79 results on '"Stillbirth psychology"'
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2. Stillbirths in India: Current Status, Challenges, and the Way Forward.
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Aggarwal N, Lahariya C, Sharma B, Khan T, Sood B, Singh VV, Verma S, Upadhyay A, and Dhaliwal LK
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- Pregnancy, Female, Humans, Delivery of Health Care, Risk Factors, India epidemiology, Stillbirth epidemiology, Stillbirth psychology, Mothers
- Abstract
Stillbirth is a major public health challenge and a multifaceted issue that leads to significant financial, physical, mental, financial, and psychosocial implications. India has made substantial progress in stillbirth reduction. Yet, many challenges continue and the absolute number of stillbirths remain high. This paper presents the national and state level burden of stillbirths and discusses about the magnitude, risk factors, causes and inequities in stillbirths. A few additional approaches for reduction of preventable stillbirths have been suggested. The authors argue that the institutional mechanisms need to be developed to ensure all stillbirths are registered in a timely manner. There is a need for standard definition for classification of stillbirths and document the cause, to roll-out suitable interventions. There is a need for state specific interventions to address different causes, as Indian states have variable stillbirth rates. The stillbirth audits should be institutionalised as a continuous quality improvement exercise to bring local accountability and reduce stillbirth rate. The healthcare system and providers must be trained to offer bereavement support to the affected mothers and families. These approaches should be implemented through primary healthcare system as well., (© 2023. The Author(s), under exclusive licence to Dr. K C Chaudhuri Foundation.)
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- 2023
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3. The Process Model of Stigmatized Loss: Identity-Threatened Experiences of Bereaved Mothers.
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Minton EA, Wang CX, Anthony CM, and Fox AK
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- Female, Humans, Infant, Pregnancy, Social Stigma, Abortion, Spontaneous psychology, Mothers psychology, Stillbirth psychology
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Despite almost one-third of women suffering from the loss of a baby through miscarriage, stillbirth, or infant loss, it is surprising how little research examines how such loss affects the identity and stigmas experienced by these individuals. Through in-depth, semi-structured interviews with bereaved mothers (in particular, mothers who lost a baby during pregnancy or within one year after birth), this research sheds light on the bereaved mother's experiences after loss. Specifically, this research applies the identity-threat model of stigma to showcase the process of stigmatized loss. Based on our findings, we also introduce the process model of stigmatized loss that can apply to all types of stigmatized loss. Key themes emerged as we explored stigmatized loss discourses. These include situational cues that trigger stigma, identity-based responses that aim to preserve both a baby's and mother's identity, as well as nonvolitional and volitional responses that help restore control and reconstruct identity. Additionally, other themes revolve around positive and negative outcomes stemming from avoiding stigmatized identity activation and identification of triggers that initiate a recursive process through stigmatized baby loss. Importantly, stigma can be perceived as both an identity threat (negative) and an identity confirmation (positive). Findings inform theory and practice alike., Competing Interests: Declaration of Conflicting InterestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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- 2023
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4. Holding the Baby.
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Puterbaugh KM
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- Female, Humans, Male, Mothers psychology, Stillbirth psychology
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- 2022
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5. A qualitative focus group study concerning perceptions and experiences of Nigerian mothers on stillbirths.
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Milton R, Alkali FI, Modibbo F, Sanders J, Mukaddas AS, Kassim A, Sa'ad FH, Tukur FM, Pell B, Hood K, Ghazal P, and Iregbu KC
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- Family Relations ethnology, Female, Focus Groups, Health Services Accessibility, Humans, Nigeria ethnology, Pregnancy, Qualitative Research, Social Values ethnology, Social Vulnerability, Mothers psychology, Stillbirth psychology
- Abstract
Objective: To explore the experiences and perceptions of stillbirth among mothers from a tertiary medical centre in Kano, Northern Nigeria., Design: Qualitative, interpretative., Setting: Tertiary healthcare facility, Murtala Muhammad Specialist Hospital (MMSH), Kano, Northern Nigeria., Sample: Mothers who had given birth to a liveborn baby at the MMSH in the prior 6 months (n = 31). In order to capture the experiences and perception of stillbirth within this cohort we approached mothers who had in a previous pregnancy experienced a stillbirth. Of the 31 who attended 16 had a previous stillbirth., Methods: Semi-structured Focus Group Discussions, consisting of open-ended questions about stillbirth, beliefs, experiences and influences were held in MMSH, conducted over 1 day., Results: Our findings highlight that this is a resource-poor tertiary facility serving an ever-growing population, increasing strain on the hospital and healthcare workers. Many of the participants highlighted needing permission from certain family members before accessing healthcare or medical treatment. We identified that mothers generally have knowledge on self-care during pregnancy, yet certain societal factors prevented that from being their priority. Judgement and blame was a common theme, yet a complex area entwined with traditions, superstitions and the pressure to procreate with many mothers described being made to feel useless and worthless if they did not birth a live baby., Conclusions: As access to healthcare becomes easier, there are certain traditions, family and social dynamics and beliefs which conflict with scientific knowledge and act as a major barrier to uptake of healthcare services. The findings highlight the need for investment in maternity care, appropriate health education and public enlightenment; they will help inform appropriate interventions aimed at reducing stigma around stillbirth and aide in educating mothers about the importance of appropriate health seeking behaviour. Stillbirths are occurring in this area of the world unnecessarily, globally there has been extensive research conducted on stillbirth prevention. This research has highlighted some of the areas which can be tackled by modifying existing successful interventions to work towards reducing preventable stillbirths., (© 2021. The Author(s).)
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- 2021
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6. Stillbirth and infant death: mental health among low-income mothers in Mumbai.
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Roberts L, Renati SJ, Solomon S, and Montgomery S
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- Adolescent, Adult, Cross-Sectional Studies, Depression, Postpartum diagnosis, Depression, Postpartum prevention & control, Depression, Postpartum psychology, Female, Health Services Needs and Demand, Humans, India epidemiology, Infant, Infant, Newborn, Mental Health statistics & numerical data, Mental Health Services organization & administration, Poverty, Pregnancy, Psychiatric Status Rating Scales statistics & numerical data, Qualitative Research, Social Norms, Stillbirth epidemiology, Young Adult, Depression, Postpartum epidemiology, Grief, Infant Death, Mothers psychology, Stillbirth psychology
- Abstract
Background: India has the highest number of stillbirths and the highest neonatal death rate in the world. In the context of its pronatalist society, women who experience perinatal loss often encounter significant social repercussions on top of grief. Furthermore, even when pregnancy outcomes were favorable, adverse life circumstances put some women at risk for postnatal depression. Therefore, perinatal loss and postnatal depression take a heavy toll on women's mental health. The purpose of this study is to assess mental health among a sample of Mumbai slum-dwelling women with a history of recent childbirth, stillbirth, or infant death, who are at risk for perinatal grief, postnatal depression, or mental health sequelae., Methods: We conducted a mixed method, cross-sectional study. A focus group discussion informed the development of a comprehensive survey using mainly internationally validated scales. After rigorous forward and back-translation, surveys were administered as face-to-face structured interviews due to low literacy and research naiveté among our respondents. Interviews were conducted by culturally, linguistically, gender-matched, trained research assistants., Results: Of our reproductive age (N = 260) participants, 105 had experienced stillbirth, 69 had a history of infant death, and 25 had experienced both types of loss. Nearly half of the sample met criteria for postnatal depression, and 20% of these women also met criteria for perinatal grief. Anxiety and depression varied by subgroup, and was highest among women desiring an intervention., Conclusions: Understanding factors contributing to women's suffering related to reproductive challenges in this pronatalist context is critically important for women's wellbeing.
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- 2021
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7. Breaking the silence: Determining Prevalence and Understanding Stillbirth Stigma.
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Pollock DD, Pearson DE, Cooper DM, Ziaian APT, Foord C, and Warland APJ
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- Adult, Australia, Female, Humans, Middle Aged, New Zealand, Prevalence, Psychometrics instrumentation, Psychometrics methods, Social Support, Surveys and Questionnaires, United Kingdom, United States, Mothers psychology, Social Stigma, Stillbirth psychology
- Abstract
Background: The 2011 and 2016 Stillbirth Lancet series made a call to action to identify mechanisms to reduce stillbirth stigma. This research answers that call, investigating the extent and dimensions of stillbirth stigma experienced by an international sample of mothers bereaved by stillbirth., Objective: To determine the prevalence and type as well as explore explanatory variables associated with higher levels of stillbirth stigma with bereaved mothers in high-income countries (Australia, United Kingdom, The United States of America and New Zealand)., Method: An international survey of 889 bereaved mothers was conducted utilising the recently developed Stillbirth Stigma Scale to explore the extent and types of stigma experienced, as well as the association between stigma and self-esteem (Rosenberg Self- Esteem Scales), perinatal grief (Perinatal Grief Scale), and perceived social support (Perceived Social Support Scale). Demographic information (e.g. age, education, stillbirth history, sexual orientation and mental health) were collected to determine the association between individual demographic factors and stillbirth stigma., Results: Results of the Stillbirth Stigma Scale indicated that a majority (54%) of bereaved mothers experienced stigma. Self-stigma was the predominant type of stigma experienced (80%), followed by perceived devaluation (64.9%). Bereaved mothers also experienced discrimination (29.1%) and issues with disclosing their stillbirth to their community (36.7%). Stillbirth stigma scores were higher in bereaved mothers who had experienced the loss of their first child. High scores were associated with the mother's mental health status (diagnoses prior to stillbirth, and/or after stillbirth (p<.05)).The other scales used indicated that higher stillbirth stigma scores were also associated with lower self-esteem (r (877) =-.304, p<.001), lower perceived social support (r (871) =-.448, p<.001) and higher levels of grief (r (829) =.609, p<.001)., Conclusion: The current research was the first to identify that 54% of bereaved mothers experienced stigma, with self-stigma being the most prominent. Bereaved mothers endured discriminating experiences and had trouble disclosing their stillbirth to others within their community. The first-time mother with a self- reported history of mental illnesses appears to be the most at-risk of higher levels of stigma. Future longitudinal research needs to be conducted to determine the direction of the explanatory variables i.e. mental health, self-esteem and social support and develop interventions, which support the bereaved mother and reduce stillbirth stigma., Relevance: This study is the first to demonstrate the prevalence, extent, type and explanatory variables of stigma reported by bereaved mothers and the association between this and poorer outcomes including increased grief and decreased self-esteem. This study begins a dialogue about prevalence and explanatory variables of stillbirth stigma and its impact, to inform future prevention and support potential stigma reduction programs for community and bereaved mothers., (Copyright © 2020. Published by Elsevier Ltd.)
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- 2021
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8. Grief reaction and psychosocial impacts of child death and stillbirth on bereaved North Indian parents: A qualitative study.
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Das MK, Arora NK, Gaikwad H, Chellani H, Debata P, Rasaily R, Meena KR, Kaur G, Malik P, Joshi S, and Kumari M
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- Adult, Child, Child Mortality, Female, Humans, India epidemiology, Male, Socioeconomic Factors, Fathers psychology, Grief, Mothers psychology, Stillbirth psychology
- Abstract
Background: Grief following stillbirth and child death are one of the most traumatic experience for parents with psychosomatic, social and economic impacts. The grief profile, severity and its impacts in Indian context are not well documented. This study documented the grief and coping experiences of the Indian parents following stillbirth and child death., Methods: This exploratory qualitative study in Delhi (India) included in-depth interviews with parents (50 mothers and 49 fathers), who had stillbirth or child death, their family members (n = 41) and community representatives (n = 12). Eight focus group discussions were done with community members (n = 72). Inductive data analysis included thematic content analysis. Perinatal Grief Scale was used to document the mother's grief severity after 6-9 months of loss., Results: The four themes emerged were grief anticipation and expression, impact of the bereavement, coping mechanism, and sociocultural norms and practices. The parents suffered from disbelief, severe pain and helplessness. Mothers expressed severe grief openly and some fainted. Fathers also had severe grief, but didn't express openly. Some parents shared self-guilt and blamed the hospital/healthcare providers, themselves or family. Majority had no/positive change in couple relationship, but few faced marital disharmony. Majority experienced sleep, eating and psychological disturbances for several weeks. Mothers coped through engaging in household work, caring other child(ren) and spiritual activities. Fathers coped through avoiding discussion and work and professional engagement. Fathers resumed work after 5-20 days and mothers took 2-6 weeks to resume household chores. Unanticipated loss, limited family support and financial strain affected the severity and duration of grief. 57.5% of all mothers and 80% mothers with stillbirth had severe grief after 6-9 months., Conclusions: Stillbirth and child death have lasting psychosomatic, social and economic impacts on parents, which are usually ignored. Sociocultural and religion appropriate bereavement support for the parents are needed to reduce the impacts., Competing Interests: The authors have declared that no competing interests exist.
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- 2021
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9. Pregnancy after loss during the COVID19 pandemic.
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Pollock D, Murphy MM, O'Leary J, and Warland J
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- Abortion, Spontaneous, Australia, Betacoronavirus, COVID-19, Coronavirus Infections epidemiology, Female, Humans, Ireland, Pandemics, Perinatal Death, Pneumonia, Viral epidemiology, Pregnancy, SARS-CoV-2, United States, Bereavement, Coronavirus Infections prevention & control, Maternal Health Services organization & administration, Mothers psychology, Pneumonia, Viral prevention & control, Practice Guidelines as Topic, Pregnant Women psychology, Stillbirth psychology
- Abstract
Background: Rapid changes to how maternity health care is delivered has occurred in many countries across the globe in response to the COVID-19 pandemic. Maternity care provisions have been challenged attempting to balance the needs and safety of pregnant women and their care providers. Women experiencing a pregnancy after loss (PAL) during these times face particularly difficult circumstances., Aim: In this paper we highlight the situation in three high income countries (Australia, Ireland and USA) and point to the need to remember the unique and challenging circumstances of these PAL families. We suggest new practices may be deviating from established evidence-based guidelines and outline the potential ramifications of these changes., Findings: Recommendations for health care providers are suggested to bridge the gap between the necessary safety requirements due to the pandemic, the role of the health care provider, and the needs of families experiencing a pregnancy after loss., Discussion: Changes to practices i.e. limiting the number of antenatal appointments and access to a support person may have detrimental effects on both mother, baby, and their family. However, new guidelines in maternity care practices developed to account for the pandemic have not necessarily considered women experiencing pregnancy after loss., Conclusion: Bereaved mothers and their families experiencing a pregnancy after loss should continue to be supported during the COVID-19 pandemic to limit unintended consequences., (Copyright © 2020 Australian College of Midwives. Published by Elsevier Ltd. All rights reserved.)
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- 2020
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10. The experience of mothers and fathers in cases of stillbirth in Spain. A qualitative study.
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Martínez-Serrano P, Pedraz-Marcos A, Solís-Muñoz M, and Palmar-Santos AM
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- Adaptation, Psychological, Adult, Bereavement, Fathers statistics & numerical data, Female, Humans, Interviews as Topic methods, Male, Mothers statistics & numerical data, Qualitative Research, Quality of Health Care statistics & numerical data, Spain epidemiology, Stillbirth epidemiology, Fathers psychology, Mothers psychology, Patient Satisfaction statistics & numerical data, Quality of Health Care standards, Stillbirth psychology
- Abstract
Aim: To explore the experience of both the mothers and the fathers regarding the care received during delivery in cases of stillbirth., Design: A hermeneutic phenomenological study based on semi-structured interviews with eleven mothers and fathers who experienced stillbirth., Participants: A purposive sample was recruited in Hospital XXX of XX and through a local pregnancy loss support organization., Methods: Interviews were recorded and transcribed verbatim and analysed using inductive thematic analysis., Findings: Four main categories identified: 1) denial of grief, 2) the life and death paradox, 3) guilt, and 4) go through and overcome the loss. The parents manifested a lack of recognition of their loss and their parenthood. Although the midwife was the highest valued professional, not all the experiences were positive and the parents would have appreciated being accompanied by trained people with good communication skills. They also referred to in-hospital logistic barriers that complicated the process, as well as the fact that these births occurred in the same place where healthy deliveries were attended., Conclusion: Findings highlight the importance of tailoring support systems according to mothers' and fathers' needs. Promoting social and institutional recognition of this kind of loss and training healthcare professionals in the accompaniment of this type of mourning is useful to plan comprehensive care to facilitate the initiation and subsequent evolution of healthy mourning., (Copyright © 2019 Elsevier Ltd. All rights reserved.)
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- 2019
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11. Investigation of the Experiences of Mothers Living Through Prenatal Loss Incidents: A Qualitative Study.
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Aydin R, Körükcü Ö, and Kabukcuoğlu K
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- Adolescent, Adult, Female, Humans, Interviews as Topic, Maternal Health Services, Nursing Research, Qualitative Research, Turkey, Young Adult, Adaptation, Psychological, Mothers psychology, Stillbirth psychology
- Abstract
Background: Fetal death causes women to experience negative feelings after the loss. These lived experiences influence the future pregnancies and maternal health of women negatively., Purpose: The aim of this study was to investigate the experiences of women whose pregnancies were terminated because of medical indications., Methods: A "design for definitive status study" type of qualitative research design was used. Ten women who were hospitalized between April and July 2017 at the Akdeniz University Clinic of Obstetrics and Gynecology and had subsequently experienced pregnancy loss during their hospitalization were enrolled as participants. Thematic analysis was used to analyze the data., Results: The pregnancy loss experiences of participants were investigated under the five main themes of (a) lived experiences before the termination of pregnancy, (b) lived experiences after pregnancy termination, (c) willingness to see the baby after termination, (d) posttermination care requirements, and (e) physical condition of hospital rooms during hospitalization. The participants expressed feelings of hope, fear, and worry over being unsuccessful before fetal death and feelings of loneliness, disappointment, blame, and avoidance after fetal death., Conclusions/implications for Practice: In the aftermath of fetal death, health professionals should use insightful and empathic communication skills to help mothers cope with their loss. In addition, some of the participants wanted to see their babies, and some did not. Thus, individualized care is very important for women who experience pregnancy loss.
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- 2019
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12. Underreporting of stillbirths in Pakistan: perspectives of the parents, community and healthcare providers.
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Zakar MZ, Zakar R, Mustafa M, Jalil A, and Fischer F
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- Adult, Attitude of Health Personnel, Female, Humans, Needs Assessment, Pakistan epidemiology, Pregnancy, Pregnancy Outcome epidemiology, Qualitative Research, Social Perception, Culture, Live Birth epidemiology, Live Birth psychology, Maternal-Child Health Services standards, Maternal-Child Health Services statistics & numerical data, Mothers psychology, Outcome Assessment, Health Care standards, Outcome Assessment, Health Care statistics & numerical data, Stillbirth epidemiology, Stillbirth ethnology, Stillbirth psychology
- Abstract
Background: Pakistan has the highest rate of stillbirths globally. Not much attention has been given so far to exploring the sociocultural factors hindering the reportage of stillbirths and the causes of death. Therefore, the aim of this study was to assess the perspectives of parents, communities and healthcare providers regarding the sociocultural practices and health system-related factors contributing to stillbirths and their underreporting., Methods: This study used a qualitative approach including in-depth interviews and 14 focus group discussions to collect data from four districts of Pakistan. We conducted 285 in-depth interviews and 14 focus group discussions with health professionals - mainly active in the areas of maternal and child health - and parents who had experienced stillbirth. Constant comparative method and analytical induction method were performed to analyze the data., Results: The results of this study show that stillbirth is frequently misclassified and, therefore, an underreported phenomenon in Pakistan. It is an outcome of sociocultural practices, such as the social meaning of stillbirth and their understanding about the conflict between cultural and medical anatomy. In addition to grief and psychological distress, it endangers the maternal identity and worth in society in contrast to the mothers of live-born children., Conclusion: The misclassification of stillbirth, especially by healthcare providers, is a significant impediment to designing preventive strategies for stillbirth. We recommend that the reporting system for stillbirth should be aligned with the WHO definition of stillbirth to avoid its underreporting. Reporting procedures at a more administrative level need to be made uniform and simplified.
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- 2018
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13. "They told me all mothers have worries", stillborn mother's experiences of having a 'gut instinct' that something is wrong in pregnancy: Findings from an international case-control study.
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Warland J, Heazell AEP, Stacey T, Coomarasamy C, Budd J, Mitchell EA, and O'Brien LM
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- Adult, Case-Control Studies, Cohort Studies, Female, Grief, Humans, Pregnancy, Prospective Studies, Surveys and Questionnaires, Instinct, Mother-Child Relations, Mothers psychology, Stillbirth psychology
- Abstract
Objective: To describe and explore 'gut instinct' that something was wrong in women who identified that they experienced gut instinct during pregnancy., Method: A case-control study utilising an international web-based questionnaire. Stillborn cases (n = 146) and liveborn controls (n = 234) answered the gut instinct question within 30 days of the pregnancy ending. Of those, 84 cases and 27 controls also provided qualitative comment data. Descriptive statistics were used for the question, with a fixed option and summative content analysis was used to analyse the comment data., Findings: In all, 110 (75%) of the stillborn cases answered "yes" to the gut instinct question vs only 28 (12%) of the controls who had a livebirth meaning the risk of stillbirth was 22.5 fold higher in those who experience "gut instinct" than in those who do not experience this feeling. Four themes were identified from the comment data namely: When the gut instinct occurred; How the gut instinct made the woman feel; Dreams and other related phenomena; Reassured by someone or something., Conclusions: Women who had a stillborn baby reported a "gut instinct" that something was wrong more frequently than mothers of a live born baby. Our findings may be influenced by recall negativity bias, and a prospective study is needed to confirm or refute our findings. The possibility that "maternal intuition" exists during pregnancy and responds to changes in fetal or placental health merits further exploration., Implications for Practice: Maternity care providers should be alert to the woman when she expresses intuitive feelings, as well as asking her to report her concerns and act appropriately to assess and manage fetal wellbeing., (Copyright © 2018 The Authors. Published by Elsevier Ltd.. All rights reserved.)
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- 2018
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14. Just another ordinary bad birth? A narrative analysis of first time mothers' traumatic birth experiences.
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Murphy H and Strong J
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- Adult, Communication, Female, Humans, Infant, Interviews as Topic, Parity, Pregnancy, Qualitative Research, Attitude of Health Personnel, Birth Injuries psychology, Mothers psychology, Obstetric Labor Complications psychology, Parturition psychology, Professional-Patient Relations, Stillbirth psychology
- Abstract
A difficult birth experience can have long lasting psychological effects on both mother and baby and this study details four in-depth accounts of first time mothers who described their birth experience as traumatizing. Narrative analysis was used to record discrepancies between the ideal and the real and produced narrative accounts that highlighted how these mothers felt invisible and dismissed in a medical culture of engineering obstetrics. Participants also detailed how their birth experience could be improved and this is set in context alongside current recommendations in maternal health care and the complexities of delivering such care in UK health settings.
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- 2018
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15. Psycho-social impact of stillbirths on women and their families in Tamil Nadu, India - a qualitative study.
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Gopichandran V, Subramaniam S, and Kalsingh MJ
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- Adaptation, Psychological, Adult, Attitude of Health Personnel, Female, Grief, Guilt, Humans, India, Pregnancy, Qualitative Research, Stress, Psychological, Health Personnel psychology, Mothers psychology, Patient Acceptance of Health Care psychology, Social Change, Stillbirth psychology
- Abstract
Background: Stillbirth has serious psycho-social consequences on the parents and on the family. The psychological impact of stillbirth is strongly influenced by the social and cultural context. There is very scarce information on this from the Indian context. This qualitative study was conducted to understand the psycho-social impact, aggravating factors, coping styles and health system response to stillbirths., Methods: A qualitative study was conducted using in-depth interviews with mothers who experienced stillbirth in the past 1 year and their families. A total of 8 women and two health care providers were interviewed by trained interviewers. The interviews were transcribed into the local language and thematic analysis was performed by the researchers retaining the transcripts in the local language. Themes were identified, and a conceptual framework was developed., Results: Women who experienced stillbirths suffered from serious forms of grief and guilt. These emotions were aggravated by the insensitive health system, health care providers, friends, and neighbours, as well as strained marital relationship and financial burdens. The women and their families were disturbed by the 'suddenness' of the stillbirth and frantically searched for the cause. They were frustrated when they couldn't find the cause and blamed various people in their lives. The women and their families perceived poor quality of services provided in the health system and reported that the health care providers were inconsiderate and insensitive. On the other hand, the health care providers reported that they were over-worked, and the health facilities were under-staffed. The community health workers reported that they felt caught in the crossfire between the health facility staff and the family who suffered the stillbirth. The women reported several coping mechanisms including isolation, immersion in work, placing maternal love on other children, the anticipation of next pregnancy and religiosity., Conclusion: Stillbirth is a major cause of psycho-social morbidity. Health systems should be responsive to the psycho-social needs of women who suffer stillbirths and their families.
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- 2018
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16. Is partners' mental health and well-being affected by holding the baby after stillbirth? Mothers' accounts from a national survey.
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Hennegan JM, Henderson J, and Redshaw M
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- Adolescent, Adult, Anxiety psychology, Depression psychology, England, Female, Humans, Male, Parents psychology, Pregnancy, Qualitative Research, Surveys and Questionnaires, Young Adult, Fathers psychology, Mental Health, Mothers psychology, Stillbirth psychology
- Abstract
Objective: This study aimed to assess the effects on partners' health and well-being of holding a stillborn baby., Background: Findings from quantitative and qualitative studies have produced inconsistent results concerning the effects of holding a stillborn baby on parents., Methods: Secondary analyses were conducted on postal questionnaire data relating to 455 partners of women who had a stillbirth. Women answered questions about their partners' behaviour, perceptions of care, mental health and well-being at three and nine months after the stillbirth. Demographic, clinical and care characteristics were compared between partners who, according to the mothers, did and did not hold their baby. Sub-group analyses assessed hypothesised moderating effects., Results: Mothers reported that most partners saw (92%) and held (82%) their stillborn baby. However, partners born outside the UK were less likely to have held their baby. Higher gestational age, shorter time interval between antepartum death and delivery, and mother's holding the baby all predicted a higher rate of partner's holding. There was a consistent negative effect of holding the baby across mental health and well-being outcomes, although after adjustment only higher odds of depression (OR 2.72, 95% CI 1.35-5.50) and post-traumatic stress type symptoms (OR 1.95, 95% CI 1.01-3.78) at 3 months were significantly associated with having held the baby following stillbirth., Conclusions: This study is the first to assess the impact of holding the baby on partners' mental health and well-being. The prevalence of depression and anxiety were high, and the negative effects of holding the baby were significant 3 months later.
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- 2018
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17. Predicting Need for Follow-Up Due to Severe Anxiety and Depression Symptoms After Perinatal Loss.
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Hutti MH, Myers JA, Hall LA, Polivka BJ, White S, Hill J, Grisanti M, Hayden J, and Kloenne E
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- Adult, Anxiety Disorders diagnosis, Depressive Disorder diagnosis, Female, Follow-Up Studies, Grief, Humans, Infant, Newborn, Internationality, Logistic Models, Needs Assessment, Predictive Value of Tests, Pregnancy, ROC Curve, Severity of Illness Index, Surveys and Questionnaires, Abortion, Spontaneous psychology, Anxiety Disorders therapy, Depressive Disorder therapy, Mothers psychology, Perinatal Death, Stillbirth psychology
- Abstract
Objective: To evaluate the ability of the Perinatal Grief Intensity Scale (PGIS) when used within 8 weeks of perinatal loss to predict intense anxiety and severe depression symptoms in women 3 months later (Time 2 [T2])., Design: Prospective survey., Setting: Participants were recruited from hospitals in Louisville, KY and via the Internet., Participants: Women (N = 103) who experienced perinatal loss., Methods: Data were collected using the PGIS, Beck Anxiety Inventory, and the Center for Epidemiologic Studies Depression Scale. We used logistic regression, odds ratios, and receiver operating characteristic curve analysis., Results: The PGIS had 97.9% sensitivity and 29.6% specificity to predict severe depression symptoms and 95.2% sensitivity and 56.2% specificity to predict intense anxiety at T2. A baseline PGIS score greater than or equal to 3.53 predicted severe depression symptoms (odds ratio = 1.82, 95% confidence interval [CI] [1.46, 2.18], p = .014) and intense anxiety (odds ratio = 1.43, 95% CI [1.07, 1.82], p = .029) at T2. The receiver operating characteristic curves of the PGIS suggest the PGIS performs well at predicting (screening positive) for severe depression symptoms (area under the curve = 0.86, 95% CI [0.79, 0.94], p < .001) and intense anxiety (area under the curve = 0.86, 95% CI [0.78, 0.93], p < .001) after perinatal loss., Conclusion: The PGIS accurately predicted intense anxiety and severe depression symptoms 3 to 5 months after perinatal loss. This instrument may help health care providers identify women who need further mental health evaluation after perinatal loss., (Copyright © 2018 AWHONN, the Association of Women's Health, Obstetric and Neonatal Nurses. Published by Elsevier Inc. All rights reserved.)
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- 2018
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18. The meaning of rituals after a stillbirth: A qualitative study of mothers with a stillborn baby.
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Tseng YF, Hsu MT, Hsieh YT, and Cheng HR
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- Adaptation, Psychological, Female, Guilt, Hope, Humans, Infant, Pregnancy, Qualitative Research, Taboo, Taiwan, Bereavement, Ceremonial Behavior, Grief, Mothers psychology, Stillbirth psychology
- Abstract
Aims and Objectives: To explore the meaning of rituals that women and their families perform after a stillbirth., Background: A cultural taboo in Taiwan prohibits discussing death; thus, parents of stillborn babies have no established public mourning or burial ceremonies to perform for their stillborn children. Stillbirths are often treated as if they had never happened., Design: Qualitative descriptive study., Methods: In-depth interviews, which were transcribed and content analysed, were conducted with a purposive sample of 16 women discharged from two teaching hospitals in Taiwan after they had a stillbirth., Results: Families engaged in rituals for two underlying reasons: to benefit the deceased child and the immediate family. The meanings of the rituals for the child are presented through three themes: (i) sending the baby's spirit to a safe place, (ii) protecting it from suffering and (iii) preparing it for a better reincarnation. The meanings of rituals for the families are presented through four themes: (i) releasing parental guilt by doing their best for the deceased child, (ii) cutting bonds with the child, (iii) avoiding additional misfortune should they mishandle the funeral and (iv) praying for a successful subsequent pregnancy., Conclusions: Death-related rituals are highly culturally diverse. This study fills a gap about Asian cultures. Participating in rituals permits a mother to do something for her deceased child, helps relieve her guilt and lets her cope with the stillbirth. Rituals after a stillbirth can help a woman recover from grieving and allow her to hope for a successful subsequent pregnancy., Relevance to Clinical Practice: Health professionals should discuss with bereaved parents what rituals they would like to perform and then respect their decisions. A continuum of care and support that exists from the prenatal diagnosis through the stillbirth and beyond is recommended for parents and families during this difficult time., (© 2017 John Wiley & Sons Ltd.)
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- 2018
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19. Who tells a mother her baby has died? Communication and staff presence during stillbirth delivery and early infant death.
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Gold KJ, Treadwell MC, Mieras ME, and Laventhal NT
- Subjects
- Adult, Case-Control Studies, Family psychology, Female, Humans, Infant, Infant, Newborn, Longitudinal Studies, Midwifery, Pregnancy, Social Support, Surveys and Questionnaires, Young Adult, Mothers psychology, Nurse-Patient Relations, Perinatal Death, Physician-Patient Relations, Stillbirth psychology, Truth Disclosure
- Abstract
Objective: Perinatal loss (stillbirth or early infant death) is often a sudden, unexpected event for families. We evaluated who communicates the loss to the parents and who is there for support at the delivery or death., Study Design: We conducted a mail survey of 900 bereaved and 500 live-birth mothers to assess emotional, physical and reproductive health outcomes., Results: We had a 44% response rate at 9 months after birth or loss from 377 bereaved mothers and 232 with surviving infants. Bereaved women were less likely to have hospital staff or family members present at delivery. African-American (versus Caucasian) mothers were half as likely to have first heard about their stillbirth from a physician or midwife., Conclusion: This is the first large study documenting who communicates perinatal death to families and who is present for support. Hospitals should be aware that many bereaved families may lack support at critical times.
- Published
- 2017
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20. Experiences of women who participated in a beta-test for an online-streamed yoga intervention after a stillbirth.
- Author
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Huberty JL, Matthews J, Leiferman J, and Cacciatore J
- Subjects
- Adaptation, Psychological, Female, Grief, Humans, Distance Counseling methods, Mothers psychology, Stillbirth psychology, Yoga
- Abstract
Background: Little is known about how to best care for mothers after stillbirth. As such, this paper will report the satisfaction and perceptions of an online yoga intervention (12-week beta test) in women after stillbirth., Methods: Participants (n=74) had a stillbirth within the last 24-months (M time since loss 9.65 ± 6.9 months). Post-intervention satisfaction surveys and interviews and dropout surveys were conducted. Descriptive statistics were used to analyze survey responses and demographic information. A phenomenological approach was used to explore and understand unique experiences of participant interviews. Data were analyzed using NVivo10., Results: Twenty-six women (M age 33.73 ± 4.38) were completers (> 3 wks of yoga), 26 (M age 31.82 ± 4.13) were non-completers (< 3 wks of yoga), and 22 (M age 32.94 ± 2.93) dropped out. Twenty completers participated in a post-intervention satisfaction survey with 75% (n=15) reporting being very satisfied or satisfied with the online yoga intervention, found it to be very enjoyable or enjoyable, and very helpful or helpful to cope with grief. Satisfaction and perceptions of the intervention in those who completed an interview (n=12) were clustered around the following themes: benefits, barriers, dislikes, satisfaction, and preferences. Of the 22 dropouts, 14 completed a dropout survey. Women withdrew from the study due to pregnancy (n=3, 21%), burden (n=3, 21%), stress (n=2, 14%), lack of time (n=2, 14%), did not enjoy (n=1, 7%), and other (n=3, 21%)., Conclusion: Findings here may be used to help design future research.
- Published
- 2017
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21. Impact of Psychological Grief Counseling on the Severity of Post-Traumatic Stress Symptoms in Mothers after Stillbirths.
- Author
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Navidian A, Saravani Z, and Shakiba M
- Subjects
- Adult, Female, Humans, Stress Disorders, Post-Traumatic diagnosis, Stress Disorders, Post-Traumatic etiology, Young Adult, Directive Counseling, Grief, Mothers psychology, Psychotherapy, Stillbirth psychology, Stress Disorders, Post-Traumatic therapy
- Abstract
Planned support and interventions are necessary in the care and support of women who have experienced stillbirth. The present study was conducted to determine the effect of psychological grief counseling on the symptom severity of post-traumatic stress disorder (PTSD) in mothers after stillbirths. This interventional study is semi-experimental. The study was conducted on 100 women who had recently had stillbirths. Eligible samples were selected and randomly divided into the two groups of intervention and control. The data collection tool was the PPQ,
1 which was completed as a pre-test and post-test in both groups. The intervention group received four sessions of psychological grief counseling over two weeks, and the control group received only routine postnatal care. PTSD severity was evaluated in both groups at the end of the fourth week after the final session. The results showed that there was a statistically significant difference in the mean score of the severity of the PTSD symptoms in both groups after the intervention (P = 0.0001), which means that psychological grief counseling led to the reduction of PTSD severity in mothers. Given the positive impact of psychological grief counseling on reducing the severity of PTSD, integration of intensive psychological interventions in the maternity care system seems essential for faster transition of grief stages and for the prevention of severe cases of PTSD.- Published
- 2017
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22. Parents' concerns about future pregnancy after stillbirth: a qualitative study.
- Author
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Meaney S, Everard CM, Gallagher S, and O'Donoghue K
- Subjects
- Female, Humans, Interviews as Topic, Ireland, Male, Pregnancy, Qualitative Research, Emotions, Fathers psychology, Mothers psychology, Stillbirth psychology, Uncertainty
- Abstract
Objectives: As stillbirth has a devastating impact, it is imperative to understand the importance of clinical and emotional care after stillbirth and how it influences subsequent pregnancies. The aim of the study was to gain insight into the consideration and planning of a subsequent pregnancy by parents in the weeks following stillbirth., Design: A qualitative semi-structured interview format was utilized. Interpretative phenomenological analysis was employed as the analytic strategy., Participants and Setting: The recruitment strategy focused on couples whereby the parents of ten stillborn babies were contacted; however, five men declined to participate in the study. The final sample of 15 parents were all Irish: ten of whom were female and five of whom were male., Results: Findings revealed two superordinate themes relating to a subsequent pregnancy after stillbirth: aspirations for future pregnancy and expectations of future care. Parents disclosed how the prospect of a subsequent pregnancy was daunting with fears about the potential loss of another child. Despite these fears, parents' aspirations differed in the days following stillbirth; mothers wished to plan a future pregnancy while fathers were reluctant to consider any pregnancies. Parents were unsure of what to expect in terms of the level of care that would be provided to them in a subsequent pregnancy. Additional appointments at the maternity hospital were considered crucial to provide reassurance during a subsequent pregnancy., Conclusions: These findings underscore the far-reaching and contrasting effects of stillbirth on parents. These complex needs highlight the importance of the multidisciplinary team approach., (© 2016 The Authors Health Expectations Published by John Wiley & Sons Ltd.)
- Published
- 2017
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23. When a Baby Dies: A Systematic Review of Experimental Interventions for Women After Stillbirth.
- Author
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Huberty JL, Matthews J, Leiferman J, Hermer J, and Cacciatore J
- Subjects
- Female, Health Status, Humans, Pregnancy, Mothers psychology, Stillbirth psychology, Women's Health
- Abstract
Objectives: To identify and evaluate intervention studies (ie, experimental study in which the participants undergo some kind of intervention in order to evaluate its impact) that target mental and/or physical health outcomes in women who have experienced stillbirth and to provide specific recommendations for future research and intervention work., Methods: A librarian conducted an initial search using CINAHL, Cochrane Library, PsycInfo, PubMed, SocIndex, and Web of Knowledge in the spring of 2016. Reference mining provided further articles. Articles were eligible if they were: (1) published in English, (2) published in a peer-reviewed journal, (3) published in 1980 or later, (4) an intervention that evaluated (qualitative or quantitative methods) mental and/or physical health, and (5) included women who had experienced a stillbirth (in utero fetal death at ≥20 weeks of gestation)., Results: The combined searches produced 2733 articles (including duplicates). After duplicate articles were removed (n = 928), the research team screened the titles, abstracts, and full texts (when necessary) for eligibility (n = 1805). Two articles were identified that met our eligibility criteria. Conclusion for Practice: There is a lack of intervention research in women with stillbirth. It is imperative to develop and implement interventions to improve both mental and physical health in this population, especially in the interconception period (ie, stillbirth aftercare). Future intervention research is needed to determine appropriate support and efficacious delivery of support interventions, feasibility and effectiveness of physical activity interventions and complementary approaches, appropriate timing and dose of interventions, and culturally sensitive interventions appropriate for racial/ethnic minority women with stillbirth.
- Published
- 2017
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24. The loss of self: The effect of miscarriage, stillbirth, and child death on maternal self-esteem.
- Author
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Wonch Hill P, Cacciatore J, Shreffler KM, and Pritchard KM
- Subjects
- Adult, Female, Humans, Middle Aged, Mother-Child Relations, Abortion, Spontaneous psychology, Attitude to Death, Mothers psychology, Self Concept, Stillbirth psychology
- Abstract
A child's death augments how grieving parents view the world, the family, and the self. Using a representative sample of women ages 25-45 who have ever given birth, we assessed whether miscarriage, stillbirth, and child death impact self-esteem and whether this loss is moderated by maternal identity. We found that stillbirth and child death, but not miscarriage, negatively impacted self-esteem. For those who experienced a loss, the impact on self-esteem was moderated by maternal identity. Women who experienced a stillbirth were the only group who had significantly lower self-esteem after controlling for background characteristics and maternal identity variables.
- Published
- 2017
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25. Dealing with stillbirth.
- Author
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Keys L
- Subjects
- Adult, Female, Humans, Pregnancy, Young Adult, Attitude to Death, Midwifery education, Midwifery methods, Mothers psychology, Stillbirth psychology, Students, Nursing psychology
- Published
- 2017
26. Women's experiences of stillbirth in Somaliland: A phenomenological description.
- Author
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Osman HM, Egal JA, Kiruja J, Osman F, Byrskog U, and Erlandsson K
- Subjects
- Adolescent, Adult, Anxiety, Fear, Female, Humans, Islam, Parturition, Philosophy, Pregnancy, Qualitative Research, Somalia, Young Adult, Adaptation, Psychological, Developing Countries, Grief, Mothers psychology, Stillbirth psychology
- Abstract
Background: Low- and middle-income countries in Africa have the highest rates of stillbirths in the world today: as such, the stories of the grief of these women who have had a stillbirth in these settings need to be told and the silence on stillbirth needs to be broken. In an attempt to fill this gap, the aim of this study was to describe the experiences of Muslim Somali mothers who have lost their babies at birth., Method: Qualitative interviews with ten Somali women one to six months after they experienced a stillbirth. Data were analyzed using Giorgi's method of phenomenological description., Results: In the analysis, four descriptive structures emerged: "a feeling of alienation"; "altered stability in life"; "immediate pain when the sight of the dead baby turns into a precious memory"; and "a wave of despair eases". Together, these supported the essence: "Balancing feelings of anxiety, fear and worries for one's own health and life by accepting Allah's will and putting one's trust in him"., Conclusions: This study makes an important contribution to our knowledge about how stillbirth is experienced by women in Somaliland. This information can be useful when health care providers communicate the experiences of stillbirth to women of Muslim faith who have experienced an intrauterine fatal death (IUFD) resulting in a stillbirth., (Copyright © 2016 Elsevier B.V. All rights reserved.)
- Published
- 2017
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27. Rationale, study protocol and the cluster randomization process in a controlled trial including 40,000 women investigating the effects of mindfetalness.
- Author
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Rådestad I, Akselsson A, Georgsson S, Lindgren H, Pettersson K, and Steineck G
- Subjects
- Female, Humans, Pregnancy, Sweden, Fetal Monitoring methods, Fetal Movement physiology, Mothers psychology, Pregnant Women psychology, Prenatal Care methods, Stillbirth psychology
- Abstract
Background: Shortening pre-hospital delay may decrease stillbirth rates and rates of babies born with a compromised health. Stillbirth may be preceded by a decrease in fetal movements. Mindfetalness has been developed as a response to the shortcomings of kick-counting for the monitoring of fetal movements by the pregnant woman. We do not know if practicing Mindfetalness may diminish pre-hospital delay. Nor do we know if practicing Mindfetalness may increase or decrease the percentage of women seeking health care for unfounded, from a medical perspective, worry for her fetus' well-being., Methods: This article describes the rationale, study protocol and the randomization process for a planned study randomly allocating 40,000 pregnant women to receive, or not receive, proactive information about practicing Mindfetalness. The unit of randomization is 63 antenatal clinics in the Stockholm area. Midwives in the antenatal clinics randomized to Mindfetalness will verbally inform about practicing Mindfetalness, hand out brochures (printed in seven languages) and inform about a website giving information about Mindfetalness. Routine care will continue in the control clinics. All information for the analyses, including the main endpoint of an Apgar score below 7 (e.g., 0-6 with stillbirth giving a score of 0), measured five minutes after birth, will be retrieved from population-based registers., Results: We have randomized 33 antenatal clinics to Mindfetalness and 30 to routine care. In two clinics a pilot study has been performed. One of the clinics randomly allocated to inform about Mindfetalness will not do so (but will be included in the intention-to-treat analysis). In October 2016 we started to recruit women for the main study., Conclusion: The work up to now follows the outlined time schedule. We expect to present the first results concerning the effects of Mindfetalness during 2018., (Copyright © 2016 Elsevier B.V. All rights reserved.)
- Published
- 2016
- Full Text
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28. Parental loss of family members within two years of offspring birth predicts elevated absorption scores in college.
- Author
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Bahm NI, Duschinsky R, and Hesse E
- Subjects
- Abortion, Spontaneous psychology, Adolescent, Adult, Female, Humans, Male, Middle Aged, Pregnancy, Stillbirth psychology, Young Adult, Mothers psychology, Object Attachment, Parental Death psychology, Psychological Theory
- Abstract
Liotti proposed that interactions during infancy with a parent suffering unresolved loss could lead to vulnerabilities to altered states of consciousness. Hesse and van IJzendoorn provided initial support for Liotti's hypothesis, finding elevated scores on Tellegen's Absorption Scale - a normative form of dissociation - for undergraduates reporting that their parents had experienced the loss of family members within two years of their birth. Here, we replicated the above findings in a large undergraduate sample (N = 927). Additionally, we investigated mother's and father's losses separately. Perinatal losses, including miscarriage, were also considered. Participants reporting that the mother or both parents had experienced loss within two years of their birth scored significantly higher on absorption than those reporting only perinatal, only father, or no losses. While not applicable to the assessment of individuals, the brief loss questionnaire utilized here could provide a useful addition to selected large-scale studies.
- Published
- 2016
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29. Relation between quality of life and mental health in pregnant women with prior pregnancy loss.
- Author
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Abbaspoor Z, Razmju PS, and Hekmat K
- Subjects
- Adolescent, Adult, Cross-Sectional Studies, Female, Humans, Middle Aged, Pregnancy, Young Adult, Abortion, Spontaneous psychology, Mental Health, Mothers psychology, Quality of Life, Stillbirth psychology
- Abstract
Aim: This paper intends to compare quality of life (QoL) and mental health among pregnant women with and without previous pregnancy loss., Methods: An analytical cross-sectional study was conducted on 409 women between the 16th and 30th weeks of gestation in health centers in Ahvaz, Iran, including 145 women with prior pregnancy loss (group 1) and 264 women without such history (group 2). Data were collected using the QoL Short Form-36 questionnaire, the Mental Health Questionnaire 25 and a questionnaire for assessing sociodemographic variables. Data were analyzed using spss version 22. Results were analyzed using the χ
2 -test, the Student's t-test and logistic regression. P < 0.05 was defined as statistically significant., Results: There was a significant difference between the two groups in respect to QoL and mental health. Women with previous pregnancy loss had lower scores in total and in all subscales of the QoL Short Form-36 (P < 0.001) and higher scores in total and in six out of the nine subscales of the Mental Health Questionnaire 25 compared to women without these histories., Conclusion: Women with history of spontaneous abortion and stillbirth seem to have poorer QoL and mental health during their subsequent pregnancy than those without such experience., (© 2016 Japan Society of Obstetrics and Gynecology.)- Published
- 2016
- Full Text
- View/download PDF
30. Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey.
- Author
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Redshaw M, Hennegan JM, and Henderson J
- Subjects
- Adolescent, Adult, Anxiety epidemiology, Cross-Sectional Studies, Depression epidemiology, England, Family Conflict psychology, Female, Gestational Age, Health Surveys, Humans, Infant, Newborn, Pregnancy, Qualitative Research, Self Report, Stress Disorders, Post-Traumatic epidemiology, Touch, Young Adult, Mother-Child Relations psychology, Mothers psychology, Postpartum Period psychology, Stillbirth psychology
- Abstract
Objectives: To compare mental health and well-being outcomes at 3 and 9 months after the stillbirth among women who held or did not hold their baby, adjusting for demographic and clinical differences., Design: Secondary analyses of data from a postal population survey., Population: Women with a registered stillbirth in England in 2012., Methods: 468 eligible responses were compared. Differences in demographic, clinical and care characteristics between those who held or did not hold their infant were described and adjusted for in subsequent analysis. Mental health and well-being outcomes were compared, and subgroup comparisons tested hypothesised moderating factors., Outcome Measures: Self-reported depression, anxiety, post-traumatic stress disorder (PTSD) symptoms and relationship difficulties., Results: There was a 30.2% response rate to the survey. Most women saw (97%, n=434) and held (84%, n=394) their baby after stillbirth. There were some demographic differences with migrant women, women who had a multiple birth and those whose pregnancy resulted from fertility treatment being less likely to hold their baby. Women who held their stillborn baby consistently reported higher rates of mental health and relationship difficulties. After adjustment, women who held their baby had 2.12 times higher odds (95% CI 1.11 to 4.04) of reporting anxiety at 9 months and 5.33 times higher odds (95% CI 1.26 to 22.53) of reporting relationship difficulties with family. Some evidence for proposed moderators was observed with poorer mental health reported by women who had held a stillborn baby of <33 weeks' gestation, and those pregnant at outcome assessment., Conclusions: This study supports concern about the negative impact of holding the infant after stillbirth. Results are limited by the observational nature of the study, survey response rate and inability to adjust for women's baseline anxiety. Findings add important evidence to a mixed body of literature., (Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/)
- Published
- 2016
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31. Asia-Pacific women's experiences of stillbirth: A metasynthesis of qualitative literature.
- Author
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Cheer K
- Subjects
- Cultural Characteristics, Emotions, Female, Grief, Humans, Pregnancy, Qualitative Research, Social Support, Stillbirth ethnology, Attitude to Death ethnology, Attitude to Health ethnology, Mothers psychology, Stillbirth psychology
- Abstract
Literature related to Asia-Pacific women's lived experiences of stillbirth was reviewed through metasynthesis of selected empirical studies. An overarching construct of "interconnectedness" between complex experiences influenced by cultural and systemic factors became apparent. Four experiential themes emerged: "acts of accusation," "rocky relationships," "entangled emotions," and "routines of reconciliation." These were influenced by two systemic factors: "contexts of culture" and "health care matters." Women's sociocultural experiences and their engagement with health care systems influenced how they managed and reconciled their loss. This study contributes to the literature on women's experiences of stillbirth, furthering theory creation and generating future research agendas.
- Published
- 2016
- Full Text
- View/download PDF
32. THEY DON'T TELL YOU.
- Author
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Martin E
- Subjects
- Adaptation, Psychological, Female, Humans, Infant, Newborn, Stillbirth psychology, Grief, Mothers psychology, Postnatal Care
- Published
- 2016
33. Caring for families experiencing stillbirth: Evidence-based guidance for maternity care providers.
- Author
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Peters MD, Lisy K, Riitano D, Jordan Z, and Aromataris E
- Subjects
- Decision Making, Emotions, Empathy, Fathers psychology, Female, Grief, Humans, Male, Practice Guidelines as Topic, Pregnancy, Professional-Patient Relations, Qualitative Research, Social Support, Bereavement, Mothers psychology, Postnatal Care psychology, Stillbirth epidemiology, Stillbirth psychology
- Abstract
Background: Evidence-based guidance is needed to inform care provided to mothers and families who experience stillbirth. This paper focuses upon how meaningful and culturally appropriate care can be provided to mothers and families from when they are informed that their baby will be stillborn to many years after the experience. Avoidable suffering may be occurring in the clinical setting., Aims: To promote and inform meaningful and culturally appropriate evidence-informed practice amongst maternity care providers caring for mothers and families who experience stillbirth., Methods: A comprehensive systematic review was conducted which primarily synthesised relevant qualitative research studies. An expert advisory group comprised of stillbirth researchers, clinicians, and parents who have experienced stillbirth provided guidance for the review and the development of implications for practice., Findings: Grieving parents want staff to demonstrate sensitivity and empathy, validate their emotions, provide clear, information, and be aware that the timing of information may be distressing. Parents want support and guidance when making decisions about seeing and holding their baby. Sensitivity, respect, collaboration, and information are essential throughout the experience of stillbirth. Culturally appropriate care is important and may require staff to accommodate different cultural practices., Conclusion: The findings of the review and expert consensus inform the provision of meaningful and culturally appropriate care for mothers and families that have experienced stillbirth. Evidence informed implications for practice are provided to guide the actions, communication, and behaviours of maternity care providers., (Copyright © 2015 Australian College of Midwives. Published by Elsevier Ltd. All rights reserved.)
- Published
- 2015
- Full Text
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34. Anxiety and acceptability related to participation in stillbirth research.
- Author
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Bond D, Raynes-Greenow C, and Gordon A
- Subjects
- Adult, Case-Control Studies, Female, Follow-Up Studies, Health Services Research, Humans, Pregnancy, Surveys and Questionnaires, Young Adult, Anxiety, Grief, Mothers psychology, Patient Selection ethics, Stillbirth psychology
- Abstract
Background: stillbirth research is often hampered by the need to 'protect' both bereaved families as well as healthy pregnant women from distress resulting from recruitment by research staff. No studies have investigated anxiety levels of recently bereaved or healthy pregnant women participating in stillbirth research. The aim of this study was to assess anxiety levels and acceptability of women participating in a stillbirth case-control study., Method: a follow-up questionnaire was posted to all participants of the Sydney Stillbirth Study in 2012. The questionnaire assessed the anxiety level experienced by women as a result of their participation in the study. Questions related to the initial approach of the research staff; level of anxiety at time of consent and after the interview; and reasons for and satisfaction with participation. The Spielberger (STAI-6) anxiety scale and open-field responses were included., Results: 35/103 case participants and 65/192 control participants returned the completed questionnaire. The majority participated for altruistic reasons. 20/35 (cases) and 58/65 (controls) stated they disagreed/strongly disagreed that participation in the study increased their anxiety. 1 in 5 cases reported that participation in the study increased their anxiety; however this did not affect their satisfaction. Timing of interview did not affect anxiety scale responses. (F=1.2; p=0.37) 30/35 (cases) and 63/65 (controls) stated they agreed/strongly agreed that they were satisfied participating in the study., Conclusions: these findings suggest high levels of satisfaction amongst both case and control participants and no statistically significant increase in anxiety related to involvement in stillbirth research. 'Protecting' families may require further justification., (Copyright © 2015 Elsevier Ltd. All rights reserved.)
- Published
- 2015
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35. Mothers' accounts of their stillbirth experiences and of their subsequent relationships with their living infant: an interpretative phenomenological analysis.
- Author
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Üstündağ-Budak AM, Larkin M, Harris G, and Blissett J
- Subjects
- Adult, Female, Gravidity, Grief, Humans, Infant, Middle Aged, Pregnancy, Adaptation, Psychological, Mother-Child Relations psychology, Mothers psychology, Parenting psychology, Stillbirth psychology
- Abstract
Background: Due to contradictory findings regarding the effects of seeing and holding stillborn infants on women's worsening mental health symptoms, there is a lack of clear of guidance in stillbirth bereavement care. Although some current research examines this phenomenon we are still not certain of the meaning of such experiences to women and what effects there may be on her subsequent parenting. Thus the present study focuses on the meaning of the stillbirth experience to women and its influence on the subsequent pregnancy and subsequent parenting from the mothers' own experiences., Methods: A purposive sample of six women who experienced a stillbirth during their first pregnancy and who then went on to give birth to a living child after a further pregnancy, took part in email interviews, providing rich and detailed experiential narratives about both the stillbirth itself, and their relationship with their living child. An Interpretive Phenomenological Analysis was carried out in order to focus on mothers making sense of such experiences., Results: Analysis of written accounts led to the development of three overarching themes. In 'Broken Canopy', 'How This Happened' and 'Continuing Bonds', their accounts revealed an ongoing process where women accepted a new 'unsafe' view of the world, re-evaluated their view of self and others, and established relationships with both the deceased and the living infant., Conclusions: This study provided an insight into the stillbirth experience of mothers and its meaning to them with an existential focus. Typically the mother struggled with the contradictory process of accepting the existence of her deceased baby (this baby once lived) while being aware of the nonexistence (this baby). Meeting the dead baby was a crucial point at which the mother started processing her grief. The importance of individual differences in dealing with stressful situations was highlighted in terms of attachment strategies. Subsequent parenting experiences of mothers were very much influenced by their own previous experiences. Although some mothers managed to integrate this trauma into their life some remained very concerned and anxious about future and this anxiety then translated into their parenting experiences.
- Published
- 2015
- Full Text
- View/download PDF
36. Management of stillbirth delivery.
- Author
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Chakhtoura NA and Reddy UM
- Subjects
- Adult, Contraindications, Directive Counseling, Female, Gestational Age, Humans, Practice Guidelines as Topic, Pregnancy, Pregnancy Trimester, Second, Pregnancy Trimester, Third, Prostaglandins administration & dosage, Time Factors, Urinary Catheterization methods, Vaginal Birth after Cesarean, Abortion, Induced methods, Cesarean Section methods, Misoprostol administration & dosage, Mothers psychology, Oxytocics administration & dosage, Oxytocin administration & dosage, Stillbirth psychology
- Abstract
Stillbirth is a common adverse outcome of pregnancy. Management should be individualized based on gestational age, maternal condition, prior uterine surgery, availability of skilled professionals, and maternal desires. This article discusses available data on management by gestational age and prior uterine surgery. Expectant management is a viable option for women and families who desire it and do not have any contraindications. In the second trimester, misoprostol induction and dilatation and evacuation are effective in the evacuation of the uterus. In the third trimester, induction of labor with prostaglandins, mechanical dilators, and augmentation with oxytocin is appropriate. Care should be taken with women with prior cesarean delivery; prostaglandins ideally should be avoided. Delivery by cesarean section should be performed selectively, i.e., when there is a maternal indication., (Published by Elsevier Inc.)
- Published
- 2015
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- View/download PDF
37. Holding a stillborn baby: the view from a specialist perinatal bereavement service.
- Author
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Wilson PA, Boyle FM, and Ware RS
- Subjects
- Adolescent, Adult, Female, Follow-Up Studies, Humans, Male, Patient Satisfaction statistics & numerical data, Pregnancy, Prospective Studies, Self Report, Young Adult, Fathers psychology, Grief, Mothers psychology, Perinatal Care methods, Stillbirth psychology
- Abstract
Background: Stillbirth is a profoundly distressing event. Little evidence exists to guide best practice bereavement care in the perinatal setting., Aims: To document parents' experiences and outcomes in relation to seeing and holding a stillborn baby at a hospital with a specialist perinatal bereavement service., Materials and Methods: Prospective cohort study of 26 mothers and 11 fathers who experienced a stillbirth at the Mater Mothers' Hospital, Brisbane from September 2007-December 2008. Mailed self-report questionnaires were completed at 6-8 weeks and 6 and 13 months postloss. Validated measures assessed regret regarding the decision to see and hold the baby, parental grief and mental health., Results: Of 78 fetal deaths, 26 mothers and 11 fathers participated. Most (20 mothers; 9 fathers) chose to see and hold their stillborn infant. Little regret was reported, irrespective of the decision. For mothers, seeing and holding was associated with higher 'active grief' at 6-8 weeks (mean difference (MD) = 10.5; 95% CI = 3.3-17.8; P < 0.01), 6 months (MD = 8.0; 95% CI = 0.6-15.4; P = 0.03) and 13 months (MD = 9.9; 95% CI = 1.8-17.9; P = 0.01), but not with 'not coping' or 'despair', or mental health. Fathers reported poorer mental health but small numbers mean estimates are imprecise., Conclusions: More intense grief does not equate with poorer mental health for mothers who choose to see and hold a stillborn infant. Fathers' experiences warrant further study. Supported decision-making is important for bereaved parents, and rigorous evaluation of bereavement care is essential., (© 2015 The Royal Australian and New Zealand College of Obstetricians and Gynaecologists.)
- Published
- 2015
- Full Text
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38. Expecting the Unexpected: Perspectives on Stillbirth and Late Termination of Pregnancy for Fetal Anomalies.
- Author
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DiMiceli-Zsigmond M, Williams AK, and Richardson MG
- Subjects
- Abortion, Therapeutic adverse effects, Adaptation, Psychological, Adult, Bereavement, Congenital Abnormalities diagnosis, Female, Hospice Care, Humans, Labor, Induced adverse effects, Predictive Value of Tests, Pregnancy, Prenatal Diagnosis, Treatment Outcome, Abortion, Therapeutic psychology, Congenital Abnormalities psychology, Congenital Abnormalities surgery, Labor, Induced psychology, Mothers psychology, Stillbirth psychology
- Abstract
Expectant mothers and their spouses spend months preparing to eagerly welcome their much-anticipated baby into their family. Stillbirth or a diagnosis of life-limiting fetal anomalies comes as a devastating turn of events for affected women and their families. From the time of diagnosis to intervention (i.e., induction of labor for stillbirth or late termination of pregnancy for fetal anomalies), affected women often feel vulnerable and abandoned, with many experiencing long-term psychological and emotional effects. Knowledge of obstetric management, ethical and medical challenges, and psychological aspects have evolved in recent years. Familiarity with this emerging knowledge better prepares the obstetric anesthesiologist to deliver effective and empathic care. Encounters with women experiencing stillbirth and life-limiting fetal anomalies prompted this review of current evidence regarding parturient' perspectives on their care as they set out on the road to recovery.
- Published
- 2015
- Full Text
- View/download PDF
39. The Role of Healthcare Professionals in Encouraging Parents to See and Hold Their Stillborn Baby: A Meta-Synthesis of Qualitative Studies.
- Author
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Kingdon C, O'Donnell E, Givens J, and Turner M
- Subjects
- Female, Guidelines as Topic, Health Personnel, Humans, Infant, Newborn, Male, Pregnancy, Qualitative Research, Registries, Surveys and Questionnaires, Fathers psychology, Grief, Mothers psychology, Professional-Patient Relations, Stillbirth psychology
- Abstract
Background: Globally, during 2013 there were three million recorded stillbirths. Where clinical guidelines exist some recommend that professionals do not encourage parental contact. The guidance is based on quantitative evidence that seeing and holding the baby is not beneficial for everyone, but has been challenged by bereaved parents' organisations. We aim to inform future guideline development through a synthesis of qualitative studies reporting data relevant to the research question; how does the approach of healthcare professionals to seeing and holding the baby following stillbirth impact parents views and experiences?, Methods/findings: Using a predetermined search strategy of PubMed and PsychINFO we identified robust qualitative studies reporting bereaved parental views and/or experiences relating to seeing and holding their stillborn baby (final search 24 February, 2014). Eligible studies were English language, reporting parental views, with gestational loss >20 weeks. Quality was independently assessed by three authors using a validated tool. We used meta-ethnographic techniques to identify key themes and a line of argument synthesis. We included 12 papers, representing the views of 333 parents (156 mothers, 150 fathers, and 27 couples) from six countries. The final themes were: "[Still]birth: Nature of care is paramount", "Real babies: Perfect beauties, monsters and spectres", and "Opportunity of a lifetime lost." Our line-of-argument synthesis highlights the contrast between all parents need to know their baby, with the time around birth being the only time memories can be made, and the variable ability that parents have to articulate their preferences at that time. Thus, we hypothesised that how health professionals approach contact between parents and their stillborn baby demands a degree of active management. An important limitation of this paper is all included studies originated from high income, westernised countries raising questions about the findings transferability to other cultural contexts. We do not offer new evidence to answer the question "Should parents see and hold their stillborn baby?", instead our findings advance understanding of how professionals can support parents to make appropriate decisions in a novel, highly charged and dynamic situation., Conclusions: Guidelines could be more specific in their recommendations regarding parental contact. The role of healthcare professionals in encouraging parents to see and hold their stillborn baby is paramount. Parental choice not to see their baby, apprehension, or uncertainty should be continuously revisited in the hours after birth as the opportunity for contact is fleeting and final.
- Published
- 2015
- Full Text
- View/download PDF
40. IMMEDIATE MENTAL CONSEQUENCES OF THE GREAT EAST JAPAN EARTHQUAKE AND FUKUSHIMA NUCLEAR POWER PLANT ACCIDENT ON MOTHERS EXPERIENCING MISCARRIAGE, ABORTION, AND STILLBIRTH: THE FUKUSHIMA HEALTH MANAGEMENT SURVEY.
- Author
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Yoshida-Komiya H, Goto A, Yasumura S, Fujimori K, and Abe M
- Subjects
- Female, Health Surveys, Humans, Japan, Pregnancy, Stress Disorders, Post-Traumatic etiology, Abortion, Spontaneous psychology, Depression etiology, Disasters, Earthquakes, Fukushima Nuclear Accident, Mothers psychology, Stillbirth psychology
- Abstract
Background: The Fukushima Pregnancy and Birth Survey was launched to monitor pregnant mothers' health after the Great East Japan Earthquake and Fukushima Daiichi Nuclear Power Plant (NPP) accident. Several lines of investigations have indicated that a disaster impacts maternal mental health with childbirth. However, there is no research regarding mental health of mothers with fetal loss after a disaster. In this report, we focus on those women immediately after the Great East Japan Earthquake and Fukushima NPP accident and discuss their support needs., Materials and Methods: Data regarding 61 miscarriages, 5 abortions, and 22 stillbirths were analyzed among the women who were pregnant at the time of the accident in the present study. We used a two-item case-finding instrument for depression screening, and compared the childbirth group with the fetal loss groups. We also analyzed mothers' opinions written as free-form text., Results: Among the three fetal loss groups, the proportion of positive depression screens was significantly higher in the miscarriage and stillbirth group than in the childbirth group. Mothers' opinions were grouped into six categories, with pregnancy-related items being most common, especially in the miscarriage and stillbirth groups., Conclusion: A higher proportion of Fukushima mothers with fetal loss, especially those with miscarriage and stillbirth, had depressive symptoms compared to those who experienced childbirth. Health care providers need to pay close attention to this vulnerable group and respond to their concerns regarding the effects on their fertility.
- Published
- 2015
- Full Text
- View/download PDF
41. "A renewed sense of purpose": mothers' and fathers' experience of having a child following a recent stillbirth.
- Author
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Campbell-Jackson L, Bezance J, and Horsch A
- Subjects
- Adaptation, Psychological, Adult, Anxiety etiology, Father-Child Relations, Female, Grief, Guilt, Humans, Infant, Interviews as Topic, Male, Maternal-Fetal Relations psychology, Parenting psychology, Uncertainty, Fathers psychology, Live Birth psychology, Mothers psychology, Stillbirth psychology
- Abstract
Background: Most research has focused on mothers' experiences of perinatal loss itself or on the subsequent pregnancy, whereas little attention has been paid to both parents' experiences of having a child following late perinatal loss and the experience of parenting this child. The current study therefore explored mothers' and fathers' experiences of becoming a parent to a child born after a recent stillbirth, covering the period of the second pregnancy and up to two years after the birth of the next baby., Method: In depth interviews were conducted with 7 couples (14 participants). Couples were eligible if they previously had a stillbirth (after 24 weeks of gestation) and subsequently had another child (their first live baby) who was now under the age of 2 years. Couples who had more than one child after experiencing a stillbirth and those who were not fluent in English were excluded. Qualitative analysis of the interview data was conducted using Interpretive Phenomenological Analysis., Results: Five superordinate themes emerged from the data: Living with uncertainty; Coping with uncertainty; Relationship with the next child; The continuing grief process; Identity as a parent. Overall, fathers' experiences were similar to those of mothers', including high levels of anxiety and guilt during the subsequent pregnancy and after the child was born. Coping strategies to address these were identified. Differences between mothers and fathers regarding the grief process during the subsequent pregnancy and after their second child was born were identified. Despite difficulties with bonding during pregnancy and at the time when the baby was born, parents' perceptions of their relationship with their subsequent child were positive., Conclusions: Findings highlight the importance of tailoring support systems not only according to mothers' but also to fathers' needs. Parents', and particularly fathers', reported lack of opportunities for grieving as well as the high level of anxiety of both parents about their baby's wellbeing during pregnancy and after birth implies a need for structured support. Difficulties experienced in bonding with the subsequent child during pregnancy and once the child is born need to be normalised.
- Published
- 2014
- Full Text
- View/download PDF
42. Do you have any children?
- Author
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Kelly S
- Subjects
- Abortion, Spontaneous psychology, Child, Ethics, Nursing, Female, Humans, Pregnancy, Stillbirth psychology, Bereavement, Midwifery ethics, Mothers psychology, Nurse's Role, Nurse-Patient Relations ethics
- Abstract
"Do you have any children?" It is a question often posed by the expectant mother as the midwife tends to their needs. For some, this enquiry may lead to an empathetic exchange and relationship building, while other midwives may shudder when they hear this question. Sadly, professional codes and boundaries do not always assist in the guidance of this exchange. Using Gibbs' reflective cycle (1998) as a framework, this article initially explores my motivations for the selection of responses I have used as a bereaved mother and midwife. Evaluation and analysis of these different approaches has given me an insight into how successfully they preserve the rapport I try to nurture with my clients but also how they might affect me. The reflective process has enabled me to understand how best to tackle the enquiry in future to safeguard my own feelings and that of the client, coming to the conclusion that honesty and truth-telling is probably the best practice.
- Published
- 2014
43. Lullaby.
- Author
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Krager S
- Subjects
- Counseling methods, Female, Humans, Bereavement, Maternal Behavior psychology, Mothers psychology, Stillbirth psychology
- Published
- 2014
44. Mothers' experience of their contact with their stillborn infant: an interpretative phenomenological analysis.
- Author
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Ryninks K, Roberts-Collins C, McKenzie-McHarg K, and Horsch A
- Subjects
- Adult, Attitude to Death, Decision Making, Denial, Psychological, Emotions, Female, Grief, Humans, Mental Health, Patient Preference, Qualitative Research, Mother-Child Relations psychology, Mothers psychology, Stillbirth psychology
- Abstract
Background: Guidelines surrounding maternal contact with the stillborn infant have been contradictory over the past thirty years. Most studies have reported that seeing and holding the stillborn baby is associated with fewer anxiety and depressive symptoms among mothers of stillborn babies than not doing so. In contrast, others studies suggest that contact with the stillborn infant can lead to poorer maternal mental health outcomes. There is a lack of research focusing on the maternal experience of this contact. The present study aimed to investigate how mothers describe their experience of spending time with their stillborn baby and how they felt retrospectively about the decision they made to see and hold their baby or not., Method: In depth interviews were conducted with twenty-one mothers three months after stillbirth. All mothers had decided to see and the majority to hold their baby. Qualitative analysis of the interview data was performed using Interpretive Phenomenological Analysis., Results: Six superordinate themes were identified: Characteristics of Contact, Physicality; Emotional Experience; Surreal Experience; Finality; and Decision. Having contact with their stillborn infant provided mothers with time to process what had happened, to build memories, and to 'say goodbye', often sharing the experience with partners and other family members. The majority of mothers felt satisfied with their decision to spend time with their stillborn baby. Several mothers talked about their fear of seeing a damaged or dead body. Some mothers experienced strong disbelief and dissociation during the contact., Conclusions: Results indicate that preparation before contact with the baby, professional support during the contact, and professional follow-up are crucial in order to prevent the development of maternal mental health problems. Fears of seeing a damaged or dead body should be sensitively explored and ways of coping discussed. Even in cases where mothers experienced intense distress during the contact with their stillborn baby, they still described that having had this contact was important and that they had taken the right decision. This indicates a need for giving parents an informed choice by engaging in discussions about the possible benefits and risks of seeing their stillborn baby.
- Published
- 2014
- Full Text
- View/download PDF
45. Taiwanese women's process of recovery from stillbirth: a qualitative descriptive study.
- Author
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Tseng YF, Chen CH, and Wang HH
- Subjects
- Adult, Cultural Characteristics, Family Relations, Female, Humans, Pregnancy, Qualitative Research, Spouses psychology, Taiwan, Adaptation, Psychological, Grief, Mothers psychology, Stillbirth psychology
- Abstract
The purpose of this qualitative descriptive study was to portray the recovery process of Taiwanese women after stillbirth. Data were generated through individual in-depth interviews with 21 women selected using purposeful sampling. Three stages in an emotional journey of recovery were suffering from silent grief, searching for a way out, and achieving peace of mind and mental stability. Throughout their journey, the women's overarching concern was where the deceased child had gone and whether it was well. Together these stages composed A pathway to peace of mind, a mental journey on which women struggled to spiritually connect with the lost baby and finally sought a personal pathway to emotional peace. Findings can inform healthcare providers in providing culturally sensitive care for Taiwanese women to facilitate healing after a stillbirth., (© 2014 Wiley Periodicals, Inc.)
- Published
- 2014
- Full Text
- View/download PDF
46. My daughter's daughter: the tragedy of late stage miscarriage.
- Author
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Hughes T
- Subjects
- Abortion, Spontaneous nursing, Female, Humans, Nurse's Role, Pregnancy, Social Support, Turner Syndrome psychology, Abortion, Spontaneous psychology, Grief, Mother-Child Relations, Mothers psychology, Nurse-Patient Relations, Stillbirth psychology
- Abstract
This article sets out my observations of my daughter's difficult pregnancy and late-stage miscarriage. I share this information to raise awareness that the specialist support for women going through this is not always in place and doesn't fully prepare women for this experience. Even though this can be uncomfortable for maternity professionals, the care that women receive, especially during labour and birth, has a massive impact on them and their families. There are many opportunities for midwives to make a positive difference at this difficult time. My granddaughter, Jess, died at five months gestation and was later confirmed to have Turner Syndrome. Turner Syndrome is a chromosomal abnormality that only affects girls and is related to the partial or complete deletion of the X chromosome. Not all affected girls are miscarried and an estimated one in 2000 girls born in the UK has Turner Syndrome.
- Published
- 2014
47. Women's perceptions of Nurse-Midwives' caring behaviours during perinatal loss in Lilongwe, Malawi: an exploratory study.
- Author
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Simwaka AN, de Kok B, and Chilemba W
- Subjects
- Adolescent, Adult, Empathy, Female, Humans, Interviews as Topic, Malawi, Patient Satisfaction, Professional-Patient Relations, Qualitative Research, Quality of Health Care, Young Adult, Attitude of Health Personnel, Mothers psychology, Nurse Midwives psychology, Perinatal Care standards, Stillbirth psychology
- Abstract
Objective: The objective for this study was to explore women's perceptions of and satisfaction with nursing care they received following stillbirth and neonatal death in villages around a community hospital in Lilongwe., Methods: This qualitative, exploratory study through a mixture of purposive and snowball sampling, recruited 20 women who had lost a child through stillbirth or neonatal death in the past 2 years. Data were collected through semi-structured interviews in the privacy of the homes of the women. All interviews were tape-recorded and transcribed verbatim and were analyzed using thematic analysis., Results: Almost half of the respondents expressed satisfaction with the way nurses cared for them after experiencing perinatal loss, although some felt unable to comment on the quality of care received. However, several bereaved women were dissatisfied with how nurses handled their loss. They noted nurses not providing attention or explanations and some even attributed the death of their child to nurses' neglect., Conclusions: Interventions are needed which foster awareness where nurses become more sensitive to the mothers' emotional needs in an equally sensitive health care system. There is also need for more research into care provided following perinatal deaths in resource-poor settings to increase the evidence-base for informed and improved care for women who have experienced child loss.
- Published
- 2014
48. Meaning-making after neonatal death: narratives of Xhosa-speaking women in South Africa.
- Author
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Sturrock C and Louw J
- Subjects
- Adaptation, Psychological, Adult, Cultural Competency, Family psychology, Female, Humans, Infant, Newborn, Social Support, South Africa, Young Adult, Grief, Mother-Child Relations, Mothers psychology, Stillbirth psychology
- Abstract
The death of a neonate can be traumatic for mothers, resulting in profound grief which ruptures their sense of coherence and identity. A narrative approach was used to explore how six Xhosa-speaking women tell stories about the death of their baby to help them understand the significance of the loss. They struggled to establish a sense of their baby as a person to be mourned, to redefine their own identity, and to find reasons for the death. Their meaning-making was influenced by the baby's father, older women in their community, and the context of deprivation in which they live.
- Published
- 2013
- Full Text
- View/download PDF
49. Psychological effects of stillbirth.
- Author
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Cacciatore J
- Subjects
- Female, Humans, Infant, Newborn, Pregnancy, Bereavement, Fathers psychology, Mothers psychology, Social Support, Stillbirth psychology, Stress, Psychological therapy
- Abstract
Despite the high prevalence globally, the death of a baby to stillbirth is an often misunderstood and disenfranchised loss. Mothers, fathers, and families struggle to cope with the immediate and long-lasting effects of a baby's death which can last for years and sometimes decades. In addition, providers can be adversely affected by stillbirth, particularly when met with experiential avoidance and a sense of guilt and failure. There is little evidence on intervention efficacy in acute grief following perinatal death; however, there is a growing body of scientific literature on the efficacy of mindfulness-based interventions in treating anxiety, depression, and other biopsychosocial maladies as well as improving patient satisfaction with psychosocial care. This paper explores one such intervention model, ATTEND (attunement, trust, therapeutic touch, egalitarianism, nuance, and death education), as a means to improve psychosocial care during both acute and chronic states of bereavement. Whereas the death of a baby to stillbirth is the ultimate paradox for providers and patients - the convergence of life and death and the fundamental contradiction it represents - with proper care and compassion, families stand a better chance in the face of such indescribable loss and they need not suffer alone., (Published by Elsevier Ltd.)
- Published
- 2013
- Full Text
- View/download PDF
50. The tragedy of stillbirths.
- Author
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Dabrowski R
- Subjects
- Adaptation, Psychological, Cause of Death, Female, Humans, Postnatal Care methods, Pregnancy, Professional-Family Relations, Risk Factors, Fetal Death, Grief, Mothers psychology, Social Support, Stillbirth psychology
- Published
- 2013
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