1. Self-management skills and behaviors, self-efficacy, and quality of life in people with epilepsy from underserved populations.
- Author
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Pandey, Dilip K., Levy, Jessica, Serafini, Anna, Habibi, Mitra, Song, Woojin, Shafer, Patricia O., and Loeb, Jeffrey A.
- Subjects
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EPILEPSY , *QUALITY of life , *SELF-efficacy , *WORKS councils , *POPULATION - Abstract
People with epilepsy (PWE) from underserved populations face significant barriers to epilepsy management and therefore may lack knowledge about epilepsy and self-management (SM) of epilepsy. This paper evaluates SM practices, self-efficacy, outcome expectancy, quality of life, and personal impact of epilepsy in PWE from underserved populations as compared with all PWE. Recruitment for the Managing Epilepsy Well (MEW) Network PAUSE to Learn Your Epilepsy study occurred from October 2015 to March 2019. Participants were assessed at baseline; after SM education intervention; and 6-, 9-, and 15-month postbaseline assessment. Baseline data from 112 PWE were analyzed for this report. Study population was diverse: 63% were women, 47.3% were non-Hispanic black, 24.1% were Hispanic, and 57.4% had public healthcare coverage. Participants on average had epilepsy for 14 years, and 49.1% reported at least one seizure within the past month, but only 27% reported having used a seizure diary or calendar for seizure tracking. Self-management practices & behaviors were significantly lower among PWE from underserved populations than all PWE, though self-efficacy among PWE from underserved populations was significantly higher. This study identifies the unique epilepsy SM needs of PWE from underserved populations. We discuss the need for a personalized approach for developing SM skills and behaviors among these PWE. • People with epilepsy (PWE) from underserved populations have lower self-management (SM) practices as compared to all PWE. • PWE from underserved populations do not frequently utilize online epilepsy education resources. • Self-efficacy is highly correlated with quality of life, SM practices & behaviors, and personal impact of epilepsy. • Number of depressive symptoms, quality of life, and personal impact of epilepsy following seizures are highly correlated. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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