1. Formative development of a fertility decision aid for transgender adolescents and young adults: a multidisciplinary Delphi consensus study
- Author
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Elisa J. Gordon, Victoria D. Kolbuck, Moira A. Kyweluk, Courtney Finlayson, Afiya Sajwani, and Diane Chen
- Subjects
Male ,0301 basic medicine ,Adolescent ,media_common.quotation_subject ,Decision Making ,Delphi method ,Psychological intervention ,Fertility ,Context (language use) ,Transgender Persons ,Decision Support Techniques ,Formative assessment ,Young Adult ,03 medical and health sciences ,0302 clinical medicine ,Transgender ,Health care ,Genetics ,Humans ,Fertility preservation ,Assisted Reproduction Technologies ,Genetics (clinical) ,media_common ,Medical education ,030219 obstetrics & reproductive medicine ,business.industry ,Reproduction ,Fertility Preservation ,Obstetrics and Gynecology ,General Medicine ,humanities ,030104 developmental biology ,Reproductive Medicine ,Female ,Psychology ,business ,Developmental Biology - Abstract
PURPOSE: No educational and decision support tools exist to aid transgender and non-binary (TNB) adolescents and young adults (AYA) in making decisions about fertility preservation in the context of initiating gender-affirming medical care that can impair fertility. This study identified critical content areas and learning objectives to include in a decision aid about fertility preservation targeted for TNB AYA. METHODS: Delphi methodology was leveraged to engage 80 multidisciplinary experts in reproductive medicine and pediatric transgender health care in a two round consensus building procedure. Proposed content areas rated as “probably keep” or “definitely keep” by 75% of experts were retained. Proposed learning objectives reaching 75% agreement on ratings of importance and priority were also identified. RESULTS: The Delphi procedure identified five priority content areas (Basic Reproduction; Gender-Affirming Medical Interventions: Impacts on Fertility; Established Fertility Preservation Options; Benefits and Risks of Established Fertility Preservation Procedures; Alternative Pathways to Parenting) and 25 learning objectives to prioritize in a fertility-related decision aid for TNB AYA. CONCLUSION: A multidisciplinary panel of experts achieved agreement around content areas and learning objectives to incorporate into a decision aid about fertility preservation for TNB AYA.
- Published
- 2020
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