594 results
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2. Young people's priorities for the self‐management of distress after stoma surgery due to inflammatory bowel disease: A consensus study using online nominal group technique.
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Saunders, Benjamin, Polidano, Kay, Bray, Lucy, Fisher, Tamsin, Corp, Nadia, McDermott‐Hughes, Megan, Farmer, Adam D., Morris, Beth, Fleetwood‐Beresford, Sahara, and Chew‐Graham, Carolyn A.
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PREVENTION of surgical complications ,CONSENSUS (Social sciences) ,SCALE analysis (Psychology) ,FERTILITY ,SELF-management (Psychology) ,PSYCHOLOGICAL distress ,STRESS management ,RESEARCH funding ,MEETINGS ,SURGICAL stomas ,DESCRIPTIVE statistics ,EMOTIONS ,INFLAMMATORY bowel diseases ,EXPERIENCE ,SURGICAL complications ,VIDEOCONFERENCING ,SOCIAL support ,GROUP process ,INTIMACY (Psychology) ,ADULTS - Abstract
Introduction: The aim of this study was to gain consensus among young people with a stoma due to inflammatory bowel disease (IBD) on the priorities for the content of an intervention for the self‐management of stoma‐related distress. The current identification and management of distress in young people with a stoma is often suboptimal in clinical settings and there is a need for improved support resources. Methods: Two consensus group meetings were carried out via online video conferencing, using nominal group technique. Participants generated, rated on a Likert scale and discussed, topics for inclusion in a future self‐management intervention. Results: Nineteen young people, aged 19–33, with a stoma due to IBD took part in one of two group meetings. Participants were located across England, Scotland, and Northern Ireland. Twenty‐nine topics were generated by participants, seven of which reached consensus of ≥80%, that is, a mean of ≥5.6 on a 7‐point Likert scale. These were: receiving advice from young people with lived experience of stoma surgery; advice on/addressing concerns about romantic relationships, sex and intimacy; information about fertility and pregnancy related to stoma surgery; stoma 'hacks', for example, useful everyday tips regarding clothing, making bag changes easier and so forth; reflecting on and recognising own emotional response to surgery; tips on managing the stoma during the night; and processing trauma related to the illness and surgery journey. Conclusions: Findings extend previous research on young people's experiences of stoma surgery, by generating consensus on young people's priorities for managing distress related to surgery and living with a stoma. These priorities include topics not previously reported in the literature, including the need for information about fertility and pregnancy. Findings will inform the development of a self‐management resource for young people with an IBD stoma and have relevance for the clinical management of stoma‐related distress in this population. Patient or Public Contribution: Three patient contributors are co‐authors on this paper, having contributed to the study design, interpretation of results and writing of the manuscript. The study's Patient and Public Involvement and Engagement advisory group also had an integral role in the study. They met with the research team for four 2‐h virtual meetings, giving input on the aims and purpose of the study, recruitment methods, and interpretation of findings. The group also advised on the age range for participants. The views of young people with a stoma are the central component of the study reported in this paper, which aims to gain consensus among young people with an IBD stoma on their priorities for the content of a resource to self‐manage distress related to stoma surgery. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Pandemic policymaking affecting older adult volunteers during and after the COVID-19 public health crisis in the four nations of the UK.
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Grotz, Jurgen, Armstrong, Lindsay, Edwards, Heather, Jones, Aileen, Locke, Michael, Smith, Laurel, Speed, Ewen, and Birt, Linda
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DISEASE risk factors ,PREVENTION of infectious disease transmission ,MORTALITY risk factors ,POLICY sciences ,NATIONAL health services ,EXECUTIVES ,RESEARCH funding ,HEALTH policy ,MEDICAL care ,SOCIAL services ,STATISTICAL sampling ,INTERVIEWING ,DECISION making ,REFLECTION (Philosophy) ,COVID-19 vaccines ,SOCIAL change ,SOCIAL attitudes ,STAY-at-home orders ,DISCOURSE analysis ,TELEMEDICINE ,VOLUNTEERS ,AGING ,ORGANIZATIONAL change ,PUBLIC health ,COMPARATIVE studies ,PRACTICAL politics ,HEALTH promotion ,SOCIAL support ,COVID-19 pandemic ,PSYCHOSOCIAL factors ,OLD age - Abstract
Purpose: This study aims to critically examine the effects of COVID-19 social discourses and policy decisions specifically on older adult volunteers in the UK, comparing the responses and their effects in England, Scotland, Wales and Northern Ireland, providing perspectives on effects of policy changes designed to reduce risk of infection as a result of COVID-19, specifically on volunteer involvement of and for older adults, and understand, from the perspectives of volunteer managers, how COVID-19 restrictions had impacted older people's volunteering and situating this within statutory public health policies. Design/methodology/approach: The study uses a critical discourse approach to explore, compare and contrast accounts of volunteering of and for older people in policy, and then compare the discourses within policy documents with the discourses in personal accounts of volunteering in health and social care settings in the four nations of the UK. This paper is co-produced in collaboration with co-authors who have direct experience with volunteer involvement responses and their impact on older people. Findings: The prevailing overall policy approach during the pandemic was that risk of morbidity and mortality to older people was too high to permit them to participate in volunteering activities. Disenfranchising of older people, as exemplified in volunteer involvement, was remarkably uniform across the four nations of the UK. However, the authors find that despite, rather than because of policy changes, older volunteers, as part of, or with the help of, volunteer involving organisations, are taking time to think and to reconsider their involvement and are renewing their volunteer involvement with associated health benefits. Research limitations/implications: Working with participants as co-authors helps to ensure the credibility of results in that there was agreement in the themes identified and the conclusions. A limitation of this study lies in the sampling method, as a convenience sample was used and there is only representation from one organisation in each of the four nations. Originality/value: The paper combines existing knowledge about volunteer involvement of and for older adults. [ABSTRACT FROM AUTHOR]
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- 2024
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4. A rural dermatology outreach service – a new model.
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Abraham, Kirstin, Thomas, Huw, and Bryden, Alyson
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DERMATOLOGISTS ,MEDICAL consultation ,OCCUPATIONAL roles ,MEDICAL quality control ,RURAL health services ,BUSINESS management of health facilities ,DERMATOLOGY ,PHOTOTHERAPY ,HUMAN services programs ,INTERPROFESSIONAL relations ,MEDICAL referrals ,RESEARCH funding ,INTEGRATED health care delivery ,INTERDISCIPLINARY education ,TELEMEDICINE ,HEALTH care rationing - Abstract
Purpose: The dermatology service on the islands of Orkney, with a population of approximately 22,500, was taken over by National Health Service (NHS) Tayside in August 2018. This paper aims to provide an overview of the planning and review of a highly efficient and effective dermatology service for a rural island population. Design/methodology/approach: The service includes visiting dermatology consultants, enhanced electronic referral vetting, skin surgery services, a General Practice (GP) with extended role (GPwER) in dermatology, specialist virtual clinics, urgent advice for inpatients at the local district general hospital and remote systemic therapy monitoring. A new phototherapy service has been set up in an island GP practice. Findings: Local GPs and consultant dermatologists find the enhanced vetting service useable, efficient and educational. Between August 2018 and November 2022, there have been 1,749 referrals. Of these referrals, 60% were seen in clinic or a GPwER surgery, with 40% managed remotely by providing advice back to the referring GP. The number of consultations performed by the GPwER has grown over the past 3 years, and in the last year, it accounted for more than 50% of patient appointments. The waiting time has been significantly reduced using this model. Originality/value: This remote service uses an integrated approach of teledermatology (TD) whilst offering continual in-person services using local capabilities including a GPwER and island general surgeons. New treatment facilities are provided to the island population. Continual educational feedback to the primary care referrer is provided, and it enhances relationships that greatly aid the high-quality dermatology service provided. [ABSTRACT FROM AUTHOR]
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- 2024
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5. 'Once you bond ... you want to create social change': Interpersonal relationships in youth activism.
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Assan, Thalia Thereza
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WOMEN of color , *RESEARCH funding , *SOCIAL change , *ANTI-racism , *CHARITY , *PSYCHOLOGY of Black people , *RESEARCH methodology , *INTERPERSONAL relations , *POLITICAL participation , *FRIENDSHIP - Abstract
This paper calls for greater attention to the interpersonal aspects of youth activism through a sociological and Black feminist exploration of peer relationships within youth political engagement. Drawing on a multi‐method qualitative research, the work foregrounds the perspectives and experiences of Black girls and girls of colour involved in an anti‐racist Scottish youth work charity. I argue that community and friendship ties cultivated participants' activism. Moreover, participants sought to enact social change by undertaking activist educational practices with their peers. This paper demonstrates how studying young people's peer relationships can engender a better understanding of youth activism and support it. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Making the 'Local' Visible in Social Work Education: Insights from Nigeria and Scotland on (Re)balancing and Contextualising Indigenous and International Knowledge.
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Levy, Susan, Okoye, Uzoma O, and Ingram, Richard
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LEGAL status of social workers ,PROFESSIONAL standards ,SOCIAL workers ,HEALTH of indigenous peoples ,HEALTH occupations students ,CURRICULUM ,CULTURAL pluralism ,SOCIAL justice ,EXPERIENCE ,COMPARATIVE studies ,SURVEYS ,STUDENTS ,INTERSECTIONALITY ,RESEARCH funding ,SOCIAL work education ,EMOTIONAL intelligence ,PROFESSIONALISM ,SOCIAL case work ,CULTURAL values ,CULTURAL awareness - Abstract
Social work in the twenty-first century is maturing as a global profession. This comparative study offers an original contribution to the evolving discussion in the field of international social work. The paper makes visible the socio-spatial dimensions and contested interpretations of international and indigenous knowledge through the experiences of social work students in the Global South and Global North. Drawing on findings from an online survey completed by undergraduate and postgraduate Nigerian and Scottish social work students (n = 142), the paper provides insights into the students' experiences, expectations and perceived challenges. The Nigerian students critiqued the international (Western) knowledge informing their learning and practice, questioned the absence of indigenous knowledge and were aware of the importance, and challenges, of working with cultural diversity. The Scottish students showed little criticality of the Western (local) knowledge underpinning their learning and practice, did not prioritise learning about international social work and highlighted tensions between working with a culture of neoliberalism and social work values and social justice. We call for raising awareness of the epistemological foundations of what is included/excluded in curriculum and why, making the 'local' visible through re-balancing and contextualising the use of international and indigenous knowledge within social work. [ABSTRACT FROM AUTHOR]
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- 2022
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7. Working with community researchers to enhance rural community engagement around Private Water Supplies: an exploration of the benefits and challenges.
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Creaney, Rachel, Currie, Mags, Teedon, Paul, and Helwig, Karin
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RURAL conditions ,COMMUNITIES ,COMMUNITY support ,PRIVATE sector ,WATER supply ,MEDICAL care research ,RESEARCH funding ,PARTICIPANT observation - Abstract
This project employed community researchers as a means of improving community engagement around their Private Water Supplies (PWS) in rural Scotland. In this paper, we reflect on working with community researchers in terms of the benefits and challenges of the approach for future rural research that seeks to improve community engagement. The paper (1) critiques the involvement of community researchers for rural community engagement, drawing on the experiences in this project and (2) provides suggestions for good practice for working with community researchers in rural communities' research. We offer some context in terms of the role of community members in research, the importance of PWS, our approach to community researchers, followed by the methodological approach and findings and our conclusions to highlight that community researchers can be beneficial for enhancing community engagement, employability, and social capital. Future community researcher approaches need to be fully funded to ensure core researchers can fulfil their duty of care, which should not stop when data collection is finished. Community researchers need to be supported in two main ways: as continuing faces of the project after the official project end date and to transfer their newly acquired skills to future employment opportunities. [ABSTRACT FROM AUTHOR]
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- 2022
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8. Dementia education in a primary school classroom: A pedagogical perspective.
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Ritchie, Louise, Henderson-Bone, Susan, Gregory, Angela, and Jenkins, Nick
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TEACHING methods ,FOCUS groups ,QUALITATIVE research ,LEARNING strategies ,DEMENTIA ,FIELD notes (Science) ,CASE studies ,RESEARCH funding ,ELEMENTARY schools ,VIDEO recording ,REFLECTION (Philosophy) - Abstract
The World Health Organisation recognises the importance of dementia education across all sectors of the population, including children. Previous research has shown that dementia education in schools has positively changed students' knowledge about and attitudes to dementia, however little is known about the process of learning about a complex condition, such as dementia. This paper explores how pupils learn about dementia through a pre-planned educational session in the primary classroom to improve our understanding of the pedagogical approaches required for effective dementia education. Using a participatory video approach, 23 primary 6 pupils (aged 10–11) used iPads to film their experiences of a dementia education session using a resource called Understanding Dementia: Class in a Bag. These videos, along with researcher field notes were combined to create analytical vignettes to illustrate the learning processes and interactions that happened within the classroom. Two weeks later, the pupils were invited to a focus group to view footage of the session and reflect on their experiences and explore the understanding of dementia. The findings highlight the importance of embodied learning within the session, particularly in understanding the experience of living with dementia. By understanding the session from the pupil's perspective, the findings show how pupils developed an empathetic understanding of dementia through play and felt more confident about engaging with and helping people living with dementia in future. This paper provides a new understanding of the process of learning about dementia for primary children, as well as demonstrating the viability of including dementia education within school curriculums internationally. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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9. Expected and actual responses to minimum unit pricing (MUP) for alcohol of people drinking at harmful levels in Scotland.
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Livingston, Wulf, Holmes, John, Hughes, Jane, Buykx, Penny, Perkins, Andrew, Wright, Alex, Gardiner, Kevin, Yannoulis, Yanni, Johnston, Allan, and Maclean, Alex
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CROSS-sectional method , *ALCOHOLIC beverages , *GOVERNMENT policy , *RESEARCH funding , *CONSUMER attitudes , *DESCRIPTIVE statistics , *PSYCHOLOGICAL adaptation , *THEMATIC analysis , *ALCOHOLISM , *DATA analysis software , *PUBLIC health , *DRINKING behavior - Abstract
This paper considers the extent to which people drinking at harmful levels responded to minimum unit pricing (MUP) in Scotland in the way they, family members and those providing services anticipated they would. It examines data taken from a larger evaluation of the impact of MUP on people who are drinking at harmful levels. Qualitative interview data, (utilizing interviews and focus groups, with individuals, treatment services, and family members) was generated prior to the implementation of MUP in Scotland to provide insights into anticipated responses and comparable data generated across an extended 19-month period post-implementation and provided insights into actual responses. Overall, the data showed consistency between anticipated and actual responses, with fewer differences observed. In line with anticipated responses, many drinkers switched from cheap, strong ciders to other alcohol products, notably vodka. They consistently responded to the decrease in alcohol affordability by utilizing existing behavior such as managing finances and prioritizing spends on alcohol, including borrowing money, foregoing essentials, and using savings. There was less evidence of anticipated harmful consequences of MUP occurring, such as increased crime, switching to other drugs, or examples of acute withdrawal. Drinkers and those living and working with them, have a good command of how alcohol affordability is maintained or impacts on expenditure and other choices, and how they respond to any decrease in affordability including the introduction of minimum price policies. [ABSTRACT FROM AUTHOR]
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- 2024
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10. 'I don't think there's anything I can do which can keep me healthy': how the UK immigration and asylum system shapes the health & wellbeing of refugees and asylum seekers in Scotland.
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Isaacs, Anna, Burns, Nicola, Macdonald, Sara, and O'Donnell, Catherine A.
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WELL-being ,HEALTH services accessibility ,SOCIAL determinants of health ,PSYCHOLOGY of refugees ,RESEARCH methodology ,PSYCHOLOGICAL vulnerability ,EMIGRATION & immigration ,INTERVIEWING ,RACE ,EXPERIENCE ,NATIONAL health services ,RESEARCH funding ,INTERSECTIONALITY ,THEMATIC analysis ,POVERTY ,PSYCHOLOGICAL adaptation ,HEALTH planning - Abstract
Many migrant groups, particularly those that are politically and economically marginalised, such as asylum seekers and refugees (ASRs), face inequities in access to health care as well as poorer physical and mental health outcomes. The role of post-arrival experiences in contributing to these inequities is increasingly being explored, and it is suggested that being a migrant is itself a determinant of health outcomes. Drawing on the theoretical concept of structural vulnerability, this paper explores ASRs' experiences of health, wellbeing, and health practices in the context of their lived realities in Scotland. 24 semi-structured interviews were conducted with ASRs from Sub-Saharan Africa between January and December 2015. Data were explored using thematic analysis. Experience of the UK asylum system, both alone and in conjunction with other sources of vulnerability including racism, poverty, and language barriers had a negative and ongoing impact on the physical and mental health of ASRs. These impacts continued, even once refugee status was obtained. Efforts to engage ASRs in preventive health programmes and practices must take into account the ways in which the asylum system acts as a determinant of health, affecting both what it means to be healthy and what capacity individuals have to engage with their health. Political choices in how the asylum process is enacted have far-reaching implications for individual and population health. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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11. Modes of Informed Caring: Perspectives of Health Professionals Who Are Mothers of Adult Children with Schizophrenia.
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Klages, Debra, East, Leah, Usher, Kim, and Jackson, Debra
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ADULT children ,ATTITUDE (Psychology) ,COMMUNICATION ,INTERPROFESSIONAL relations ,INTERVIEWING ,SERVICES for caregivers ,MEDICAL personnel ,MOTHERHOOD ,PROFESSIONS ,RESEARCH funding ,SCHIZOPHRENIA ,QUALITATIVE research ,JUDGMENT sampling ,OCCUPATIONAL roles ,THEMATIC analysis ,PSYCHIATRIC treatment ,ATTITUDES of mothers ,HEALTH literacy ,PATIENTS' families - Abstract
Schizophrenia is a global concern, and, this paper, describes the caring roles of health professionals who are mothers of adult children with schizophrenia. A thematic analysis of data from a doctoral study identified a blending of expertise into an informed care model. Caring roles included: constant carer; coordinator carer; watchful bystander carer; and life coach carer. Previous research has not explored these dual roles. This paper elucidates their responsive approaches and contributions to mothering and caregiving roles. Informed by a fusion of professional and mothering knowledges, their insights into mental health care have been forged by their experiences and is an untapped resource. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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12. Narratives of power and powerlessness: cultural competence in social work with asylum seekers and refugees.
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Käkelä, Emmaleena
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RESEARCH methodology ,CULTURAL pluralism ,REFUGEES ,RESEARCH funding ,SOCIAL services ,QUALITATIVE research ,PROFESSIONAL practice ,QUANTITATIVE research ,CULTURAL competence ,SOCIAL worker attitudes - Abstract
With increasing international migration, social workers have not only been confronted with growing diversity, but also with the effects of displacement, trauma and immigration controls in the lives of their service users. Although the ongoing debates on migration, migrant integration and social cohesion have facilitated a growing literature on, and demand for cultural competence in social work, little progress has been made to arrive at an agreement of what exactly is required from social workers in cross-cultural encounters. This paper draws from the qualitative element of a mixed-methods study on social workers' experiences of cross-cultural practice conducted in Glasgow, Scotland in 2016. By focusing on social workers' experiences of accommodating and negotiating cultural differences with asylum seekers, this paper illustrates how social workers are moving beyond the cultural lens in understanding difference and disadvantage. The findings suggest that whilst culture continues to influence social workers' encounters with service users, addressing cultural conflicts requires social workers to understand the complex power relations which asylum seekers are subject to both within and beyond the care relationship. Practice perspectives on the challenges and successes in cross-cultural social work illustrate the interplay between cultural and structural considerations involved in social work with asylum seekers. [ABSTRACT FROM AUTHOR]
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- 2020
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13. Family Group Conference Provision in UK Local Authorities and Associations with Children Looked after Rates.
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Wood, Sophie, Scourfield, Jonathan, Meindl, Melissa, Au, Kar Man, Evans, Rhiannon, Jones-Willams, Delyth, Lugg-Widger, Fiona, Pallmann, Philip, Robling, Michael, Schroeder, Elizabeth-Ann, Petrou, Stavros, and Wilkins, David
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CHILD welfare ,SELF-evaluation ,RESEARCH funding ,T-test (Statistics) ,EXECUTIVES ,GOVERNMENT agencies ,PATIENT-family relations ,QUESTIONNAIRES ,SOCIAL services ,DECISION making ,FOSTER home care ,DESCRIPTIVE statistics ,FAMILIES ,ASSOCIATIONS, institutions, etc. ,FAMILY reunification ,COMPARATIVE studies ,FOSTER children ,DATA analysis software ,CONFIDENCE intervals ,PATIENT care conferences ,SOCIAL isolation ,REGRESSION analysis - Abstract
Family group conferences (FGCs) in child welfare share decision-making with family members by bringing the immediate and wider family together to make a plan to meet a child's needs. This paper reports survey findings on FGC provision in the UK in 2022 and explores whether in England the presence of an FGC service and the rate of FGC provision is associated with the rate of children in care, entering care, in kinship foster care and leaving care. Seventy-nine per cent (n = 167) of local authorities in the UK provided FGCs to families, and 14 per cent (n = 29) did not. Services that were more established offered a more diverse range of FGCs. The introduction of FGCs in English local authorities was associated with a higher rate of children in care, but also higher rates of kinship foster care, a key goal of FGCs where it is not possible for children to stay with their parents. Higher rates of FGCs were associated with more children leaving care, possibly due to reunification with birth families. To understand in more detail, the circumstances of children in and leaving care in local authorities with FGCs, individual data linkage studies are needed. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Placement or displacement: An ethnographic study of space in the clinical learning environment.
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Gupta, Shalini, Howden, Stella, Moffat, Mandy, Pope, Lindsey, and Kennedy, Cate
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CLINICAL medicine , *SCHOOL environment , *MEDICAL education , *HOSPITAL building design & construction , *RESEARCH funding , *ACADEMIC medical centers , *INTERNSHIP programs , *ETHNOLOGY research , *SCIENTIFIC observation , *INTERVIEWING , *EXPERIENCE , *STUDENTS , *PSYCHOLOGY of medical students , *STUDENT attitudes - Abstract
This paper aims to examine the spatial attributes in the hospital ward environment and their impact on medical students' learning and experience of the clinical workplace. An ethnographic study was conducted in a Scottish teaching hospital, combining observations and interviews over a period of 10 months. Two teaching wards served as the field-sites where approximately 120 h of non-participant observations took place sequentially. In addition, 34 individual interviews were conducted with identified key informants that included medical students, junior doctors, postgraduate trainees, consultant supervisors, ward nurses and hospital pharmacist. A combination of Actor-network Theory (ANT) and Social cognitive theory (SCT) was applied to analyse data pertaining to spatial attributes and their relevance to clinical teaching and learning. Analysis of the observational and interview data led to generation of the following themes: spatial attributes in the clinical workplace can enable or constrain teaching and learning opportunities, inadequate spaces impact students' and junior doctors' sense of value, short clinical rotations influence a sense of ownership of doctors' spaces, and contested nature of space in the clinical environment. Several illustrations of the field-sites help to contextualise the themes and aid in understanding the participants' experiences and perceptions. Our findings suggest a complex entanglement of space with medical students learning and wellbeing in the clinical workplace. Provision of suitable spaces needs to be a core consideration to realise the full potential of work-based learning in medicine. [ABSTRACT FROM AUTHOR]
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- 2024
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15. The Impact of COVID-19 on Farmers' Mental Health: A Case Study of the UK.
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Rose, David Christian, Shortland, Faye, Hall, Jilly, Hurley, Paul, Little, Ruth, Nye, Caroline, and Lobley, Matt
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WELL-being ,PSYCHOLOGY of agricultural laborers ,AGRICULTURE ,MENTAL health ,INTERVIEWING ,SUICIDAL ideation ,RESEARCH funding ,DESCRIPTIVE statistics ,MENTAL depression ,LONELINESS ,ANXIETY ,COVID-19 pandemic ,PSYCHOLOGICAL resilience - Abstract
In this paper, we use a UK case study to explore how the COVID-19 pandemic affected the mental health (emotional, psychological, social wellbeing) of farmers. We outline the drivers of poor farming mental health, the manifold impacts of the pandemic at a time of policy and environmental change, and identify lessons that can be learned to develop resilience in farming communities against future shocks. We undertook a survey answered by 207 farmers across the UK, focusing on drivers of poor mental health and the effect of the COVID-19 pandemic. We also conducted 22 in-depth interviews with individuals in England, Scotland and Wales who provide mental health support to farmers. These explored how and why the COVID-19 pandemic affected the mental health of farmers. These interviews were supplemented by 93 survey responses from a similar group of support providers (UK-wide). We found that the pandemic exacerbated underlying drivers of poor mental health and wellbeing in farming communities. 67% of farmers surveyed reported feeling more stressed, 63% felt more anxious, 38% felt more depressed, and 12% felt more suicidal. The primary drivers of poor mental health identified by farmers during the pandemic included decreased social contact and loneliness, issues with the general public on private land, and moving online for social events. Support providers also highlighted relationship and financial issues, illness, and government inspections as drivers of poor mental health. Some farmers, conversely, outlined positive impacts of the pandemic. The COVID-19 pandemic is just one of many potential stressors associated with poor farming mental health and its impacts are likely to be long-lasting and delayed. Multiple stressors affecting farmers at the same time can create a tipping point. Therefore, there is a need for long-term support and ongoing evaluation of the drivers of poor mental health in farming families. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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16. 'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom‐heard communities in big data research.
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Teodorowski, Piotr, Rodgers, Sarah E., Fleming, Kate, Tahir, Naheed, Ahmed, Saiqa, and Frith, Lucy
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EXPERIMENTAL design ,PATIENT participation ,RESEARCH methodology ,SOCIAL media ,SOCIAL constructionism ,COMMUNITIES ,INTERVIEWING ,QUALITATIVE research ,SOUND recordings ,RESEARCH funding ,INTERPROFESSIONAL relations ,DESCRIPTIVE statistics ,DATA analytics ,THEMATIC analysis ,DATA analysis software ,PUBLIC opinion - Abstract
Background: Big data research requires public support. It has been argued that this can be achieved by public involvement and engagement to ensure that public views are at the centre of research projects. Researchers should aim to include diverse communities, including seldom‐heard voices, to ensure that a range of voices are heard and that research is meaningful to them. Objective: We explored how researchers involve and engage seldom‐heard communities around big data research. Methods: This is a qualitative study. Researchers who had experience of involving or engaging seldom‐heard communities in big data research were recruited. They were based in England (n = 5), Scotland (n = 4), Belgium (n = 2) and Canada (n = 1). Twelve semistructured interviews were conducted on Zoom. All interviews were audio‐recorded and transcribed, and we used reflexive thematic analysis to analyse participants' experiences. Results: The analysis highlighted the complexity of involving and engaging seldom‐heard communities around big data research. Four themes were developed to represent participants' experiences: (1) abstraction and complexity of big data, (2) one size does not fit all, (3) working in partnership and (4) empowering the public contribution. Conclusion: The study offers researchers a better understanding of how to involve and engage seldom‐heard communities in a meaningful way around big data research. There is no one right approach, with involvement and engagement activities required to be project‐specific and dependent on the public contributors, researchers' needs, resources and time available. Patient and Public Involvement: Two public contributors are authors of the paper and they were involved in the study design, analysis and writing. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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17. Policy actors' perceptions of public participation to tackle health inequalities in Scotland: a paradox?
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McHugh, Neil, Baker, Rachel, and Bambra, Clare
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HEALTH policy ,RESEARCH ,PATIENT participation ,ATTITUDES of medical personnel ,RESEARCH methodology ,INTERVIEWING ,RESEARCH funding ,DESCRIPTIVE statistics ,HEALTH equity ,POLICY sciences ,THEMATIC analysis ,DATA analysis software - Abstract
Background: Health inequalities are persistent and widening with transformative policy change needed. Radically shifting policy to tackle upstream causes of inequalities is likely to require public participation to provide a mandate, evidence and to address questions of co-design, implementation and acceptability. The aim of this paper is to explore perceptions among policy actors on why and how the public should be involved in policymaking for health inequalities. Methods: In 2019–2020, we conducted exploratory, in-depth, semi-structured interviews with 21 Scottish policy actors from a range of public sector bodies and agencies and third sector organisations that work in, or across, health and non-health sectors. Data were analysed thematically and used to examine implications for the development of participatory policymaking. Results: Policy actors viewed public participation in policymaking as intrinsically valuable for democratic reasons, but the main, and more challenging, concern was with how it could affect positive policy change. Participation was seen as instrumental in two overlapping ways: as evidence to improve policies to tackle health inequalities and to achieve public acceptance for implementing more transformative policies. However, our analysis suggests a paradox: whilst policy actors place importance on the instrumental value of public participation, they simultaneously believe the public hold views about health inequalities that would prevent transformative change. Finally, despite broad agreement on the need to improve public participation in policy development, policy actors were uncertain about how to make the necessary changes due to conceptual, methodological and practical challenges. Conclusions: Policy actors believe in the importance of public participation in policy to address health inequalities for intrinsic and instrumental reasons. Yet, there is an evident tension between seeing public participation as a route to upstream policies and a belief that public views might be misinformed, individualistic, short-term or self-interested and doubts about how to make public participation meaningful. We lack good insight into what the public think about policy solutions to health inequalities. We propose that research needs to shift from describing the problem to focusing more on potential solutions and outline a potential way forward to undertake effective public participation to tackle health inequalities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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18. 'Sins of their fathers': Social groups parental incarceration and positive psychological outcomes across time in the US and UK.
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Bradshaw, Daragh, Bornica, Islam, Griffin, Siobhán M., McMahon, Grace, and Muldoon, Orla T.
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CROSS-sectional method , *IMPRISONMENT , *RESEARCH funding , *POSITIVE psychology , *SOCIAL groups , *MEMBERSHIP , *EMOTIONS , *TEENAGERS' conduct of life , *LONGITUDINAL method , *EXPERIENCE , *FATHERS , *SOCIAL skills , *INTERPERSONAL relations , *CHILD behavior , *SOCIAL stigma , *CHILDREN , *ADOLESCENCE - Abstract
Paternal incarceration (PI) is recognised as a severely stigmatising event that undermines social connections leaving affected children isolated and vulnerable. However, few studies have explored social group membership as a potential mediator of positive outcomes. This paper analysed data from two national contexts, Scotland and the United States, to examine the potential for social group membership in childhood to mediate the association between PI and child behavioural and emotional outcomes. Study 1 reported on cross‐sectional data from the Growing Up in Scotland dataset of children aged 12 years. Study 2 used longitudinal data from the Fragile Families cohort study (USA) of children aged 9 years and then 15 years. Children and parents completed measures of PI, children's group membership, as well as positive functioning. In Study 1, a mediated indirect effect of PI on prosocial behaviour via children's group membership was observed. In Study 2, children's reported social group membership mediated the effect of PI on positive adolescent functioning longitudinally. Whilst experiences of PI at age 9 were linked with lower group membership at age 15, group membership was associated with higher levels of positive adolescent functioning. This has implications for the support families receive when a parent is incarcerated to avoid children serving sentences for 'the sins of their fathers'. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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19. The Lived Experience of Financialization at the UK Financial Fringe.
- Author
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APPLEYARD, LINDSEY, PACKMAN, CARL, LAZELL, JORDON, and ASLAM, HUSSAN
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RESEARCH methodology ,DEBT ,INTERVIEWING ,CONSUMER attitudes ,EXPERIENCE ,QUESTIONNAIRES ,EMPLOYMENT ,RESEARCH funding ,FINANCIAL management ,ENDOWMENTS ,DATA analysis software ,CREDIT ,EDUCATIONAL attainment - Abstract
The financialization of everyday life has received considerable attention since the 2008 global financial crisis. Financialization is thought to have created active financial subjects through the ability to participate in mainstream financial services. While the lived experience of these mainstream financial subjects has been the subject of close scrutiny, the experiences of financial subjects at the financial fringe have been rarely considered. In the UK, for example, the introduction of High-Cost, Short-Term Credit [HCSTC] or payday loan regulation was designed to protect vulnerable people from accessing unaffordable credit. Exploring the impact of HCSTC regulation is important due to the dramatic decline of the high-cost credit market which helped meet essential needs in an era of austerity. As such, the paper examines the impact of the HCSTC regulation on sixty-four financially marginalized individuals in the UK that are unable to access payday loans. First, we identify the range of socioeconomic strategies that individuals employ to manage their finances to create a typology of financial subjectivity at the financial fringe. Second, we demonstrate how the temporal and precarious nature of financial inclusion at the financial fringe adds nuance to existing debates of the everyday lived experience of financialization. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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20. Widening or narrowing inequalities? The equity implications of digital tools to support COVID‐19 contact tracing: A qualitative study.
- Author
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O'Donnell, Catherine A., Macdonald, Sara, Browne, Susan, Albanese, Alessio, Blane, David, Ibbotson, Tracy, Laidlaw, Lynn, Heaney, David, and Lowe, David J.
- Subjects
LITERACY ,PRIVACY ,MINORITIES ,FOCUS groups ,RESEARCH methodology ,PSYCHOLOGY of refugees ,INTERVIEWING ,LANGUAGE & languages ,QUALITATIVE research ,INTERNET access ,HEALTH literacy ,QUESTIONNAIRES ,PSYCHOSOCIAL factors ,MEDICAL ethics ,RESEARCH funding ,CONTACT tracing ,HEALTH equity ,THEMATIC analysis ,ETHNIC groups ,POVERTY ,COVID-19 pandemic ,INFORMATION technology ,PUBLIC opinion ,TRUST - Abstract
Background: As digital tools are increasingly used to support COVID‐19 contact tracing, the equity implications must be considered. As part of a study to understand the public's views of digital contact tracing tools developed for the national 'Test and Protect' programme in Scotland, we aimed to explore the views of groups often excluded from such discussions. This paper reports on their views about the potential for contact tracing to exacerbate inequalities. Methods: A qualitative study was carried out; interviews were conducted with key informants from organizations supporting people in marginalized situations, followed by interviews and focus groups with people recruited from these groups. Participants included, or represented, minority ethnic groups, asylum seekers and refugees and those experiencing multiple disadvantage including severe and enduring poverty. Results: A total of 42 people participated: 13 key informants and 29 members of the public. While public participants were supportive of contact tracing, key informants raised concerns. Both sets of participants spoke about how contact tracing, and its associated digital tools, might increase inequalities. Barriers included finances (inability to afford smartphones or the data to ensure access to the internet); language (digital tools were available only in English and required a degree of literacy, even for English speakers); and trust (many marginalized groups distrusted statutory organizations and there were concerns that data may be passed to other organizations). One strength was that NHS Scotland, the data guardian, is seen as a generally trustworthy organization. Poverty was recognized as a barrier to people's ability to self‐isolate. Some participants were concerned about giving contact details of individuals who might struggle to self‐isolate for financial reasons. Conclusions: The impact of contact tracing and associated digital tools on marginalized populations needs careful monitoring. This should include the contact tracing process and the ability of people to self‐isolate. Regular clear messaging from trusted groups and community members could help maintain trust and participation in the programme. Patient and Public Contribution: Our patient and public involvement coapplicant, L. L., was involved in all aspects of the study including coauthorship. Interim results were presented to our local Public and Patient Involvement and Engagement Group, who commented on interpretation and made suggestions about further recruitment. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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21. Developing and establishing the psychometric properties of the Strathclyde Citizenship Measure: A new measure for health and social care practice and research.
- Author
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Cogan, Nicola, MacIntyre, Gillian, Stewart, Ailsa, Harrison‐Millan, Hilary, Black, Karen, Quinn, Neil, Rowe, Michael, and O'Connell, Maria
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LIFE change events ,EXPERIMENTAL design ,RESEARCH evaluation ,RESEARCH methodology ,RESEARCH methodology evaluation ,MEDICAL care ,DISCRIMINANT analysis ,PSYCHOMETRICS ,PSYCHOLOGICAL tests ,QUESTIONNAIRES ,FACTOR analysis ,RESEARCH funding ,ACTION research ,DESCRIPTIVE statistics ,EMPIRICAL research ,CITIZENSHIP ,SOCIAL integration ,SOCIAL case work - Abstract
There has been increasing interest and research attention towards citizenship‐based practices and care within health and social care settings. A framework for implementing citizenship‐based interventions has helped support the participation in society of persons who have experienced major life disruptions. Yet, having ways to measure the impact of citizenship 'in action' within specific socio‐cultural contexts has proved challenging. We report on the development of the Strathclyde Citizenship Measure (SCM) which seeks to establish a psychometrically sound measure of citizenship that is relevant to the Scottish context. We outline the three phases of developing the SCM: (1) item generation, (2) item reduction and piloting, and (3) measure validation. Having generated items for the SCM using concept mapping techniques, we piloted it with 407 participants who completed an online survey of a 60‐item version of the SCM. The aims were to assess the validity of the items and reduce the number of items using principal components analysis for the final measure. This resulted in a 39 item SCM. We then sought to establish the psychometric properties of this shorter version of the SCM through testing its reliability, convergent, concurrent and discriminant validity. The 39 item SCM was administered online to 280 Scottish residents along with additional measures including the Warwick‐Edinburgh Mental Well‐being Scale (WEMWBS), the Depression, Anxiety and Stress Scale (DASS21), the Sense of Belonging Instrument (SOBI‐A); the Big Five Personality Inventory (Shortened Version; BFI‐10) and the Personal Social Capital Scale (PSCS‐16). The factor structure and dimensionality of the SCM was examined using exploratory factor analysis and it was found to be reliable and valid. This paper explores the potential for the application of the SCM across health and social care settings and identifies future work to develop citizenship tools to facilitate dialogues about citizenship across health and social care practice settings. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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22. Touch in residential child care: staff’s bodies and children’s agency.
- Author
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Eßer, Florian
- Subjects
FOSTER home care ,CORPORATE culture ,FOSTER children ,RESEARCH funding ,SOCIAL case work ,TOUCH ,CLIENT relations ,RESIDENTIAL care ,TREATMENT effectiveness ,PSYCHOLOGY - Abstract
Copyright of European Journal of Social Work is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2018
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23. How, why and why not – the reflective practice of teaching staff at a Scottish university.
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Bray, Rob and Fotheringham, Heather
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PROFESSIONAL practice ,WELL-being ,TEACHER-student relationships ,PROFESSIONS ,TEACHING methods ,INDIVIDUAL development ,COLLEGE teachers ,PROFESSIONAL employee training ,RESEARCH methodology ,TIME ,MOTIVATION (Psychology) ,INTERVIEWING ,COLLEGE teacher attitudes ,LEARNING ,UNIVERSITIES & colleges ,DECISION making ,SCOTS ,RESEARCH funding ,QUESTIONNAIRES ,PROFESSIONAL identity ,INFORMATION resources ,COMMUNICATION ,DESCRIPTIVE statistics ,MANAGEMENT ,THEMATIC analysis ,WRITTEN communication ,PROFESSIONALISM ,REFLECTION (Philosophy) ,CORPORATE culture - Abstract
This two-stage study was conducted to examine the awareness of policy and underlying pedagogy as well as the use of reflective practice by teaching staff (faculty) within a Scottish university. In the first stage, teaching staff completed a questionnaire; of these 14 then took part in stage two, semi-structured interviews. Interview transcripts were subject to thematic analysis and three main themes emerged: (1) The methods and processes of reflection ('How'); (2) The personal and organisational drivers for employing reflective practices ('Why'); and (3) The barriers to reflection ('Why not'). Significant findings included the dominance of traditional (paper-based as opposed to computer mediated) reflective writing in teaching staff's own reflection, and the importance of both formal and informal group reflection in methods and process. Reasons for reflection focused on the importance of both organisational drivers such as professional standards and awarding bodies, and personal drivers such as personal growth, identity, and psychological wellbeing. Barriers to reflection included both the concrete such as insufficient time and lack of opportunities to share resources, as well as the attitudinal and cultural. Possible ways of tacking these barriers also emerged. Implications for organisational and individual practice are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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24. Housing as a social determinant of health and wellbeing: developing an empirically-informed realist theoretical framework.
- Author
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Rolfe, Steve, Garnham, Lisa, Godwin, Jon, Anderson, Isobel, Seaman, Pete, and Donaldson, Cam
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HOUSING ,HEALTH ,TENANTS ,WELL-being ,QUALITY of life ,NEIGHBORHOODS ,RESEARCH ,SOCIAL determinants of health ,RESEARCH methodology ,FAMILIES ,INTERVIEWING ,EVALUATION research ,MEDICAL cooperation ,COMPARATIVE studies ,RESEARCH funding ,RESIDENTIAL patterns ,LONGITUDINAL method - Abstract
Background: The role of housing as a social determinant of health is well-established, but the causal pathways are poorly understood beyond the direct effects of physical housing defects. For low-income, vulnerable households there are particular challenges in creating a sense of home in a new tenancy which may have substantial effects on health and wellbeing. This study examines the role of these less tangible aspects of the housing experience for tenants in the social and private rented sectors in west central Scotland.Methods: The paper analyses quantitative data from a mixed methods, longitudinal study of tenants from three housing organisations, collected across the first year of their tenancy. The paper postulates causal hypotheses on the basis of staff interviews and then uses a Realist Research approach to test and refine these into a theoretical framework for the connections between tenants' broader experience of housing and their health and wellbeing.Results: Housing service provision, tenants' experience of property quality and aspects of neighbourhood are all demonstrated to be significantly correlated with measures of of health and wellbeing. Analysis of contextual factors provides additional detail within the theoretical framework, offering a basis for further empirical work.Conclusions: The findings provide an empirically-informed realist theoretical framework for causal pathways connecting less tangible aspects of the housing experience to health and wellbeing. Applying this within housing policy and practice would facilitate a focus on housing as a public health intervention, with potential for significant impacts on the lives of low-income and vulnerable tenants. The framework also offers a basis for further research to refine our understanding of housing as a social determinant of health. [ABSTRACT FROM AUTHOR]- Published
- 2020
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25. "It's Just the Abuse that Needs to Stop": Professional Framing of Sibling Relationships in a Grounded Theory Study of Social Worker Decision Making following Sibling Sexual Behavior.
- Author
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Yates, Peter
- Subjects
SIBLINGS ,CHILD sexual abuse ,CHILD welfare ,DECISION making ,FAMILIES ,DOMESTIC violence ,GROUNDED theory ,INTERVIEWING ,RESEARCH methodology ,RESEARCH funding ,RISK-taking behavior ,SOCIAL workers ,DATA analysis software - Abstract
Sibling abuse is a global problem, arguably the most prevalent form of family violence, and as harmful as other familial abuse. There is evidence internationally that sibling abuse often goes unrecognized or is minimized by professionals from education, health and social care. The responses of social workers are of particular interest as key decision makers in child welfare, yet research has focused on concerns about parental abuse rather than risks presented by children within a family. This paper presents findings from research examining social worker decision-making in cases involving sibling sexual behavior. Interviews were conducted across six Scottish local authorities with twenty-one social workers having responsibility for such cases. Forty-five hours of in-depth interviews regarding 21 families and 54 children involved in sibling sexual behavior were audiotaped, transcribed verbatim, and analyzed using constructivist grounded theory. The study found that social workers frame sibling relationships as non-abusive and of intrinsic value, and when faced with contradictory evidence engage in a number of mechanisms to maintain this frame. This paper makes a significant contribution to the sociology of siblinghood and provides an explanation that is more profound than existing theories for the internationally recognized problem of the marginalization of sibling abuse. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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26. How do you solve a problem like Maria? Family complexity and institutional complications in UK social work.
- Author
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Walsh, Julie, White, Sue, Morris, Kate, and Doherty, Paula
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PSYCHOLOGICAL adaptation ,CHILD welfare ,COUNSELING ,DECISION making ,FAMILIES ,DOMESTIC violence ,FOCUS groups ,INTERVIEWING ,MANAGEMENT ,RESEARCH methodology ,MEDICAL personnel ,NEEDS assessment ,RESEARCH funding ,SOCIAL case work ,PSYCHOLOGY of social workers ,SUBSTANCE abuse ,QUALITATIVE research ,GOVERNMENT policy ,FAMILY relations ,SOCIAL support ,PATIENTS' families ,SOCIAL worker attitudes - Abstract
This paper draws on UK data from an international, comparative project involving eight countries. The study examined how social workers' conceptions and definitions of family impact on the way they engage with complex families, and how social policies that frame social work context impact on the way social workers engage with families. Focus groups were held in which social workers from four service areas (child welfare, addictions, mental health and migration) were asked to discuss a case vignette. Several factors were embedded in the vignette to represent a realistic situation a social worker may come across in their day-to-day work. Social workers clearly identified the complexity of the family's situation in terms of the range of issues identified and candidate 'causes'. However, typical first responses were institutional, looking for triggers that would signify certainty about their, or other agencies' involvement. This resulted in a complicated story, through which the family was disaggregated into individual problem-service categories. This paper argues that understanding these processes and their consequences is critical for exploring the ways in which we might develop alternative, supportive professional responses with families with complex needs. It also demonstrates how organisational systems manifest themselves in everyday reasoning. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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27. Online language learning in the third-age: Concrete recommendations to improve seniors' learning experiences.
- Author
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van der Ploeg, Mara and Blankinship, Brittany
- Subjects
- *
ONLINE education , *FOCUS groups , *LANGUAGE & languages , *CONSUMER attitudes , *INTERVIEWING , *LEARNING strategies , *QUALITATIVE research , *HUMAN services programs , *QUESTIONNAIRES , *RESEARCH funding , *THEMATIC analysis , *CURRICULUM planning - Abstract
Online activities have spiked due to the COVID-19 pandemic, including language learning activities. As the world is aging, this affects senior citizens too. Yet, few studies have been conducted studying online (language) learning in this age-group. Moreover, no concrete pointers exist on how to go about such an online language learning course. This paper examines what should be considered when designing and implementing online language learning courses for seniors. To that end we present data from 73 senior language learners from two independent language learning contexts: the Netherlands and Scotland. The data were collected between May 2020 and August 2021. Data includes spoken and written samples from lessons, focus groups, interviews and questionnaires. Given the qualitative nature of the data and the aim of identifying patterns of meaning across the respective datasets, a reflexive thematic analysis (TA) approach was adopted. We employed an inductive approach to coding, using both semantic (explicit or overt) and latent (implicit, underlying) coding frameworks, in order to inform two overarching themes: "Navigating the digital highway" and "Camera ready for new friends." We discuss these themes and their sub-themes and arrive at concrete recommendations for the third-age language learning classroom. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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28. Problems with the Term and Concept of ‘Abuse’: Critical Reflections on the Scottish Adult Support and Protection Study.
- Author
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Johnson, Fiona
- Subjects
ABUSE of older people ,ASSAULT & battery ,FOCUS groups ,INTERVIEWING ,PEOPLE with intellectual disabilities ,PEOPLE with disabilities ,PUBLIC welfare ,RAPE ,RESEARCH funding ,STATISTICAL sampling ,SOCIAL case work ,TERMS & phrases ,VIOLENCE ,QUALITATIVE research ,GOVERNMENT policy ,PSYCHOLOGICAL vulnerability - Abstract
This paper critically reflects on the Scottish Adult Support and Protection (ASP) study, a research project conducted at a time when ‘adult protection’ was understood in Scottish policies to be the professional response to ‘abuse’. During the course of analysing the ASP study data, it became apparent that practitioners themselves did not necessarily construct ‘abuse’ and ‘adult protection’ concerns as coterminous categories. Some examples are recounted to illustrate the potentially more partial, less linear relationship between these categories in practice than in policy constructions. The paper concludes with suggestions for further research into professionals' constructions of ‘adult protection’ concerns. It explains why such research would have continuing, if not greater, relevance in the context of recent Scottish policy moves to reconceptualise adult protection as a response not to ‘abuse’, but to ‘harm’. [ABSTRACT FROM PUBLISHER]
- Published
- 2012
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29. Scanning training for rehabilitation of visual field loss due to stroke: Identifying and exploring training tools in use.
- Author
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Hazelton, Christine, Pollock, Alex, Walsh, Glyn, and Brady, Marian C
- Subjects
COGNITION ,LANGUAGE & languages ,MEDICAL care ,MOTOR ability ,REHABILITATION ,RESEARCH funding ,SACCADIC eye movements ,STROKE ,SURVEYS ,VISION disorders ,STROKE patients ,DISEASE complications - Abstract
Introduction: Visual field loss affects one fifth of stroke survivors, limiting daily activities and reducing quality of life. Scanning training is a commonly used intervention, but there is variation in how this is delivered. This study aimed to identify the scanning training tools used in Scotland and describe their training parameters, delivery and suitability for use with stroke survivors. Method: An email survey identified scanning training tools used in Scotland. Two expert panel meetings gained consensus on the motor, language and cognitive skills required to use each scanning training tool. Video capture techniques gathered objective measures of training parameters. Results: Ten scanning training tools were identified. These tools used four delivery methods: paper-based, computer software, web-based and specialised equipment. They aimed to improve reading, perception or general visual skills. Fast, saccadic eye movements were most frequently targeted: two interventions also encouraged head movements. Session duration, frequency and therapist support varied considerably. The level of motor, language and cognitive skills required for each tool was determined. Conclusion: Scanning training tools used in Scotland vary in delivery modality, functional abilities required for use and visual skills trained. This information will support clinical decision-making and inform future research on training effectiveness and feasibility. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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30. Adoption and permanence planning in Scotland: Impact of the Adoption and Children (Scotland) Act 2007 on key processes and timescales.
- Author
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Hanson, Lucy, Henderson, Gillian, and Kurlus, Indiya
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ADOPTION laws ,ADOPTION & psychology ,SIBLINGS ,DECISION making ,FOSTER children ,PARENTS ,RESEARCH funding ,TIME ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Adoption and permanence planning has been a key feature of Scotland's policy in relation to children and young people who are "looked after." Although policy and law has significantly developed in recent years, there has been comparatively little research on permanence processes in Scotland. This paper outlines key findings from the first comprehensive study of permanence planning in Scotland. It examines the process for two cohorts of children where adoption or other types of permanence orders were made. The children were selected under the long standing Adoption (Scotland) Act 1978 and the more recent Adoption and Children (Scotland) Act 2007. In total, 300 cases were examined, analysing data from the children's first contact with services through to the order made by the Scottish Courts. This paper pays particular attention to the timescales found at key stages under the two sets of legislation and asks what difference the change in legislation has made. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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- View/download PDF
31. Inter-agency adult support and protection practice.
- Author
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Joseph, Sundari, Klein, Susan, McCluskey, Samantha, Woolnough, Penny, and Diack, Lesley
- Subjects
CONCEPTUAL structures ,ECOLOGY ,FOCUS groups ,INFORMATION resources management ,INTEGRATED health care delivery ,INTERPROFESSIONAL relations ,CASE studies ,MEDICAL care ,MEDICAL personnel ,POLICE ,PUBLIC health ,RESEARCH funding ,SOCIAL workers ,WORLD health ,KNOWLEDGE management ,QUALITATIVE research ,ETHICAL decision making ,RESEARCH ,INSTITUTIONAL cooperation ,HUMAN research subjects ,EVALUATION ,SAFETY - Abstract
Purpose Collaborative inter-agency working is of paramount importance for the public protection agenda worldwide. The purpose of this paper is to disseminate the findings from a research study on the inter-agency working within adult support and protection (ASP) roles in the police, health and social care.Design/methodology/approach This realistic evaluation study with two inter-related phases was funded by the Scottish Institute for Policing Research. This paper reports on Phase 1 which identified existing gaps in the implementation of effective inter-agency practice by reviewing the "state of play" in inter-agency collaboration between the police and health and social care professionals. In total, 13 focus groups comprising representatives from Police Scotland (n=52), Social Care (n=31) and Health (n=18), engaged in single profession and mixed profession groups addressing issues including referral and information exchange.Findings On analysing context-mechanism-outcome (CMO), gaps in joint working were identified and attributed to the professionals' own understanding of inter-agency working and the expectations of partner agencies. It recommended the need for further research and inter-agency training on public protection.Research limitations/implications This unique Scottish study successfully identified the inter-agency practices of health, social services and police. By means of a modified realistic evaluation approach, it provides an in-depth understanding of the challenges that professionals face on a day-to-day basis when safeguarding adults and informed strategic recommendations to overcome the barriers to good practices in organisational working. The methods used to determine CMO could benefit other researchers to develop studies exploring the complexities of multi-causal effects of cross-boundary working. The use of the same case study in each focus group helped to neutralise bias. However, the voluntary nature of participation could have resulted in biased perceptions. The limited numbers of health professionals may have resulted in less representation of health sector views.Practical implications This paper reports on a Scottish study that focused on the coordinated and integrated practices amongst the police, health and social services' professionals who support and protect adult members of society at risk of harm and has implications for their practice.Social implications Whilst the focus of this study has been on ASP, the conclusions and recommendations are transferable to public protection issues in many other contexts.Originality/value Studies on the joint-working practices amongst police and health and social services' professionals who support and protect adult members of society at risk of harm are uncommon. This study investigated professionals' perceptions of gaps and concerns pertaining to integrated working by means of a realistic evaluation approach. It recommended the need for further research and inter-agency training on public protection. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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- View/download PDF
32. 'Sticking to carpets' - assessment and judgement in health visiting practice in an era of risk: a qualitative study.
- Author
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King, Caroline
- Subjects
BUSINESS networks ,COMMUNITY health nursing ,EMOTIONS ,FAMILY assessment ,INTERVIEWING ,JUDGMENT (Psychology) ,RESEARCH methodology ,HEALTH policy ,NEEDS assessment ,NURSING assessment ,RESEARCH funding ,SOCIAL stigma ,QUALITATIVE research ,JUDGMENT sampling ,HOME environment ,SOCIOECONOMIC factors ,THEMATIC analysis - Abstract
Aim and objective This paper aims to explore health visitors' accounts of assessment and judgement in health visiting in the context of policy change and an increased focus on risk, which is reshaping practice. Background Assessment and judgement underpin the targeting of support in health visiting practice. Existing literature suggests that needs assessment in health visiting is a complex process which draws on different types of knowledge. Methods The study, upon which this paper draws, was a qualitative exploration which aimed to explore the impact of policy change on health visiting practice and on families. The accounts of sixteen health visitors, who took part in semi-structured interviews, are reported. The interview data were analysed using thematic and narrative techniques. Results Health visitors' accounts of their observations of families' homes, relationships and practices, such as their references to 'dirt', harmful practices and appropriateness, illustrate ways in which assessment and judgement in health visiting practice are shaped by a discourse of risk and notions of ideal parenting. Health visitors problematise this discourse in relation to the potential stigmatising impacts for families. Although health visitors indicate ambivalence towards the use of assessment tools, the findings indicate that they feel the tools provide them with a safety-net at a time when their practice is being reshaped by a discourse of risk. Conclusion This paper identifies that assessment and judgement in contemporary health visiting are shaped by a discourse of risk. A discussion of the role of 'emotion in use' and collective emotions provides an appropriate theoretical lens to consider the impact that risk discourse has on health visiting practice and on families. Relevance to clinical practice This study highlights the need for assessment and judgement in health visiting practice to be highly reflexive, to support families in an era of risk. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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- View/download PDF
33. 'I can see what's going on without being nosey...': What matters to people living with dementia about home as revealed through visual home tours.
- Author
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Campbell, Sarah, Clark, Andrew, Keady, John, Manji, Kainde, Odzakovic, Elzana, Rummery, Kirstein, and Ward, Richard
- Subjects
- *
DEMENTIA , *HOME environment , *INTERVIEWING , *PATIENTS' attitudes , *EXPERIENCE , *CONGREGATE housing , *DEMENTIA patients , *RESEARCH funding , *THEMATIC analysis , *FAMILY relations , *NEIGHBORHOOD characteristics , *VIDEO recording , *SOCIAL integration , *PSYCHOLOGY - Abstract
Objectives: This paper considers home from the perspective of people living with dementia supporting ongoing discourse around ageing in place and the significance of creating more inclusive communities. Methods: Forty‐six home tour interviews led by people living with dementia were conducted in England and Scotland to better understand the connectivity between home and neighbourhood for people living with dementia. These interviews used a range of participatory and creative approaches including video, photographic images and in situ interviews. Data were analysed via reflexive thematic analysis. Results: Three themes were identified in data analysis. 1. Connected home and neighbourhood, where participants revealed the dynamic relationship between home and neighbourhood; 2. Practices of home, where participants discussed the everyday nature of their homes and routines; and 3. Displaying home and family, which reflected participant's biographical homes in the context of living with dementia. Discussion: The findings show that home holds multiple meanings for people living with dementia. For example, home is understood as a part of the neighbourhood and an extension of the home space into gardens and backyards, thus extending existing discourses that solely focus on the inside of people's homes. For people living with dementia, homes are also sites of negotiation and renegotiation where new meanings are created to reflect the changing nature and context of the home. There is not one fixed solution to these issues. Support and understanding for people living with dementia will need to evolve to adapt to the shifting dynamics and multiple meanings of home. Key points: Neighbourhoods begin within homes and are interconnected. This relationship has important implications for the discourse of ageing in place.'Home' for people living with dementia holds the same meanings for those without dementia, but with some notable differences. It is important to recognise the shifting dynamics of home and to recognise the complexity of home in the context of dementia. There is not a fixed solution to the challenges of ageing at home with dementia, but support and understanding need to evolve alongside people with lived experience.Homes are a site of renegotiation where new meanings are created to reflect the changing nature of home and the lived experience of home for those with dementia.The study has provided findings through innovation in the research design. The employment of creative methods enabled people living with dementia to participate in sharing their own narratives of home.The work provides evidence where there is a current gap in understanding 'what matters' about home for people living with dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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- View/download PDF
34. Health economic studies of colorectal cancer and the contribution of administrative data: A systematic review.
- Author
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Lemmon, Elizabeth, Hanna, Catherine R., Hall, Peter, and Morris, Eva J. A.
- Subjects
REPORTING of diseases ,SYSTEMATIC reviews ,EARLY detection of cancer ,MEDICAL care costs ,COLORECTAL cancer ,MEDICAL care research ,MEDICAL records ,RESEARCH funding ,DESCRIPTIVE statistics ,COST effectiveness ,MEDLINE - Abstract
Introduction: Several forces are contributing to an increase in the number of people living with and surviving colorectal cancer (CRC). However, due to the lack of available data, little is known about the implications of these forces. In recent years, the use of administrative records to inform research has been increasing. The aim of this paper is to investigate the potential contribution that administrative data could have on the health economic research of CRC. Methods: To achieve this aim, we conducted a systematic review of the health economic CRC literature published in the United Kingdom and Europe within the last decade (2009–2019). Results: Thirty‐seven relevant studies were identified and divided into economic evaluations, cost of illness studies and cost consequence analyses. Conclusions: The use of administrative data, including cancer registry, screening and hospital records, within the health economic research of CRC is commonplace. However, we found that this data often come from regional databases, which reduces the generalisability of results. Further, administrative data appear less able to contribute towards understanding the wider and indirect costs associated with the disease. We explore several ways in which various sources of administrative data could enhance future research in this area. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
35. The impact of spousal bereavement on hospitalisations: Evidence from the Scottish Longitudinal Study.
- Author
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Tseng, Fu‐Min, Petrie, Dennis, Wang, Shaolin, Macduff, Colin, Stephen, Audrey I., and Tseng, Fu-Min
- Subjects
BEREAVEMENT ,CENSUS ,COMPARATIVE studies ,HOSPITAL care ,LENGTH of stay in hospitals ,LONGITUDINAL method ,RESEARCH methodology ,MEDICAL cooperation ,PROBABILITY theory ,RESEARCH ,RESEARCH funding ,PSYCHOLOGY of Spouses ,EVALUATION research - Abstract
This paper estimates the impact of spousal bereavement on hospital inpatient use for the surviving bereaved by following the experience of 94,272 married Scottish individuals from 1991 until 2009 using a difference-in-difference model. We also consider the sample selection issues related to differences in survival between the bereaved and non-bereaved using a simple Cox Proportional-Hazard model. Before conducting these estimations, propensity score approaches are used to re-weight the non-bereaved to generate a more random-like comparison sample for the bereaved. We find that those bereaved who survive are both more likely to be admitted and to stay longer in hospital than a comparable non-bereaved cohort. Bereavement is estimated to induce on average an extra 0.24 (95% CI [0.15, 0.33]) hospital inpatient days per year. Similar to previous studies, we estimate the bereaved have a 19.2% (95% CI [12.5%, 26.3%]) higher mortality rate than the comparable non-bereaved cohort. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
36. Expanding the methodological repertoire of participatory research into homelessness: The utility of the mobile phone diary.
- Author
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Karadzhov, Dimitar
- Subjects
CELL phones ,RESEARCH ,NOMADS ,PSYCHOTHERAPY patients ,RESEARCH methodology ,CONVALESCENCE ,INTERVIEWING ,MEDICAL cooperation ,DIARY (Literary form) ,MEDICAL care research ,QUALITATIVE research ,EXPERIENCE ,SOCIAL isolation ,SOCIAL work research ,PSYCHOSOCIAL factors ,RESEARCH funding ,AT-risk people ,HOMELESSNESS ,HOMELESS persons ,PSYCHOLOGICAL adaptation ,THEMATIC analysis ,DIFFUSION of innovations ,ADULTS - Abstract
Participatory research methodologies have expanded the opportunities for critical, emancipatory and democratic health and social work research. However, their practical application in research with vulnerable participants has historically been challenging due to ethical, practical and theoretical concerns. Individuals who are homeless are typically seen as 'hard-to-reach', transient, 'hidden' and even chaotic participant populations. Unsurprisingly, examples of the use of innovative participatory research techniques with those groups have been relatively scarce. This paper aimed to address this gap by discussing the application of one such technique – the mobile phone diary in research with multiply disadvantaged homeless adults. Diary methods are situated within the qualitative research on health, illness and social marginality, and the enhanced capabilities of the mobile phone diary are highlighted. The author illustrates the application of the mobile phone diary in his participatory research on the everyday life narratives of adults with serious mental illness (SMI) who were homeless. The process of designing the mobile phone diary is detailed. Following this, participant testimonies of their use of the mobile phone diary are presented. They demonstrate the participatory and inclusive nature, as well as the cathartic and empowering potential, of this technique. The methodological contributions and challenges and the theoretical generativity of the mobile phone diary method are discussed. The mobile phone diary is a feasible approach for eliciting evocative, contextualised and nuanced accounts of the lived experience of homelessness, social isolation, coping and recovery. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
37. Food and Feelings in Residential Childcare.
- Author
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Emond, Ruth, McIntosh, Ian, and Punch, Samantha
- Subjects
CONTROL (Psychology) ,EMOTIONS ,FOCUS groups ,FOOD habits ,INTERVIEWING ,LONGITUDINAL method ,PARTICIPANT observation ,RESEARCH ,RESEARCH funding ,RITES & ceremonies ,SOCIAL skills ,SYMBOLISM (Psychology) in children ,ETHNOLOGY research ,FIELD research ,RESIDENTIAL care ,DATA analysis software - Abstract
The selection, preparation and consumption of food are everyday experiences; however, the social and symbolic meaning attached to such practices varies widely. This paper presents findings from a research project which aimed to explore how such food practices were experienced, produced and maintained within residential children's homes in Scotland. Data were generated over a year-long fieldwork period during which participant observation was undertaken alongside qualitative interviews and/or focus groups with sixteen children and forty-six adults. The paper emphasises the importance of food and food practices to the ways in which children and staff living and working in residential care manage, express and contain feelings and emotions. [ABSTRACT FROM PUBLISHER]
- Published
- 2014
- Full Text
- View/download PDF
38. Messages for integration from working with carers.
- Author
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Tsegai, Abenet and Gamiz, Rebecca
- Subjects
INTEGRATED health care delivery ,SOCIAL services case management ,DOCUMENTATION ,MEDICAL needs assessment ,SOCIAL support ,CAREGIVERS ,FOCUS groups ,EVALUATION of medical care ,SENSORY perception ,QUALITY assurance ,RESEARCH funding ,ROLE conflict ,SELF-efficacy ,QUALITATIVE research ,THEMATIC analysis ,INSTITUTIONAL cooperation - Abstract
Purpose - The purpose of this paper is to explore the role of carers as coordinators of care in their own right. It outlines how statutory and voluntary agencies can work together to support carers in this role, yet also help them work towards personal outcomes to sustain their own quality of life. It also proposes that approaches to working with carers can reveal lessons for integration. Design/methodology/approach - The research analysed data from focus groups and document analysis to examine how carers and professionals experienced two different approaches to engaging with carers: the Midlothian carer's assessment and VOCAL's outcomes focused approach. From this, several themes emerged which are relevant to the current debate on integration. Findings - Carers were found to be key co-ordinators of care who play a role in the integration of services. Approaches to working with carers can better enable personal outcomes, and integrate carers as equal partners. In addition, improved integration between services can also improve outcomes for carers. Research limitations/implications - Approaches to working with carers should be carer and outcome focused, and partnership working can mean that carers feel more empowered and included. This helps to achieve personal outcomes, as well as enhance integrated working between other services. However, differentiation between services might, in places, contribute to better outcomes for people. Originality/value - This paper shifts the focus of integration to look the role of carers as equal partners, and also illustrates how statutory and voluntary services can work better together, while preserving their distinct identities. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
39. Understanding child, family, environmental and agency risk factors: findings from an analysis of significant case reviews in Scotland.
- Author
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Vincent, Sharon and Petch, Alison
- Subjects
CHILD sexual abuse ,CONTENT analysis ,DRUGS of abuse ,DOMESTIC violence ,NATIONAL health services ,RESEARCH funding ,RISK-taking behavior ,NEONATAL abstinence syndrome ,MEDICAL coding - Abstract
This paper presents the findings from an analysis of 56 significant case reviews (SCRs) in Scotland. In contrast to England and Wales where national analyses have been undertaken for many years, until this study was undertaken, the findings from SCRs had not previously been collated nationally. The paper discusses child, parent, environmental and agency factors that were identified in the SCRs and, whilst noting that the pathways to death or harm will be unique in individual cases, tries to further our understanding of the ways in which these different factors may interact to result in death or harm. A significant finding was the high number of SCRs that relate to the care and protection of children living in families whose lives are dominated by drug use and the associated issues this brings, including criminality and neighbourhood problems. Another challenging finding was the lack of suitable resources for the placement and support of troubled teenagers. Finally, a number of SCRs involved long-term neglect and/or sexual abuse of school or nursery age children who had been known to statutory services for many years. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
40. Process evaluation of the data-driven quality improvement in primary care (DQIP) trial: active and less active ingredients of a multi-component complex intervention to reduce high-risk primary care prescribing.
- Author
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Grant, Aileen, Dreischulte, Tobias, and Guthrie, Bruce
- Subjects
PRIMARY care ,DRUG prescribing ,NONSTEROIDAL anti-inflammatory agents ,PLATELET aggregation inhibitors ,MONETARY incentives ,ATTITUDE (Psychology) ,CLINICAL competence ,CLUSTER analysis (Statistics) ,COMPARATIVE studies ,FAMILY medicine ,RESEARCH methodology ,EVALUATION of medical care ,MEDICAL cooperation ,MEDICAL personnel ,MEDICAL prescriptions ,MOTIVATION (Psychology) ,PATIENT safety ,PRIMARY health care ,RESEARCH ,RESEARCH funding ,RISK management in business ,UNNECESSARY surgery ,EVALUATION research ,RANDOMIZED controlled trials ,ECONOMICS ,THERAPEUTICS - Abstract
Background: Two to 4% of emergency hospital admissions are caused by preventable adverse drug events. The estimated costs of such avoidable admissions in England were £530 million in 2015. The data-driven quality improvement in primary care (DQIP) intervention was designed to prompt review of patients vulnerable from currently prescribed non-steroidal anti-inflammatory drugs (NSAIDs) and anti-platelets and was found to be effective at reducing this prescribing. A process evaluation was conducted parallel to the trial, and this paper reports the analysis which aimed to explore response to the intervention delivered to clusters in relation to participants' perceptions about which intervention elements were active in changing their practice.Methods: Data generation was by in-depth interview with key staff exploring participant's perceptions of the intervention components. Analysis was iterative using the framework technique and drawing on normalisation process theory.Results: All the primary components of the intervention were perceived as active, but at different stages of implementation: financial incentives primarily supported recruitment; education motivated the GPs to initiate implementation; the informatics tool facilitated sustained implementation. Participants perceived the primary components as interdependent. Intervention subcomponents also varied in whether and when they were active. For example, run charts providing feedback of change in prescribing over time were ignored in the informatics tool, but were motivating in some practices in the regular e-mailed newsletter. The high-risk NSAID and anti-platelet prescribing targeted was accepted as important by all interviewees, and this shared understanding was a key wider context underlying intervention effectiveness.Conclusions: This was a novel use of process evaluation data which examined whether and how the individual intervention components were effective from the perspective of the professionals delivering changed care to patients. These findings are important for reproducibility and roll-out of the intervention.Trial Registration: ClinicalTrials.gov, NCT01425502 . [ABSTRACT FROM AUTHOR]- Published
- 2017
- Full Text
- View/download PDF
41. Older People Becoming Successful ICT Learners Over Time: Challenges and Strategies Through an Ethnographical Lens.
- Author
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Sayago, Sergio, Forbes, Paula, and Blat, Josep
- Subjects
RESEARCH ,ATTITUDE (Psychology) ,COGNITIVE styles ,COMPUTERS ,COMPUTER training ,EXPERIENCE ,GROUNDED theory ,INTERPROFESSIONAL relations ,INTERVIEWING ,LONGITUDINAL method ,MEDICAL cooperation ,MEMORY ,MOTIVATION (Psychology) in old age ,SCIENTIFIC observation ,RESEARCH funding ,SCHOOL environment ,TIME ,TRANSFER of training ,ETHNOLOGY research ,AFFINITY groups ,SECONDARY analysis ,EDUCATIONAL outcomes - Abstract
A growing ageing population and an increasing reliance on information and communication technologies (ICT) to conduct activities associated with daily living means that addressing how older people learn to use ICT is timely and important. By drawing on a four-year ethnographical study with 420 older people in two different environments, this paper shows that they adopt three strategies to become successful ICT learners, while at the same time dealing with the effects of age-related changes in fluid memory: (a) linking learning to real-life needs, (b) learning collaboratively and informally, and (c) adopting appropriate memory aids. This paper also addresses the question of how valid these results will be when today's ICT-literate adult people grow older. The longitudinal aspect of the data gathered shows that older people become confident ICT learners over time, that the learning strategies and cognitive-related difficulties are mostly time-persistent, and that their life experience is always important in learning transfer. Implications for providing older people with a more integrated approach to ICT learning are discussed. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
- Full Text
- View/download PDF
42. Social enterprises' impact on older people's health and wellbeing: exploring Scottish experiences.
- Author
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Henderson, Fiona, Steiner, Artur, Mazzei, Micaela, and Docherty, Catherine
- Subjects
ATTITUDE (Psychology) ,COMPARATIVE studies ,CONCEPTUAL structures ,CONSUMER attitudes ,EMPLOYEE attitudes ,GROUP identity ,HEALTH ,HEALTH status indicators ,INTERVIEWING ,RESEARCH methodology ,PUBLIC welfare ,RESEARCH funding ,VOLUNTEER service ,QUALITATIVE research ,SOCIAL support ,THEMATIC analysis ,CAREGIVER attitudes ,DATA analysis software ,HEALTH & social status ,DESCRIPTIVE statistics ,MIDDLE age ,OLD age - Abstract
The global aging demographic is putting pressure on state-delivered health and social care services. As the austerity agenda in the UK cuts state-funded service provision for older people despite increasing demand, social enterprise has become a politically and economically attractive model for the sustainable delivery of some public services. Yet little is known about the impact of social enterprise on the health and wellbeing of older people. In this paper we address this gap in understanding and consider social enterprise activities as complex public health-promoting interventions. Our study aimed to understand what impact social enterprise activities had on the health and wellbeing of participants aged over 50, and also how that impact was created. To achieve this, we conducted qualitative semi-structured interviews with a sample (n = 43) of staff, volunteers, clients and carers aged over 50 who were involved in activities delivered by three social enterprises. Using a thematic analysis to explore manifest and latent themes, two antecedents of subjective younger age emerged explaining how benefit was created, namely downward social comparison and identity. The social enterprise activities we studied benefited participants' health and wellbeing, impacting positively on participants' sense of purpose, social support, connectedness and inclusion. These health and wellbeing benefits can be considered as outcomes of complex public health interventions for older people, and we relate these outcomes to beneficial conditions within the intermediary social determinants of health. We conclude by discussing the future impact of social enterprise activities and current UK policy on the structural determinants of health. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
43. Engaging young working class men in the delivery of sex and relationships education.
- Author
-
Brown, Sally and McQueen, Fiona
- Subjects
EMPLOYMENT ,FOCUS groups ,INTERPERSONAL relations ,INTERVIEWING ,MEN ,RESEARCH funding ,SEX education for teenagers ,SOCIAL classes ,TEENAGE pregnancy ,ADULT education workshops ,THEMATIC analysis ,EDUCATIONAL outcomes ,ADOLESCENCE - Abstract
Despite a substantial body of research on young people's wishes about the content and delivery of sex and relationships education (SRE), studies still indicate dissatisfaction with the way lessons are provided. This discussion takes place in a public health context where young people's sexual activity is viewed negatively as a risk to health, and advice focusses on the need to prevent unwanted pregnancies and sexually transmitted infections. This focus on risk clashes with cultural representations of sexuality, and particularly male sexuality, which focus on pleasure and risk taking. In this paper, we present insights from workshops provided by a local charity to boys aged 14–15 in a school in one of the most deprived areas in Edinburgh, Scotland. We held four focus groups with a total of 20 boys and interviewed the workshop providers and the school guidance teacher. The boys valued having men from outside school talking to them about sex and relationships in ways that made them feel respected. They were keen to learn more about relationships, highlighting the need to focus on how SRE is delivered to young working class men. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
44. Why are Some Healthcare Chaplains Registered Professionals and Some are Not? A Survey of Healthcare Chaplains in Scotland.
- Author
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Snowden, Austyn
- Subjects
OCCUPATIONAL roles ,ACCREDITATION ,ATTITUDE (Psychology) ,CROSS-sectional method ,SURVEYS ,NATIONAL health services ,RESEARCH funding - Abstract
The professional status of UK healthcare chaplains remains partial, with voluntary accreditation effective in achieving around 50% registration. This study set out to elicit reasons for this by surveying healthcare chaplains working in Scotland. An online survey was created to gather demographic details and chaplains' opinions on the importance of five key elements of professional status: A body of knowledge that underpins practice; A code of professional ethics; An occupational organization controlling the profession; Substantial intellectual and practical training; and Provision of a specialized skill or service. Most respondents (38/43) agreed that chaplains should belong to a professional body in order to maintain standards, ensure accountability and formalize professional development. They said that registration reinforced their professional status, added credibility and a clear governance structure to protect the public. However, a minority felt disconnected from the professionalization agenda. This paper discusses the reasons for this. Further UK and international studies into the professional status of chaplains are planned. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
45. Community participation for rural healthcare design: description and critique of a method.
- Author
-
Nimegeer, Amy, Farmer, Jane, Munoz, Sarah Anne, and Currie, Mags
- Subjects
ACTION research ,COMMUNITIES ,INTELLECT ,INTERPROFESSIONAL relations ,MEDICAL care ,MOTIVATION (Psychology) ,QUESTIONNAIRES ,RESEARCH funding ,RURAL health ,ADULT education workshops ,PATIENT participation ,HUMAN services programs ,EVALUATION of human services programs - Abstract
This paper outlines a community participation process that was developed to engage rural community stakeholders in designing new health services. The paper explains what led up to the process and provides critique around applying the process for other health services and in other communities. Internationally, community participation is widely invoked, but it is only broadly explained in the literature, other than reviews of outcomes or descriptions of problems. This paper provides an actual process, derived from iterative research, that others could use, but explains caveats in the method and its application. From developing this method of community participation for service design, we conclude that rather than being a benign and inherently 'good thing', community participation is a process into which health services managers and communities should enter cautiously. Stronger parameters around desirable outcomes and awareness of potential pitfalls in the process are important to address. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
46. Preregistration nursing students' perspectives on the learning, teaching and application of bioscience knowledge within practice.
- Author
-
Molesworth, Mark and Lewitt, Moira
- Subjects
UNIVERSITIES & colleges ,BIOLOGY ,FOCUS groups ,LEARNING ,PHENOMENOLOGY ,NURSING students ,RESEARCH funding ,SCIENCE ,STUDENT attitudes ,TEACHING ,CLINICAL competence ,JUDGMENT sampling ,SOCIAL learning theory ,THEMATIC analysis ,EDUCATION - Abstract
Aims and objectives This paper aims to explore student nurses' experiences of bioscience learning, teaching and application within the practice setting. It draws upon the social learning theory of communities of practice to consider the issues raised. Background The teaching of bioscience within many nursing curricula has shifted from traditional to more integrated approaches. Student nurses recognise bioscience as a valuable component of their studies, but many find it challenging. The focus of previous research in this area has often focussed on bioscience learning in theoretical rather than practice settings. Design A phenomenological study. Methods Data were collected via focus group or interview with a total of seven students across two campuses in a Scottish university. Participants were offered the opportunity to share their experiences at both the end of year one and year two of their studies. A thematic analysis was undertaken independently then jointly by the authors. Results The findings suggest that although participants recognise the value of bioscience within practice settings, they found that opportunities for learning were often limited. Bioscience-related learning, teaching and application was perceived to have been given less legitimacy by the practice setting than other aspects of placement activity. To enhance bioscience approaches participants expressed a desire for more structured and integrated approaches within both practice and university along with further peer learning opportunities. Conclusions Students recognise that bioscience knowledge is important in relation to the provision of safe and effective care. They request greater structure and consistency in relation to the learning, teaching and application of this topic during their placements. Relevance to clinical practice Those with a stake in educating nurses within clinical settings may find the views of student nurses on the topic of bioscience learning useful when planning and facilitating placement experiences. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
47. Sex and 30-day survival following out-of-hospital cardiac arrest in Scotland 2011–2020.
- Author
-
Bijman, Laura A. E., Wild, Sarah H., Clegg, Gareth, and Halbesma, Nynke
- Subjects
MATHEMATICAL variables ,ELECTRIC countershock ,SURVIVAL rate ,RESEARCH funding ,DATA analysis ,SEX distribution ,LOGISTIC regression analysis ,EMERGENCY medicine ,EMERGENCY medical services ,RETROSPECTIVE studies ,AGE distribution ,DEFIBRILLATORS ,DESCRIPTIVE statistics ,LONGITUDINAL method ,BYSTANDER CPR ,ODDS ratio ,MEDICAL records ,ACQUISITION of data ,METROPOLITAN areas ,RURAL conditions ,CONFOUNDING variables ,STATISTICS ,CARDIAC arrest ,COMPARATIVE studies ,CONFIDENCE intervals ,FACTOR analysis ,SOCIAL classes ,REGRESSION analysis - Abstract
Background: Differences in 30-day survival between males and females following out-of-hospital cardiac arrest (OHCA) are well documented. Biological sex does not appear to be responsible for this survival gap independently of potential mediating factors. We investigated the role of potential mediating factors in the association between sex and 30-day survival after OHCA in Scotland. Methods: A retrospective cohort study of adult non-emergency medical services (EMS)-witnessed OHCA cases was conducted. We included incidents from the whole of Scotland where resuscitation was attempted by the Scottish Ambulance Service (SAS) between April 1, 2011 and March 1, 2020. Logistic regression was used to assess the contribution of age, socioeconomic status, urban–rural location of the incident, initial cardiac rhythm, bystander cardiopulmonary resuscitation (CPR) and location of the arrest (home or away from home). Results: The cohort consisted of 20,585 OHCA cases (13,130 males and 7,455 females). Median (IQR) age was 69 years (22) for males versus 72 years (23) for females. A higher proportion of males presented with initial shockable rhythm (29.4% versus 12.4%) and received bystander CPR (56.7% versus 53.2%) compared with females. A higher proportion of females experienced OHCA at home (78.8% versus 66.8%). Thirty-day survival after OHCA was higher for males compared with females (8.2% versus 6.2%). Males had higher age-adjusted odds for 30-day survival after OHCA than females (OR, 1.26; (95% CI), 1.12–1.41). Mediation analyses suggested a role for initial cardiac rhythm and location of the arrest (home or away from home). Conclusion: Males had higher age-adjusted 30-day survival after OHCA than females. However, after adjusting for confounding/mediating variables, sex was not associated with 30-day survival after OHCA. Our findings suggest that initial cardiac rhythm and location of the arrest are potential mediators of higher 30-day OHCA survival in males than females. Improving proportions of females who present with initial shockable rhythm may reduce sex differences in survival after OHCA. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
48. What are the autism research priorities of autistic adults in Scotland?
- Author
-
Cage, Eilidh, Crompton, Catherine J, Dantas, Sarah, Strachan, Khiah, Birch, Rachel, Robinson, Mark, Morgan-Appel, Stasa, MacKenzie-Nash, Charlie, Gallagher, Aaron, and Botha, Monique
- Subjects
CROSS-sectional method ,INTELLECT ,HEALTH attitudes ,MENTAL health ,RESEARCH funding ,AUTISM ,RESEARCH evaluation ,DESCRIPTIVE statistics ,MEDICAL research ,PRIORITY (Philosophy) ,ACTION research ,RESEARCH methodology ,ASPERGER'S syndrome ,SOCIAL support ,DATA analysis software ,WELL-being ,ACTIVITIES of daily living - Abstract
Studies investigating autistic community research priorities indicate a mismatch between what autism research focuses on and what autistic people want to see researched. Furthermore, there has not been a research priority-setting exercise specifically with autistic people in Scotland, where there are unique cultural, political and social contexts. Using a community-based participatory design, we aimed to identify the research priorities of autistic adults living in Scotland. Autistic and non-autistic researchers designed and conducted a survey where 225 autistic adults rated and ranked research topics in order of importance and provided qualitative feedback on issues and questions important to them. The top five research priorities were mental health/well-being, identification and diagnosis of autistic people, support services, knowledge and attitudes towards autistic people and issues impacting autistic women. There were differences in priorities according to different intersections of identity, and qualitative responses indicated a desire for research to focus on support and understanding. The bottom three priorities concerned genetics, treatments and interventions and causes. These findings emphasise the need to address the gap between what autism research focuses on and the everyday lives of autistic people. Although research has the potential to improve autistic people's lives, lots of funding goes towards research looking at topics which autistic people say has little impact in their everyday lives. Autistic people's lives can be different depending on where they live, and Scotland is a unique country in many ways. We wanted to find out which topics autistic people in Scotland want to see research on. Our team of autistic and non-autistic researchers (including university-based and community researchers) created a survey where 225 autistic adults rated and ranked the importance of possible research topics and shared their thoughts on what topics mattered to them. The five most important topics were mental health and well-being, identifying and diagnosing autistic people, support services (including healthcare and social care), non-autistic people's knowledge and attitudes and issues impacting autistic women. The three least important topics were genetics or biological aspects of autism, autism treatments/interventions and causes of autism. Our findings indicate that autistic people in Scotland want research to focus on things that matter to their day-to-day lives. Also, the Scottish government says they will be listening to autistic people in their latest policy plans, and we believe that considering autistic people's research priorities is an important part of this. Our findings also add to growing calls for change to happen in how and what autism researchers do research on. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
49. Risks and representations: Creating consensus narratives about risk with pregnant women involved with child protection systems in Aotearoa New Zealand and Scotland.
- Author
-
Critchley, Ariane and Keddell, Emily
- Subjects
CHILD welfare ,CONSENSUS (Social sciences) ,RISK assessment ,SOCIAL workers ,PROFESSIONAL practice ,SOCIAL justice ,RESEARCH funding ,SOCIAL services ,MOTHERS ,PREGNANT women ,PARENTING ,DECISION making ,PRENATAL care ,HUMAN voice ,MOTHER-child relationship ,PERINATAL period - Abstract
Social work aspires to empowerment ideals, including taking a 'non-expert' position of professional curiosity, and validating the perspectives of people in contact with services. Yet in child protection, social workers are involved in practice that refutes the views and opinions of people and are positioned by their role as an identifier of abuse and risk manager. Social workers and people who are subject to child protection services can be locked into meaning battles regarding the effect of parental behaviour and the representation of risks to children. These negotiations over meanings are especially difficult in the pre and perinatal period, where who controls the representation of the baby's voice or best interests is fundamental to decision outcomes. Using Fricker's concept of 'testimonial injustice' as an analytical lens, this article draws on studies in two different contexts: Aotearoa New Zealand and Scotland, to examine the implications of the intense mediation of meanings that affect child protection practice. We find that concepts relating to the importance of mothering, love for children, and extended family relationships were sources of mother's disagreements with professional views of risk, but that through qualified agreement or advocacy from community workers, a shared risk narrative could be constructed. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
50. Child and Adolescent Intellectual Disability Screening Questionnaire to identify children with intellectual disability.
- Author
-
McKenzie, Karen, Murray, George, Hutton, Linda, Murray, Aja, Delahunty, Lauren, O'Hare, Anne, and Murray, Kara
- Subjects
INTELLECTUAL disabilities ,CHILDREN with disabilities ,AGE groups ,INTER-observer reliability ,STATISTICAL reliability ,RESEARCH ,RESEARCH evaluation ,PREDICTIVE tests ,AGE distribution ,RESEARCH methodology ,MEDICAL screening ,EVALUATION research ,MEDICAL cooperation ,PSYCHOMETRICS ,COMPARATIVE studies ,RESEARCH funding ,QUESTIONNAIRES ,PEOPLE with intellectual disabilities - Abstract
Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2019
- Full Text
- View/download PDF
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