3 results on '"Howse, Dana"'
Search Results
2. Patient engagement in health implementation research: A logic model.
- Author
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Bisson, Mathieu, Aubrey‐Bassler, Kris, Chouinard, Maud‐Christine, Doucet, Shelley, Ramsden, Vivian R., Dumont‐Samson, Olivier, Howse, Dana, Lambert, Mireille, Schwarz, Charlotte, Luke, Alison, Rabbitskin, Norma, Gaudreau, André, Porter, Jude, Rubenstein, Donna, Taylor, Jennifer, Warren, Mike, and Hudon, Catherine
- Subjects
PATIENT participation ,RESEARCH methodology ,MATHEMATICAL models ,INTERVIEWING ,HUMAN services programs ,MEDICAL care use ,PRIMARY health care ,QUALITATIVE research ,RESEARCH funding ,THEORY ,DESCRIPTIVE statistics ,PARTICIPANT observation ,THEMATIC analysis ,MEDICAL case management ,DATA analysis software ,MEDICAL research - Abstract
Introduction: Growing evidence supports patient engagement (PE) in health implementation research to improve the quality, relevance and uptake of research. However, more guidance is needed to plan and operationalize PE before and throughout the research process. The aim of the study was to develop a logic model illustrating the causal links between context, resources, activities, outcomes and impact of PE in an implementation research programme. Methods: The Patient Engagement in Health Implementation Research Logic Model (hereafter the Logic Model) was developed using a descriptive qualitative design with a participatory approach, in the context of the PriCARE programme. This programme aims to implement and evaluate case management for individuals who frequently use healthcare services in primary care clinics across five Canadian provinces. Participant observation of team meetings was performed by all team members involved in the programme and in‐depth interviews were conducted by two external research assistants with team members (n = 22). A deductive thematic analysis using components of logic models as coding categories was conducted. Data were pooled in the first version of the Logic Model, which was refined in research team meetings with patient partners. The final version was validated by all team members. Results: The Logic Model highlights the importance of integrating PE into the project before its commencement, with appropriate support in terms of funding and time allocation. The governance structure and leadership of both principal investigators and patient partners have significant effects on PE activities and outcomes. As an empirical and standardized illustration that facilitates a shared understanding, the Logic Model provides guidance for maximizing the impact of patient partnership in various contexts for research, patients, providers and health care. Conclusion: The Logic Model will help academic researchers, decision makers and patient partners plan, operationalize, and assess PE in implementation research for optimal outcomes. Patient or Public Contribution: Patient partners from the PriCARE research programme contributed to developing the research objectives and designing, developing and validating data collection tools, producing data, developing and validating the Logic Model and reviewing the manuscript. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
3. Patient and researcher experiences of patient engagement in primary care health care research: A participatory qualitative study.
- Author
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Béland, Sophie, Lambert, Mireille, Delahunty‐Pike, Alannah, Howse, Dana, Schwarz, Charlotte, Chouinard, Maud‐Christine, Aubrey‐Bassler, Kris, Burge, Fred, Doucet, Shelley, Danish, Alya, Dumont‐Samson, Olivier, Bisson, Mathieu, Luke, Alison, Macdonald, Marilyn, Gaudreau, André, Porter, Judy, Rubenstein, Donna, Sabourin, Véronique, Scott, Cathy, and Warren, Mike
- Subjects
PATIENT participation ,RESEARCH methodology ,LEADERSHIP ,MOTIVATION (Psychology) ,COMMUNICATION barriers ,INTERVIEWING ,PRIMARY health care ,MEDICAL care research ,EXPERIENCE ,PATIENTS' attitudes ,QUALITATIVE research ,COMPARATIVE studies ,INTERPROFESSIONAL relations ,INTERPERSONAL relations ,THEMATIC analysis ,ENDOWMENTS ,GOAL (Psychology) ,PSYCHOLOGICAL stress - Abstract
Background: Studies have highlighted common challenges and barriers to patient engagement in research, but most were based on patient partners' or academic researchers' experiences. A better understanding of how both groups differentially experience their partnership could help identify strategies to improve collaboration in patient engagement research. Aim: This study aimed to describe and compare patient partners' and academic researchers' experiences in patient engagement research. Methods: Based on a participatory approach, a descriptive qualitative study was conducted with patient partners and academic researchers who are involved in the PriCARE research programme in primary health care to examine their experience of patient engagement. Individual semi‐structured interviews with patient partners (n = 7) and academic researchers (n = 15) were conducted. Academic researchers' interview verbatims, deidentified patient partners' summaries of their interviews and summaries of meetings with patient partners were analysed using inductive thematic analysis in collaboration with patient partners. Results: Patient partners and academic researchers' experiences with patient engagement are captured within four themes: (1) evolving relationships; (2) creating an environment that fosters patient engagement; (3) striking a balance; and (4) impact and value of patient engagement. Evolving relationships refers to how partnerships grew and improved over time with an acceptance of tensions and willingness to move beyond them, two‐way communication and leadership of key team members. Creating an environment that fosters patient engagement requires appropriate structural support, such as clear descriptions of patient partner roles; adequate training for all team members; institutional guidance on patient engagement; regular and appropriate translation services; and financial assistance. For patient partners and academic researchers, striking a balance referred to the challenge of reconciling patient partners' interests and established research practices. Finally, both groups recognized the value and positive impact of patient engagement in the programme in terms of improving the relevance of research and the applicability of results. While patient partners and academic researchers identified similar challenges and strategies, their experiences of patient engagement differed according to their own backgrounds, motives and expectations. Conclusion: Both patient partners and academic researchers highlighted the importance of finding a balance between providing structure or guidelines for patient engagement, while allowing for flexibility along the way. Patient or Public Contribution: Patient partners from the PriCARE research programme were involved in the following aspects of the current study: (1) development of the research objectives; (2) planning of the research design; (3) development and validation of data collection tools (i.e., interview guides); (4) production of data (i.e., acted as interviewees); (5) validation of data analysis tools (code book); (6) analysis of qualitative data; and (7) drafting of the manuscript and contributing to other knowledge translation activities, such as conference presentations and the creation of a short animated video. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
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