1. Provision of information about malignant spinal cord compression: perceptions of patients and staff.
- Author
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Hutchison C, Morrison A, Rice AM, Tait G, and Harden S
- Subjects
- Aged, Aged, 80 and over, Female, Humans, Male, Middle Aged, Scotland, Surveys and Questionnaires, Health Personnel, Patient Education as Topic, Patients psychology, Spinal Cord Compression psychology
- Abstract
Background: Various guidelines have highlighted the importance of patients being given information on malignant spinal cord compression (MSCC), both when diagnosed with the condition and as a tool to aid early detection., Aim: To determine patient and staff views on the provision of MSCC information to patients with a diagnosis of or considered to be at high risk of developing MSCC., Methods: Patients with MSCC admitted to a large regional cancer centre in Scotland over a 6-month period were interviewed. Staff were also surveyed using similar questions., Results: Fifty-six patients and fifty staff were recruited. Only 4% of staff reported giving any written information about MSCC to patients with a confirmed diagnosis, although 20% of patients said they received it and 77% wanted it. A total of 54% of staff reported gaving prophylactic information about MSCC to patients, although the majority of the patients (86%) said they would have wanted this information. Patients generally did not access additional information about MSCC and were dependent on the limited amount provided by the health-care team., Conclusion: Health professionals need to ensure that patients get the information they want, which will allow them to recognize MSCC symptoms early for improved treatment outcomes or to better adapt to a diagnosis.
- Published
- 2012
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