Search

Background: Most countries face an ageing population, increasing chronic diseased, and constrictions on budget for providing health services. Involving patients in their own care by allowing them access to their patient data is a trend seen in many places.Methods: Data on the type and level of access citizens have to their own health data in three countries was gathered from public sources.Results: Data from each individual country is presented and the experiences of Denmark, Estonia and Australia are examined whilst similarities and differences explored. The discussion adopts a citizen-centred perspective to consider how the different e-portal systems support, protect and structure citizen interactions with their own health data in three key areas: Security, privacy and data protection; User support; and Citizen adoption and use.Conclusions: The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of a structured approach to addressing differences in citizen health and e-health literacy. This research also confirms while current data provides detail on the availability and use of personal health data by citizens, questions still remain over the ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the three countries experiences, supporting citizen access to their health data will be useful to improve these initiatives and guide other countries aspiring to support similar initiatives. [ABSTRACT FROM AUTHOR]

Based on a clinical intervention study this paper adds to the significance of users involvement in design processes and substantiate the potential of online, flexible health informatics tools as useful components to accommodate organizational changes that short stay treatment demands. A dialogue-based web application was designed and implemented to accommodate patients' information and communication needs in short stay hospital settings. To ensure the system meet the patients' needs, both patients and healthcare professionals were involved in the design process by applying various participatory methods. Contextualization of the new application was also central in all phases to ensure a focus not only on the technology itself, but also the way it is used and in which relations and contexts. In evaluation of the tool, the patients' descriptions as user substantiate that the use of Internet applications can expand the time for dialogue between the individual patient and healthcare professionals. The patients experience being partners in an on going dialogue, and thereby are empowered, e.g. in managing their care even at home, as these dialogues generate individualized information.