1. Measuring Spiritual Well-Being in Brazilian Adolescents with Chronic Illness Using the FACIT-Sp-12: Age Adaptation of the Self-Report Version, Development of the Parental-Report Version, and Validation.
- Author
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de Alvarenga, Willyane Andrade, Nascimento, Lucila Castanheira, dos Santos, Claudia Benedita, Leite, Ana Carolina Andrade Biaggi, Mühlan, Holger, Schmidt, Silke, Bullinger, Monika, de Carvalho, Emília Campos, Bredle, Jason, Arnold, Benjamin, de Castro Coelho, Robson, and Vieira, Margarida
- Subjects
CHRONIC disease treatment ,TEST validity ,EXPERIMENTAL design ,INTERVIEWING ,RESEARCH methodology ,PSYCHOMETRICS ,RESEARCH evaluation ,SELF-evaluation ,WELL-being ,RESEARCH methodology evaluation ,ADOLESCENCE - Abstract
Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait–multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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