177 results on '"ADULT day care"'
Search Results
2. Considerations of Taiwanese Working Carers on Choosing Long-Term Care Services for Relatives with Disabilities.
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Liu, Yu-Ching
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HEALTH services accessibility , *QUALITATIVE research , *PATIENT safety , *LONG-term health care , *INTERVIEWING , *ADULT day care , *FAMILIES , *BURDEN of care , *SOUND recordings , *THEMATIC analysis , *FAMILY attitudes , *RESEARCH methodology , *PSYCHOLOGY of caregivers , *FAMILY support , *SOCIAL support , *CAREGIVER attitudes , *EMPLOYMENT , *PEOPLE with disabilities - Abstract
Unpaid carers are a significant support for dependent people with chronic illnesses in most countries. Working carers have specific needs because they face a conflict between employment and care. This study reports on the views of seven working carers in Taiwan to discover the factors they might have considered when arranging publicly funded Long-Term Care (LTC) services for the person they care for to reconcile their work and care. According to the testimony of working carers, the issue of safety for care recipients motivates the application for LTC services. However, LTC services in Taiwan, while affordable, are limited. Working carers have a positive attitude towards home care due to its low price and flexible service time. The constructed barriers to accessing daycare make it difficult for families to use daycare, even though it may be the most suitable service for care recipients. The findings have implications for improvements in LTC services. They show that an extension of opening hours of daycare is needed to meet the employment needs of working carers and that care skill training should be offered for providers of LTC services. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Recovery at an Adult Psychiatric Day Hospital—A Qualitative Interview Study Describing Patients' Experiences.
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Mellerup, Marie, Sjöström, Karin, and Örmon, Karin
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MENTAL illness treatment , *PSYCHOTHERAPY patients , *QUALITATIVE research , *ACADEMIC medical centers , *ADULT day care , *INTERVIEWING , *CONTENT analysis , *DESCRIPTIVE statistics , *LONELINESS , *EXPERIENCE , *LATENT structure analysis , *THEMATIC analysis , *CONVALESCENCE , *RESEARCH methodology , *PSYCHIATRIC hospitals , *INTERPERSONAL relations , *PSYCHOSOCIAL factors - Abstract
Psychiatric Day Hospitals offer time-limited active treatment programmes that are therapeutically intensive, coordinated, and with structured clinical services within a stable environment. No previous studies have described patients' experiences of recovery-oriented care at a Psychiatric Day Hospital in a Swedish or Nordic healthcare context. The aim of the study was to explore patients' experiences of a Psychiatric Day Hospital with focus on patient recovery. A qualitative method was used; 12 in-depth interviews were performed with patients all analysed with content analysis. The theme that emerged was "A safe haven." To do something routinely and meaningful during the days, feelings of security, and to gain increased knowledge about mental ill health were concepts which felt important and contributed to recovery. Feelings of belonging and prevention of loneliness were also highlighted. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Experiences of nurses working at day‐service centres for people with intellectual disabilities/intellectual and physical disabilities and their interactions with service‐users.
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Ito, Yoshimi, Asakura, Kyoko, Sugiyama, Shoko, and Takada, Nozomu
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SOCIAL participation , *NURSES' attitudes , *ADULT day care , *SOCIAL support , *WORK , *RESEARCH methodology , *HUMAN comfort , *INTERVIEWING , *NURSE-patient relationships , *QUALITATIVE research , *EXPERIENTIAL learning , *NURSES , *RESEARCH funding , *PEOPLE with disabilities , *THEMATIC analysis , *JUDGMENT sampling , *INTELLECTUAL disabilities - Abstract
Background: People with intellectual/intellectual and physical disabilities frequently use day‐service centres, an array of services that involve the provision of care and social activities during the daytime and offer homebound people with disabilities opportunities to live in their communities. While nurses working at day‐service centres for people with disabilities are expected to promote service‐users' health, little research has focused on this area. Nurses' relationships with service‐users of day‐service centres have not been sufficiently investigated regarding how their interactions determine service‐users' specific activities and daily lives within such facilities. This study sought to address this research gap. Methods: We conducted a qualitative descriptive study with six nurses working at day‐service centres located in Tohoku region, Japan. Six participants were interviewed 16 times. The psychological‐phenomenological method developed by Amedeo Giorgi was used as the model for data analysis. Findings: The analysis generated five themes. First, nurses show interest in service‐users by 'continuing to show interest' and by 'trying to understand the service‐users from the perspective of what they can do'. Additionally, the nurses ensure that service‐users enjoy their time in the facility by 'supporting enjoyment through nursing and medical care', 'stabilising feelings' and 'creating an environment conducive to everyone's comfort'. Conclusions: Nurses working at day‐service centres for people with intellectual/intellectual and physical disabilities provide support for social participation while maintaining the service‐users' mental and physical health. Thus, these nurses support enjoyment among service‐users from the nursing and medical care aspect; they also devise ways for service‐users to interact and adjust to the environment to improve service‐users' comfort at day‐service centres. Furthermore, participation in daytime activities at day‐service centres indicated that nurses are interested in service‐users' activities, and they perceive service‐users as positive individuals. Accessible summary: This study shows how nurses working at day‐service centres for people with disabilities in Japan understand their approach and engage with service‐users.Nurses working at day‐service centres understood the service‐users and focused on what they were good at and what they were able to do. Based on this understanding, the nurses use specialised knowledge to ensure that service‐users can enjoy their time at the day‐service centres, while providing approaches for mental and physical stability and support for daytime activities.Nurses attempt to make service‐users feel comfortable at day‐service centres to encourage them to continue visiting the centres.This study is relevant to people with disabilities, as it contributes to future nursing care direction for this population from the perspective of nurses' professional experiences. [ABSTRACT FROM AUTHOR]
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- 2024
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5. "Before I came to the hospice, I had nobody". A qualitative exploration of what patients, family-caregivers, clinicians and volunteers valued most about home, day therapy or inpatient hospice services.
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Hughes, Nicole Marie, Noyes, Jane, Stringer, Carys, and Pritchard, Trystan
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CAREGIVER attitudes , *HOSPICE care , *RESEARCH , *ADULT day care , *HEALTH services accessibility , *FOCUS groups , *PATIENT autonomy , *ATTITUDES of medical personnel , *HOME care services , *WORK , *FUNCTIONAL status , *RESEARCH methodology , *INTERVIEWING , *PATIENTS' attitudes , *EXPERIENCE , *QUALITATIVE research , *SOCIAL isolation , *CONCEPTUAL structures , *EXPERIENTIAL learning , *SOUND recordings , *LONELINESS , *INTERPERSONAL relations , *RESEARCH funding , *THEMATIC analysis , *JUDGMENT sampling , *STATISTICAL sampling , *VOLUNTEER service , *PSYCHOLOGICAL distress , *PALLIATIVE treatment - Abstract
Background: Globally, the demand for hospice care continues to grow resulting in substantial resource burden. Whilst some countries are able to rely on fixed government contributions, statutory funding for palliative care in the United Kingdom is unequally distributed. These unstable funding streams and increased demand means that hospices need to evidence their value. Objective: This study explored the experiences of patients and family-caregivers to determine what they valued most from accessing hospice services in Wales. Methods: In this large multi-site qualitative study, 94 semi-structured interviews and 2 focus groups were conducted with hospice patients (n = 45), family-caregivers (n = 18), hospice staff (n = 31) and volunteers (n = 10). The audio recordings were transcribed verbatim and analysed using Framework analysis. Results: Seven themes described patient and family-caregiver experiences and what they valued most: relationships with staff and volunteers, greater support networks which reduced social isolation and loneliness, provision of information and advice which improved patient autonomy, symptom management and subsequent reduction in psychological distress, improvements in patient functionality, mobility and overall physical health and respite relief which promoted improved relationships. Conclusion: This is the largest study to explore what patients and family-caregivers value from hospice care. Findings indicate that hospice care provides a truly needs-led and strengths-based service to those who are nearing and at the end-of-life, which is highly valued by patients and family members. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Valuing and sustaining older peoples' day care services.
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McDonald, Anne, Frazer, Kate, and Warters, Austin
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COMMUNITY health nurses , *OCCUPATIONAL roles , *WELL-being , *ADULT day care , *PATIENT participation , *FOCUS groups , *HEALTH facilities , *GROUNDED theory , *RESEARCH methodology , *VALUES clarification , *CONSUMER attitudes , *INTERVIEWING , *EXPERIENCE , *QUALITATIVE research , *QUALITY of life , *SOUND recordings , *NURSES , *JUDGMENT sampling , *SUSTAINABLE development , *OLD age - Abstract
Background: Unprecedented ageing and growth of the global population of older people is predicted. Between independent and residential care, day care is an essential part of a population-based strategy to support ageing well in place. Aims: To describe experiences of older people attending day care services. Method: Using the qualitative method, two focus groups were completed in 2018 in a region of Ireland with 12 participants. Interviews were audio-recorded and transcribed; grounded theory guided the subsequent analysis. Findings: Older people valued their participation in day care, describing the 'home from home' experience positively. Community nurses from the local public health nursing service played a key role in fostering and sustaining participation. Conclusions: National commitment to population-based age friendly environments is required to facilitate the wellbeing of a growing older demographic. [ABSTRACT FROM AUTHOR]
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- 2024
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7. The transition of care from farm-based daycare for people with dementia: The perspective of next of kin.
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Taranrød, Liv Bjerknes, Kirkevold, Øyvind, Pedersen, Ingeborg, and Eriksen, Siren
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ADULT day care , *TRANSITIONAL care , *AGRICULTURE , *RESEARCH methodology , *INTERVIEWING , *DEMENTIA patients , *QUALITATIVE research , *RESEARCH funding , *CONTENT analysis - Abstract
Purpose: The aim of the present study was to explore the next of kin's experiences with the transition for people with dementia from a farm-based daycare (FDC) to another service in the municipality. Methods: The study has a qualitative, descriptive design. Eight semi-structured interviews with next of kin were conducted. The data were analysed in accordance with content analysis. Results: Through the analysis three main categories were developed: (1) Bearing the burden, (2) Being in transition, and (3) Feeling supported. The transition period was highly stressful for next of kin due to the exacerbation of their relatives' dementia symptoms. The next of kin focussed on optimizing the everyday lives of their relatives with dementia, even at the expense of their own well-being. Most participants experienced support from FDC, healthcare services and their informal network. Conclusions: The study contributes important insights into the next of kin's experiences. Good quality service, close dialog, information, and support between the different part in the transition process, can be useful for the further development of services with good quality and to reduce the negative effects of care on next of kin. [ABSTRACT FROM AUTHOR]
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- 2023
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8. Patient and caregiver return to work after a primary brain tumor.
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Nicklin, Emma, Phang, Isaac, Short, Susan C, Hoogendoorn, Petra, and Boele, Florien W
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CAREGIVERS , *BRAIN tumors , *WORKING hours , *PATIENT satisfaction , *PATIENTS' attitudes , *PATIENT experience , *ADULT day care - Abstract
Background Studies focusing on the return to work (RTW) experiences of patients with a brain tumor (BT) are scarce. We aimed to explore, in-depth, the occupational expectations, experiences, and satisfaction of patients who RTW after a BT diagnosis and treatment, those not able to, and their family caregivers. Methods This multicenter, cross-sectional study utilized semi-structured interviews and reflexive thematic analysis. Interviews were conducted with adults diagnosed with primary BT, in employment/self-employed before diagnosis, currently in follow-up care, and also with their caregivers. Results In total, 23 interviews (17 patients/6 caregivers) took place. Five themes were developed: (1) Early (adjustments and) expectations: "Thought I would be back at work the following Monday"; pre-treatment patients wanted to be better informed about potential recovery time and side-effects. (2) Drivers to RTW: "Getting my life back on track"; RTW was seen as a symbol of normality and also dictated by financial pressures. (3) Experiences returning to work: "It's had its ups and downs": patients who had successfully returned were supported by employers financially, emotionally, and practically. (4) Required support: "He had surgery and that was it": suggested support included a back-to-work scheme and comprehensive financial support. (5) Caring and paid work: The "juggling act": carer's work was significantly impacted; often reducing/increasing their working hours while managing increasing caring demands. Conclusions Future research focusing on RTW in neuro-oncology populations is needed. Interventions should be developed to improve employer/employee communication, and increase knowledge about BT care and possibilities for RTW, to support patients and caregivers towards sustained employment. [ABSTRACT FROM AUTHOR]
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- 2023
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9. An exploration of patient experiences of transitioning to a remote day programme following inpatient treatment in an adult eating disorder service.
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O'Connor, Patricia, Donohue, Gráinne, Morrissey, Jean, Needham, Mary, Hargadon, Leah, and O'Toole, Clare
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TREATMENT of eating disorders , *PSYCHIATRIC nursing , *ADULT day care , *EVALUATION of human services programs , *TRANSITIONAL care , *RESEARCH methodology , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *CONCEPTUAL structures , *HOSPITAL care , *DESCRIPTIVE statistics , *THEMATIC analysis , *TELEMEDICINE , *ADULTS - Abstract
Accessible Summary: What is known on the subject?: Traditionally, treatment for eating disorders (EDs) has been provided on an inpatient or outpatient basis, but more recently other levels of treatment provision to include, day care (DC) and community outreach programmes, have been developed.There is limited research exploring the experience of patients who have transitioned from inpatient ED treatment to a remote DC treatment. This lack of knowledge can impact mental health nurses' understanding of what that experience is like for patients and hence may influence the efficacy of collaboration and inclusion between patients and nurses. What this paper adds to existing knowledge?: This research addresses this dearth of knowledge and adds to our understanding of patients' experiences of attending a remote DC programme following a period of inpatient treatment for an ED.This is an important study for nurses and other mental health professionals working with people in ED treatment, as it highlights the specific challenges and anxieties of transitioning from inpatient to a remote DC programme and the individualized supports advisable during this process. What are the implications for practice?: This research provides a basis on which nurses can understand and address the challenges experienced by patients after transitioning to a less intensive supportive ED programme.The understanding of these experiences will enhance the therapeutic alliance between the nurse and patient, which will in turn support the patient in increasing agency as they progress through their recovery.This research provides a foundation on which to develop specific supports that need to be in place to help patients manage the anxieties they experience as they transition to a less intense and remote treatment.Findings from these lived experiences can be used to support the development of similar DC programmes for EDs in other settings. Introduction: Day care (DC) treatment for people with an eating disorder (ED) provides for an easier transition from hospital to home, along with a treatment milieu where patients can maintain occupational and social functioning and allow for the transfer of newly acquired skills to everyday life. Aim: To explore patients' experiences of attending a remote day programme following intense inpatient treatment in an adult ED service. Method: A qualitative descriptive methodology informed the study. In‐depth semi‐structured interviews were conducted with 10 consenting patients. A thematic analysis framework was used to guide the process of data analysis. Results: Three themes reflected participants' experiences: 'Moving On: Preparing for Change', 'Navigating a New Support System' and 'Increasing Agency'. Discussion: An underlying issue for participants was an ongoing but changing experience of anxiety. While anticipatory anxiety is evident in preparing for discharge, this is replaced with a real‐time anxiety as they endeavour to negotiate an effective support network. Implications for Practice: The findings from this study provide a basis on which mental health nurses can develop timely and effective treatment and support systems with patients who are transitioning from a high support inpatient ED programme to a less intensive ED remote DC programme. [ABSTRACT FROM AUTHOR]
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- 2023
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10. Effects of Design-Thinking Intergenerational Service-Learning Model on College Students: A Pilot Study in Taiwan.
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Hsiao, Hsinyi, Tseng, Jeffrey T., Hsu, Yu-Jung, Chen, Tara, Wang, Ying-Wei, and Kuo, Tsuann
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COLLEGE students , *PILOT projects , *WELL-being , *KRUSKAL-Wallis Test , *EMPATHY , *AGEISM , *EVALUATION of human services programs , *ADULT day care , *CONFIDENCE intervals , *INTERGENERATIONAL relations , *RESEARCH methodology , *SELF-evaluation , *HEALTH status indicators , *ATTITUDES toward aging , *SATISFACTION , *POPULATION geography , *HUMAN services programs , *PRE-tests & post-tests , *SURVEYS , *STEREOTYPES , *QUALITATIVE research , *T-test (Statistics) , *INDEPENDENT living , *UNIVERSITIES & colleges , *HEALTH behavior , *SCALE analysis (Psychology) , *JUDGMENT sampling , *SOCIODEMOGRAPHIC factors , *DATA analysis software , *ODDS ratio , *EDUCATIONAL outcomes , *REFLECTION (Philosophy) , *EXERCISE therapy - Abstract
Purpose: The design-thinking intergenerational service-learning model (DTISLM) has structured ageing-related trainings on strategies to improve empathy among college students for intergenerational program development and promote positive relationships and wellbeing between younger and older generations in community-based settings. The objective of this study was to examine the effects of DTISLM on college students' ageism, intergenerational relationships, and health. Method: Mixed-methods data were collected via pre–post surveys and after-class reflection notes from 142 students from three universities in Taiwan. Results: DTISLM significantly improved college students' level of empathy toward older adults, age stereotypes, intergenerational relationships, wellbeing (i.e., life satisfaction), and health behaviors (i.e., exercise). This intervention promoted health awareness among college students. Discussion: Via hands-on trainings for empathy improvement, DTISLM empowered college students to develop intergenerational programs that promoted positive intergenerational relationships and healthy habits. This sheds new light on university–community partnerships involving intergenerational service needs to create age-friendly societies globally. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Benefits of Early Palliative Care Integration in a Day Care Program: The Patients' Perspective.
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Ancuta, Camelia, DeSanto-Madeya, Susan, Gaman, Doina, Ferszt, Ginette, and Mitrea, Nicoleta
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CANCER patient psychology , *ADULT day care , *EVALUATION of human services programs , *FOCUS groups , *RESEARCH methodology , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *CONTINUUM of care , *COMPARATIVE studies , *DESCRIPTIVE statistics , *INTEGRATED health care delivery , *THEMATIC analysis , *PALLIATIVE treatment , *EARLY medical intervention - Abstract
Aim: The aim of this study is to present the experiences of cancer patients who participate in a social model palliative day care program (PDCP). This is the first research study that evaluates early integration of PDCP, from the patients' perspective, in Central and Eastern Europe. Methods: A descriptive qualitative study using five focus groups was conducted with patients cared by Hospice Casa Sperantei Foundation (HCS) in Brasov, Romania. Fifty participants were recruited from the PDCP. Discussions were transcribed and analyzed thematically. Results: Three major categories emerged from the focus groups: (1) significance of diagnosis before integration of palliative care (PC); (2) perceptions of diagnosis after integration of PC; and (3) benefits of attending the PDCP. The findings indicate that PDCPs facilitate continuity of care for patients and families with PC needs by addressing and responding to physical, psychosocial, and spiritual needs. Participation in the PDCP fosters a sense of connectedness with others, helps individuals reconnect with self, and provides an opportunity to engage in activities that bring meaning and value to daily living. Conclusions: This study is highly important in the context of a national- and regional-wide interest for increasing the coverage of PC needs of patients and families, by varying the types of services. It explores the benefits of integration of PC services early on the trajectory of the disease of cancer patients. The themes that emerged from this study are consistent with previous international studies referring to benefits of early integration of PC throughout PDCP. Future research is needed to examine further the benefits of early integration of PDCP services for patients living with serious illnesses. Clinical Trials Registration Number 1/03.02.2020 [ABSTRACT FROM AUTHOR]
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- 2023
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12. The systemic value of integrating an adolescent day service into an inpatient service: A qualitative case study.
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Robinson, Rory and Bakopoulou, Ioanna
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EVALUATION of medical care , *LENGTH of stay in hospitals , *ADULT day care , *SOCIAL support , *ATTITUDES of medical personnel , *PATIENTS , *QUALITATIVE research , *HOSPITAL admission & discharge , *HOSPITAL care , *CASE studies , *INTEGRATED health care delivery , *THEMATIC analysis , *MENTAL health services , *ADOLESCENCE ,MEDICAL care for teenagers - Abstract
In 2019, the NHS established a taskforce to review inpatient care for young people, exploring ways to reduce inappropriate admissions and lengthy stays. This paper indicates that day services (DSs) could play a role in resolving these issues. Qualitative research investigating whether DSs are considered valuable to key stakeholders is scarce. Therefore, this qualitative case study sought the perspectives of ten clinicians working at a DS integrated with an inpatient service (IPS). Thematic analysis highlighted the systemic value of accessing intensive support whilst still living with family, with participants perceiving that day patients better consolidated therapeutic skills when compared with inpatients. Importantly, the DS was perceived to enhance the overall therapeutic impact of the wider IPS. The implications of these findings for the use and funding of DS are discussed, highlighting the need to further explore the efficacy of integrated services incorporating day and inpatient care. Practitioner pointsThe DS was perceived to provide young people with high‐intensity support, whilst maintaining key systemic connections to their homes and communities.The DS was perceived to positively influence the systemic dynamics of the inpatient service, improving the efficacy of inpatient care.Findings indicate a mutually beneficial relationship between day and inpatient services, strengthening the case for the integration of both services. [ABSTRACT FROM AUTHOR]
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- 2023
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13. Film as cooperative endeavour: The promises for people living with dementia, their relatives, caregivers and aged care staff.
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Marsh, Pauline, Courtney Pratt, Helen, Kelly, Lisa, and White, Lynsey
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TREATMENT of dementia ,ADULT day care ,EXTENDED families ,RESEARCH methodology ,FAMILY support ,INDIVIDUALITY ,COGNITION ,INTERVIEWING ,COMMUNITY support ,QUALITATIVE research ,PSYCHOSOCIAL factors ,PSYCHOLOGY of caregivers ,GERIATRIC nursing ,COMMUNICATION ,RESEARCH funding ,RESIDENTIAL care ,RELOCATION ,THEMATIC analysis ,PSYCHOTHERAPY ,OLD age - Abstract
Creative expression by people living with dementia and their families and carers can improve communication and relationships and strengthen relational personhood. The transition to residential aged care from living at home with dementia is a time of 'relocation stress", and a time when additional psychosocial supports like these might be particularly beneficial. This article reports on a qualitative study that explored how a co-operative filmmaking project functioned as a multifaceted psychosocial intervention, and explored its potential impacts on relocation stressors. Methods included interviews with people living with dementia who were involved in the filmmaking, and their families and close others. Staff from a local day centre and residential aged care home also took part in interviews, as did the filmmakers. The researchers also observed some of the filmmaking process. Reflexive thematic analysis techniques were used to generate three key themes in the data: Relationship building; Communicating agency, memento and heart; Being visible and inclusive. The findings reveal challenges regarding privacy and the ethics of public screenings, as well as the pragmatics of using short films as a communication tool in aged care settings. We conclude that filmmaking as a cooperative endeavour holds promise to mitigate relocation stressors by: improving family and other relationships during challenging times for family and for people living with dementia; providing opportunities for new self-narratives derived from relational subjectivities; supporting visibility and personhood; and improving communication once in residential aged care. This research has relevance for communities who are looking to support dynamic personhood and improve the care of people living with dementia. [ABSTRACT FROM AUTHOR]
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- 2023
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14. Warning Signs of Acute Infectious Disease–Related Illness in Persons Living With Dementia: Perspectives of Primary Care Providers, Adult Day Service Center Staff, and Family Care Partners.
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Omeally-Soto, Shanique, Zhong, Jie, Boafo, Jonelle, Wu, Bei, Brody, Abraham A., Riffin, Catherine, and Sadarangani, Tina R.
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COMMUNICABLE diseases ,ADULT day care ,FOCUS groups ,AFFECT (Psychology) ,ATTITUDES of medical personnel ,RESEARCH methodology ,FUNCTIONAL status ,FAMILY health ,INTERVIEWING ,DEMENTIA patients ,PRIMARY health care ,QUALITATIVE research ,HEALTH care teams ,INTERPERSONAL relations ,RESEARCH funding ,DESCRIPTIVE statistics ,CONTENT analysis ,DATA analysis software ,ACUTE diseases ,FAMILY services ,SPEECH ,SYMPTOMS - Abstract
In the current study, we conducted one-on-one interviews with primary care providers (PCPs) and family care partners (FCPs) and held focus groups with interdisciplinary adult day service center (ADSC) staff to understand the perspectives of care providers across community settings regarding early warning signs of acute illnesses in persons living with dementia (PLWD). We used content analysis to analyze qualitative data. Warning signs of acute illnesses in PLWD fell into one of five categories, including new onset changes in (a) physical functions, (b) moods or behaviors (psychological), (c) social interactions, (d) speech, or (e) appearance. FCPs (n = 11) focused on physical changes, whereas ADSC staff (n = 33) emphasized changes in speech and social interactions in addition to the other categories. Although ADSC staff and PCPs (n = 22) focused on changes in functions and moods, each group described these changes differently. ADSC staff possess rich information that can be used to identify acute changes in PLWD and describe a broader range of warning signs compared to PCPs and FCPs. FCPs may benefit from further training in distinguishing between normal disease progression and acute illness. Future research should focus on the implementation of standardized tools across community-based care providers to simplify the identification and reporting of early warning signs in PLWD. [Journal of Psychosocial Nursing and Mental Health Services, 61(5), 35–43.] [ABSTRACT FROM AUTHOR]
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- 2023
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15. Triangulation study of needs assessment of people with severe mental illness in "follow‐up" day hospital settings.
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Torkar, Tanja, Homar, Vesna, and Švab, Vesna
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PATIENT aftercare ,ADULT day care ,FOCUS groups ,RESEARCH methodology ,SOCIAL networks ,INTERVIEWING ,QUALITATIVE research ,PSYCHIATRIC nurses ,PROFESSIONAL competence ,NEEDS assessment ,CONTENT analysis ,JUDGMENT sampling ,MENTAL illness ,PSYCHIATRIC hospitals - Abstract
Aim: The aim of research was to assess the needs of patients with severe mental illness (SMI) attending follow‐up day hospital (DH) programmes from the patients', relatives' and experts' perspective. Design: This triangulation research relies on three sources of information and two techniques of data collection. Methods: Qualitative research was conducted comprising semi‐structured interviews (n = 15) and focus groups (n = 4) in three sequential rounds, triangulating patients', relatives' and experts' views. A content analysis was carried out. Results: Study reveals a diverse spectrum of needs of SMI patients in follow‐up DH programmes. The analysis yielded six themes: optimal daily functioning, work and educational activities, social network inclusion, continuous treatment, support and guidance, long‐term care. DH programmes should assess the needs of patients with SMI and be adapted according to the findings. In addition to clinical treatment, requirements for continuous treatment, psychological and social needs, therapeutic relationship in less‐restrictive settings should be considered. [ABSTRACT FROM AUTHOR]
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- 2023
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16. Views of Older Adults on Using Support to Prevent Overload in Informal Caregivers: Results of a Story Completion Study.
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Vos, Eline E., de Bruin, Simone R., Pees, Suzanne, van der Beek, Allard J., and Proper, Karin I.
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CAREGIVER attitudes , *SERVICES for caregivers , *WELL-being , *PILOT projects , *ADULT day care , *BURDEN of care , *INTERVIEWING , *QUALITATIVE research , *RESEARCH funding , *SOUND recordings , *PATIENT care , *THEMATIC analysis , *STATISTICAL sampling , *OLD age - Abstract
Older care recipients living at home increasingly rely on support from informal caregivers. As informal caregivers often combine these caregiving tasks with other tasks, such as paid work, they are at risk of becoming overloaded. To decrease informal caregiver burden, different forms of support are available that also affect older care recipients' lives, such as respite care, technology, or home care. The aim of this qualitative study was to obtain more insight into the perceptions, potential concerns and preferences of older informal care recipients about the use of support to relieve informal caregivers. We performed a story completion writing task among 23 informal care recipients aged 65 years or older, using hypothetical situations to let them reflect on different caregiver relief support options. The task was followed-up by a story-mediated interview. We used thematic analysis to inductively analyze story completions and interviews. We found that older informal care recipients were often willing to use support to relieve their caregivers, to ensure their wellbeing. However, they were also concerned about how the use of such support may conflict with their interests, preferences and values (e.g. respect for their autonomy, privacy, having a trusting relationship with a caretaker, paying attention to human aspects in care). Older adults were most hesitant to use adult day care facilities and technological support options. While these areas of tensions cannot always be completely resolved, it is important to jointly identify and discuss these, and work towards solutions to balance the respective interests, values and needs of older adults and caregivers. Health and social care professionals and older adults' personal networks may help in overcoming hesitation to use support. [ABSTRACT FROM AUTHOR]
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- 2023
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17. "My everyday life has returned to normal"- Experiences of patients and relatives with a palliative day care clinic: a qualitative evaluation study.
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Müller, Anne, Paul, Alfred, Best, Johannes, Kunkel, Stephanie, Voltz, Raymond, and Strupp, Julia
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ADULT day care , *SOCIAL support , *RESEARCH methodology , *HUMAN life cycle , *INTERVIEWING , *QUALITATIVE research , *RESEARCH funding , *QUALITY of life , *THEMATIC analysis , *PATIENT care , *CONTENT analysis , *PALLIATIVE treatment - Abstract
Purpose: Palliative day care clinics (PDCCs) complement inpatient and home palliative care and provide access to a range of multi-professional services. However, they are not part of standard care in Germany. Yet, international studies show that PDCCs have a positive impact on e.g. quality of life. To evaluate one of the first PDCCs in Germany (Aschaffenburg-Alzenau (PDCC-AA)) by describing the experiences, satisfaction, challenges, wishes of patients and relatives and possible alternatives to treatment in the PDCC. Methods: Qualitative study using semi-structured telephone interviews. Data was analyzed using qualitative structuring content analysis according to Kuckartz with deductive a priori categories and inductive subcategories. Results: A total of 31 patients and 38 relatives completed telephone interviews. The majority of patients were diagnosed with a cancer or tumor disease. The following four main themes emerged: (1) alternatives to treatment at the PDCC, (2) symptom relief, (3) sense of security, (4) "everyday life framing" (normality of everyday life). Participants valued the medical treatment (especially for pain), psychosocial support given and having direct access to a range of services (e.g., wound care and pleural drainage), while relatives valued being provided respite services. A sense of security, availability of therapies, and devoted time that healthcare providers spent to explain e.g., treatment options were mentioned most positively, as well as confidence in dealing with the illness. As to whether there was an alternative to treatment in the PDCC, some saw further inpatient stays, the emergency room or care by general practitioners as options (although not preferred). Patients expressed concern that they were not treated and informed according to their needs in other care settings. Conclusions: PDCCs may close a gap between inpatient and home palliative care. Participants mentioned that hospital stays can be delayed or even prevented. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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18. Exploring Day Center Activities in Norway: How do Employees Facilitate Participation for Workers with Intellectual Disabilities through Interaction and Social Support? An Ethnographic Study.
- Author
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Langemyhr, Lise Ellingsen, Hem, Hans Einar, and Haukelien, Heidi
- Subjects
- *
SOCIAL participation , *OCCUPATIONAL roles , *ADULT day care , *EMPLOYMENT of people with disabilities , *SOCIAL support , *ACTIVITIES of daily living , *INTERVIEWING , *ETHNOLOGY research , *QUALITATIVE research , *INTERPERSONAL relations , *RESEARCH funding , *PARTICIPANT observation , *THEMATIC analysis , *INTELLECTUAL disabilities - Abstract
Many people with intellectual disabilities in Norway attend municipal day centers where they engage in activities and work-tasks with support from staff. The purpose of day centers is to offer meaningful activities for individuals who are not included in ordinary work. Little research has been done on day centers, and we have limited knowledge of which social and cultural norms apply in such a sheltered context. This article focuses on how employees facilitated the participation of workers with intellectual disabilities through social support and in interaction. This study has a qualitative ethnographic design. Data were collected through participatory observation and interviews and analyzed thematically. We found that the participants alternated between roles and frames of interaction: a work frame and a care frame. Each frame had different norms for interaction and role performance. This study adds to our knowledge about day centers for people with intellectual disabilities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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19. Impact of the Covid-19 pandemic on the use of screens in early childhood.
- Author
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Holand, Paloma Karen, Rodrigues Soares, Anniely, da Silva Bezerra, Iolanda Carlli, Pereira Reichert, Lucas, Carvalho de Brito Santos, Nathanielly Cristina, Collet, Neusa, Brandão Batista dos Santos, Paula Fernanda, and da Silva Reichert, Altamira Pereira
- Subjects
DIGITAL technology ,CHILDREN'S health ,ECOLOGY ,QUALITATIVE research ,INTERVIEWING ,ADULT day care ,MOTHERS ,STATISTICAL sampling ,SCREEN time ,ATTITUDES of mothers ,SOCIAL change ,EDUCATIONAL technology ,DESCRIPTIVE statistics ,EARLY intervention (Education) ,THEMATIC analysis ,LEISURE ,LONGITUDINAL method ,CHILD development ,COLLEGE teacher attitudes ,MATHEMATICAL models ,DISTRACTION ,RESEARCH ,RESEARCH methodology ,THEORY ,COVID-19 pandemic ,SOCIAL distancing ,SOCIAL isolation - Abstract
Copyright of Revista Gaucha de Enfermagem is the property of Revista Gaucha de Enfermagem and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2023
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20. Introducing a Clinical Summary Template From the Adult Day Center to Support Decision Making by Primary Care Providers.
- Author
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Zhong, Jie, Boafo, Jonelle, and Sadarangani, Tina R.
- Subjects
ADULT day care ,NURSES' attitudes ,MOBILE apps ,RESEARCH methodology ,PHYSICIANS' attitudes ,INTERVIEWING ,COMMUNITY health services ,PRIMARY health care ,QUALITATIVE research ,WORKFLOW ,RESEARCH funding ,SOUND recordings ,HEALTH care teams ,COMMUNICATION ,DESCRIPTIVE statistics ,JUDGMENT sampling ,STATISTICAL sampling ,CONTENT analysis ,THEMATIC analysis ,TELEMEDICINE ,ELDER care ,ADULTS - Abstract
Introduction: CareMOBI (Mhealth for Organizations to Bolster Interconnectedness) is a mobile application designed to facilitate information exchange between primary care providers (PCPs) and adult day centers (ADCs). A key function of CareMOBI is to synthesize information collected outside of the provider's office (ie,: in the ADC or at home) and distill the most relevant data points into an exportable clinical summary that can help inform clinical decision making by the PCP with information from outside providers who are not formally embedded within health systems. In this study, we used a qualitative approach to understand the acceptability and utility of the clinical summary template within CareMOBI. Methods: Purposive sampling, followed by snowball sampling, was used to recruit PCPs from a variety of primary care practice settings (i.e. home-based, academic). Semi-structured interviews were conducted virtually to elicit feedback on the user-experience after interaction with a prototype template. Interviews were recorded, transcribed, and analyzed using content analysis. Results: Our sample (n = 10) consisted of physicians and nurse practitioners in a variety of settings. Feedback suggested that the summary template facilitates interdisciplinary, bidirectional, succinct, and relevant information exchange across care teams. The summary template effectively integrates observations and assessments from team members, centralizes them, and allows PCPs to hone in on the most salient components to inform clinical decision making for the geriatric patient. The summary gave PCPs "live texture" about what was happening outside the office and represented a significant improvement over other methodologies of information exchange. Prior to implementation into clinical practice, several refinements are necessary based on feedback including integration into the PCP's workflow. Conclusions: The template was viewed by PCPs as a concise and actionable record, in contrast to current communication which is characterized as "bloated"—containing too many pages on nonessential information. The summary could potentially save PCP's time in locating and analyzing historical data to enable rapid patient assessment and prompt more ready and informed action. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
21. Are universal measures sufficient in reducing child poverty in the Nordic countries? An analysis of policies and political commitments.
- Author
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Eklund Karlsson, Leena, Balkfors, Anna, Gunnarsdottir, Hrafnhildur, Povlsen, Lene, Regber, Susann, Buch Mejsner, Sofie, Leena Ikonen, Anne, and Fosse, Elisabeth
- Subjects
- *
PARENTAL leave , *REPORT writing , *ADULT day care , *SOCIAL support , *PRACTICAL politics , *LOCAL government , *PUBLIC administration , *PUBLIC health , *MEDICAL care , *QUALITATIVE research , *DOCUMENTATION , *INCOME , *SOCIOECONOMIC factors , *GOVERNMENT policy , *POVERTY , *COMMITMENT (Psychology) , *HOUSING - Abstract
Background: The five Nordic countries (Denmark, Finland, Iceland, Norway and Sweden) have long traditions of social welfare policies that have eradicated poverty as part of their goals. The purpose of this study was to increase our understanding of why child poverty is still significant in the Nordic countries despite existing strategies. Methods: A qualitative analysis of Nordic government documents and reports between 2007 and 2019 was carried out to track changes in public health priorities and political measures and to determine the similarities and differences between the five countries. Results: In all countries, most of the measures were universal, such as benefits during pregnancy, paid parental leave before and after the child was born, paid parental leave related to children's sickness, child allowances, day care, free health care for children and support for disabled children. National policies aimed to reduce social inequalities and child poverty exist in all five countries, but unaffordable housing, unequal disposable family income distribution and unequal income distribution at local municipality levels seem to be obstacles to reaching national policy goals. Conclusions: Despite comprehensive universal measures to eradicate child poverty, inequalities are significant and increasing in some of the Nordic countries. This might be due to a lack of proportional universalism, where universal measures are in place in all Nordic countries, but with a lack of scale and intensity proportional to the children and families at risk. The significance of eliminating social inequalities needs to be emphasised at the local level. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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22. Promoting Active and Healthy Ageing at Day Centers for Older People.
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Larsson Ranada, Åsa and Österholm, Johannes
- Subjects
- *
OCCUPATIONAL roles , *ACTIVE aging , *ADULT day care , *ATTITUDES of medical personnel , *INTERVIEWING , *ACTIVITIES of daily living , *QUALITATIVE research , *HEALTH promotion , *OLD age - Abstract
Day centers provide opportunities for older people to achieve active and healthy aging. Staff play a significant role in day centers, although evidence is lacking concerning their role. To explore the experiences of staff in promoting active and healthy aging at social day centers, interviews with 12 staff working at day centers for older people were carried out. The findings present two categories: the actions of the staff and conditions affecting activities at the day centers. Staff at day centers may play an important role in providing opportunities for older people to maintain health and participation in meaningful activities. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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23. Humanoid socially assistive robots in dementia care: a qualitative study about expectations of caregivers and dementia trainers.
- Author
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Zuschnegg, Julia, Paletta, Lucas, Fellner, Maria, Steiner, Josef, Pansy-Resch, Sandra, Jos, Anna, Koini, Marisa, Prodromou, Dimitrios, Halfens, Ruud J. G., Lohrmann, Christa, and Schüssler, Sandra
- Subjects
CAREGIVERS ,SOCIAL support ,FOCUS groups ,ADULT day care ,DISCUSSION ,CONFIDENCE intervals ,MOTIVATION (Psychology) ,ACTIVITIES of daily living ,ROBOTICS ,QUALITATIVE research ,DEMENTIA patients ,DEMENTIA ,ASSISTIVE technology ,PHYSICAL mobility ,COMMUNICATION ,INTERPERSONAL relations ,DESCRIPTIVE statistics ,CONTENT analysis ,ODDS ratio - Abstract
To examine the expectations of informal caregivers, nurses, and dementia trainers regarding the support of (physical and psychosocial) human needs by humanoid social assistive robots (SARs) in dementia care. A qualitative study was conducted with 11 homogeneous focus groups of informal caregivers, nurses and dementia trainers providing dementia care at home, in adult daycare centers, or in nursing homes. A qualitative content analysis was performed using a concept- and data-driven coding frame. Focus group discussions with 52 individuals were held. Participants reported mostly positive expectations and stated that SARs could offer potential support in all components of human needs, especially in avoiding danger (e.g. recognise danger, organise help), communication/contact with others (e.g. enable telephone calls, provide company), daily activities (e.g. remind of appointments, household obligations), recreational activities (e.g. provide music), eating/drinking (e.g. help cook), and mobility/body posture (e.g. give reminders/instructions for physical exercise). Participants also mentioned some negative expectations in all human needs, predominantly in communication/contact with others (e.g. loss of interpersonal interaction) and avoiding danger (e.g. scepticism regarding emergencies). Participants stated that SARs had great potential to provide assistance in dementia care, especially by reminding, motivating/encouraging and instructing people with dementia. Informal caregivers and nurses also considered them as useful supportive devices for themselves. However, participants also mentioned negative expectations, especially in communication/contact with others and avoiding danger. These findings demonstrate the support caregivers and dementia trainers expect from humanoid SARs and may contribute to their optimisation for dementia care. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
24. Bringing Art to Life: Social and Activity Engagement through Art in Persons Living with Dementia.
- Author
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Reel, Candice D., Allen, Rebecca S., Lanai, Bailey, Yuk, M. Caroline, and Potts, Daniel C.
- Subjects
SOCIAL participation ,EVALUATION of human services programs ,ADULT day care ,INTERGENERATIONAL relations ,CONVERSATION ,CREATIVE ability ,QUANTITATIVE research ,DEMENTIA patients ,ETHNOLOGY research ,QUALITATIVE research ,ART therapy ,FIELD notes (Science) ,DESCRIPTIVE statistics ,INTERPERSONAL relations ,THEMATIC analysis ,REMINISCENCE therapy - Abstract
The Bringing Art to Life (BATL) program was created as an art therapy intervention to increase social engagement, intergenerational engagement, and creative expression among persons living with dementia (PWD) in an adult day service. This is an evaluation of BATL program efficacy. A modified behavioral observation tool was used to quantify meaningful engagements as recorded in ethnographic field notes and test the hypotheses that: 1) engagements increase across art therapy sessions, and 2) engagements were more social than activity or art related. The increase in engagement across session was not significant. However, social engagements (M = 9.61, SD 4.6) were more prevalent than art engagements (M = 5.23, SD = 3.1) in each session (t(99) = 9.52,). A thematic analysis of social interactions recorded in the ethnographic field notes revealed themes related to reminiscence. The quantitative and qualitative data supported the BATL program as effective in engaging participants in social interaction and art activities. Specifically, quantitative data showed participants were engaged in conversations around reminiscence and discussion of creative expression with students. Intergenerational social interaction between PWD and college students is a critical and meaningful part of the BATL program, and the intervention created a safe space with focused activity through engagement with art, and this facilitated PWD in self-expression, including humor, advice, and legacy. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
25. Peer Support Formation and the Promotion of Recovery Among People Using Psychiatric Day Care in Japan.
- Author
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Yokoyama, Kazuki, Miyajima, Ryo, Morimoto, Takafumi, Ichihara-Takeda, Satoe, Yoshino, Junichi, Matsuyama, Kiyoji, and Ikeda, Nozomu
- Subjects
- *
AFFINITY groups , *ADAPTABILITY (Personality) , *ADULT day care , *SOCIAL support , *CONVALESCENCE , *RESEARCH methodology , *GROUNDED theory , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *SELF-disclosure , *SUPPORT groups , *PSYCHOLOGICAL adaptation , *PSYCHIATRIC treatment , *MENTAL illness , *PSYCHOLOGICAL distress , *ATTITUDES toward disabilities - Abstract
The present study aimed to clarify the process of peer support formation and the promotion of recovery in people using psychiatric day care. From January to March 2014, semi-structured interviews were conducted with 18 participants with mental illness living in the community in Japan. The qualitative data were analyzed using a modified grounded theory approach. The results described a two-stage process: (1) awareness of peers with similar disability and distress and (2) formation and utilization of peer support. These results suggest that adjusting the environment and engaging in activities assisting others are useful for facilitating peer support and promoting the recovery of users in psychiatric day care. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
26. Factores asociados con la falta de adherencia a ayudas técnicas para la marcha en ancianos con alto riesgo de caídas.
- Author
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Belo Andrade Fernandes, Júlio Alexandre, Belo Andrade Fernandes, Sónia Isabel, da Silva Almeida, Ana Luísa, Gonçalves de Almeida, José Manuel, and Troncão Baião Peças, Dina Maria
- Subjects
- *
SAFETY , *RESEARCH , *ADULT day care , *RESEARCH methodology , *INTERVIEWING , *MOVEMENT disorders , *RISK assessment , *QUALITATIVE research , *ACCIDENTAL falls , *WALKING , *ASSISTIVE technology , *DESCRIPTIVE statistics , *PATIENT compliance , *CONTENT analysis , *OLD age - Abstract
Background: In older adults is common to identify changes in body balance and gait pattern, requiring the use of walking aids to maintain safe mobility. Despite the benefits of these devices, some people do not comply with their use. Objective: To explore older adults' perspectives regarding the factors associated with non-compliance to walking aids. Methodology: A qualitative, descriptive exploratory study was carried out. Semi-structured interviews were conducted with 11 older adult users of a Day Care Unit from a Private Institution of Social Solidarity in the region of Lisbon and Tagus Valley. Content analysis was performed to analyse data. The consolidated criteria for reporting qualitative research (COREQ) checklist was applied to this study. Results: The factors associated with non-compliance to walking aids encompass four categories: social context, the symbolism of the device, involvement of health professionals, and low critical judgment. Conclusion: There are different factors associated with non-compliance to walking aids. It is necessary to structure intervention programs that allow the elimination or reduction of the effect of these factors to increase older adults' compliance. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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27. Older adults' perspective of intergenerational programme at senior day care centre in Singapore: A descriptive qualitative study.
- Author
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Leong, Kay See, Klainin‐Yobas, Piyanee, Fong, Sin Dee, and Wu, Xi Vivien
- Subjects
- *
MEMORY , *FRIENDSHIP , *ADULT day care , *ATTITUDE (Psychology) , *INTERGENERATIONAL relations , *MEDICAL care for older people , *RESEARCH methodology , *INTERVIEWING , *COGNITION , *QUALITATIVE research , *SELF-efficacy , *COMMUNITY-based social services , *INDEPENDENT living , *INTERPERSONAL relations , *DESCRIPTIVE statistics , *JUDGMENT sampling , *THEMATIC analysis , *EMOTIONS , *ELDER care , *TRUST , *OLD age - Abstract
Population ageing resulting from declining fertility and extended life expectancy has been occurring rapidly throughout the world. Older adults are faced with multiple physical, psychological and social changes that challenge their sense of self and capacity for healthy ageing. Intergenerational programmes (IGP) in communities have been developed to address a variety of social issues brought about by the population ageing. These programmes focus on promoting intergenerational social contact, supporting educational programmes and facilitating intellectual and/or physical activities in the older adults. This study intended to explore the perception of community‐dwelling older adults towards an IGP in a senior day care centre in Singapore. Purposive sampling was adopted to recruit 15 participants for the study. Individual face‐to‐face interviews were conducted until data saturation was achieved. Interviews were audio‐taped and transcribed verbatim. Thematic analysis was carried out. Four themes and 13 sub‐themes emerged: (1) IGP enhances memory and strength; (2) social interaction between older adults and younger generation; (3) emotional responses to IGP; and (4) attitudes and perception towards the younger generation. The current study illustrated the dynamic social interaction between older adults and the younger generation, as well as the perceived benefits of the IGP. The relationship formed between the two generations entailed companionship, mutual care, trust and affection. Participation in the IGP provided the older adults an opportunity for active engagement in society and development. Continuous effort must be put in to ensure continuity of integration and empowerment of older adults, including the removal of obstacles and barriers that exclude or discriminate against them. The study findings will help facilitate the customisation of IGP to meet the needs of the older adults. With a well‐planned and structured IGP, significant physical, emotional and psychosocial outcomes could benefit the older adults and the younger generation. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
28. Impact and Facilitators of a Psychiatric Rehabilitation Daycare Work Program: A Qualitative Study.
- Author
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Roy, Amrita, Sivakumar, Thanapal, and Jayarajan, Deepak
- Subjects
AFFINITY groups ,TEAMS in the workplace ,ADULT day care ,EVALUATION of human services programs ,STAKEHOLDER analysis ,RESEARCH methodology ,MOTIVATION (Psychology) ,INTERVIEWING ,REHABILITATION of people with mental illness ,JOB involvement ,QUALITATIVE research ,PHENOMENOLOGY ,LEARNING ,ABILITY ,TRAINING ,DESCRIPTIVE statistics ,THEMATIC analysis - Abstract
Background: Work confers many benefits to persons with psychiatric disabilities. The daycare work programs can be helpful for patients in multiple ways. Many stakeholders plan and implement a daycare work program, including patients, caregivers, trainers, staff members, and professionals. The literature on daycare work programs is limited. The present study aimed to understand the impact and facilitators of a selected daycare work program (Green Skills Program [GSP]) from the lens of stakeholders. Methods: Criterion sampling was used to recruit the stakeholders who have been part of GSP. Twenty-seven stakeholders were interviewed using a researcher-prepared semi-structured interview schedule. Atlas. ti version 9 was used for coding. Thematic analysis was done to identify themes. Results: Stakeholders considered GSP easy, enjoyable, and accommodative to patients with different functioning levels. GSP participation was deemed as gainful engagement and vital to day-structuring. The patients worked in groups, which promoted peer learning and teamwork. Various behavioral, social, and work-related improvements were noted among the patients by the stakeholders. Incentives and social reinforcements were significant motivators. Stakeholders were content with the trainer's way of teaching the patients and felt that she possessed many essential attributes that motivated them and improved their work outcomes. Conclusions: While conceiving daycare work programs, ease of doing activities, accommodation of patients with varying levels of functionality, trainer's aptitude, and use of reinforcements should be considered. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
29. Introducing a Clinical Summary Template From the Adult Day Center to Support Decision Making by Primary Care Providers.
- Author
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Jie Zhong, Boafo, Jonelle, and Sadarangani, Tina R.
- Subjects
ADULT day care ,CLINICAL decision support systems ,INTERDISCIPLINARY research ,RESEARCH methodology ,PHYSICIANS' attitudes ,INTERVIEWING ,QUALITATIVE research ,RESEARCH funding ,JUDGMENT sampling ,CONTENT analysis ,STATISTICAL sampling ,MEDICAL needs assessment ,ADULTS - Abstract
Introduction: CareMOBI (Mhealth for Organizations to Bolster Interconnectedness) is a mobile application designed to facilitate information exchange between primary care providers (PCPs) and adult day centers (ADCs). A key function of CareMOBI is to synthesize information collected outside of the provider's office (ie,: in the ADC or at home) and distill the most relevant data points into an exportable clinical summary that can help inform clinical decision making by the PCP with information from outside providers who are not formally embedded within health systems. In this study, we used a qualitative approach to understand the acceptability and utility of the clinical summary template within CareMOBI. Methods: Purposive sampling, followed by snowball sampling, was used to recruit PCPs from a variety of primary care practice settings (i.e. home-based, academic). Semi-structured interviews were conducted virtually to elicit feedback on the user-experience after interaction with a prototype template. Interviews were recorded, transcribed, and analyzed using content analysis. Results: Our sample (n = 10) consisted of physicians and nurse practitioners in a variety of settings. Feedback suggested that the summary template facilitates interdisciplinary, bidirectional, succinct, and relevant information exchange across care teams. The summary template effectively integrates observations and assessments from team members, centralizes them, and allows PCPs to hone in on the most salient components to inform clinical decision making for the geriatric patient. The summary gave PCPs "live texture" about what was happening outside the office and represented a significant improvement over other methodologies of information exchange. Prior to implementation into clinical practice, several refinements are necessary based on feedback including integration into the PCP's workflow. Conclusions. The template was viewed by PCPs as a concise and actionable record, in contrast to current communication which is characterized as "bloated"--containing too many pages on nonessential information. The summary could potentially save PCP's time in locating and analyzing historical data to enable rapid patient assessment and prompt more ready and informed action. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
30. Being sheltered from a demanding everyday life: experiences of the next of kin to people with dementia attending farm-based daycare.
- Author
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Taranrød, Liv Bjerknes, Pedersen, Ingeborg, Kirkevold, Øyvind, and Eriksen, Siren
- Subjects
- *
TREATMENT of dementia , *CAREGIVER attitudes , *WELL-being , *ADULT day care , *SHEEP , *CATTLE , *GOATS , *POULTRY , *AGRICULTURE , *RESEARCH methodology , *RURAL conditions , *ACTIVITIES of daily living , *INTERVIEWING , *SUBURBS , *RABBITS , *CATS , *EXPERIENCE , *FAMILY attitudes , *DEMENTIA patients , *QUALITATIVE research , *PHENOMENOLOGY , *QUALITY of life , *RESEARCH funding , *NATURE , *CONTENT analysis , *THEMATIC analysis , *DOGS - Abstract
Farm-based daycare (FDC) is a type of daycare service for people with dementia. The aim of the present study was to explore the next of kin's experiences with FDC and how the service may affect their daily life. The study has a qualitative, descriptive design. Eight semi-structured interviews with next of kin were conducted. The data were analysed in accordance with content analysis. We identified three main categories: (1) I am fine when you are fine, (2) Significant aspects of the service at the farm, and (3) FDC as a part of the dementia trajectory. The findings were summarized in one overarching, latent theme: "Being sheltered from a demanding everyday life". The findings indicate that next of kin's experience of respite is closely connected to the well-being of their relatives at the FDC and the quality of the service. FDC provides significant support through a part of the trajectory of dementia. Despite experiencing respite and support, next of kin continue to struggle with ethical and moral decisions about the futures of their relatives with dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
31. Evaluating the effects of a Therapeutic Day Rehabilitation program and inclusion of gardening in an Australian Rural Community Health Service.
- Author
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Missen, Karen, Alindogan, Mark Anthony, Forrest, Scott, and Waller, Susan
- Subjects
- *
WELL-being , *STATISTICS , *TREATMENT programs , *EVALUATION of human services programs , *ADULT day care , *ANALYSIS of variance , *SUBSTANCE abuse treatment , *PSYCHOLOGY of drug abusers , *RESEARCH methodology , *INTERVIEWING , *QUANTITATIVE research , *MENTAL health , *HEALTH status indicators , *PATIENTS' attitudes , *HUMAN services programs , *QUALITATIVE research , *QUALITY of life , *INTERPERSONAL relations , *REPEATED measures design , *QUESTIONNAIRES , *SOCIAL skills , *JUDGMENT sampling , *DATA analysis software , *DATA analysis , *THEMATIC analysis , *HORTICULTURE , *LONGITUDINAL method - Abstract
Therapeutic day rehabilitation (TDR) is a non-residential intensive structured program designed for individuals recovering from substance misuse. A weekly afternoon of therapeutic gardening was a new incentive initiated in a TDR program at one Australian community health service, designed to give participants the opportunity to spend time outdoors connecting with nature and each other. The aim of this study was to explore perceptions of participants enrolled in this program by employing a convergent parallel mixed-method design using qualitative individual, semi-structured interviews (n = 14) and longitudinal quantitative quality of life (QOL) data at three different intervals (n = 17). The analysis of the quantitative data showed that there was a statistically significant increase in the participants' QOL scores in three of four domains (physical health, psychological, social relationships) when comparing baseline and post completion of the TDR. These observed changes were maintained at the 4-week follow up. The key findings from the semi-structured interviews include positive effects for participants on social connectivity, structure and achievement, understanding of recovery and relaxation from contact with nature. This study shows that a combination of TDR and therapeutic gardening can improve participants' physical health, psychological health and social relationships. Incorporating therapeutic gardening within therapeutic day rehabilitation is an appropriate program design for individuals recovering from substance abuse. This research has demonstrated positive outcomes with this combination, improving participants' physical health, psychological health, and social relationships. In addition, it has helped participants to build social connections, a better understanding of recovery and a sense of achievement on completion of the program. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
32. Choice, control and person-centredness in day centres for older people.
- Author
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Orellana, Katharine, Manthorpe, Jill, and Tinker, Anthea
- Subjects
- *
WELL-being , *ADULT day care , *SOCIAL workers , *PATIENT-centered care , *INTERVIEWING , *INFORMED consent (Medical law) , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *STATISTICAL sampling , *DATA analysis software , *CONTROL (Psychology) - Abstract
Background: Day centres are a substantial element of community-based support for older people in many countries. However, assumptions that they are an outdated or costly service model have resulted in many centre closures in England. The perspectives of 42 people attending, providing, making referrals to or purchasing places at four diverse day centres for older people were collected in interviews. Using these data, we explore day centres' relevance to social workers' efforts to promote person-centred support for older people enabling them to maintain or improve their well-being. These are explored from the perspectives of choice, control and person-centredness and local authority responsibilities for shaping the care market under the Care Act 2014. Findings: Attenders highly valued centres' congregate nature and the continuity they offered which contributed to the development of person-centred relationships. Attenders exercised choice in attending day centres. Social work staff were more positive about day centres' relevance to personalisation than those responsible for making decisions about the shape of local care services. Applications: With social isolation recognised as a serious risk of old age, the value of togetherness in group environments may need highlighting. Enactment of personalisation policies need not necessarily lead to individualisation; day centres may be community-based assets for some. Those shaping the care market may be encouraged to acknowledge wider outcomes, and frontline social workers may benefit from hearing positive experiences that may help in the development of effective care plans for older people who would like to benefit from day centre participation. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
33. Candidates and candidacy: Patient, carer and staff perceptions of referral to a specialist palliative day unit.
- Author
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Wilson, F. and Gardiner, C.
- Subjects
- *
CAREGIVER attitudes , *DATABASES , *ADULT day care , *FOCUS groups , *ATTITUDE (Psychology) , *CHRONIC diseases , *PATIENT selection , *MEDICAL personnel , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *COMPARATIVE studies , *MEDICAL referrals , *DATA analysis software , *PALLIATIVE treatment , *MEDICAL specialties & specialists ,RESEARCH evaluation - Abstract
Specialist palliative day care can support palliative caregiving for those living in the community with advanced disease. However, how people access specialist palliative day care and why is unclear. This study therefore aims to explore the referral experiences of patients, carers and staff in the context of a specialist palliative day care unit. Qualitative study using constant comparative analysis to explore referral experiences to a UK specialist palliative day unit through one-to-one interviews with patients (n=15), family carers (n=6) and staff (n=10) including nurses, medics and managers and focus groups with (n=3 and n=7) specialist palliative care nurses. The three datasets (staff, patients and carers) provide a triangulation of perspectives captured within the core category of 'managing referral' and presented as six sub-themes. Staff described referral as an intuitive interaction involving 'looking for openings' and 'getting people through the door'. Patients familiar with the service were persistent in 'shouting for help' but most regarded referral with dread, only 'giving it a go' following crisis. For family carers referral presented 'time out/respite' but also the 'end-of-the-line'. Unclear understandings of services as well as uncertain professional, patient and carers notions of candidacy influence referral to specialist palliative day care. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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- View/download PDF
34. Between Social Inclusion and Exclusion: Integration of Daycare Guests in the Nursing Home Setting.
- Author
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Hämel, Kerstin and Röhnsch, Gundula
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- *
SOCIAL participation , *ADULT day care , *NURSING home patients , *INTERVIEWING , *SOCIAL isolation , *QUALITATIVE research , *NURSING care facilities , *PSYCHOSOCIAL factors , *INTERPERSONAL relations , *INTEGRATED health care delivery , *JUDGMENT sampling , *THEMATIC analysis , *SOCIAL integration - Abstract
Background and Objectives In integrated daycare, community-dwelling older people in need of care join existing groups in residential care facilities during the day. This study focuses on how nursing home residents experience the integrative care approach, exploring opportunities for social inclusion and mechanisms of exclusion. Research Design and Methods A purposive sample of residents differing in cognitive capacity and level of (non)conflictual interaction with daycare guests was selected. Episodic interviews with residents (N = 10) and close relatives (N = 2) were conducted in 3 pilot facilities in Germany and analyzed using thematic coding. Results The analysis revealed different orientation patterns towards the presence of daycare guests: respondents (a) demonstrated indifference to the daycare guests, (b) saw bonding with guests as a means to connect to the outside world, and (c) perceived incompatibility between in-group and out-group. Criticisms included disruption of daily routines and loss of privacy. Most interviewees came to terms with the care situation using rational and moral arguments. Discussion and Implications The study reveals the importance of residents' participation when integrating daycare guests. Institutional procedures are required to prevent exclusion of daycare guests and avoid overtaxing residents. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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35. Initial Needs Assessment in Intergenerational Centers. Reflections from a Spanish Case.
- Author
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Sánchez, Mariano, Campos, Carolina, and Rodríguez, Andrés
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- *
ADULT day care , *INTERGENERATIONAL relations , *RESEARCH methodology , *MEDICAL care for older people , *INTERVIEWING , *FAMILIES , *QUALITATIVE research , *COMMUNICATION , *NEEDS assessment , *THEMATIC analysis - Abstract
Initial needs assessment can be useful for obtaining information about the issues that should be addressed in newly launched intergenerational centers. However, there are few examples of how such studies should be conducted. This paper shares insights and lessons learned during a needs assessment study conducted nine months after the inauguration of an intergenerational shared site in Spain. In addition to presenting the needs identified, such as accurate and complete job descriptions, the paper offers methodological recommendations to practitioners embarking upon a similar needs study. The value of needs assessment as an educational endeavor is also highlighted. [ABSTRACT FROM AUTHOR]
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- 2021
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36. Becoming a second-time mother: the experience of too much and the limit.
- Author
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Rodrigues, Joana and Rebelo-Botelho, Maria Antónia
- Subjects
ADULT day care ,SOCIAL support ,PSYCHOLOGY of mothers ,INTERVIEWING ,EXPERIENCE ,QUALITATIVE research ,PHENOMENOLOGY ,MOTHERHOOD ,RESEARCH funding ,THEMATIC analysis - Abstract
Copyright of Acta Paulista de Enfermagem is the property of Universidade Federal de Sao Paulo, Escola Paulista de Enfermagem and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2021
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- View/download PDF
37. The experience of attending a farm-based day care service from the perspective of people with dementia: A qualitative study.
- Author
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Ibsen, Tanja L and Eriksen, Siren
- Subjects
ADULT day care ,AGRICULTURE ,RESEARCH methodology ,INTERVIEWING ,PATIENT-centered care ,DEMENTIA patients ,QUALITATIVE research ,INTELLECT ,CONTENT analysis ,THEMATIC analysis - Abstract
People with dementia have different needs, and it is important to have variation in the services that are offered for this population. Farm-based day care aims to meet this diversity in need, but research on such services is lacking. The present study provides knowledge about how people with dementia experience attending farm-based day care services in Norway. Ten semi-structured interviews were conducted for five different services, while the participants were at the farm. The interviews were analysed in accordance with the content analysis of Graneheim, U., & Lundman, B. (2004) [ Nurse Education Today, 24 (2), 105-112] and revealed three main categories that included (1) social relations, (2) being occupied at the farm, and (3) individually tailored service. The findings were summarised in the overall theme that attending day care at a farm makes me feel like a real participant. Our findings indicate that the farm-based day cares in the present study provide person-centred care. The farm setting facilitates services that are tailored to the individual, where the participants get to use their remaining resources and spend time outdoors. Further, farm-based day care was described as being suitable for people with or without farm experience and must be seen as an important supplement to regular day care for those who could benefit from a more active service. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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38. Dementia awareness, beliefs and barriers among family caregivers in Pakistan.
- Author
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Balouch, Sara, Zaidi, Asghar, Farina, Nicolas, and Willis, Rosalind
- Subjects
FAMILIES & psychology ,CAREGIVER attitudes ,ADULT day care ,RESEARCH methodology ,HOME care services ,INTERVIEWING ,SOCIAL stigma ,DEMENTIA patients ,HEALTH literacy ,QUALITATIVE research ,PSYCHOLOGY of caregivers ,HEALTH attitudes ,GOVERNMENT policy ,SUPPORT groups ,PSYCHOLOGICAL adaptation ,THEMATIC analysis ,SOCIAL attitudes ,RELIGION ,CULTURAL values - Abstract
Objectives: Dementia research and services in Pakistan are limited. The following was explored in experiences of family caregivers of people with dementia in Pakistan: (a) to determine whether culture and religion play a role in caregiving; (b) to draw insights on how family caregivers cope, what barriers they face and what help they would be willing to accept and (c) to determine how these findings could be used to raise awareness and influence public policies in improving the lives of families living with dementia. Methods: The experiences of family caregivers of people with dementia in Pakistan were explored via semi-structured interviews (10 in Lahore; 10 in Karachi). This was part of a larger qualitative study conducted about dementia in Pakistan. Caregivers interviewed were aged 35–80 (14 female). Most caregivers in the study were educated and affluent. Interviews were conducted in Urdu, translated into English and thematically analysed. Results: Five themes emerged: knowledge and awareness; stigma; importance of religion and duty to care; use of day care centres and home-help; and barriers. A lack of dementia awareness exists in Pakistan. The religious duty to care for family influenced caregiving decisions. Day care centres and home-help were accessed and viewed positively. The caregivers also wanted extracurricular activities for people with dementia, support groups for caregivers and better training for healthcare staff. Novel findings included that caregivers felt that dementia should not be stigmatised, and awareness should be raised in Pakistan via TV, radio and social media, but not inside mosques. Discussion: Additional research is necessary to determine if positive views of day care centres and home-help exist more widely. Attitudes and experiences regarding stigma may be different for caregivers of people with more advanced dementia. We recommend raising dementia awareness, allocating more funds to dementia services and an emphasis on home-based care. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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- View/download PDF
39. 'I want to make myself useful': the value of nature-based adult day services in urban areas for people with dementia and their family carers.
- Author
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de Bruin, Simone R., Buist, Yvette, Hassink, Jan, and Vaandrager, Lenneke
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- *
PSYCHOLOGY of caregivers , *DEMENTIA patients , *DIFFUSION of innovations , *FAMILIES , *HEALTH , *INTERPERSONAL relations , *INTERVIEWING , *METROPOLITAN areas , *NATURE , *NATUROPATHY , *QUALITATIVE research , *ADULT day care , *PHYSICAL activity - Abstract
Nature-based adult day services (ADSs) in urban areas are relatively new services in the Netherlands. Since knowledge about these services is still scarce, this study aimed to elucidate their value for people with dementia and their family carers in terms of health and wellbeing. We interviewed 39 people with dementia attending nature-based ADSs in urban areas and their family carers, and 17 providers of these services. Respondents indicated that nature-based ADSs in urban areas positively affected the health and wellbeing of people with dementia. According to them, these services support contact with nature and animals, activity engagement, physical activity, structure, social interactions, healthy eating, a sense of meaning in life and a focus on normal daily life. Respondents further indicated that these services stimulate respite, reassurance and maintenance of family carers' own activities and social contacts. We conclude that nature-based ADSs in urban areas have a wide range of benefits that might affect the health and wellbeing of people with dementia and their family carers. Worldwide, demand is growing for innovative practices in dementia care. It is therefore worthwhile monitoring the development of dementia care innovations, such as nature-based ADSs, and for countries to exchange lessons learned from these services. [ABSTRACT FROM AUTHOR]
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- 2021
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40. Comparing the care environment at farm‐based and regular day care for people with dementia in Norway—An observational study.
- Author
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Ellingsen‐Dalskau, Lina H., Boer, Bram, and Pedersen, Ingeborg
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- *
TREATMENT of dementia , *MEDICAL quality control , *ADULT day care , *HEALTH facilities , *SCIENTIFIC observation , *AFFECT (Psychology) , *AGRICULTURE , *PATIENT-centered care , *ACTIVITIES of daily living , *DEMENTIA patients , *COMPARATIVE studies , *QUALITATIVE research , *PHYSICAL activity , *RESIDENTIAL care , *QUALITY assurance , *RESEARCH funding , *QUESTIONNAIRES , *INTERPERSONAL relations , *DESCRIPTIVE statistics , *NATURE , *DATA analysis software , *OLD age - Abstract
People with dementia should be able to live in the community, and day care services are recommended as a means for people to live in their own homes for as long as possible. In this study we wanted to compare the quality of care at one type of small‐scale day care situated at community farms to regular day care provided in connection with residential care facilities for elderly people. A total of 42 participants from 10 farm‐based day care offers and 46 participants from seven regular day care offers were included. A qualitative observational design using the validated Maastricht Electronic Daily Life Observation tool was used. The data were collected between March and June 2018. Ecological momentary assessments of the activities taking place, level of engagement, physical effort, location, social interaction and mood were conducted while the participants attended their day care offer. The results showed that familiar daily activities were common at farm‐based day care, and a linear mixed model analysis showed that farm‐based day care attendees used more physical effort, spent more time outdoors, had more social interaction and experienced more positive mood compared to regular day care attendees. These findings contribute with valuable information about care provided at different types of day care services, and indicate that farm‐based day care has more activities with the potential to meet the social and activity needs of people with dementia compared to regular day care. There are two main implication of this study. First, regular day care services should focus on including more familiar daily activities found to be important for attendees' sense of identity and feelings of contributing. Second, regular day care services should utilise the potential of available outdoor areas as time spent outdoors has been found to facilitate physical activity, relaxation, health and well‐being. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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41. Experiences of family caregivers with day-care centers for elders in Southern China: a qualitative study.
- Author
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Tang, Yong
- Subjects
CAREGIVER attitudes ,ADULT day care ,INTERVIEWING ,FAMILIES ,TRANSPORTATION of patients ,ECOLOGY ,BURDEN of care ,SATISFACTION ,MEDICAL care ,EXPERIENCE ,QUALITATIVE research ,RESPONSIBILITY ,NURSING care facilities ,PSYCHOLOGY of caregivers ,RESEARCH funding ,DESCRIPTIVE statistics ,THEMATIC analysis ,ANXIETY ,FATIGUE (Physiology) ,PSYCHOLOGICAL adaptation - Abstract
Copyright of European Journal of Social Work is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2021
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- View/download PDF
42. Challenges for palliative care day services: a focus group study.
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Hasson, Felicity, Jordan, Joanne, McKibben, Laurie, Graham-Wisener, Lisa, Finucane, Anne, Armour, Kathy, Zafar, Shazia, Hewison, Alistair, Brazil, Kevin, and Kernohan, W. George
- Subjects
- *
FOCUS groups , *HEALTH care teams , *HEALTH services accessibility , *HOSPICE care , *MEDICAL quality control , *PALLIATIVE treatment , *QUALITATIVE research , *SOCIAL support , *THEMATIC analysis , *ADULT day care , *DESCRIPTIVE statistics - Abstract
Background: Palliative care day services provide a safe environment for people with palliative care needs, enabling them to access a range of services while acting as a respite services for family caregivers. Viewed as marginal services, they are often under resourced and under researched. The aim of this study was to understand how palliative day care services contribute to client care from the perspective of management and hospice multidisciplinary teams. Methods: A descriptive qualitative study, using six focus groups conducted with staff at three United Kingdom hospices in England, Scotland and Northern Ireland. Thirty-five participants were recruited, including management and staff. Discussions were transcribed and analysed thematically. Results: Four key themes emerged: (1) variations of care, beyond heterogeneity of patients; (2) unclear referrals and inconsistent patient population; (3) recognising strengths and challenges and (4) an uncertain future. A major focus of group discussions was the model of care and the benefits of the service, however the importance of demonstrating services' effectiveness and value for money was highlighted. Conclusions: Management and hospice staff believed day-services to be a helpful introduction to palliative care, providing both social and medical support. Economic pressures and patient demand were influencing them to move from a social model to a hybrid model. Further research is needed to understand the effectiveness of the service. [ABSTRACT FROM AUTHOR]
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- 2021
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43. Acute clinical deterioration and consumer escalation in the hospital setting: A literature review.
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Thiele, Lisa, Flabouris, Arthas, and Thompson, Campbell
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- *
NURSING databases , *LITERATURE reviews , *ATTITUDE (Psychology) , *DATABASE searching , *PATIENT safety , *CONSUMERS , *ADULT day care , *HOSPITALS , *MEDICAL care , *QUALITATIVE research - Abstract
Background: Consumer escalation systems that allow patients and/or their family/carers to escalate concerns about clinical deterioration have been proposed as a way of enhancing patient safety. However, evidence to guide implementation or to support system effectiveness remains unclear.Aim: To critically evaluate the current evidence surrounding consumer escalation within the context of clinical deterioration to identify the strengths, weaknesses and gaps in existing knowledge, essential themes, and directions for further investigation.Method: Database searches were conducted within Cumulative Index of Nursing and Allied Health Literature, PubMed, and the Cochrane Library for articles directly relating to consumer escalation systems published, in English, within the previous 10 year-period. Titles and abstracts were screened and relevant full-text articles included. Content was examined to identify breadth of knowledge, essential themes, and the effectiveness of current systems.Results: 27 articles, containing a mixture of both quantitative and qualitative findings, were identified. Within the context of limitations in the overall depth and quality of current evidence, four key areas (relating to consumer understanding and awareness of clinical deterioration, confidence and ability to escalate concerns, education, and staff attitudes) were identified as potentially critical to the foundation, functioning, and success of consumer escalation systems. Consumer escalation processes may contribute positive effects beyond mortality rates; however, an agreed method of assessing effectiveness remains undetermined.Conclusions: The ability of consumer escalation processes to achieve their underlying goals is still to be adequately assessed. Further research is required to inform how to best implement, support and optimise consumer escalation systems. [ABSTRACT FROM AUTHOR]- Published
- 2020
- Full Text
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44. Benefits of Multiple Sclerosis Adult Day Program Participation for People with Multiple Sclerosis: A Qualitative Study.
- Author
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Marrow, Jocelyn, Roeser, Allison, Gasper, Joseph, LaRocca, Nicolas G., and Frankel, Debra
- Subjects
ATTITUDE (Psychology) ,INTERVIEWING ,LIFE skills ,MEDICAL personnel ,MULTIPLE sclerosis ,PARTICIPANT observation ,PATIENT satisfaction ,QUALITY of life ,QUESTIONNAIRES ,SELF-evaluation ,SOCIAL stigma ,QUALITATIVE research ,SOCIAL support ,WELL-being ,THEMATIC analysis ,ADULT day care ,CAREGIVER attitudes ,DATA analysis software ,PATIENTS' attitudes - Abstract
Background: Multiple sclerosis adult day programs (MSADPs) are nonmedical service programs that provide care and support to people with multiple sclerosis (MS) experiencing levels of impairment that interfere with employment and activities of daily living. The purpose of this study was to identify how program participants think MSADPs benefit them. Methods: We conducted in-depth interviews with 95 people with MS who were MSADP participants. Interviews occurred as part of site visits to ten programs across the country. We supplemented participant interviews with interviews of program staff and ethnographic observation of activities at each site over 1 to 3 days. Results: Participants reported several benefits from participating in an MSADP. Almost universally, participants explained that receiving and giving social support were the most important benefits. Other positive outcomes described included increased emotional well-being, better understanding and acceptance of MS, practical know-how for accomplishing ordinary tasks, and increased mobility and improved motor functioning. Conclusions: Participants believe that MSADPs have a profound influence on their psychosocial health, much of which they attribute to membership in a socially cohesive community. Clinicians and policy makers should consider recommending these programs for people with MS who have unmet psychosocial needs and experience functional impairments. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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45. Comparison of a co‐produced mental health service to traditional services: A co‐produced mixed‐methods cross‐sectional study.
- Author
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Pocobello, Raffaella, Sehity, Tarek, Negrogno, Luca, Minervini, Carlo, Guida, Maddalena, and Venerito, Cosimo
- Subjects
- *
MENTAL health services evaluation , *CHI-squared test , *INTERPROFESSIONAL relations , *REGRESSION analysis , *QUALITATIVE research , *QUANTITATIVE research , *ADULT day care , *CROSS-sectional method , *DATA analysis software , *DESCRIPTIVE statistics - Abstract
This study investigates the differences between a co‐produced experimental mental health centre and traditional day centres. For this purpose, we used a collaborative and mixed‐method approach in two complementary studies: (i) a quantitative cross‐sectional study designed to compare users' hospitalization rates and their use of psychiatric medications and (ii) a qualitative study designed to explore and document the experienced differences between co‐produced and traditional services. In the quantitative cross‐sectional study, surveys were administered to 37 users of one co‐produced mental health service and to 40 users of traditional mental health services. A negative binomial regression analysis was performed to examine the relationships between predictors and users' hospitalization rates. After adjusting for the potential confounders, users of the co‐produced centre reported a 63.2% reduced rate of hospitalizations compared with users of traditional mental health services (P = 0.002). Furthermore, 39% of users of the co‐produced centre reported a reduction or even withdrawal from psychiatric medications against 22% of the comparison group (P = 0.036). In the qualitative study, six main differences emerged from a thematic analysis of a large user‐led focus group. In the participants' experiences, the co‐produced service focused on (i) parity and respectful relationships, (ii) people's strengths, (iii) freedom, (iv) psychological continuity, (v) social inclusion, and (vi) recovery orientation. Our research provides empirical evidence concerning the 'preventive aspect' of co‐produced mental health services. Additionally, new insights into how different stakeholders, particularly users of co‐produced mental health services, experience the differences between co‐produced and traditional mental health services are provided. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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46. Home-dwelling persons with dementia's perception on care support: Qualitative study.
- Author
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Fæø, Stein Erik, Bruvik, Frøydis Kristine, Tranvåg, Oscar, and Husebo, Bettina S
- Subjects
- *
CONVERSATION , *DEMENTIA patients , *HOME care services , *INTERVIEWING , *PHENOMENOLOGY , *RESEARCH methodology , *REFLECTION (Philosophy) , *RESEARCH , *RESEARCH funding , *ASSISTIVE technology , *PATIENT participation , *QUALITATIVE research , *PSYCHOSOCIAL factors , *SOCIAL support , *THEMATIC analysis , *ADULT day care , *HOMEBOUND persons , *PATIENTS' attitudes - Abstract
Background: Over the last years, there has been a growth in care solutions aiming to support home-dwelling persons with dementia. Assistive technology and voluntarism have emerged as supplements to traditional homecare and daycare centers. However, patient participation is often lacking in decision-making processes, undermining ethical principles and basic human rights. Research objective: This study explores the perceptions of persons with dementia toward assistive technology, volunteer support, homecare services, and daycare centers. Research design: A hermeneutical approach was chosen for this study, using a semi-structured interview guide to allow for interviews in the form of open conversations. Participants and research context: Twelve home-dwelling persons with dementia participated in the study. The participants were recruited through municipal daycare centers. Ethical considerations: Interviews were facilitated within a safe environment, carefully conducted to safeguard the participants' integrity. The Regional Committee for Medical and Health Research Ethics, Western Norway (Project number 2016/1630) approved the study. Findings: The participants shared a well of reflections on experience and attitudes toward the aspects explored. They described assistive technology as possibly beneficial, but pointed to several non-beneficial side effects. Likewise, they were hesitant toward volunteer support, depending on how this might fit their individual preferences. Homecare services were perceived as a necessary means of care, its benefits ascribed to a variety of aspects. Similarly, the participants' assessments of daycare centers relied on specific aspects, with high individual variety. Discussion and conclusion: The study indicates that the margins between whether these specific care interventions were perceived as supportive or infringing may be small and details may have great effect on the persons' everyday life. This indicates that patient participation in decision-making processes for this group is—in addition to be a judicial and ethical requirement—crucial to ensure adequate care and support. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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- View/download PDF
47. A Qualitative Exploration of Choral Singing in Community-dwelling Older Adults.
- Author
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Petrovsky, Darina V., Sefcik, Justine S., and Cacchione, Pamela Z.
- Subjects
- *
BLACK people , *FOCUS groups , *HAPPINESS , *INTERPERSONAL relations , *RESEARCH methodology , *METROPOLITAN areas , *MUSIC , *RESEARCH funding , *STATISTICAL sampling , *SINGING , *SOCIAL participation , *QUALITATIVE research , *JUDGMENT sampling , *THEMATIC analysis , *ADULT day care , *INDEPENDENT living , *OLD age - Abstract
Recent research has recognized the value of participatory arts, including choirs, as a strategy to engage older adults in the community. Less is known about the participation of minority older adults of low socioeconomic status (SES) in choirs. The purpose of this qualitative descriptive study was to explore the perceived benefits of choral singing among older adults from Program of All-Inclusive Care for the Elderly (PACE) day centers. We elicited perceptions from 19 choir participants from three focus groups, the majority of whom were Black or African American (N =17/19), each held at a different PACE center. One main theme emerged, "Something for us to do that we love," with two subthemes, "Joyful time together" and "Uplifting experience performing for others." These study findings have implications for promoting choir singing in older adults to serve as a place for engagement in social interactions in a lifelong activity they love. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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48. Using the Social Ecological Model to Identify Drivers of Nutrition Risk in Adult Day Settings Serving East Asian Older Adults.
- Author
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Sadarangani, Tina R., Johnson, Jordan J., Chong, Stella K., Brody, Abraham, and Trinh-Shevrin, Chau
- Subjects
MALNUTRITION ,DIET ,HEALTH services accessibility ,HEALTH status indicators ,INTERVIEWING ,LONELINESS ,MATHEMATICAL models ,RESEARCH methodology ,HEALTH policy ,NATURAL foods ,NUTRITIONAL assessment ,RESEARCH ,RISK assessment ,QUALITATIVE research ,PILOT projects ,THEORY ,AFFINITY groups ,JUDGMENT sampling ,GOVERNMENT programs ,FAMILY relations ,SOCIAL support ,THEMATIC analysis ,ADULT day care ,HUMAN services programs ,DATA analysis software ,MEDICAL coding ,DESCRIPTIVE statistics ,NUTRITIONAL status - Abstract
Adult day care (ADC) centers provide community-based care (including meals) to frail, ethnically diverse older adults, many of whom are at risk for malnutrition. To support the development of interventions to benefit ADC users, the authors aimed to identify barriers and facilitators of healthy nutrition among ADC users born in Vietnam and China. Semi-structured qualitative interviews were conducted among ADC stakeholders to identify barriers and facilitators. Data were analyzed using Braun and Clarke's six-step method and organized within the framework of the Social Ecological Model. Facilitators of good nutrition included adherence to traditional diet at the ADC center, peer networks, and access to ethnic grocers. Poor health, family dynamics, and loneliness all contributed to poor nutrition, as did the restrictive nature of nutrition programs serving ADC users in the United States. Individual, relationship, organizational, community, and policy level factors play a role in ADC users' nutritional status. Targeted nutrition interventions should leverage culturally congruent relationships between ADC users and staff and include advocacy for enhancement of federal programs to support this population. [Adult day care (ADC) centers provide community-based care (including meals) to frail, ethnically diverse older adults, many of whom are at risk for malnutrition. To support the development of interventions to benefit ADC users, the authors aimed to identify barriers and facilitators of healthy nutrition among ADC users born in Vietnam and China. Semi-structured qualitative interviews were conducted among ADC stakeholders to identify barriers and facilitators. Data were analyzed using Braun and Clarke's six-step method and organized within the framework of the Social Ecological Model. Facilitators of good nutrition included adherence to traditional diet at the ADC center, peer networks, and access to ethnic grocers. Poor health, family dynamics, and loneliness all contributed to poor nutrition, as did the restrictive nature of nutrition programs serving ADC users in the United States. Individual, relationship, organizational, community, and policy level factors play a role in ADC users' nutritional status. Targeted nutrition interventions should leverage culturally congruent relationships between ADC users and staff and include advocacy for enhancement of federal programs to support this population. [Research in Gerontological Nursing, 13(3), 146–157.] [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
49. "Just like Jail": Trauma Experiences of Older Homeless Men.
- Author
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Pope, Natalie D., Buchino, Susan, and Ascienzo, Sarah
- Subjects
- *
EMPATHY , *EXPERIENCE , *GROUNDED theory , *HOMELESS persons , *HOMELESSNESS , *HOUSING , *INTERPERSONAL relations , *INTERVIEWING , *RESEARCH methodology , *MEN'S health , *EMOTIONAL trauma , *QUALITY of life , *REFUGEE camps , *SAFETY , *VIOLENCE , *VIOLENCE & psychology , *WOUNDS & injuries , *QUALITATIVE research , *JUDGMENT sampling , *PSYCHOSOCIAL factors , *THEMATIC analysis , *ADULT day care , *OLD age - Abstract
People experiencing homelessness often have a history of trauma, and losing one's home is a traumatic event. The trauma of living in emergency shelters and on the streets uniquely impacts older adults, whose experiences of homelessness increase the likelihood of multiple health conditions and premature aging. This paper includes data from 18 men, aged 50 and older, who had experienced multiple instances of homelessness, as part of a larger study to understand the return path to homelessness from permanent housing. When participants spoke with us about their failure to be in housing, their inability to free themselves from reoccurring homelessness could not be discussed without talking about their trauma. Participants spoke of trauma in early life, perhaps precipitating homelessness, as well as traumatic experiences while homeless. The men discussed feeling imprisoned by the systemic issues around homelessness, facing mistreatment by service providers, and being exposed to external threats in their lives on the streets, including violence. Findings from this study lend themselves to the explicit need for trauma-informed care and supportive services that are sensitive to the urgency of homelessness as it is experienced by men in late life. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
50. Exploring the Organizational Culture in Adult Day Services (ADS) and Its Effect on Healthcare Delivery in Taiwan.
- Author
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Liou, Chih-Ling and Dellmann-Jenkins, Mary
- Subjects
- *
CORPORATE culture , *ADULT day care , *QUALITATIVE research , *QUANTITATIVE research , *NURSING care facilities - Abstract
Studies conducted in nursing homes/hospitals have shown that organizational culture plays an important role in care delivery and group culture leads to better quality of care. To explore the organizational culture and care delivery in adult day services (ADS) centers in Taiwan, we used both quantitative and qualitative research methods. Quantitative data from the Competing Values Framework (CVF) assessment showed that the group culture was dominant at all three centers. Qualitative data from observation and staff interviews uncovered both group and nongroup cultural elements. The group cultural elements, such as flexible management, teamwork environment, and sharing the same values, contributed to good care; however, the nongroup cultural elements, such as the staff-centered view, hierarchy, and conflicts within the leadership, led to negative staff-staff and staff-clients interactions. Further research is needed to untangle the complexity between quality care delivery and organizational culture. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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- View/download PDF
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