1. End-of-life care for people with dementia in UK care homes.
- Author
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Reeves, Caroline, Lillie, Alison Kate, and Burrow, Simon
- Subjects
NURSING care facilities ,CINAHL database ,CAUSES of death ,DEMENTIA ,INFORMATION storage & retrieval systems ,MEDICAL databases ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL care ,MEDICAL care costs ,MEDLINE ,PATIENTS ,TERMINAL care ,SYSTEMATIC reviews ,ADVANCE directives (Medical care) ,ATTITUDES toward death ,SOCIAL support ,PATIENTS' attitudes ,AMED (Information retrieval system) - Abstract
Dementia is the leading cause of death in England and Wales. Since the publication of the Dementia Strategy in 2009, there has been an increasing emphasis on advance care planning, with the aim of empowering people with dementia to express their wishes before mental capacity is lost, promoting a 'good death' and enabling them to 'die well'. This literature review of end-of-life care for people with dementia in UK care homes shows that dementia is still not widely regarded as a terminal condition, and that residents of care homes sometimes face unnecessary admissions to hospital in the dying phase. People with dementia at the end of their lives are still not accessing appropriate and timely palliative care, and advance care planning is still not part of routine dementia care despite the evidence and recommendations. This denies them the known benefits of reduced patient and carer distress, reduced hospital admissions and inappropriate treatments, the upholding of person-centred care principles, decision-making, and ensuring that people with dementia can expect a 'good death'. [ABSTRACT FROM AUTHOR]
- Published
- 2019