space and political rationality. These projections map European airspace in different ways. Negotiating the SES imaginary has entailed a politics of suspicion and risk that reflects a certain instantiation of interpretive flexibility, involving concerns over how SES is imagined by others.
- Published
- 2020
- Full Text
- View/download PDF
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