28 results on '"Thompson, Sandra C."'
Search Results
2. Patterns of Medicare-funded primary health and specialist consultations in Aboriginal and non-Aboriginal Australians in the two years before hospitalisation for ischaemic heart disease.
- Author
-
Teng TK, Katzenellenbogen JM, Geelhoed E, Gunnell AS, Knuiman M, Sanfilippo FM, Hung J, Mai Q, Vickery A, and Thompson SC
- Subjects
- Adult, Aged, Australia ethnology, Female, Humans, Male, Middle Aged, Native Hawaiian or Other Pacific Islander, United States, Health Services Accessibility statistics & numerical data, Hospitalization statistics & numerical data, Medicare, Myocardial Ischemia therapy, Primary Health Care statistics & numerical data, Referral and Consultation statistics & numerical data
- Abstract
Background: Ischaemic heart disease (IHD) remains the leading cause of morbidity and mortality for both Aboriginal and non-Aboriginal Australians. Patterns of primary and specialist care in patients leading up to the first hospitalisation for IHD potentially impact on prevention and subsequent outcomes. We investigated the differences in general practice (GP), specialist and emergency department (ED) consultations, and associated resource use in Aboriginal and non-Aboriginal people in the two years preceding hospitalisation for IHD., Methods: Linked-data were used to identify first IHD admissions for Western Australians aged 25-74 years in 2002-2007. Person-linked GP, specialist and ED consultations were obtained from the Medicare Benefits Schedule (MBS) and ED records to assess health care access and costs for the preceding 2 years., Results: Aboriginal people constituted 4.7% of 27,230 IHD patients, 3.5% of 1,348,238 MBS records, and 14% of 33,170 ED presentations. Aboriginal (vs. non-Aboriginal) people were younger (mean 50.2 vs 60.5 years), more commonly women (45.2% vs 28.4%), had more comorbidities [Charlson index≥1, 35.2% vs 26.3%], were more likely to have had GP visits (adjusted rate-ratio 1.07, 95% CI 1.02-1.12), long/prolonged (16.0% vs 11.9%) consults and non-vocationally registered GP consults (17.1% vs 3.2%), but less likely to received specialist consults (mean 1.0 vs 4.1). Mean number of urgent/semi-urgent ED presentations in the year preceding the IHD admission was higher in Aboriginal people (2.9 vs 1.9). Aboriginal people incurred 2.7% of total associated MBS expenditure (estimated at $59.7 million). Mean total cost per person was 43.3% lower in Aboriginal patients, with cost differentials being greatest in diabetic and chronic kidney disease patients., Conclusions: Despite being over-represented in urgent/semi-urgent ED presentations and admissions for IHD, Aboriginal people were under-resourced compared with the rest of the population, particularly in terms of specialist care prior to first IHD hospitalisation. The findings underscore the need for better primary and specialist shared care delivery models particularly for Aboriginal people.
- Published
- 2018
- Full Text
- View/download PDF
3. An Exploration of Underrepresentation of Aboriginal Cancer Patients Attending a Regional Radiotherapy Service in Western Australia.
- Author
-
Lyford M, Haigh MM, Baxi S, Cheetham S, Shahid S, and Thompson SC
- Subjects
- Adult, Female, Health Status Disparities, Healthcare Disparities ethnology, Humans, Interviews as Topic, Male, Middle Aged, Neoplasms psychology, Patient Acceptance of Health Care ethnology, Patient Acceptance of Health Care psychology, Qualitative Research, Western Australia, Culturally Competent Care, Health Services Accessibility, Health Services, Indigenous statistics & numerical data, Native Hawaiian or Other Pacific Islander psychology, Neoplasms ethnology, Neoplasms radiotherapy, Rural Health Services statistics & numerical data
- Abstract
Travel logistics impede Aboriginal patients' uptake of cancer treatments and is one reason for the poorer outcomes of Aboriginal people with cancer. This research examined benefits of a newly established rurally based radiotherapy unit in southwest Western Australia (WA), and included exploring the experience of Aboriginal patients and possible reasons for Aboriginal people's underrepresentation in treatment. Semi-structured in-depth interviews with 21 service providers involved in the treatment and care of people with cancer, and 3 Aboriginal patients with cancer who undertook radiotherapy at the Service were undertaken. Data were subject to thematic analysis involving immersion in the data for familiarization, inductive coding, investigator discussion and refining of emerging themes and triangulation of patient and provider interviews. Aboriginal cancer patients were positive about the treatment and support they had received, highlighting the often complex challenges faced by rural Aboriginal cancer patients in accessing and maintaining treatment. Service providers offered suggestions for small numbers presenting to the Service, including late presentation, potential perceptions of cultural insensitivity on the part of service providers, out-of-pocket costs and under-ascertainment of Aboriginal status. The Service has put in place practices and initiatives to support patient health and wellbeing, including making the facility more welcoming towards Aboriginal people and ensuring culturally appropriate care., Competing Interests: Siddhartha Baxi is Medical Director of the South West Radiation Oncology Service. While involved in the planning of this research, he was not involved in any interviews with patients or service providers (other than himself as a participant) or in the analysis of data.
- Published
- 2018
- Full Text
- View/download PDF
4. The enablers, barriers and preferences of accessing radiation therapy facilities in the rural developed world - a systematic review.
- Author
-
Thompson SC, Cheetham S, and Baxi S
- Subjects
- Australia epidemiology, Developed Countries, Humans, Neoplasms therapy, Health Care Surveys, Health Services Accessibility statistics & numerical data, Neoplasms epidemiology, Radiotherapy statistics & numerical data, Rural Health Services statistics & numerical data
- Abstract
Background: Utilisation of radiation therapy for regional Australia and around the world has been the focus of much health policy the last decade. Radiation therapy centres have been built in Australian regional and rural areas to improve access to radiation therapy and reduce the tyranny of distance as a barrier to access. After this the enablers, barriers and perceptions of patients has been evaluated to determine utilisation once centres have been built. Thisreview looks the impact of rural radiation services in the developed world, barriers and enablers of establishing a rural radiation centre, and patients' and service providers' perspectives and preferences around the uptake of rural radiation therapy., Methods: Online search of peer reviewed literature was undertaken using MeSH terms relating to the topic. Inclusion criteria were regional radiation therapy centres in developing countries, any year of publication, in English, and qualitative or quantitative methodologies. Articles were reviewed by two authors with conflicts discussed with a third., Results: Twenty three studies addressed the theme directly. Distance barriers have been overcome by building regional centres and health economic burden was lower for government service providers with this strategy. However distance still plays an important role in influencing uptake of radiation therapy. Cultural expectations, influence of the family doctor and perception of care was influential. Carer support, duration of displacement from home, financial impact of the required care and seasonal weather were practical factors on a patient's decision., Conclusions: Regional radiation therapy centres have improved access to radiation therapy in developing countries. However the complex nuances between socio-economic, cultural and health system factors that influence regional patient's decision making bears further consideration, as distance is not the only issue.
- Published
- 2017
- Full Text
- View/download PDF
5. Wide variation in sexually transmitted infection testing and counselling at Aboriginal primary health care centres in Australia: analysis of longitudinal continuous quality improvement data.
- Author
-
Nattabi B, Matthews V, Bailie J, Rumbold A, Scrimgeour D, Schierhout G, Ward J, Guy R, Kaldor J, Thompson SC, and Bailie R
- Subjects
- Adolescent, Adult, Australia, Chronic Disease, Counseling, Female, Health Education statistics & numerical data, Health Knowledge, Attitudes, Practice, Health Surveys, Humans, Longitudinal Studies, Male, Middle Aged, Patient Acceptance of Health Care statistics & numerical data, Sexually Transmitted Diseases epidemiology, Sexually Transmitted Diseases prevention & control, Delivery of Health Care statistics & numerical data, Health Services Accessibility statistics & numerical data, Health Services, Indigenous standards, Native Hawaiian or Other Pacific Islander, Primary Health Care standards, Quality Improvement, Sexually Transmitted Diseases diagnosis
- Abstract
Background: Chlamydia, gonorrhoea and syphilis are readily treatable sexually transmitted infections (STIs) which continue to occur at high rates in Australia, particularly among Aboriginal Australians. This study aimed to: explore the extent of variation in delivery of recommended STI screening investigations and counselling within Aboriginal primary health care (PHC) centres; identify the factors associated with variation in screening practices; and determine if provision of STI testing and counselling increased with participation in continuous quality improvement (CQI)., Methods: Preventive health audits (n = 16,086) were conducted at 137 Aboriginal PHC centres participating in the Audit and Best Practice for Chronic Disease Program, 2005-2014. STI testing and counselling data were analysed to determine levels of variation in chlamydia, syphilis and gonorrhoea testing and sexual health discussions. Multilevel logistic regression was used to determine factors associated with higher levels of STI-related service delivery and to quantify variation attributable to health centre and client characteristics., Results: Significant variation in STI testing and counselling exists among Aboriginal PHC centres with health centre factors accounting for 43% of variation between health centres and jurisdictions. Health centre factors independently associated with higher levels of STI testing and counselling included provision of an adult health check (odds ratio (OR) 3.40; 95% Confidence Interval (CI) 3.07-3.77) and having conducted 1-2 cycles of CQI (OR 1.34; 95% CI 1.16-1.55). Client factors associated with higher levels of STI testing and counselling were being female (OR 1.45; 95% CI 1.33-1.57), Aboriginal (OR 1.46; 95% CI 1.15-1.84) and aged 20-24 years (OR 3.84; 95% CI 3.07-4.80). For females, having a Pap smear test was also associated with STI testing and counselling (OR 4.39; 95% CI 3.84-5.03). There was no clear association between CQI experience beyond two CQI cycles and higher levels of documented delivery of STI testing and counselling services., Conclusions: A number of Aboriginal PHC centres are achieving high rates of STI testing and counselling, while a significant number are not. STI-related service delivery could be substantially improved through focussed efforts to support health centres with relatively lower documented evidence of adherence to best practice guidelines.
- Published
- 2017
- Full Text
- View/download PDF
6. Factors contributing to delayed diagnosis of cancer among Aboriginal people in Australia: a qualitative study.
- Author
-
Shahid S, Teng TH, Bessarab D, Aoun S, Baxi S, and Thompson SC
- Subjects
- Adult, Delayed Diagnosis mortality, Female, Health Knowledge, Attitudes, Practice, Humans, Male, Neoplasms mortality, Qualitative Research, Referral and Consultation statistics & numerical data, Western Australia epidemiology, Western Australia ethnology, Delayed Diagnosis statistics & numerical data, Early Detection of Cancer standards, Health Services Accessibility standards, Health Services, Indigenous standards, Native Hawaiian or Other Pacific Islander, Neoplasms diagnosis
- Abstract
Background/objectives: Delayed presentation of symptomatic cancer is associated with poorer survival. Aboriginal patients with cancer have higher rates of distant metastases at diagnosis compared with non-Aboriginal Australians. This paper examined factors contributing to delayed diagnosis of cancer among Aboriginal Australians from patient and service providers' perspectives., Methods: In-depth, open-ended interviews were conducted in two stages (2006-2007 and 2011). Inductive thematic analysis was assisted by use of NVivo looking around delays in presentation, diagnosis and referral for cancer., Participants: Aboriginal patients with cancer/family members (n=30) and health service providers (n=62) were recruited from metropolitan Perth and six rural/remote regions of Western Australia., Results: Three broad themes of factors were identified: (1) Contextual factors such as intergenerational impact of colonisation and racism and socioeconomic deprivation have negatively impacted on Aboriginal Australians' trust of the healthcare professionals; (2) health service-related factors included low accessibility to health services, long waiting periods, inadequate numbers of Aboriginal professionals and high staff turnover; (3) patient appraisal of symptoms and decision-making, fear of cancer and denial of symptoms were key reasons patients procrastinated in seeking help. Elements of shame, embarrassment, shyness of seeing the doctor, psychological 'fear of the whole health system', attachment to the land and 'fear of leaving home' for cancer treatment in metropolitan cities were other deterrents for Aboriginal people. Manifestation of masculinity and the belief that 'health is women's domain' emerged as a reason why Aboriginal men were reluctant to receive health checks., Conclusions: Solutions to improved Aboriginal cancer outcomes include focusing on the primary care sector encouraging general practitioners to be proactive to suspicion of symptoms with appropriate investigations to facilitate earlier diagnosis and the need to improve Aboriginal health literacy regarding cancer. Access to health services remains a critical problem affecting timely diagnosis., (Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/)
- Published
- 2016
- Full Text
- View/download PDF
7. Addressing unresolved tensions to build effective partnerships: lessons from an Aboriginal cancer support network.
- Author
-
Cuesta-Briand B, Bessarab D, Shahid S, and Thompson SC
- Subjects
- Adult, Australia, Female, Humans, Male, Neoplasms therapy, Qualitative Research, Conflict, Psychological, Health Personnel psychology, Health Services Accessibility, Health Services, Indigenous statistics & numerical data, Native Hawaiian or Other Pacific Islander psychology, Neoplasms psychology, Self-Help Groups statistics & numerical data, Social Support
- Abstract
Background: Cancer is the second leading cause of death among Aboriginal and Torres Strait Islander people and their survival once diagnosed with cancer is lower compared to that of other Australians. This highlights the need to improve cancer-related health services for Indigenous Australians although how to achieve this remains unclear. Cancer support groups provide emotional and practical support, foster a sense of community and belonging and can improve health outcomes. However, despite evidence on their positive effects on people affected by cancer, there is scarce information on the function and effectiveness of Indigenous-specific cancer peer-support programs in Australia. Using qualitative data from an evaluation study, this paper explores different understandings of how a cancer support group should operate and the impact of unresolved tensions following the establishment of an Indigenous women cancer peer-support network in a regional town in Western Australia., Methods: Data were collected through semi-structured interviews with 24 participants purposively selected among Indigenous and mainstream healthcare service providers, and group members and clients. Interviews were audiotaped and transcribed verbatim. Transcripts were subjected to inductive thematic analysis. NVivo was used to manage the data and assist in the data analysis. Rigour was enhanced through team member checking, coding validation and peer debriefing., Results: Flexibility and a resistance to formal structuring were at the core of how the group operated. It was acknowledged that the network partly owned its success to its fluid approach; however, most mainstream healthcare service providers believed that a more structured approach was needed for the group to be sustainable. This was seen as acting in opposition to the flexible, organic approach considered necessary to adequately respond to Indigenous women's needs. At the core of these tensions were opposing perspectives on the constructs of 'structure' and 'flexibility' between Indigenous and non-Indigenous participants., Conclusions: Despite the group's achievements, unresolved tensions between opposing perspectives on how a support group should operate negatively impacted on the working relationship between the group and mainstream service providers, and posed a threat to the Network's sustainability. Our results support the need to acknowledge and address different perspectives and world views in order to build strong, effective partnerships between service providers and Indigenous communities.
- Published
- 2015
- Full Text
- View/download PDF
8. Transfers to metropolitan hospitals and coronary angiography for rural Aboriginal and non-Aboriginal patients with acute ischaemic heart disease in Western Australia.
- Author
-
Lopez D, Katzenellenbogen JM, Sanfilippo FM, Woods JA, Hobbs MS, Knuiman MW, Briffa TG, Thompson PL, and Thompson SC
- Subjects
- Adult, Aged, Aged, 80 and over, Chi-Square Distribution, Comorbidity, Emergency Service, Hospital, Female, Hospitals, Rural, Hospitals, Urban, Humans, Insurance Coverage, Insurance, Health, Male, Middle Aged, Multivariate Analysis, Odds Ratio, Predictive Value of Tests, Time Factors, Western Australia epidemiology, Coronary Angiography, Health Services Accessibility, Health Services, Indigenous, Healthcare Disparities ethnology, Myocardial Ischemia diagnostic imaging, Myocardial Ischemia ethnology, Native Hawaiian or Other Pacific Islander, Patient Transfer, Rural Health Services
- Abstract
Background: Aboriginal people have a disproportionately higher incidence rate of ischaemic heart disease (IHD) than non-Aboriginal people. The findings on Aboriginal disparity in receiving coronary artery procedures are inconclusive. We describe the profile and transfers of IHD patients admitted to rural hospitals as emergency admissions and investigate determinants of transfers and coronary angiography., Methods: Person-linked hospital and mortality records were used to identify 28-day survivors of IHD events commencing at rural hospitals in Western Australia. Outcome measures were receipt of coronary angiography, transfer to a metropolitan hospital, and coronary angiography if transferred to a metropolitan hospital., Results: Compared to non-Aboriginal patients, Aboriginal patients with IHD were more likely to be younger, have more co-morbidities, reside remotely, but less likely to have private insurance. After adjusting for demographic characteristics, Aboriginal people with MI were less likely to be transferred to a metropolitan hospital, and if transferred were less likely to receive coronary angiography. These disparities were not significant after adjusting for comorbidities and private insurance. In the full multivariate model age, comorbidities and private insurance were adversely associated with transfer to a metropolitan hospital and coronary angiography., Conclusion: Disparity in receiving coronary angiography following emergency admission for IHD to rural hospitals is mediated through the lower likelihood of being transferred to metropolitan hospitals where this procedure is performed. The likelihood of a transfer is increased if the patient has private insurance, however, rural Aboriginal people have a lower rate of private insurance than their non-Aboriginal counterparts. Health practitioners and policy makers can continue to claim that they treat Aboriginal and non-Aboriginal people alike based upon clinical indications, as private insurance is acting as a filter to reduce rural residents accessing interventional cardiology. If health practitioners and policy makers are truly committed to reducing health disparities, they must reflect upon the broader systems in which disparity is perpetuated and work towards a systems improvement.
- Published
- 2014
- Full Text
- View/download PDF
9. Overcoming language barriers in community-based research with refugee and migrant populations: options for using bilingual workers.
- Author
-
Lee SK, Sulaiman-Hill CR, and Thompson SC
- Subjects
- Adolescent, Adult, Aged, Cultural Competency, Ethnicity, Female, Focus Groups, Humans, Middle Aged, Minority Groups, Qualitative Research, Research Personnel, Residence Characteristics, Western Australia, Young Adult, Communication Barriers, Community-Based Participatory Research, Health Services Accessibility, Multilingualism, Refugees, Transients and Migrants, Translating
- Abstract
Background: Although the challenges of working with culturally and linguistically diverse groups can lead to the exclusion of some communities from research studies, cost effective strategies to encourage access and promote cross-cultural linkages between researchers and ethnic minority participants are essential to ensure their views are heard and their health needs identified. Using bilingual research assistants is one means to achieve this. In a study exploring alcohol and other drug service use by migrant women in Western Australia, bilingual workers were used to assist with participant recruitment and administration of a survey to 268 women who spoke more than 40 different languages., Discussion: Professional interpreters, bilingual students, bilingual overseas-trained health professionals and community sector bilingual workers were used throughout the research project. For the initial qualitative phase, professional interpreters were used to conduct interviews and focus group sessions, however scheduling conflicts, inflexibility, their inability to help with recruitment and the expense prompted exploration of alternative options for interview interpreting in the quantitative component of the study. Bilingual mature-age students on work placement and overseas-trained health professionals provided good entry into their different community networks and successfully recruited and interviewed participants, often in languages with limited interpreter access. Although both groups required training and supervision, overseas-trained health professionals often had existing research skills, as well as understanding of key issues such as confidentiality and referral processes. Strategies to minimise social desirability bias and the need to set boundaries were discussed during regular debriefing sessions. Having a number of workers recruiting participants also helped minimise the potential for selection bias. The practical and educational experience gained by the bilingual workers was regarded as capacity building and a potentially valuable community resource for future health research projects., Summary: The use of bilingual workers was key to the feasibility and success of the project. The most successful outcomes occurred with students and overseas-trained health professionals who had good community networks for recruitment and the required linguistic skills. By describing the advantages and disadvantages encountered when working with bilingual workers, we offer practical insights to assist other researchers working with linguistically diverse groups.
- Published
- 2014
- Full Text
- View/download PDF
10. Closing the (service) gap: exploring partnerships between Aboriginal and mainstream health services.
- Author
-
Taylor KP and Thompson SC
- Subjects
- Humans, Cooperative Behavior, Health Services Accessibility, Healthcare Disparities, Native Hawaiian or Other Pacific Islander
- Abstract
Background: Although effective partnerships between Aboriginal and mainstream health services are critical to improve Aboriginal health outcomes, many factors can cause these partnerships to be tenuous and unproductive. Understanding the elements of best practice for successful partnerships is essential., Methods: A literature review was conducted in 2009 using keyword searches of electronic databases. Sourced literature was assessed for relevance regarding the benefits, challenges, lessons learnt and factors contributing to successful Aboriginal and mainstream partnerships. Key themes were collated., Results: Although there is much literature regarding general partnerships generally, few specifically examine Aboriginal and mainstream health service partnerships. Twenty-four sources were reviewed in detail. Benefits include broadening service capacity and improving the cultural security of healthcare. Challenges include the legacy of Australia's colonial history, different approaches to servicing clients and resource limitations. Recommendations for success include workshopping tensions early, building trust and leadership., Conclusion: Although successful partnerships are crucial to optimise Aboriginal health outcomes, failed collaborations risk inflaming sensitive Aboriginal-non-Aboriginal relationships. Factors supporting successful partnerships remind us to develop genuine, trusting relationships that are tangibly linked to the Aboriginal community. Failure to invest in this relational process and push forward with 'business as usual' can ultimately have negative ramifications on client outcomes.
- Published
- 2011
- Full Text
- View/download PDF
11. 'Nowhere to room … nobody told them': logistical and cultural impediments to Aboriginal peoples' participation in cancer treatment.
- Author
-
Shahid S, Finn L, Bessarab D, and Thompson SC
- Subjects
- Australia epidemiology, Cultural Characteristics, Humans, Medically Underserved Area, Neoplasms mortality, Neoplasms therapy, Rural Health, Health Services Accessibility, Healthcare Disparities ethnology, Native Hawaiian or Other Pacific Islander, Neoplasms ethnology
- Abstract
Background: Cancer mortality among Indigenous Australians is higher compared to the non-Indigenous population and attributed to poor access to cancer detection, screening, treatment and support services. A large proportion of Indigenous Australians live in rural and remote areas which makes access to cancer treatment services more challenging. Factors, such as transport, accommodation, poor socio-economic status and cultural appropriateness of services also negatively affect health service access and, in turn, lead to poor cancer outcomes., Design, Setting and Participants: Qualitative research with 30 in-depth interviews was conducted with Aboriginal people affected by cancer from across WA, using a variety of recruitment approaches., Results: The infrastructure around the whole-of-treatment experience affected the decision-making and experiences of Aboriginal patients, particularly affecting rural residents. Issues raised included transport and accommodation problems, travel and service expenses, displacement from family, concerns about the hospital environment and lack of appropriate support persons. These factors are compounded by a range of disadvantages already experienced by Aboriginal Australians and are vital factors affecting treatment decision-making and access., Conclusion: To improve cancer outcomes for Aboriginal people, logistical, infrastructure and cultural safety issues must be addressed. One way of ensuring this could be by dedicated support to better coordinate cancer diagnostic and treatment services with primary healthcare services.
- Published
- 2011
- Full Text
- View/download PDF
12. 'I don't know why they don't come': barriers to participation in cardiac rehabilitation.
- Author
-
DiGiacomo ML, Thompson SC, Smith JS, Taylor KP, Dimer LA, Ali MA, Wood MM, Leahy TG, and Davidson PM
- Subjects
- Attitude of Health Personnel, Cultural Competency education, Health Promotion methods, Health Promotion standards, Health Status Disparities, Heart Diseases psychology, Humans, Patient Acceptance of Health Care psychology, Western Australia, Health Services Accessibility standards, Health Services, Indigenous standards, Heart Diseases ethnology, Heart Diseases rehabilitation, Native Hawaiian or Other Pacific Islander psychology, Patient Acceptance of Health Care ethnology
- Abstract
Objectives: To describe health professionals' perceptions of Aboriginal people's access to cardiac rehabilitation (CR) services and the role of institutional barriers in implementing the National Health and Medical Research Council (NHMRC) guidelines Strengthening Cardiac Rehabilitation and Secondary Prevention for Aboriginal and Torres Strait Islander peoples., Design: Qualitative study., Setting: Metropolitan and rural tertiary and community-based public CR services and Aboriginal health services in WA., Participants: Thirty-eight health professionals working in the CR setting., Method: Semistructured interviews were undertaken with 28 health professionals at public CR services and 10 health professionals from Aboriginal Medical Services in WA. The participants represented 17 services (10 rural, 7 metropolitan) listed in the WA Directory of CR services., Results: Emergent themes included (1) a lack of awareness of Aboriginal CR patients' needs; (2) needs related to cultural awareness training for health professionals; and (3) Aboriginal health staff facilitate access for Aboriginal patients., Conclusions: Understanding the institutional barriers to Aboriginal participation in CR is necessary to recommend viable solutions. Promoting cultural awareness training, recruiting Aboriginal health workers and monitoring participation rates are important in improving health outcomes.
- Published
- 2010
- Full Text
- View/download PDF
13. Health information system linkage and coordination are critical for increasing access to secondary prevention in Aboriginal health: a qualitative study.
- Author
-
Digiacomo M, Davidson PM, Taylor KP, Smith JS, Dimer L, Ali M, Wood MM, Leahy TG, and Thompson SC
- Subjects
- Australia, Communication, Continuity of Patient Care organization & administration, Cultural Competency, Humans, Information Storage and Retrieval methods, Interprofessional Relations, Referral and Consultation organization & administration, Cardiac Rehabilitation, Health Care Sector organization & administration, Health Services Accessibility organization & administration, Information Systems organization & administration, Native Hawaiian or Other Pacific Islander
- Abstract
Background: Aboriginal Australians have low rates of participation in cardiac rehabilitation (CR), despite having high rates of cardiovascular disease. Barriers to CR participation reflect multiple patient-related issues. However, an examination of the broader context of health service delivery design and implementation is needed., Aims: To identify health professionals' perspectives of systems related barriers to implementation of the National Health and Medical Research Council (NHMRC) guidelines Strengthening Cardiac Rehabilitation and Secondary Prevention for Aboriginal and Torres Strait Islander Peoples., Method: Semi-structured interviews were conducted with health professionals involved in CR within mainstream and Aboriginal Community Controlled Health Services in Western Australia (WA). Thirty-eight health professionals from 17 services (ten rural, seven metropolitan) listed in the WA Directory of CR services and seven Aboriginal Medical Services in WA were interviewed., Results: Respondents reported barriers encountered in health information management and the impact of access to CR services for Aboriginal people. Crucial issues identified by participants were: poor communication across the health care sector and between providers, inconsistent and insufficient data collection processes (particularly relating to Aboriginal ethnicity identification), and challenges resulting from multiple clinical information systems and incompatible technologies., Conclusions: This study has demonstrated that inadequate information systems and communication strategies, particularly those representing the interface between primary and secondary care, contribute to the low participation rates of Aboriginal Australians in CR. Although these challenges are shared by non-Aboriginal Australians, the needs are greater for Aboriginal Australians and innovative solutions are required.
- Published
- 2010
14. Understanding, beliefs and perspectives of Aboriginal people in Western Australia about cancer and its impact on access to cancer services.
- Author
-
Shahid S, Finn L, Bessarab D, and Thompson SC
- Subjects
- Adult, Female, Humans, Interviews as Topic, Male, Mass Screening, Middle Aged, Native Hawaiian or Other Pacific Islander, Western Australia, Health Knowledge, Attitudes, Practice, Health Services Accessibility, Neoplasms
- Abstract
Background: Despite a lower overall incidence, Aboriginal Australians experience poorer outcomes from cancer compared with the non-Aboriginal population as manifested by higher mortality and lower 5-year survival rates. Lower participation in screening, later diagnosis of cancer, poor continuity of care, and poorer compliance with treatment are known factors contributing to this poor outcome. Nevertheless, many deficits remain in understanding the underlying reasons, with the recommendation of further exploration of Aboriginal beliefs and perceptions of cancer to help understand their care-seeking behavior. This could assist with planning and delivery of more effective interventions and better services for the Aboriginal population. This research explored Western Australian (WA) Aboriginal peoples' perceptions, beliefs and understanding of cancer., Methods: A total of 37 Aboriginal people from various geographical areas within WA with a direct or indirect experience of cancer were interviewed between March 2006 and September 2007. Interviews were audio-recorded, transcribed verbatim and coded independently by two researchers. NVivo7 software was used to assist data management and analysis. A social constructionist framework provided a theoretical basis for analysis. Interpretation occurred within the research team with member checking and the involvement of an Aboriginal Reference Group assisting with ensuring validity and reliability., Results: Outcomes indicated that misunderstanding, fear of death, fatalism, shame, preference for traditional healing, beliefs such as cancer is contagious and other spiritual issues affected their decisions around accessing services. These findings provide important information for health providers who are involved in cancer-related service delivery., Conclusion: These underlying beliefs must be specifically addressed to develop appropriate educational, screening and treatment approaches including models of care and support that facilitate better engagement of Indigenous people. Models of care and support that are more culturally-friendly, where health professionals take account of both Indigenous and Western beliefs about health and the relationship between these, and which engage and include Indigenous people need to be developed. Cultural security, removing system barriers and technical/scientific excellence are all important to ensure Indigenous people utilise healthcare to realise the benefits of modern cancer treatments.
- Published
- 2009
- Full Text
- View/download PDF
15. Barriers to participation of Aboriginal people in cancer care: communication in the hospital setting.
- Author
-
Shahid S, Finn LD, and Thompson SC
- Subjects
- Adult, Cohort Studies, Communication Barriers, Family, Female, Humans, Interviews as Topic, Male, Middle Aged, Neoplasms therapy, Prejudice, Rural Population, Urban Population, Western Australia, Health Services Accessibility, Native Hawaiian or Other Pacific Islander, Neoplasms ethnology, Patient Acceptance of Health Care ethnology, Professional-Patient Relations
- Abstract
Objective: To report Aboriginal patients' views about effective communication between Aboriginal people and health service providers in Western Australian hospital settings., Design, Setting and Participants: Qualitative study involving indepth interviews between 1 March 2006 and 30 September 2007 with 30 Aboriginal people affected by cancer from across WA., Main Outcome Measures: Aboriginal patients' views about the quality of communication within the hospitals, factors impairing communication and suggestions for improvement., Results: Factors crucial to effective patient-provider communication such as language, shared understanding, knowledge and use of medical terminology require attention. Additionally, communication between Aboriginal people and health care professionals needs to be understood within a broader sociocultural and political context. Fear of the medical system and of being disempowered; mistrust; collective memories of the experience of colonisation and its aftermath; lack of understanding of Aboriginal customs, values, lifestyle and the importance of family and land; and experiences of racism were key issues impairing communication. Health service providers' inability to interpret non-verbal communication and the symbolism of hospital environments also posed problems., Conclusion: Key areas for the attention of health service providers in communicating and caring for Aboriginal people in the hospital setting include culturally sensitive and empathetic personal contact, acknowledgement and respect for Aboriginal family structures, culture and life circumstances, an understanding of the significant role of non-verbal communication, and the importance of history, land and community. Employing more Aboriginal health workers in hospitals, and allowing Aboriginal people to participate at a decision-making level in hospitals is likely to improve Aboriginal people's access to cancer treatment, and would be important symbols of progress in this area.
- Published
- 2009
- Full Text
- View/download PDF
16. Police, permits and politics: Navigating life on Australia's state borders during the COVID‐19 pandemic.
- Author
-
McCann, Lily, Thompson, Sandra C., Rolf, Floraidh, and Podubinski, Tegan
- Subjects
- *
RESEARCH , *WELL-being , *INTERNATIONAL relations , *HEALTH services accessibility , *PRACTICAL politics , *TRAVEL , *GOVERNMENT regulation , *RESEARCH methodology , *INTERVIEWING , *ACTIVITIES of daily living , *EXPERIENCE , *QUALITATIVE research , *GOVERNMENT policy , *EMPLOYMENT , *STAY-at-home orders , *EMOTIONS , *POLICE , *COVID-19 pandemic - Abstract
Objective: To explore the ways in which the Coronavirus disease‐19 (COVID‐19) pandemic has affected Australians who live and travel in cross‐border regions in the course of their daily lives. Design: Semi‐structured interviews were undertaken with participants by telephone. The analysis utilised qualitative exploratory methods and provided rich data through immersive and reflexive analysis. Setting: Interviews of people across Australia. Participants: Of 90 people interviewed in relation to their experiences of the COVID‐19 pandemic, 13 described challenges related to border crossing that impacted their usual work and personal life. Main outcome Measure: Description of challenges faced by Australians living close to state borders due to internal border closures in the early period of COVID‐19 (2020). Results: Policy changes surrounding border closures negatively impacted people's wellbeing in Australia with three key interconnected themes identified for Australians living in cross‐border regions. First, border closures presented participants of these communities with physical barriers which reduced access to healthcare and employment. Second, participants reported how restrictions on travel to neighboring states and territories impacted their mental wellbeing. Finally, many Australians in cross‐border regions faced financial struggles exacerbated by border closures. Conclusion: Normally, interstate borders are largely invisible with formalities relevant to few circumstances. Since the emergence of the COVID‐19 pandemic, Australians who used to regularly cross these borders in the course of their daily activities were no longer able or willing to do so due to the uncertain circumstances surrounding border policy. This study elaborates on the impact of these closures on people's physical, financial, and emotional state. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
17. "You felt like a prisoner in your own self, trapped": the experiences of Aboriginal people with acquired communication disorders.
- Author
-
Armstrong, Elizabeth, Coffin, Juli, Hersh, Deborah, Katzenellenbogen, Judith M., Thompson, Sandra C., Ciccone, Natalie, Flicker, Leon, Woods, Deborah, Hayward, Colleen, Dowell, Catelyn, and McAllister, Meaghan
- Subjects
CULTURAL identity ,HEALTH services accessibility ,HUMAN research subjects ,CAREGIVERS ,RESEARCH methodology ,MEDICAL care ,INTERVIEWING ,TRANSCULTURAL medical care ,ETHNOPSYCHOLOGY ,COMMUNICATIVE disorders ,PATIENTS' attitudes ,CONCEPTUAL structures ,INFORMED consent (Medical law) ,APHASIA ,SOCIOECONOMIC factors ,COMMUNICATION ,RESEARCH funding ,THEMATIC analysis ,REHABILITATION for brain injury patients ,COMORBIDITY ,ADULTS - Abstract
Aboriginal Australians are under-represented in brain injury rehabilitation services despite a high incidence of both stroke and traumatic brain injury in this population. This study aimed to explore the experiences of Aboriginal Australian adults with acquired communication disorders (ACDs) after brain injury for the first time to inform the development of accessible and culturally secure service delivery models. Semi-structured interviews were undertaken with 32 Aboriginal people who had experienced a brain injury resulting in ACDs (aged 35–79 years) and 18 family members/carers across Western Australia. Thematic analysis identified common themes across participants. Overall themes related to communication (both related to the communication disorder and general healthcare interactions), health and social contexts, recovery, and support, being away from family and country, knowledge and beliefs about brain injury, and follow-up. An increase in healthcare staff's appreciation of the health and social contexts of Aboriginal people after brain injury is needed in order to improve communication with Aboriginal patients and the ability to offer accessible rehabilitation services. Ongoing support is required, with cultural identity noted as key to ensuring cultural security and ultimately recovery. Involvement of family and other Aboriginal people in recovery processes, as well as access to relevant Aboriginal languages and proximity to ancestral lands is central. Acknowledgment of cultural identity and strengths through involvement of extended family and Aboriginal Hospital Liaison Officers, access to language and proximity to country all central to rehabilitation planning for Aboriginal people after brain injury. Cultural security training for rehabilitation staff is recommended focusing on clear two-way communication skills to make medical information accessible for Aboriginal patients and to listen to patients' concerns in a way that respects cultural context. Information regarding practical support and implications for ongoing management of life after brain injury (for the person and their family) is essential, and should supplement the medical-related information provided. Follow-up post discharge from hospital best facilitated through establishing contact with local Aboriginal community through Aboriginal community controlled health services, community elders, and Aboriginal health workers across organisations. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
18. Up close and real: living and learning in a remote community builds students' cultural capabilities and understanding of health disparities.
- Author
-
Thackrah, Rosalie D., Hall, Maeva, Fitzgerald, Kathryn, and Thompson, Sandra C.
- Subjects
ALLIED health personnel ,BEHAVIOR modification ,CULTURE ,EMPLOYMENT ,HEALTH behavior ,HEALTH services accessibility ,HEALTH status indicators ,INTERNSHIP programs ,INTERVIEWING ,LEARNING ,LONGITUDINAL method ,RURAL conditions ,SOCIAL isolation ,STUDENTS ,HEALTH of indigenous peoples ,SOCIOECONOMIC factors ,THEMATIC analysis ,HEALTH equity ,INDEPENDENT living - Abstract
Background: Rural and remote communities in Australia fare worse than their urban counterparts across major health indicators, with geographic isolation, restricted accessibility to health services, socioeconomic disadvantage, lifestyle and behavioural factors all implicated in poorer health outcomes. Health disparities, which are especially stark in Australian Aboriginal and Torres Strait Islander populations, underscore the urgent need to build a culturally responsive and respectful rural health workforce. Allied health student placements in settings with high Aboriginal populations provide opportunities for the development of cultural capabilities and observation of the causes and impact of health disparities. A service learning pedagogy underpinned by strong campus-community partnerships can contribute to effective situated learning. Positive placement experiences can also encourage future rural practice alleviating workforce shortages. This article reports on the first stage of a proposed longitudinal investigation into the impact of remote placements on clinical practice and employment choices. Methods: In-depth interviews were undertaken with health science students and recent graduates from Australian universities who spent up to 4 weeks at the remote community of Mt. Magnet (Badimaya country) in Western Australia. Interviews, which occurred between two and 12 months following the placement were recorded, transcribed and thematically analysed for patterns of meaning. Results: Factors which contributed to positive professional, personal and socially responsive learning experiences were identified. These included pre-placement cultural training to build understanding of the local Aboriginal community, peer support, community engagement, cultural exchanges and interprofessional collaboration. Highlights were associated with relationship-building in the community and opportunities to apply insights into Aboriginal cultural ways to clinical and community practice. The role of the Aboriginal mentor was integral to students' understanding of the social and cultural dynamics in the practice setting. Challenges related to the logistics of supervision in remote locations and workloads. Conclusions: The interprofessional placement offered students a unique opportunity to experience how isolation, socioeconomic disadvantage and cultural factors conspire to produce health inequities in remote Australian settings and to observe how communities respond to their circumstances. Despite difficulties encountered, learnings derived from the application of clinical, social and interprofessional skills, and rural employment opportunities that arose following graduation, were all highly valued. [ABSTRACT FROM AUTHOR]
- Published
- 2017
- Full Text
- View/download PDF
19. 'Connecting tracks': exploring the roles of an Aboriginal women's cancer support network.
- Author
-
Cuesta‐Briand, Beatriz, Bessarab, Dawn, Shahid, Shaouli, and Thompson, Sandra C.
- Subjects
CANCER patients ,HEALTH education ,HEALTH services accessibility ,HEALTH status indicators ,INDIGENOUS peoples ,INTERVIEWING ,RESEARCH methodology ,RESEARCH funding ,SOCIAL networks ,TUMORS ,SOCIAL support ,THEMATIC analysis ,DISEASE incidence ,DATA analysis software ,MEDICAL coding ,EARLY detection of cancer - Abstract
Aboriginal Australians are at higher risk of developing certain types of cancer and, once diagnosed, they have poorer outcomes than their non-Aboriginal counterparts. Lower access to cancer screening programmes, deficiencies in treatment and cultural barriers contribute to poor outcomes. Additional logistical factors affecting those living in rural areas compound these barriers. Cancer support groups have positive effects on people affected by cancer; however, there is limited evidence on peer-support programmes for Aboriginal cancer patients in Australia. This paper explores the roles played by an Aboriginal women's cancer support network operating in a regional town in Western Australia. Data were collected through semi-structured interviews with 24 participants including Aboriginal and mainstream healthcare service providers, and network members and clients. Interviews were audiotaped and transcribed verbatim. Transcripts were subjected to inductive thematic analysis. Connecting and linking people and services was perceived as the main role of the network. This role had four distinct domains: (i) facilitating access to cancer services; (ii) fostering social interaction; (iii) providing a culturally safe space; and (iv) building relationships with other agencies. Other network roles included providing emotional and practical support, delivering health education and facilitating engagement in cancer screening initiatives. Despite the network's achievements, unresolved tensions around role definition negatively impacted on the working relationship between the network and mainstream service providers, and posed a threat to the network's sustainability. Different perspectives need to be acknowledged and addressed in order to build strong, effective partnerships between service providers and Aboriginal communities. Valuing and honouring the Aboriginal approaches and expertise, and adopting an intercultural approach are suggested as necessary to the way forward. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
20. Social media and digital technology use among Indigenous young people in Australia: a literature review.
- Author
-
Rice, Emma S., Haynes, Emma, Royce, Paul, and Thompson, Sandra C.
- Subjects
INDIGENOUS Australians ,HEALTH promotion ,HEALTH services accessibility ,HEALTH status indicators ,INFORMATION technology ,MEDLINE ,ONLINE information services ,SYSTEMATIC reviews ,HEALTH of indigenous peoples ,THEMATIC analysis ,CYBERBULLYING ,SOCIAL media ,ADOLESCENCE - Abstract
Introduction: The use of social media and digital technologies has grown rapidly in Australia and around the world, including among Indigenous young people who face social disadvantage. Given the potential to use social media for communication, providing information and as part of creating and responding to social change, this paper explores published literature to understand how Indigenous Australian youth use digital technologies and social media, and its positive and negative impacts. Methods: Online literature searches were conducted in three databases: PubMed, Google Scholar and Informit in August 2014; with further searches of additional relevant databases (Engineering Village; Communication & mass media complete; Computers & applied sciences complete; Web of Science) undertaken in May 2015. In addition, relevant literature was gathered using citation snowballing so that additional peer-reviewed and grey literature was included. Articles were deemed relevant if they discussed social media and/or digital technologies and Indigenous Australians. After reading and reviewing all relevant articles, a thematic analysis was used to identify overall themes and identify specific examples. Results: A total of 22 papers were included in the review. Several major themes were identified about how and why Indigenous young people use social media: identity, power and control, cultural compatibility and community and family connections. Examples of marketing for health and health promotion approaches that utilize social media and digital technologies were identified. Negative uses of social media such as cyber bullying, cyber racism and the exchange of sexually explicit content between minors are common with limited approaches to dealing with this at the community level. Discussion: Strong cultural identity and community and family connections, which can be enhanced through social media, are linked to improved educational and health outcomes. The confidence that Indigenous young people demonstrate when approaching the use of social media invites its further use, including in arenas where this group may not usually participate, such as in research. Conclusions: Future research could examine ways to minimise the misuse of social media while maximising its positive potential in the lives of Indigenous young people. Future research should also focus on the positive application of social media and showing evidence in health promotion interventions in order to reduce health inequities between Indigenous and non-Indigenous young people. [ABSTRACT FROM AUTHOR]
- Published
- 2016
- Full Text
- View/download PDF
21. Promoting women's health in remote Aboriginal settings: Midwifery students' insights for practice.
- Author
-
Thackrah, Rosalie D., Thompson, Sandra C., and Durey, Angela
- Subjects
- *
MAMMOGRAMS , *COMMUNITY health workers , *HEALTH occupations students , *HEALTH promotion , *HEALTH services accessibility , *SEXUAL health , *INDIGENOUS peoples , *INTERNSHIP programs , *INTERVIEWING , *RESEARCH methodology , *MIDWIVES , *RESEARCH funding , *RURAL conditions , *WOMEN'S health , *MIDWIFERY education , *EARLY detection of cancer - Abstract
Objective To describe midwifery students' insights on promoting health to Aboriginal women in remote Australia following a supervised clinical placement. Design Semistructured, in-depth interviews were conducted with all midwifery students who undertook the placement between 2010 and 2013. Setting Aboriginal communities on the Ngaanyatjarra Lands, Western Australia. Participants Undergraduate and postgraduate midwifery students from a Western Australian university. Interventions Remote cultural immersion clinical placement. Main outcome measures Student learning related to culturally respectful health care delivery and promotion of health. Results Students observed that, despite vast distances, high rates of participation in a breast screening program were achieved due to the informal provision of culturally relevant information and support. Opportunistic encounters in communities also enabled sexual health messages to be delivered more widely and in less formal settings. The role played by Aboriginal Health Workers and female family members was vital. The importance of culturally respectful approaches to sensitive women's business, including discretion, the use of local language and pictorial representations of information, was recognised as was the socio-cultural context and its impact on the health and well-being of the community. Conclusions Although short in duration, the Ngaanyatjarra Lands clinical placement provided midwifery students with a rare opportunity to observe the importance of local contexts and cultural protocols in Aboriginal communities, and to adapt health promotion strategies to meet local needs and ways of doing things. These strategies embraced the strengths, assets and capacities of communities, yet students also witnessed challenges associated with access, delivery and acceptance of health care in remote settings. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
22. A cohort study: temporal trends in prevalence of antecedents, comorbidities and mortality in Aboriginal and non-Aboriginal Australians with first heart failure hospitalization, 2000-2009.
- Author
-
Teng, Tiew-Hwa Katherine, Katzenellenbogen, Judith M., Hung, Joseph, Knuiman, Matthew, Sanfilippo, Frank M., Geelhoed, Elizabeth, Bessarab, Dawn, Hobbs, Michael, and Thompson, Sandra C.
- Subjects
HEART failure risk factors ,CHRONIC kidney failure ,CONFIDENCE intervals ,DIABETES ,HEALTH services accessibility ,HEALTH status indicators ,HEART failure ,HOSPITAL care ,INDIGENOUS peoples ,LONGITUDINAL method ,MYOCARDIAL infarction ,PROBABILITY theory ,TIME ,COMORBIDITY ,DISEASE prevalence ,DATA analysis software ,DESCRIPTIVE statistics ,PREVENTION - Abstract
Background/objectives: Little is known about trends in risk factors and mortality for Aboriginal Australians with heart failure (HF). This population-based study evaluated trends in prevalence of risk factors, 30-day and 1-year all-cause mortality following first HF hospitalization among Aboriginal and non-Aboriginal Western Australians in the decade 2000-2009. Methods: Linked-health data were used to identify patients (20-84 years), with a first-ever HF hospitalization. Trends in demographics, comorbidities, interventions and risk factors were evaluated. Logistic and Cox regression models were fitted to test and compare trends over time in 30-day and 1-year mortality. Results: Of 17,379 HF patients, 1,013 (5.8 %) were Aboriginal. Compared with 2000-2002, the prevalence (as history) of myocardial infarction and hypertension increased more markedly in 2006-2009 in Aboriginal (versus non-Aboriginal) patients, while diabetes and chronic kidney disease remained disproportionately higher in Aboriginal patients. Risk factor trends, including the Charlson comorbidity index, increased over time in younger Aboriginal patients. Risk-adjusted 30-day mortality did not change over the decade in either group. Risk-adjusted 1-year mortality (in 30-day survivors) was non-significantly higher in Aboriginal patients in 2006-2008 compared with 2000-2002 (hazard ratio (HR) 1.44; 95 % CI 0.85-2.41; p-trend = 0.47) whereas it decreased in non-Aboriginal patients (HR 0.87; 95 % CI 0.78-0.97; p-trend = 0.01). Conclusions: Between 2000 and 2009, the prevalence of HF antecedents increased and remained disproportionately higher in Aboriginal (versus non-Aboriginal) HF patients. Risk-adjusted 1-year mortality did not improve in Aboriginal patients over the period in contrast with non-Aboriginal patients. These findings highlight the need for better prevention and post-HF care in Aboriginal Australians. [ABSTRACT FROM AUTHOR]
- Published
- 2015
- Full Text
- View/download PDF
23. Disparities experienced by Aboriginal compared to non-Aboriginal metropolitan Western Australians in receiving coronary angiography following acute ischaemic heart disease: the impact of age and comorbidities.
- Author
-
Lopez, Derrick, Katzenellenbogen, Judith M., Sanfilippo, Frank M., Woods, John A., Hobbs, Michael S. T., Knuiman, Matthew W., Briffa, Tom G., Thompson, Peter L., and Thompson, Sandra C.
- Subjects
CORONARY disease ,DIAGNOSIS ,HOSPITAL utilization ,MYOCARDIAL infarction diagnosis ,DISEASE management ,AGE distribution ,CHI-squared test ,COMPARATIVE studies ,CONFIDENCE intervals ,HEALTH services accessibility ,HEALTH status indicators ,INDIGENOUS peoples ,MEDICAL record linkage ,MEDICALLY uninsured persons ,PATIENTS ,POISSON distribution ,RESEARCH funding ,URBAN hospitals ,COMORBIDITY ,STATISTICAL models ,DESCRIPTIVE statistics ,CORONARY angiography ,ODDS ratio - Abstract
Introduction Aboriginal Australians have a substantially higher frequency of ischaemic heart disease (IHD) events than their non-Aboriginal counterparts, together with a higher prevalence of comorbidities. The pattern of health service provision for IHD suggests inequitable delivery of important diagnostic procedures. Published data on disparities in IHD management among Aboriginal Australians are conflicting, and the role of comorbidities has not been adequately delineated. We compared the profiles of Aboriginal and non-Aboriginal patients in the metropolitan area undergoing emergency IHD admissions at Western Australian metropolitan hospitals, and investigated the determinants of receiving coronary angiography. Methods Person-linked administrative hospital and mortality records were used to identify 28-day survivors of IHD emergency admission events (n =20,816) commencing at metropolitan hospitals in 2005-09. The outcome measure was receipt of angiography. The Aboriginal to non-Aboriginal risk ratio (RR) was estimated from a multivariable Poisson log-linear regression model with allowance for multiple IHD events in individuals. The subgroup of myocardial infarction (MI) events was modelled separately. Results Compared with their non-Aboriginal counterparts, Aboriginal IHD patients were younger and more likely to have comorbidities. In the age- and sex-adjusted model, Aboriginal patients were less likely than others to receive angiography (RR IHD 0.77, 95%CI 0.72-0.83; RR MI 0.81, 95%CI 0.75-0.87) but in the full multivariable model this disparity was accounted for by comorbidities as well as IHD category and MI subtype, and private health insurance (RR IHD 0.95, 95%CI 0.89-1.01; RR MI 0.94, 95% CI 0.88-1.01). When stratified by age groups, this disparity was not significant in the 25-54 year age group (RR MI 0.95, 95% CI 0.88-1.02) but was significant in the 55-84 year age group (RR MI 0.88, 95% CI 0.77-0.99). Conclusions The disproportionate under-management of older Aboriginal IHD patients is of particular concern. Regardless of age, the disparity between Aboriginal and non-Aboriginal Australians in receiving angiography for acute IHD in a metropolitan setting is mediated substantially by comorbidities. This constellation of health problems is a 'double-whammy' for Aboriginal people, predisposing them to IHD and also adversely impacting on their receipt of angiography. Further research should investigate how older age and comorbidities influence clinical decision making in this context. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
24. Making progress: the role of cancer councils in Australia in indigenous cancer control.
- Author
-
Thompson, Sandra C., Shahid, Shaouli, DiGiacomo, Michelle, Pilkington, Leanne, and Davidson, Patricia M.
- Subjects
- *
TRADITIONAL medicine , *CANCER prevention , *CANCER treatment , *CHIEF executive officers , *ENVIRONMENTAL scanning (Business) , *HEALTH outcome assessment , *AUSTRALIANS , *DISEASES - Abstract
Background Indigenous Australians have poorer outcomes from cancer for a variety of reasons including poorer participation in screening programs, later diagnosis, higher rates of cancer with poor prognosis and poorer uptake and completion of treatment. Cancer prevention and support for people with cancer is part of the core business of the State and Territory Cancer Councils. To support sharing of lessons learned, this paper reports an environmental scan undertaken in 2010 in cancer councils (CCs) nationwide that aimed to support Indigenous cancer control. Methods The methods replicated the approach used in a 2006 environmental scan of Indigenous related activity in CCs. The Chief Executive Officer of each CC nominated individuals for interview. Interviews explored staffing, projects, programs and activities to progress cancer control issues for Indigenous Australians, through phone or face-to-face interviews. Reported initiatives were tabulated using predetermined categories of activity and summaries were returned to interviewees, the Aboriginal and Torres Strait Islander Subcommittee and Chief Executive Officers for verification. Results All CCs participated and modest increases in activity had occurred in most states since 2006 through different means. Indigenous staff numbers were low and no Indigenous person had yet been employed in smaller CCs; no CC had an Indigenous Board member and efforts at capacity building were often directed outside of the organisation. Developing partnerships with Indigenous organisations were ongoing. Acknowledgement and specific mention of Indigenous people in policy was increasing. Momentum increased following the establishment of a national subcommittee which increased the profile of Indigenous issues and provided collegial and practical support for those committed to reducing Indigenous cancer disparities. Government funding of "Closing the Gap" and research in the larger CCs have been other avenues for increasing knowledge and activity in Indigenous cancer control. Conclusions This environmental scan measured progress, allowed sharing of information and provided critical assessment of progress across areas of importance for increasing Indigenous cancer control. Structured examination of policies, institutional support systems, programs and interventions is a useful means of highlighting opportunities for progress with minority groups relevant for many organisations. Progress has occurred with momentum likely to increase in the future and benefit from commitment to long-term monitoring and sharing of achievements. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
25. Missed opportunities in educating Aboriginal Australians about bowel cancer screening: Whose job is it anyway?
- Author
-
Christou, Aliki and Thompson, Sandra C
- Subjects
- *
EDUCATIONAL evaluation , *TEACHING aids , *HEALTH education evaluation , *INTESTINAL tumors , *COMMUNITY health services , *GRAPHIC arts , *HEALTH promotion , *HEALTH services accessibility , *HOSPITALS , *HOSPITAL gastroenterology services , *OUTPATIENT services in hospitals , *INDIGENOUS peoples , *LITERACY , *MEDICAL care use , *NATIONAL health services , *QUESTIONNAIRES , *RESEARCH funding , *SURVEYS , *MEDICAL care of indigenous peoples , *HEALTH of indigenous peoples , *EVALUATION research , *DATA analysis software , *DESCRIPTIVE statistics , *EARLY detection of cancer , *PREVENTION - Abstract
Background: A culturally relevant educational flipchart targeting Aboriginal people was distributed across Western Australia to support education on bowel cancer screening and encourage participation in the National Bowel Cancer Screening Program. Methods: Respondents sampled from the flipchart distribution list were surveyed on the appropriateness, usefulness, and the extent to and manner in which they used the flipchart for educating Aboriginal clients. Results: Despite praising the resource, few respondents used the flipchart as intended for various reasons, including the view that Aboriginal health education was the responsibility of Aboriginal health workers. Conclusions: Greater recognition by all health service providers is needed of their potential role in Aboriginal health education. Promoting a national health program of under-appreciated importance for a marginalised population is challenging. Effective utilisation of an educational tool is predicated on factors beyond its production quality and wide dissemination. Intended users require awareness of the underlying problem, and adequate time for and specific training in implementation of the tool. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
- View/download PDF
26. Cultural respect in midwifery service provision for Aboriginal women: longitudinal follow-up reveals the enduring legacy of targeted program initiatives.
- Author
-
Thackrah, Rosalie D., Wood, Jennifer, and Thompson, Sandra C.
- Subjects
CULTURE ,HEALTH services accessibility ,HEALTH status indicators ,PATIENT aftercare ,INTERVIEWING ,LONGITUDINAL method ,TRANSCULTURAL medical care ,MIDWIFERY ,DEPARTMENTS ,HEALTH of indigenous peoples ,CULTURAL identity ,THEMATIC analysis - Abstract
Background: Culturally competent maternity care provision to Aboriginal and Torres Strait Islander women was identified as a priority area by Australia's National Maternity Services Plan in 2011. While midwifery programs responded by including core Indigenous content and community placements in curricula, little is known about whether knowledge learned, and insights gained in response to these initiatives have endured and been applied in clinical practice. This follow-up study explores the impact of a compulsory Indigenous unit and a remote clinical placement on two cohorts of non-Indigenous midwives who were participants in an earlier 2012–14 study. Methods: Fourteen non-Indigenous participants who were either students or recent graduates in 2012–14 were located and re-interviewed in 2019–20. In-depth interviews based on a semi-structured interview guide were conducted by telephone or face-to face; recordings were transcribed and thematically analysed using standard qualitative procedures. Results: Exposure to Indigenous content and settings during training had an enduring impact on participants' midwifery practice; most felt better prepared to provide culturally safe care, build respectful relationships and advocate for improved services for Aboriginal women. Despite this positive legacy, they also expressed apprehension about causing offence and recognised their own knowledge deficits with regard to Aboriginal cultural practices. Organisational constraints, including restrictions on the number of family members accompanying a birthing mother were identified as barriers to optimal care; some positive organisational initiatives were also described. Conclusions: This follow-up study provides encouraging evidence that well-designed and delivered Indigenous content and community placement opportunities in midwifery programs can have a lasting impact on service provision to Aboriginal women, contribute to a more informed, empathetic and culturally competent maternity workforce and help catalyse health service changes towards more culturally safe care. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
27. Cancer support services: Are they meeting the needs of rural radiotherapy patients?
- Author
-
Haigh, Margaret M., Baxi, Siddhartha, Lyford, Marilyn, Cheetham, Shelley, and Thompson, Sandra C.
- Subjects
CANCER patient medical care ,CANCER patient psychology ,ENDOWMENTS ,HEALTH care teams ,HEALTH services accessibility ,INTERPROFESSIONAL relations ,INTERVIEWING ,RESEARCH methodology ,MEDICAL care ,RURAL conditions ,STATISTICAL sampling ,SUPPORT groups ,TRAVEL ,TUMORS ,ACCESSIBLE design of public spaces ,QUALITATIVE research ,SOCIAL support ,THEMATIC analysis ,DATA analysis software ,PATIENTS' attitudes - Abstract
This paper examines the supportive care in place to meet the needs of patients receiving radiotherapy at a regional oncology service in Bunbury, Western Australia. Semi‐structured in‐depth interviews with 21 service providers and 17 adults diagnosed with cancer who underwent radiotherapy at the Service were recorded, transcribed and analysed thematically. Key themes relevant were co‐operation and collaboration of interdisciplinary team members; support from organisations to assist with accommodation, transport, emotional support and provision of practical assistance, as well as barriers to accessing support. Most participants were positive about the support available, recognising the needs of rural radiotherapy patients for assistance with travel, accommodation and psychosocial support to help deal with the stressors they face. Collaboration between the various service providers maximised the support available to patients but the drop off in psychosocial support once the intensity of treatment was completed was identified as a weakness in the support available. The support system, established around a regional radiotherapy service, was enhanced by the collaborative professional relationships developed among service providers. The service extends beyond clinical service delivery by recognising financial, logistical and psychosocial support needs, factors to be considered to ensure rural radiotherapy patients are provided with holistic care. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
28. Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review.
- Author
-
Shahid, Shaouli, Taylor, Emma V., Cheetham, Shelley, Woods, John A., Aoun, Samar M., and Thompson, Sandra C.
- Subjects
CINAHL database ,HEALTH services accessibility ,INDIGENOUS peoples ,MEDICAL information storage & retrieval systems ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL care ,MEDICAL needs assessment ,MEDICAL errors ,MEDLINE ,ONLINE information services ,PALLIATIVE treatment ,QUALITY assurance ,SYSTEMATIC reviews ,QUALITATIVE research ,QUANTITATIVE research ,THEMATIC analysis - Abstract
Background: Indigenous peoples in developed countries have reduced life expectancies, particularly from chronic diseases. The lack of access to and take up of palliative care services of Indigenous peoples is an ongoing concern. Objectives: To examine and learn from published studies on provision of culturally safe palliative care service delivery to Indigenous people in Australia, New Zealand (NZ), Canada and the United States of America (USA); and to compare Indigenous peoples' preferences, needs, opportunities and barriers to palliative care. Methods: A comprehensive search of multiple databases was undertaken. Articles were included if they were published in English from 2000 onwards and related to palliative care service delivery for Indigenous populations; papers could use quantitative or qualitative approaches. Common themes were identified using thematic synthesis. Studies were evaluated using Daly's hierarchy of evidence-for-practice in qualitative research. Results: Of 522 articles screened, 39 were eligible for inclusion. Despite diversity in Indigenous peoples' experiences across countries, some commonalities were noted in the preferences for palliative care of Indigenous people: to die close to or at home; involvement of family; and the integration of cultural practices. Barriers identified included inaccessibility, affordability, lack of awareness of services, perceptions of palliative care, and inappropriate services. Identified models attempted to address these gaps by adopting the following strategies: community engagement and ownership; flexibility in approach; continuing education and training; a whole-of-service approach; and local partnerships among multiple agencies. Better engagement with Indigenous clients, an increase in number of palliative care patients, improved outcomes, and understanding about palliative care by patients and their families were identified as positive achievements. Conclusions: The results provide a comprehensive overview of identified effective practices with regards to palliative care delivered to Indigenous populations to guide future program developments in this field. Further research is required to explore the palliative care needs and experiences of Indigenous people living in urban areas. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
Catalog
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.