1. Epilepsy Community at an Inflection Point: Translating Research Toward Curing the Epilepsies and Improving Patient Outcomes.
- Author
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Penn Miller, Ilene, Hecker, JayEtta, Fureman, Brandy, Meskis, Mary Anne, Roberds, Steve, Jones, Monika, Grabenstatter, Heidi, Vogel-Farley, Vanessa, and Lubbers, Laura
- Subjects
EPILEPSY ,TREATMENT effectiveness ,PEOPLE with epilepsy ,GENETIC testing ,INFLECTION (Grammar) ,PEDIATRIC nursing - Abstract
Keywords: advocacy; Epilepsy Research Benchmarks; translational research; patient outcomes; epilepsy; implemetation science; basic research; clinical research EN advocacy Epilepsy Research Benchmarks translational research patient outcomes epilepsy implemetation science basic research clinical research 385 388 4 12/14/21 20211001 NES 211001 The 2021 Curing the Epilepsies Conference brought together patient advocacy organizations, professional societies, researchers, and clinicians to discuss transformative priorities that could significantly advance research toward cures and improved health outcomes for people with epilepsy. Advocates - representing the lived experience of the epilepsies as patients and caregivers - spoke about the need for transformative change in the epilepsy community. [Extracted from the article]
- Published
- 2021
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