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Your search keyword '"Systemic scleroderma -- Patient outcomes"' showing total 14 results
Start Over Descriptor "Systemic scleroderma -- Patient outcomes" Topic scleroderma (disease) -- care and treatment
14 results on '"Systemic scleroderma -- Patient outcomes"'

1. Reliability of the qualitative and semiquantitative nailfold videocapillaroscopy assessment in a systemic sclerosis cohort: a two-centre study

Author

Smith, Vanessa, Pizzomi, Carmen, De Keyser, Filip, Decuman, Saskia, Van Praet, Jens T., Deschepper, Ellen, Sulli, Alberto, and Cutolo, Maurizio

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Research, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Research, Diagnostic imaging -- Methods, Diagnostic imaging -- Usage, Diagnostic imaging -- Research, Health
Published
2010

2. A descriptive and prognostic study of systemic sclerosis-associated myopathies

Author

Ranque, B., Authier, F.-J., Le-Guern, V., Pagnoux, C., Berezne, A., Allanore, Y., Launay, D., Hachulla, E., Kahan, A., Cabane, J., Gherardi, R., Guillevin, L., and Mouthon, L.

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Research, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Research, Muscle diseases -- Complications and side effects, Muscle diseases -- Patient outcomes, Muscle diseases -- Research, Creatine kinase -- Analysis, Health
Published
2009

3. European League Against Rheumatism (EULAR) Scleroderma Trial and Research group (EUSTAR) recommendations for the treatment of systemic sclerosis: methods of elaboration and results of systematic literature research

Author

Avouac, J., Kowal-Bielecka, O., Landewe, R., Chwiesko, S., Miniati, I., Czirjak, L., Clements, P., Denton, C., Farge, D., Fligelstone, K., Foldvari, I., Furst, D.E., Muller-Ladner, U., Seibold, J., Silver, R.M., Takehara, K., Toth, B. Garay, Tyndall, A., Valentini, G., van den Hoogen, F., Wigley, F., Zulian, F., and Matucci-Cerinic, M.

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Delphi technique -- Usage, Clinical trials -- Evaluation, Practice guidelines (Medicine) -- Usage, Health
Published
2009

4. Extracorporeal photochemotherapy for generalized deep morphea

Author

Neustadter, Jason H., Samarin, Frank, Carlson, Kacie R., and Girardi, Michael

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Case studies, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Case studies, Photochemotherapy -- Usage, Photochemotherapy -- Patient outcomes, Photochemotherapy -- Case studies, Cancer -- Photochemotherapy, Cancer -- Usage, Cancer -- Patient outcomes, Cancer -- Case studies, Health
Published
2009

5. Measurement of upper limb ulcers in patients with systemic sclerosis: reproducibility and correlation with pain, function, and quality of life

Author

Toffolo, Sandra Regina, Furtado, Rita Nely Vilar, Klein, Adriana, Watanabe, Sandra, Andrade, Luis Eduardo Coelho, and Natour, Jamil

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Research, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Research, Outcome and process assessment (Health Care) -- Methods, Outcome and process assessment (Health Care) -- Usage, Outcome and process assessment (Health Care) -- Research, Quality of life -- Research, Leg -- Ulcers, Leg -- Care and treatment, Leg -- Patient outcomes, Leg -- Research, Business, Business, international, General interest, News, opinion and commentary
Published
2008

6. Can CCL2 serum levels be used in risk stratification or to monitor treatmen tresponse in systemic sclerosis?

Author

Carulli, M.T., Handler, C., Coghlan, J.G., Black, C.M., and Denton, C.P.

Subjects
Biological markers -- Research, Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Risk factors, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Risk factors, Chemokines -- Research, Chemokines -- Measurement, Health
Published
2008

7. Long-term follow-up results after autologous haematopoietic stem cell transplantation for severe systemic sclerosis

Author

Vonk, M.C., Marjanovic, Z., Van Den Hoogen, F.H.J., Zohar, S., Schattenberg, A.V.M.B., Fibbe, W.E., Larghero, J., Gluckman, E., van Laar, J.M., Farge, D., Preijers, F.W.M.B., van Dijk, A.P.J., Bax, J.J., Roblot, P., and van Riel, P.L.C.M.

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Research, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Research, Autografts -- Patient outcomes, Autografts -- Research, Hematopoietic stem cells -- Transplantation, Hematopoietic stem cells -- Patient outcomes, Hematopoietic stem cells -- Research, Health
Published
2008

8. Systemic sclerosis associated pulmonary hypertension: improved survival in the current era

Author

Williams, M.H., Das, C., Handler, C.E., Akram, M.R., Davar, J., Denton, C.P., Smith, C.J., Black, C.M., and Coghlan, J.G.

Subjects
Pulmonary hypertension -- Research, Pulmonary hypertension -- Care and treatment, Pulmonary hypertension -- Patient outcomes, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Research, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Research, Health
Published
2006

9. Pansclerotic morphea in childhood: a case report

Author

Doede, T., Wollina, U., Hindermann, W., Schier, F., and Bondartschuk, M.

Subjects
Scleroderma (Disease) -- Case studies, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Care and treatment, Systemic scleroderma -- Case studies, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Care and treatment, Children -- Diseases, Children -- Case studies, Children -- Patient outcomes, Children -- Care and treatment, Health
Abstract

Byline: T. Doede (1), U. Wollina (2), W. Hindermann (3), F. Schier (1), M. Bondartschuk (1) Keywords: Scleroderma; Morphea; Squamous cell carcinoma Abstract: Scleroderma can be differentiated into progressive systemic and circumscript forms. The extensive form with lethal outcome is known from case reports of children and adolescents. The present case report concerns a boy who died at 16 years of age. In the 5th year of life, he experienced weight loss and developed multiple, firm, partially atrophic plaques in the skin of the extremities. These plaques gradually became confluent and extended over the whole torso and head. Plaque ulceration resulted in massive mutilations to the body. Later the patient's cachexia worsened and he developed keratose, moderately differentiated squamous cell carcinoma of the right leg. The prognosis of pansclerotic morphea for children is worse than for adults. No successful therapy is known. Author Affiliation: (1) Abteilung Kinderchirurgie, Klinikum der FSU Jena, Bachstrasse 18, 07740, Jena, Germany (2) Klinik fur Dermatologie und Dermatologische Allergologie, Erfurter Strasse 35, 07740, Jena, Germany (3) Institut Pathologie, Klinikum der FSU Jena, Bachstrasse 18, 07740, Jena, Germany Article History: Accepted Date: 10/12/2002 Online Date: 21/06/2003

Published
2003

10. What does the clinician need to improve patient care in systemic sclerosis?

Author

Vonk, Madelon C., van den Hoogen, Frank H.J., van Riel, Piet L.C.M., and Valentini, Gabriele

Subjects
Scleroderma (Disease) -- Diagnosis, Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Systemic scleroderma -- Diagnosis, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Physicians -- Practice, Patients -- Care and treatment, Patients -- Methods, Medical care -- Quality management, Medical care -- Evaluation, Health, American College of Rheumatology -- Standards
Published
2007

11. Birt-Hogg-Dube' syndrome

Author

Coplin, Rafael E.

Subjects
Genetic disorders -- Risk factors, Genetic disorders -- Diagnosis, Genetic disorders -- Care and treatment, Genetic disorders -- Patient outcomes, Genetic disorders -- Case studies, Scleroderma (Disease) -- Risk factors, Scleroderma (Disease) -- Diagnosis, Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Case studies, Systemic scleroderma -- Risk factors, Systemic scleroderma -- Diagnosis, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Case studies, Health
Abstract

Table of Contents Abstract Introduction Case Report Discussion References Abstract Birt-Hogg-Dube syndrome (BHD) is characterized by cutaneous manifestations specifically hair follicle tumors, renal neoplasms and pulmonary cysts. We will report [...]

Published
2008

12. Differences in disability as measured by the Health Assessment Questionnaire between patients with and without digital ulcers in systemic sclerosis: a post hoc analysis of pooled data from two randomised controlled trials in digital ulcers using bosentan

Author

Zelenietz, Caleb and Pope, Janet

Subjects
Varicose ulcer -- Patient outcomes, Varicose ulcer -- Research, Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Scleroderma (Disease) -- Research, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Systemic scleroderma -- Research, Disability -- Research, Outcome and process assessment (Health Care) -- Research, Bosentan -- Dosage and administration, Bosentan -- Research, Health
Published
2010

13. Ultrasonic massage and physical therapy for scleredema: improving activities of daily living

Author

Bray, Sarah M., Varghese, Shery, and English, Joseph C., III

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Case studies, Scleroderma (Disease) -- Patient outcomes, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Case studies, Systemic scleroderma -- Patient outcomes, Massage -- Patient outcomes, Massage -- Case studies, Physical therapy -- Case studies, Therapeutics, Physiological -- Case studies, Activities of daily living -- Physiological aspects, Activities of daily living -- Management, Company business management, Health
Published
2010

14. 'Light' stem cell transplants may benefit those with severe scleroderma

Subjects
Scleroderma (Disease) -- Care and treatment, Scleroderma (Disease) -- Patient outcomes, Systemic scleroderma -- Care and treatment, Systemic scleroderma -- Patient outcomes, Stem cells -- Transplantation, Stem cells -- Methods, Stem cells -- Patient outcomes, Health
Abstract

Preliminary research suggests that less-toxic stem cell transplants may benefit people with scleroderma, a devastating autoimmune disease that can cause skin blood vessels and internal organs to thicken and harden. [...]

Published
2007

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