21 results on '"Euthanasia"'
Search Results
2. Barriers to connecting with the voluntary assisted dying system in Victoria, Australia: A qualitative mixed method study.
- Author
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White BP, Jeanneret R, and Willmott L
- Subjects
- Humans, Victoria, Caregivers, Qualitative Research, Suicide, Assisted, Physicians
- Abstract
Introduction: Voluntary assisted dying (VAD) is increasingly being legalised internationally. In Australia, all six states have now passed such laws, with Victoria being the first in 2019. However, early research in Victoria on the patient experience of seeking VAD shows that finding a connection to the VAD system is challenging. This study analyses the causes of this 'point of access' barrier., Methods: We conducted semi-structured qualitative interviews with family caregivers and a person seeking VAD, with participants recruited via social media and patient interest groups. Data were thematically analysed. We also undertook documentary analysis (content and thematic) of publicly available reports from the oversight body, the Voluntary Assisted Dying Review Board., Results: We interviewed 32 family caregivers and one patient across 28 interviews and analysed six Board reports. Finding a point of access to the VAD system was reported as challenging in both interviews and reports. Four specific barriers to connecting with the system were identified: (1) not knowing VAD exists as a legal option; (2) not recognising a person is potentially eligible for VAD; (3) not knowing next steps or not being able to achieve them in practice; and (4) challenges with patients being required to raise the topic of VAD because doctors are legally prohibited from doing so., Conclusion: Legal, policy and practice changes are needed to facilitate patients being able to find a connection to the VAD system. The legal prohibition on doctors raising the topic of VAD should be repealed, and doctors and institutions who do not wish to be involved in VAD should be required to connect patients with appropriate contacts within the system. Community awareness initiatives are needed to enhance awareness of VAD, especially given it is relatively new in Victoria., Patient or Public Contribution: Families and a patient were the focus of this research and interviews with them about the experience of seeking VAD were the primary source of data analysed. This article includes their solutions to address the identified point of access barriers. Patient interest groups also supported the recruitment of participants., (© 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd.)
- Published
- 2023
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3. Comparing Voluntary Assisted Dying Laws in Victoria and Western Australia: Western Australian Stakeholders' Perspectives.
- Author
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Haining CM, Willmott L, and White BP
- Subjects
- Humans, Victoria, Western Australia, Suicide, Assisted
- Abstract
In 2021, two years after voluntary assisted dying (VAD) laws commenced in Victoria, Western Australia (WA) was the second Australian jurisdiction to permit VAD. While the two regimes are broadly similar, key differences exist. This article reports on findings from a qualitative study of WA participants with VAD experience across four stakeholder groups (patients and families; health practitioners; regulators and VAD system personnel; and health and professional organisation representatives), focusing particularly on participants' reflections on aspects of the WA VAD regime which differs from that in Victoria and the practical implications of those differences. Globally, participants viewed VAD as operating smoothly in Western Australia and, despite identifying some areas for improvement, that WA's model was more functional and accessible than Victoria's. By comparing two different VAD models, this article's findings add to growing empirical evidence about VAD in Australia and can inform future VAD reforms and reviews., Competing Interests: The authors declare that Ben P White and Lindy Willmott were engaged by the Victorian, Western Australian and Queensland Governments to design and provide the legislatively mandated training in each of these States for medical practitioners (and nurse practitioners and nurses as appropriate) involved in voluntary assisted dying. Casey M Haining was employed on the Queensland project as a legal writer. Lindy Willmott is a member of Queensland's Voluntary Assisted Dying Review Board.
- Published
- 2023
4. What the Doctor Would Prescribe: Physician Experiences of Providing Voluntary Assisted Dying in Australia.
- Author
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Rutherford J, Willmott L, and White BP
- Subjects
- Humans, Victoria, Communication, Suicide, Assisted, Physicians
- Abstract
Background: Like many countries where voluntary assisted dying (VAD) is legal, eligible doctors in Victoria, Australia, have sole legal authority to provide it. Doctors' attitudes towards legalised VAD have direct bearing on their willingness to participate in VAD and consequently, on whether permissive laws can effectively facilitate access to VAD. The study aimed to explore how some Victorian doctors are perceiving and experiencing the provision of legalised VAD under a recently commenced law., Methods: Semi-structured interviews with 25 Victorian doctors with no in-principle objection to legalised VAD were conducted between July 2019-February 2020. Interviews were recorded, transcribed, and analysed using thematic analysis. Ethical approval from the relevant institution was obtained., Results: Doctors perceive or experience VAD to fundamentally challenge traditional medical practice. Barriers to access to VAD derive from applicant, communication, and doctor-related factors. Doctors' willingness to participate in VAD is situation specific.
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- 2023
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5. Institutional Objection to Voluntary Assisted Dying in Victoria, Australia: An Analysis of Publicly Available Policies.
- Author
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Close E, Willmott L, Keogh L, and White BP
- Subjects
- Humans, Victoria, Palliative Care, Policy, Suicide, Assisted, Euthanasia
- Abstract
Background: Victoria was the first Australian state to legalize voluntary assisted dying (elsewhere known as physician-assisted suicide and euthanasia). Some institutions indicated they would not participate in voluntary assisted dying. The Victorian government issued policy approaches for institutions to consider OBJECTIVE: To describe and analyse publicly available policy documents articulating an institutional objection to voluntary assisted dying in Victoria., Methods: Policies were identified using a range of strategies, and those disclosing and discussing the nature of an institutional objection were thematically analysed using the framework method., Results: The study identified fifteen policies from nine policymakers and developed four themes: (1) extent of refusal to participate in VAD, (2) justification for refusal to provide VAD, (3) responding to requests for VAD, and (4) appeals to state-sanctioned regulatory mechanisms. While institutional objections were stated clearly, there was very little practical detail in most documents to enable patients to effectively navigate objections in practice., Conclusion: This study demonstrates that despite having clear governance pathways developed by centralized bodies (namely, the Victorian government and Catholic Health Australia), many institutions' public-facing policies do not reflect this guidance. Since VAD is contentious, laws governing institutional objection could provide greater clarity and regulatory force than policies alone to better balance the interests of patients and non-participating institutions., (© 2023. The Author(s).)
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- 2023
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6. Ethical Diversity and Practical Uncertainty: A Qualitative Interview Study of Clinicians' Experiences in the Implementation Period Prior to Voluntary Assisted Dying Becoming Available in their Hospital in Victoria, Australia.
- Author
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McDougall R, Pratt B, and Sellars M
- Subjects
- Humans, Victoria, Uncertainty, Qualitative Research, Hospitals, Suicide, Assisted
- Abstract
In the Australian state of Victoria, legislation allowing voluntary assisted dying (VAD) passed through parliament in November 2017. There was then an eighteen-month period before the start date for patient access to VAD, referred to as the "implementation period." The implementation period was intended to allow time for the relevant government department and affected organizations to develop processes before the Act came into effect in June 2019. This qualitative interview study investigates the perspectives of a multidisciplinary sample of twelve clinicians from a single metropolitan hospital during this implementation period. Maximum variation sampling was utilized to ensure breadth across discipline (medical, nursing, allied health), speciality, and stated level of support for the VAD legislation. Four key themes were identified from the interview data: preparing for the unknown, ethical diversity within the organization, building a respectful culture, and concerns about the inability of the legislated approach to capture clinical nuances. Overall, these clinicians' workplace experiences during the implementation period were shaped by the ethical diversity within their organization and a sense of uncertainty about how the VAD legislation would integrate with the practical realities of their clinical setting. The concept of "ethical diversity" could be a useful one for supporting staff in an organization during a VAD implementation period., (© 2023. The Author(s).)
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- 2023
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7. Anticipated impacts of voluntary assisted dying legislation on nursing practice.
- Author
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Snir JT, Ko DN, Pratt B, and McDougall R
- Subjects
- Humans, Qualitative Research, Surveys and Questionnaires, Victoria, Nursing Staff, Suicide, Assisted
- Abstract
Background: The Voluntary Assisted Dying Act 2017 passed into law in Victoria, Australia, on the 29 November 2017. Internationally, nurses have been shown to be intimately involved in patient care throughout the voluntary assisted dying process. However, there is a paucity of research exploring Australian nurses' perspectives on voluntary assisted dying and, in particular, how Victorian nurses anticipate the implementation of this ethically controversial legislation will impact their professional lives., Objectives: To explore Victorian nurses' expectations of the ethical and practical impacts the voluntary assisted dying legislation will have on their professional lives., Research Design: This qualitative study analysed nurses' free text responses collected as part of a larger mixed methods online survey investigating staff views on the Voluntary Assisted Dying Act. Data were collected during the period between the passing of the voluntary assisted dying legislation and the start date and were analysed using inductive content analysis., Participants and Research Context: Free text survey responses were analysed from 1873 nurses employed across seven Victorian health services located in both metropolitan and regional areas of the state., Ethical Considerations: The study obtained research ethics approval and all participants were informed of the voluntary and anonymous nature of their participation., Findings: This study identified three broad areas of Victorian nurses' professional lives that they expected to be impacted by the implementation of voluntary assisted dying: professional identity, career development and workplace relationships., Conclusion: Participants anticipate diverse and nursing-specific impacts of the implementation of voluntary assisted dying in Victoria. Their insights can inform health services in jurisdictions considering or already implementing voluntary assisted dying, to develop policies, procedures and staff training programmes that safeguard the well-being and legal rights of their nursing staff.
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- 2022
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8. Introducing Voluntary Assisted Dying: Staff Perspectives in an Acute Hospital.
- Author
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Digby R, McDougall R, Gold M, Ko D, O'Driscoll L, and Bucknall T
- Subjects
- Attitude of Health Personnel, Hospitals, Humans, Victoria, Physicians, Suicide, Assisted psychology
- Abstract
Background: Voluntary assisted dying (VAD) was legalised in Victoria, Australia in June 2019. Physicians can now assist patients to end their lives by providing drugs for self-administration at their voluntary and competent request (or for physician administration in limited circumstances). This study investigates the opinions of clinicians on the implementation of the legislation in one Victorian hospital., Methods: This exploratory survey study was conducted at a 600-bed acute hospital in Melbourne, Australia in Jan 2019. 382 clinicians completed one or more qualitative questions. Participants commented on VAD, potential workplace challenges and staff support required. Free-text responses were analysed using inductive content analysis., Results: Six themes: (1) Polarised views; (2) Fear of conflict; (3) Emotional burden; (4) Vulnerable patients; (5) Organisational challenges; (6) Decision-making. There were diverse views including objections to VAD for religious or ethical reasons, and whole-hearted support based on a compassionate response to suffering and the right of patients to self-determination. Participants feared conflict between colleagues, families and patients, and aggression towards staff. Clinicians called for educational and psychological support. There was concern that vulnerable patients may be coerced to opt for VAD to lessen the burden on families or the health system. Clinicians feared workloads would increase with the introduction of VAD. Patient decision-making capacity in this context must be firmly established before proceeding, and thorough assessments for depression, and optimal symptom management must be implemented before VAD is approved. A dedicated VAD team was suggested to support staff and manage VAD patients., Conclusion: Participants expressed polarised opinions about VAD and showed considerable anxiety about its introduction. Additional education and support are required to ensure that clinicians understand details of the legislation and their professional and personal options. Tolerance and respect for alternative viewpoints must be advocated within the organisation and more broadly., (© 2022 The Author(s); Published by Kerman University of Medical Sciences This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.)
- Published
- 2022
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9. Regulating voluntary assisted dying practice: A policy analysis from Victoria, Australia.
- Author
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Close E, Willmott L, and White BP
- Subjects
- Humans, Policy Making, Victoria, Euthanasia, Suicide, Assisted, Terminal Care
- Abstract
Background: Victoria is the first state in Australia to legalise voluntary assisted dying (elsewhere known as physician-assisted suicide and euthanasia). The Victorian law took effect in 2019 after an 18-month implementation period designed to facilitate policy development and other regulatory infrastructure., Objective: To study publicly available policy documents regarding voluntary assisted dying in Victoria and the issues they seek to regulate., Methods: Policies were identified using a combination of search strategies to capture documents aimed at a broad range of stakeholders including health practitioners, patients, and families. The policies were thematically analysed using the Framework Method., Results: The study identified 60 policies and five themes: 1) conceptions of policy purpose; 2) degree of support for VAD; 3) guidance about process; 4) navigating conscientious objection; and 5) conceptualising voluntary assisted dying and its relationship with other aspects of end-of-life care. Outside of the detailed Victorian Government policies, there was little practical guidance for voluntary assisted dying provision. Instead, the non-governmental policies tended to focus on positioning regarding VAD and entry into the process., Conclusion: The study demonstrates the value of a planned implementation period for jurisdictions contemplating voluntary assisted dying reform and highlights the challenges in policymaking for a practice that is contentious for some., (Copyright © 2021 Elsevier B.V. All rights reserved.)
- Published
- 2021
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10. Eligibility and access to voluntary assisted dying: a view from Victoria, Australia.
- Author
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McDougall RJ and Ko D
- Subjects
- Eligibility Determination, Humans, Victoria, Suicide, Assisted
- Abstract
Competing Interests: Competing interests: DK is a member of the Victorian Voluntary Assisted Dying Review Board. She has engaged in this research in her role as a clinical ethics researcher and palliative care specialist and not in her role as a member of the board. Any views expressed in this paper are not to be attributed to the board.
- Published
- 2021
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11. Support for and willingness to be involved in voluntary assisted dying: a multisite, cross-sectional survey study of clinicians in Victoria, Australia.
- Author
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Sellars M, Tacey M, McDougall R, Hayes B, Pratt B, Hempton C, Detering K, Aldrich R, Benson M, Kirwan J, Gold M, O'Driscoll L, and Ko D
- Subjects
- Aged, Attitude of Health Personnel, Cross-Sectional Studies, Humans, Surveys and Questionnaires, Victoria, Physicians, Suicide, Assisted
- Abstract
Background: In the Australian state of Victoria, specialist doctors are central to the operation of voluntary assisted dying (VAD). However, a broad range of clinicians may be involved in the care of patients requesting or using VAD., Aims: To describe levels of support for and willingness to be involved in VAD and consider factors associated with clinician support for the VAD legislation and physicians' willingness to provide VAD in practice., Methods: A multisite, cross-sectional survey of clinicians in seven Victorian hospitals. All clinicians were invited to complete an online survey measuring demographic characteristics, awareness of and support for the VAD legislation, willingness to participate in VAD related activities and reasons for willingness or unwillingness to participate in VAD., Results: Of 5690 who opened the survey, 5159 (90.1%) were included in the final sample and 73% (n = 3768) supported the VAD legislation. The strongest predictor of support for the VAD legislation was clinical role. Forty percent (n = 238) of medical specialists indicated they would be willing to participate in either the VAD consulting or coordinating role. Doctors did not differ in willingness between high impact (44%) and low impact specialty (41%); however, doctors specialising in palliative care or geriatric medicine were significantly less willing to participate (27%)., Conclusion: Approximately 73% of surveyed staff supported Victoria's VAD legislation. However, only a minority of medical specialists reported willingness to participate in VAD, suggesting potential access issues for patients requesting VAD in accordance with the legal requirements in Victoria., (© 2021 Royal Australasian College of Physicians.)
- Published
- 2021
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12. Participating doctors' perspectives on the regulation of voluntary assisted dying in Victoria: a qualitative study.
- Author
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Willmott L, White BP, Sellars M, and Yates PM
- Subjects
- Adult, Aged, Attitude of Health Personnel, Eligibility Determination ethics, Female, Health Resources, Humans, Interviews as Topic, Male, Middle Aged, Pharmaceutical Services economics, Pharmacists ethics, Physicians statistics & numerical data, Qualitative Research, Victoria epidemiology, Eligibility Determination legislation & jurisprudence, Health Personnel ethics, Physician-Patient Relations ethics, Physicians psychology, Suicide, Assisted legislation & jurisprudence
- Abstract
Objectives: To investigate the perspectives of doctors involved with voluntary assisted dying in Victoria regarding the Voluntary Assisted Dying Act 2017 (Vic) and its operation., Design, Setting, Participants: Qualitative study; semi-structured interviews with 32 doctors who had participated in the voluntary assisted dying system during its first year of operation (commenced 19 June 2019). Doctors were interviewed during April-July 2020., Results: Three major themes related to problems during the first year of operation of the Act were identified: the statutory prohibition of health professionals initiating discussions with their patients about voluntary assisted dying; the Department of Health and Human Services guidance requirement that all doctor-patient, doctor-pharmacist, and pharmacist-patient interactions be face-to-face; and aspects of implementation, including problems with the voluntary assisted dying online portal, obtaining documentary evidence to establish eligibility, and inadequate resourcing of the Statewide Pharmacy Service., Conclusions: Doctors reported only limited concerns about the Victorian voluntary assisted dying legislation, but have had some problems with its operation, including implications for the accessibility of voluntary assisted dying to eligible patients. While legislative change may resolve some of these concerns, most can be ameliorated by improving the processes and systems., (© 2021 AMPCo Pty Ltd.)
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- 2021
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13. Negative media portrayal of palliative care: a content analysis of print media prior to the passage of Voluntary Assisted Dying legislation in Victoria.
- Author
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Kis-Rigo A, Collins A, Panozzo S, and Philip J
- Subjects
- Humans, Palliative Care, Retrospective Studies, Victoria, Euthanasia, Suicide, Assisted
- Abstract
Key misunderstandings of palliative care exist in the community, with media being reported as a key source underpinning knowledge. This retrospective media analysis of consecutive articles sought to examine the portrayal of palliative care in the Australian print media, focussing on the 2 years (2016-2018) coverage preceding the Voluntary Assisted Dying legislation in Victoria, Australia. Summative content analyses revealed coverage of palliative care was frequently (74%) in the context of a discussion of euthanasia. Only small numbers of articles described the activities of palliative care, and even fewer its potential beneficial impact, while a quarter (26%) described palliative care was inadequate to relieve suffering. These findings suggest that current coverage of palliative care in the media may contribute to negative public views and misconceptions. An opportunity exists to enhance media coverage, and in turn, improve the public understanding of care in serious illness., (© 2021 Royal Australasian College of Physicians.)
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- 2021
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14. Implementing voluntary assisted dying in a major public health service.
- Author
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Booth S, Eleftheriou P, and Moody C
- Subjects
- Critical Pathways ethics, Critical Pathways legislation & jurisprudence, Health Plan Implementation ethics, Humans, State Government, Suicide, Assisted ethics, Tertiary Care Centers ethics, Tertiary Care Centers legislation & jurisprudence, Victoria, Critical Pathways organization & administration, Health Plan Implementation organization & administration, Health Policy legislation & jurisprudence, Suicide, Assisted legislation & jurisprudence, Tertiary Care Centers organization & administration
- Published
- 2021
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15. Voluntary assisted dying in the Australian state of Victoria: an overview of challenges for clinical implementation.
- Author
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Hempton C
- Subjects
- Humans, Victoria, Suicide, Assisted
- Abstract
On 19 June 2019 the Voluntary Assisted Dying Act 2017 (Vic) came into effect, making Victoria the first state in Australia to permit the practice of 'voluntary assisted dying'. As defined in the legislation, voluntary assisted dying refers to "the administration of a voluntary assisted dying substance and includes steps reasonably related to such administration", "for the purpose of causing a person's death". In essence, the model of voluntary assisted dying established in Victoria is designed for patients within the final weeks or months of life, who may receive medical-assistance to 'choose the manner and timing of their death'. The purpose of this paper is to overview the clinical implementation of voluntary assisted dying in Victoria, attending to three broad challenges: balancing tensions in policy goals and ensuring the legislated 'safeguards' function as intended, translating the complex legislation into clinical practice, and managing conscientious objection to voluntary assisted dying. While there is somewhat limited information available regarding the practice of voluntary assisted dying in Victoria, available data and anecdotal reports indicate the implementation of the state's complex model of voluntary assisted dying has not been without challenges, particularly in terms of balancing the legislated 'safeguards' and patient access to voluntary assisted dying, and translating aspects of the complex legislation into clinical practice. The release of more systematic voluntary assisted dying data by the state, alongside independent research into the operation of voluntary assisted dying, is necessary to better evaluate the implementation and impact of voluntary assisted dying as a new component of clinical practice.
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- 2021
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16. Navigating the complexities of voluntary assisted dying in palliative care.
- Author
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Waran E and William L
- Subjects
- Breast Neoplasms therapy, Conscientious Refusal to Treat, Female, Humans, Middle Aged, Victoria, Euthanasia, Active, Voluntary legislation & jurisprudence, Palliative Care organization & administration, Right to Die, Suicide, Assisted legislation & jurisprudence
- Published
- 2020
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17. Victoria's Voluntary Assisted Dying Act: navigating the section 8 gag clause.
- Author
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Moore B, Hempton C, and Kendal E
- Subjects
- Health Policy legislation & jurisprudence, Humans, Legislation, Medical, Victoria, Euthanasia, Active, Voluntary legislation & jurisprudence, Suicide, Assisted legislation & jurisprudence
- Published
- 2020
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18. 'To die, to sleep' - assisted dying legislation in Victoria: A case study.
- Author
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Gilbert J and Boag J
- Subjects
- Adult, Case-Control Studies, Female, Humans, Suicide, Assisted ethics, Victoria, Legislation as Topic trends, Suicide, Assisted legislation & jurisprudence
- Abstract
Background: Assisted dying remains an emotive topic globally with a number of countries initiating legislation to allow individuals access to assisted dying measures. Victoria will become the first Australian state in over 13 years to pass Assisted Dying Legislation, set to come into effect in 2019., Objectives: This article sought to evaluate the impact of Victorian Assisted Dying Legislation via narrative view and case study presentation., Research Design: Narrative review and case study., Participants and Research Context: case study., Ethical Considerations: This legislation will provide eligible Victorian residents with the option to request access to assisted dying measures as a viable alternative to a potentially painful, protracted death., Findings: This legislation, while conservative and inclusive of many safeguards at present, will form the basis for further discussion and debate on assisted dying across Australia in time to come., Discussion: The passing of this legislation by the Victorian parliament was prolonged, emotive and divided not only the parliament but Australian society., Conclusion: Many advocates for this legislation proclaimed it was well overdue and will finally meet the needs of contemporary society. Protagonists claim that medical treatment should not provide a means of ending life, despite palliative care reportedly often failing to relieve the pain and suffering of individuals living with a terminal illness.
- Published
- 2019
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19. Victoria's voluntary assisted dying law: clinical implementation as the next challenge.
- Author
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White BP, Willmott L, and Close E
- Subjects
- Health Policy legislation & jurisprudence, Humans, Legislation, Medical, Victoria, Euthanasia, Active, Voluntary legislation & jurisprudence, Suicide, Assisted legislation & jurisprudence
- Published
- 2019
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20. Breaking (through) the law--coming out of the silence: nursing, HIV/AIDS and euthanasia.
- Author
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Crock EA
- Subjects
- Acquired Immunodeficiency Syndrome nursing, Humans, Victoria, Ethics, Nursing, Euthanasia, HIV Infections nursing, Suicide, Assisted
- Abstract
This paper provides a nursing perspective on ethical, legal, professional and practical issues faced by nurses working in HIV/AIDS care in relation to euthanasia/assisted suicide. Nurses who care for PLWHA (People Living with HIV/AIDS) have been conspicuously silent in the recent debates about euthanasia in Australia. Many factors prevent nurses from openly acknowledging their participation in assisted suicide/euthanasia and contributing to important debates about this topic. Their commitment to client confidentiality and the illegality of the practices are clearly significant factors which inhibit nurses from speaking freely. In addition, however, nurses' well-documented precarious legal position (Johnstone, 1994-alpha) and their subordinate status within the health care system make their public silence almost inevitable. Naming and challenging the factors which contribute to nurses silence, this paper draws on the experiences of nurses who have cared for PLWHA who have requested assistance in dying. It identifies practical, ethical and legal issues and dilemmas which can arise for nurses who may be involved in these practices, highlighting their special skills, relationships with clients, responsibilities and the complexity of their role; it also elucidates, however, the serious professional and personal risks nurses face given the legal and legislative status quo. This paper suggests that nurses may play a central, though covert, role in assisted suicide/euthanasia in HIV/AIDS care, rendering it imperative that their perspectives be included in the debates about the legalization of assisted suicide/euthanasia. Moreover, the paper identifies and challenges some severe impediments nurses must confront and address if they are to be able to contribute fully to this debate and to those which may arise in the future.
- Published
- 1998
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21. Access to voluntary assisted dying in Victoria: a qualitative study of family caregivers' perceptions of barriers and facilitators.
- Author
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White, Ben P, Jeanneret, Ruthie, Close, Eliana, and Willmott, Lindy
- Subjects
CAREGIVER attitudes ,CAREGIVERS ,MEDICAL personnel ,PRESSURE groups ,QUALITATIVE research - Abstract
Objectives: To investigate barriers to and facilitators of access to voluntary assisted dying in Victoria under the Voluntary Assisted Dying Act 2017 (Vic). Design, setting, participants: Qualitative study; semi‐structured interviews with people who had applied for voluntary assisted dying or their family caregivers, recruited via social media and interested advocacy groups; interviews conducted 17 August – 26 November 2021. Main outcome measures: Barriers to and facilitators of access to voluntary assisted dying. Results: We interviewed 33 participants about 28 people who had applied for voluntary assisted dying; all but one of the interviews were with family caregivers after their relatives' deaths, and all but three were conducted via Zoom. The major barriers to access identified by participants were finding trained and willing doctors to assess eligibility for voluntary assisted dying; the time required for the application process (especially given how ill the applicants were); the prohibition of telehealth consultations; institutional objections to voluntary assisted dying; and the prohibition of health practitioners raising voluntary assisted dying with their patients. The major facilitators mentioned were care navigators (both the Statewide service and local navigators); finding a supportive coordinating practitioner; the Statewide Pharmacy Service; and system flow once the process had been initiated (although not during the early days of voluntary assisted dying in Victoria). Access was particularly difficult for people in regional areas or with neurodegenerative conditions. Conclusions: Access to voluntary assisted dying has improved in Victoria, and people generally felt supported while navigating the application process once they found a coordinating practitioner or a navigator. But this step, and other barriers, often still made patient access difficult. Adequate support for doctors, navigators and other facilitators of access is vital for the effective functioning of the overall process. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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