10 results on '"hard-to-reach populations"'
Search Results
2. Ethno-epidemiological research challenges: Networks of long-haul truckers in the inner city.
- Author
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Sönmez, Sevil, Apostolopoulos, Yorghos, Tanner, Amanda E., Massengale, Kelley, and Brown, Margaret
- Subjects
TRUCK drivers ,SOCIAL network research ,POPULATION ,ACQUISITION of data ,MEDICAL care - Abstract
Long-haul truck drivers and members of their social networks in urban locales constitute a hard-to-reach population at risk for acquiring and disseminating STIs/HIV. This paper focuses on the unique logistical, methodological, and ethical challenges faced by population health scientists while studying long-haul truck drivers and members of their sexual networks in inner-city neighborhoods of a major US metropolitan center and the innovative strategies developed to overcome the challenges. Formative research and focus groups with several trucker-centered populations (N = 28) led to in-depth interviews and serologies with 60 truck drivers and 24 sexworkers. Various difficulties encountered by the research team are discussed, followed by strategies devised to overcome them. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
3. A Study of Assimilation Bias in Name-Based Sampling of Migrants.
- Author
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Schnell, Rainer, Trappmann, Mark, and Gramlich, Tobias
- Subjects
- *
POPULATION , *STATISTICAL sampling , *ONOMASTICS , *IMMIGRANTS , *ASSIMILATION of immigrants - Abstract
The use of personal names for screening is an increasingly popular sampling technique for migrant populations. Although this is often an effective sampling procedure, very little is known about the properties of this method. Based on a large German survey, this article compares characteristics of respondents whose names have been correctly classified as belonging to a migrant population with respondentswho aremigrants and whose names have not been classified as belonging to a migrant population. Although significant differences were found for some variables even with some large effect sizes, the overall bias introduced by name-based sampling (NBS) is small as long as procedures with small false-negative rates are employed. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
4. Comparing Survey and Sampling Methods for Reaching Sexual Minority Individuals in Flanders.
- Author
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Dewaele, Alexis, Caen, Maya, and Buysse, Ann
- Subjects
- *
POPULATION , *SELECTION bias (Statistics) , *STATISTICAL bias , *STATISTICAL sampling , *SURVEYS , *SEXUAL minorities - Abstract
As part of a large sexual health study, we used two different approaches to target Sexual Minority Individuals (SMIs). Firstly, we drew on a probability sample (1,832 respondents aged 14-80) of the Flemish population in Belgium. Secondly, we set up a targeted sampling design followed by an Internet survey. Our focus was to explore how two different sampling procedures and survey designs could lead to differences in sample characteristics. Results showed that for female SMIs (we excluded male SMIs from the analyses due to their low numbers) the population sample differed from the Internet sample in terms of sociodemographic characteristics (the latter included younger and more highly educated respondents) and scores on sexual orientation dimensions (the population sample included more respondents who didn't identify as lesbian or bisexual but reported same-sex sexual experiences and desire). Respondents' scores on sexual health indicators differed between the samples for two of the seven variables. We discuss implications for improving the quality and validity of nonrandom samples. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
5. Engaging hard-to-reach populations in research on health in pregnancy: the value of Boal’s simultaneous dramaturgy
- Author
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Lisa Smyth, Lana McClements, and Paul Murphy
- Subjects
Value (ethics) ,Arts and Humanities(all) ,030506 rehabilitation ,Roma ,Inequality ,media_common.quotation_subject ,Population ,Social Sciences(all) ,Medicine (miscellaneous) ,Language barrier ,Northern Ireland ,hard-to-reach populations ,The arts ,Health Services Accessibility ,Literacy ,Boal ,03 medical and health sciences ,0302 clinical medicine ,Arts and Humanities (miscellaneous) ,Pregnancy ,Humans ,Sociology ,education ,simultaneous dramaturgy ,media_common ,Transients and Migrants ,Medicine(all) ,education.field_of_study ,030214 geriatrics ,Prenatal Care ,Gender studies ,Roma mothers ,Dramaturgy ,Health in pregnancy ,Pregnancy Complications ,Female ,0305 other medical science ,Art - Abstract
© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Background: Migrant populations are among the hardest to reach for research purposes. Methods: An interdisciplinary research team piloted a modified version of Boal's simultaneous dramaturgy with Roma mothers in Belfast. Results: The technique, based on scripted performances, translations, and discussions, proved effective for engaging with this hard-to-reach population, despite low levels of literacy, high language barriers, and cultural separateness. The approach uncovered attitudes to pregnancy which reinforce health inequalities, and present significant challenges for improving the health of marginalized populations. Conclusions: This pilot underlines the importance of building trust through holistic approaches to working with hard-to-reach populations through the creative arts.
- Published
- 2018
- Full Text
- View/download PDF
6. A Church-Based Sampling Design for Research with Latina Immigrant Women.
- Author
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Wasserman, Melanie, Bender, Deborah, Kalsbeek, William, Suchindran, Chirayath, and Mouw, Ted
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POPULATION ,EMIGRATION & immigration ,IMMIGRANTS ,HISPANIC Americans ,SAMPLING (Process) ,WOMEN - Abstract
The U.S. is experiencing its highest immigration rate since the 1930s. The largest proportion of immigrants comes from Latin America, and women constitute a large and growing fraction of this group. Although our knowledge of the relationship between migration and women’s health is increasing, research in this area is still needed, particularly in areas experiencing rapid changes in their Latino populations. Yet research is impeded by the absence of an adequate sampling frame: Latina immigrants remain a largely hidden population. This study tests in four North Carolina counties a church-based sampling frame for Latina immigrant women in their reproductive years. In the study area, on an average week, 20% of the Spanish-speaking population attends church (two-thirds are Catholic). Compared against Census data for the study area, the study sample (n = 706) provided a comparable representation of different national origins. New entrants to the U.S. and married women were overrepresented in the church-based sample. The young (under age 30), and women at the lowest and highest extremes of educational attainment were underrepresented in churches. While a church-based sample is not entirely comparable to the Census, churches can provide timely and cost-effective access to a rapidly changing population of new immigrants. Church-based research should be complemented with research in other settings, adjusting sampling weights for overlap between sampling frames. [ABSTRACT FROM AUTHOR]
- Published
- 2005
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- View/download PDF
7. Effectiveness of oral cholera vaccine in preventing cholera among fishermen in Lake Chilwa, Malawi: A case-control study
- Author
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Maurice M'bang'ombe, Leon Salumu, Lorenzo Pezzoli, Ian Alley, Kelias P. Msyamboza, Sandra Cohuet, Francesco Grandesso, Watipaso Kasambara, David A. Sack, Anne Laure Page, Pauline Lechevalier, Adriana Palomares, Amanda K. Debes, and Francisco J. Luquero
- Subjects
Adult ,Diarrhea ,Male ,Malawi ,Stool sample ,030231 tropical medicine ,Population ,Administration, Oral ,Effectiveness ,Cholera outbreak ,Disease Outbreaks ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Cholera ,Environmental health ,parasitic diseases ,Screening method ,Medicine ,Humans ,030212 general & internal medicine ,education ,Vibrio cholerae ,education.field_of_study ,General Veterinary ,General Immunology and Microbiology ,Hard-to-reach populations ,business.industry ,Vaccination ,Public Health, Environmental and Occupational Health ,Case-control study ,Cholera Vaccines ,medicine.disease ,Lakes ,Infectious Diseases ,Case-Control Studies ,Molecular Medicine ,Female ,Thermostability ,Cholera vaccine ,business ,Vaccine - Abstract
Background In response to a cholera outbreak among mobile, difficult-to-reach fishermen on Lake Chilwa, Malawi in 2016, a novel vaccine distribution strategy exploited the proven vaccine thermostability. Fishermen, while taking the first vaccine dose under supervision, received the second dose in a sealed bag, and were told to drink it two weeks later. This study assessed short-term vaccine protection of this strategy. Methods Patients with diarrhoea admitted to health facilities around lake were interviewed and a stool sample collected for PCR testing. Vaccine effectiveness was assessed in a case-control test-negative design by comparing cases (PCR-positive for V. cholerae O1) and controls (patients with diarrhoea but PCR-negative) and with the screening method that compared the proportions of vaccinated among cholera cases versus the general fishermen population. Results Of 145 study participants, 120 were fishermen living on the lake. Vaccine effectiveness at three-months was 90.0% [95% CI: 38.8; 98.4] among fishermen and 83.3% [95% CI: 20.8; 96.5] among all participants in the case-control test-negative design, and 97.5% [95% CI: 90.9; 99.3] with the screening method. Conclusion This strategy was effective in providing short-term protection in fishermen against cholera. Further research is needed to determine the adding value of the second dose and to identify the optimal vaccination strategies for different contexts.
- Published
- 2019
8. Health and Social Care systems reaching out to vulnerable populations with chronic conditions: the EU-project EFFICHRONIC
- Author
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Arturo Alvarez-rosete, An L D Boone, and Marta Pisano Gonzalez
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Program evaluation ,medicine.medical_specialty ,Health (social science) ,Sociology and Political Science ,Population ,chronic disease self-management ,hard-to-reach populations ,Nursing ,Political science ,effichronic ,medicine ,vulnerable populations ,media_common.cataloged_instance ,Social determinants of health ,European union ,education ,media_common ,lcsh:R5-920 ,education.field_of_study ,Health Policy ,Public health ,Integrated care ,Outreach ,Social exclusion ,lcsh:Medicine (General) - Abstract
The quest for integrated care has often been depicted as “crossing the boundaries”, going “beyond silos” or “cutting across” multiple systems, services, providers and settings. More recently, these health system and organization-centred concerns have been complemented with person-centred perspectives that focus on the needs of service users, their families and communities and what matters most for them. This new emphasis implies a new understanding of the scope of responsibilities of care systems: rather than waiting for people to attend the system to receive integrated care, it involves actively seeking those who might need it most and which are usually “hard-to-reach”. Person-centred approach urges systems and services to be more proactive and reach out to those vulnerable populations who are hard-to-reach. The chances of reaching these groups increase when organisations and services from all sectors align, coordinate their actions and work together. EFFICHRONIC: The EU-funded project EFFICHRONIC http://effichronic.eu/ aims to empower vulnerable hard-to-reach patients and caregivers to self-manage their chronic conditions. The project seeks to provide evidence on the positive return of investment and cost-efficiency of the application of the Chronic Disease Self-Management Programme (CDSMP) in different regions of 5 European countries (France, Italy, The Netherlands, Spain and UK) with a particular focus on the health-related, medical, social, cultural and economic factors linked with a higher burden of chronic disorders in Europe. Targeted Population: EFFICHRONIC aims at implementing the CDSMP in those groups of society that are most exposed to the negative effect of the social determinants of health. The EFFICHRONIC project uses the term “vulnerable” to refer to individuals that are not fully socially integrated and risk falling into social exclusion, either due to socio-economic hardship or due to physical or psychological reasons (the chronically ill, the disabled, the frail elderly or people suffering from mental health problems). A total sample of 2000 individuals receives the CDSMP programme. Acknowledgements: The project EFFICHRONIC has received funding from the European Union’s Health Programme (2014-2020) under Grant Agreement 738127. Workshop Programme Outline: We propose short presentations, followed by a half an hour discussion: EFFICHRONIC Overall Project approach: by Marta Pisano and An Boone (DG Public Health, Asturias Regional Government. Spain). 15 minutes The identification of vulnerable groups/individuals in the 5 countries through a multidimensional analysis and stratification methodology (Selfy-Multidimensional Prognostic Index): by Alberto Pilotto (Ente Galliera Hospital. Italy). 10 minutes Intersectoral strategies used to recruit vulnerable populations: by Yves-Marie Pers (Centre Hospitalier Universitaire Montpellier. France).Preliminary results after a year and a half into the EFFICHRONIC project. 10 minutes Project Evaluation framework: Siok-Swan Tan (Erasmus University Medical Centre. The Netherlands). A rigorous methodology, involving 5 different settings will provide evidence on the impact of EFFICHRONIC. 10 minutes Methodology of Internal Quality control: by Barbara Branchini (Polibienestar Research Institute. Spain). 10 minutes Communication and Dissemination: by Graham Edward Baker (Quality Institute for Self-management education and training. UK). 10 minutes Policy recommendations and guidelines to scale up the most effective outreach strategies to other settings in Europe: by Arturo Alvarez. 10 minutes
- Published
- 2017
- Full Text
- View/download PDF
9. An empirical examination of respondent driven sampling design effects among HIV risk groups from studies conducted around the world
- Author
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Alfonso Silva-Santisteban, Yea-Hung Chen, H. Fisher Raymond, and Lisa G. Johnston
- Subjects
Male ,China ,Social Psychology ,Population ,Sample (statistics) ,HIV Infections ,purl.org/pe-repo/ocde/ford#3.03.08 [https] ,Transgender Persons ,Sampling Studies ,Men who have sex with men ,Design effect ,South Africa ,Risk Factors ,Sampling design ,Peru ,Econometrics ,Humans ,Design effects ,Homosexuality, Male ,education ,education.field_of_study ,Sex Workers ,Hard-to-reach populations ,Public Health, Environmental and Occupational Health ,Sampling (statistics) ,Simple random sample ,Respondent driven sampling ,Infectious Diseases ,Population Surveillance ,Sample Size ,Respondent ,Mauritius ,Female ,San Francisco ,HIV/AIDS surveillance ,Psychology ,Ukraine ,Demography - Abstract
For studies using respondent driven sampling (RDS), the current practice of collecting a sample twice as large as that used in simple random sampling (SRS) (i.e. design effect of 2.00) may not be sufficient. This paper provides empirical evidence of sample-to-sample variability in design effects using data from nine studies in six countries among injecting drug users, female sex workers, men who have sex with men and male-to-female transgender (MTF) persons. We computed the design effect as the variance under RDS divided by the variance under SRS for a broad range of demographic and behavioral variables in each study. We also estimated several measures for each variable in each study that we hypothesized might be related to design effect: the number of waves needed for equilibrium, homophily, and mean network size. Design effects for all studies ranged from 1.20 to 5.90. Mean design effects among all studies ranged from 1.50 to 3.70. A particularly high design effect was found for employment status (design effect of 5.90) of MTF in Peru. This may be explained by a "bottleneck"--defined as the occurrence of a relatively small number of recruitment ties between two groups in the population. A design effect of two for RDS studies may not be sufficient. Since the mean design effect across all studies was 2.33, an effect slightly above 2.00 may be adequate; however, an effect closer to 3.00 or 4.00 might be more appropriate.
- Published
- 2013
10. Comparing Survey and Sampling Methods for Reaching Sexual Minority Individuals in Flanders
- Author
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Ann Buysse, Alexis Dewaele, and Maya Caen
- Subjects
education.field_of_study ,business.industry ,Population ,Statistics ,Sampling (statistics) ,Sample (statistics) ,self-selection bias ,hard-to-reach populations ,Self-selection bias ,HA1-4737 ,Sexual minority ,Sexual orientation ,Lesbian ,education ,business ,Social psychology ,Demography ,Reproductive health ,nonrandom samples - Abstract
As part of a large sexual health study, we used two different approaches to target Sexual Minority Individuals (SMIs). Firstly, we drew on a probability sample (1,832 respondents aged 14-80) of the Flemish population in Belgium. Secondly, we set up a targeted sampling design followed by an Internet survey. Our focus was to explore how two different sampling procedures and survey designs could lead to differences in sample characteristics. Results showed that for female SMIs (we excluded male SMIs from the analyses due to their low numbers) the population sample differed from the Internet sample in terms of sociodemographic characteristics (the latter included younger and more highly educated respondents) and scores on sexual orientation dimensions (the population sample included more respondents who didn’t identify as lesbian or bisexual but reported same-sex sexual experiences and desire). Respondents’ scores on sexual health indicators differed between the samples for two of the seven variables. We discuss implications for improving the quality and validity of nonrandom samples.
- Published
- 2014
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