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As genetic counseling services expand and reach a wider catchment of the population, there is a critical need to better understand the impact of services on a greater diversity of patients. We conducted a systematic review to evaluate genetic counseling experiences and outcomes among racial and ethnic minorities. Six databases extracted articles published from 2005 to 2019 that assessed genetic counseling participation, knowledge and awareness, motivators, barriers, perceptions, and outcomes for racial and ethnic minority populations in the United States. Genetic counseling outcomes were categorized using the Framework for Outcomes of Clinical commUnication Services. A total of 1,227 abstracts were identified, of which 23 papers met inclusion criteria. Results suggest the possibility of racial and ethnic differences in some genetic counseling experiences and outcomes but noted differences were not adequately replicated between studies. The few included studies differed greatly in aims, methods, and results, which made comparison across study designs challenging and effectively barred thematic analysis. Additional research is needed that includes more study populations and settings with patients of diverse racial and ethnic backgrounds, as well as more structured study designs that allow for elucidations of differences between White and non-White populations.

This scoping study yielded 37 empirical studies published in peer-reviewed journals addressing one of the most pressing, sensitive, and controversial issues facing child welfare policymakers and practitioners today: the dramatic overrepresentation of Indigenous families in North American public child welfare systems. These studies indicate that relative to other child welfare-involved families, Indigenous families typically experience intense social challenges in the face of few available services. They also may experience racism when accessing available county, state and provincial child welfare services that undermines trust and engagement. Some promising research suggests that partnerships between government child welfare systems and Indigenous tribes and communities may improve services to struggling families. Given the seriousness of the social justice issues, as well as the sheer volume of empirical research in child welfare, the question of how to strengthen child welfare with Indigenous families clearly is under-researched. Notable gaps in the existing literature include the voices of Indigenous children and parents involved in the child welfare system and attention to cultural variation in child protection beliefs and practices across the many Indigenous communities of North America. More work also is needed to design, implement, and evaluate culturally-based child welfare practices; and examine how to build capacity at the tribal level.

A Review of: Vakkari, Pertti. “Perceived Influence of the Use of Electronic Information Resources on Scholarly Work and Publication Productivity.” Journal of the American Society for Information Science and Technology 59.4 (Feb. 15, 2008): 602-12. Objective – To investigate the relationship between academics’ use of library electronic resources and their opinions regarding how these resources have impacted their work, and to investigate the association between this perceived influence and publication productivity during the previous two years. Design – Two specific questions added to an annual online user-survey questionnaire; additional data mined from survey Setting – Twenty-two Finnish Universities served by FinELib, the Finnish Electronic Library. Subjects – Seven hundred and sixty seven academic staff and full-time doctoral students. Methods – A questionnaire was posted in April 2007 on FinELib’s homepage and advertised on each university library’s main page, and focused on respondents’ experience in the previous two years. Participants selected answers either from a list of category choices, or, when measuring perceptions, by rating agreement with statements along a four-point scale. Controlled variables measured were the respondents’ academic position, their discipline, membership in a research group, whether their literature use was discipline-specific or interdisciplinary, and their perception of the availability online of the relevant core literature. The independent variable measured was the scholars’ perception of the impact of the use of electronic library resources on their work. The dependent variable measured was the scholars’ self-reported publications in the two years preceding the survey. Main Results – Participants reported a positive impact on the efficiency of their work, most strongly in areas of ease of access, with lesser impacts in the range of materials available to them and the ease with which they can keep up-to-date in their field. To a lesser extent, the scholars perceived a positive impact on the quality of their work. Upon analysis, the study found that access to online library resources improved scholars’ work by the interconnected mechanisms of the ease of access and breadth of resources available positively impacting their ability to keep abreast of new developments and inspiring new ideas. The study found mixed results between perceived improved access and number of publications. Although representation in national publications was not significantly impacted, there was a positive correlation with the number of international publications. There were interesting differences among disciplines and academic status, with a decreased impact among scholars in the humanities, and greater impact among lower-status or novice academics. Conclusion – There are positive perceptions of the accessibility of online information and of its impact on the quality of work, and a correlation between these perceptions and the number of international publications, thus validating the investment in providing access to digital information resources to Finnish academics.

A Review of: Hemminger, B.M., Lu, D., Vaughan, K.T.L., & Adams, S. J. (2007). Information seeking behavior of academic scientists. Journal of the American Society for Information Science & Technology, 58(14), 2205-2225. Abstract Objective – To quantify the transition to electronic communication in information-seeking behaviour of academic scientists. Design – Census survey. Setting – University of North Carolina at Chapel Hill, a large public research university. Subjects – Nine hundred two faculty, research staff, and graduate students involved in research in basic or medical science departments. Participants self-selected (26%) from 3523 recruited. The sample reflected the larger population in terms of gender, age, university position, and department. Methods – The authors developed a web-based survey and delivered it via PHP Survey Tool. They developed the questions to parallel similar earlier studies to allow for comparative analysis. The survey included 28 main questions with some questions including further follow-up questions depending on the initial answer. The instrument included three initial questions designed to reveal the participant’s place and role in the university, and further coding classified participants’ department as either basic or medical science. The questions included categorical, continuous, and open-ended types. While most questions focused on the scientists’ information seeking behaviour, the three final open-ended questions asked about their opinions of the library and ideal searching environment. Answers were transferred into a MySQL database, then imported into SAS to generate simple descriptive statistics. Main Results – Participants reported easy access to online resources, and a strong preference for conducting research online, even when access to a physical library is convenient. Infrequent visits to the library predominantly took place to utilize materials not available online, although the third most common answer for visiting was to take advantage of the library building as a quiet reading space (14%). Additional questions revealed both type and specifics of most popular sources for research, preferred journals, current awareness tools, reasons for choice of journal for publication, and use of bibliographic management tools. Conclusion – Scientists prefer online tools for conducting library research, although specific contexts influence the preference, and online articles may be printed out for reading or annotation. The participants are taking advantage of the developing online arena, utilizing databases for research, as well as literature searching, access to journals and conference proceedings, and to keep abreast of current research.

Current nursing knowledge has been generated by studies whose designs range from exploratory to experimental. Searching the literature for a study illustrating a particular design can be a perplexing process. This article explains strategies that are useful in identifying research studies according to the designs used in their methods. The suggested search strategies assist in identifying the most relevant search results and can save time. Outcomes of such a search can be instructional about the implementation of a design in its classic form or some variation. They can provide practical illustrations of the advantages and limitations of a design when applied in a particular area of interest.