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2. The use of genetic tests to diagnose and manage patients with myeloproliferative and myeloproliferative/myelodysplastic neoplasms, and related disorders

Author

Catherine Cargo, Mamta Garg, Adam J. Mead, Anna L. Godfrey, Nicholas C.P. Cross, and Paper, A British Society for Haematology Good Practice

Subjects
medicine.medical_specialty, Receptor, Platelet-Derived Growth Factor alpha, Oncogene Proteins, Fusion, Mutation, Missense, Severity of Illness Index, Receptors, Colony-Stimulating Factor, Humans, Point Mutation, Medicine, Eosinophilia, Genetic Testing, mRNA Cleavage and Polyadenylation Factors, Biological Products, Myeloproliferative Disorders, business.industry, Disease Management, Bone Marrow Examination, Exons, Hematology, Janus Kinase 2, Prognosis, Dermatology, Clone Cells, Proto-Oncogene Proteins c-kit, Molecular Diagnostic Techniques, Myelodysplastic Syndromes, medicine.symptom, Calreticulin, business, Receptors, Thrombopoietin, Forecasting
Published
2021

3. The potential for integrated care programmes to improve quality of care as assessed by patients with COPD: early results from a real-world implementation study in The Netherlands

Author

Jane M. Cramm, Anna P. Nieboer, Maureen P.M.H. Rutten-van Mölken, Funding This research was supported by a grant provided by The Netherlands Organisation for Health Research and Development (ZonMw) [project no. 300030201]. The views expressed in the paper are those of the authors., and Health Economics (HE)

Subjects
medicine.medical_specialty, Health (social science), Sociology and Political Science, Copd patients, chronic care, integrated care, disease management, COPD, chronic care model, Pulmonary disease, Medicine, Disease management (health), Quality of care, Chronic care, lcsh:R5-920, Research and Theory, business.industry, Health Policy, medicine.disease, Integrated care, Early results, Physical therapy, business, lcsh:Medicine (General)
Abstract

Objective: We investigated whether patients with chronic obstructive pulmonary disease (COPD) who were enrolled in disease-management programmes (DMPs) felt that they received a better quality of care than non-enrolled COPD patients. Methods: Our cross-sectional study was performed among patients (n = 665) enrolled in four DMPs in The Netherlands. We also evaluated COPD patients (n = 227) not enrolled in such programmes. Patients' assessment of chronic-illness care (PACIC) was measured with a 20-item questionnaire. The instrument had five pre-defined domains: patient activation (three items), delivery-system/practice design (three items), goal setting/tailoring (five items), problem solving/contextual (four items), and follow-up/coordination (five items). Results: The mean overall PACIC score (scale: 1-5) of enrolled DMP patients was 2.94, and that of non-enrolled DMP patients was 2.73 (p ≤ 0.01). Differences in the same direction were found in the subscales of patient activation (p ≤ 0.01), delivery-system/practice design (p ≤ 0.001), and problem solving/contextual (p ≤ 0.001). Conclusions: Our results suggest that even in the early stages of implementation, DMPs for COPD may significantly improve care.

Published
2012