10 results on '"Smythe, Tracey"'
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2. Co-development of a training programme on disability for healthcare workers in Uganda
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Smythe, Tracey, Ssemata, Andrew Sentoogo, Slivesteri, Sande, Mbazzi, Femke Bannink, and Kuper, Hannah
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- 2024
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3. Strategies for addressing the needs of children with or at risk of developmental disabilities in early childhood by 2030: a systematic umbrella review
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Smythe, Tracey, Scherer, Nathaniel, Nanyunja, Carol, Tann, Cally J., and Olusanya, Bolajoko O.
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- 2024
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4. Feeding practices of children within institution‐based care: A retrospective analysis of surveillance data.
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DeLacey, Emily, Allen, Elizabeth, Tann, Cally, Groce, Nora, Hilberg, Evan, Quiring, Michael, Kaplan, Tracy, Smythe, Tracey, Kaui, Erin, Catt, Rachael, Miller, Raeanne, Gombo, Maijargal, Dam, Hang, and Kerac, Marko
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AUDITING ,ARTIFICIAL feeding ,CONFIDENCE intervals ,PEDIATRICS ,RETROSPECTIVE studies ,ACQUISITION of data ,DISABILITY evaluation ,LOW birth weight ,MEDICAL records ,DESCRIPTIVE statistics ,MALNUTRITION ,BODY mass index ,HOSPITAL care of children ,DISEASE risk factors - Abstract
There is limited information on the feeding practices of 9.42 million children living within institution‐based care (IBC) worldwide. Poor feeding practices can predispose or exacerbate malnutrition, illness and disability. Here we describe the feeding practices of children living within IBC based on a retrospective analysis of records from 3335 children, 0–18 years old, participating in Holt International's Child Nutrition Program (CNP), from 36 sites in six countries. Data analysed included demographic information on age, sex, feeding practices, disabilities and feeding difficulties. Descriptive statistics were produced. A generalised linear model explored associations between feeding difficulties and disability and 2 × 2 tables examined feeding difficulties over time. An additional set of feeding observations with qualitative and quantitative data was analysed. At baseline, the median age of children was 16 months (0.66–68 months) with 1650/3335 (49.5%) females. There were 757/3335 (22.7%) children with disabilities; 550/984 (55.9%) were low birth weight; 311/784 (39.7%) were premature; 447/3113 (14.4%) had low body mass index and 378/3335 (11.3%) had feeding difficulties. The adjusted risk of having a feeding difficulty was 5.08 ([95% confidence interval: 2.65–9.7], p ≤ 0.001) times greater in children with disabilities than those without. Many children saw their feeding difficulties resolve after 1‐year in CNP, 54/163 (33.1%) for children with disabilities and 57/106 (53.8%) for those without disabilities. Suboptimal hygiene, dietary and feeding practices were reported. In conclusion, feeding difficulties were common in IBC, especially among children with disabilities. Supporting safe interactive mealtimes for children living within IBC should be prioritised, to ensure overall health and development. Key points: Feeding difficulties are common among children living in institution‐based care (IBC), particularly but not exclusively among those children with disabilities.Suboptimal feeding practices were common in IBC and encompassed inadequate hygiene, limited support for self‐feeding, reading children's feeding cues (especially around pacing and satiety), addressing feeding difficulties, such as difficulty chewing or swallowing. These should be prioritised in training and supervision for caregivers.Addressing the needs of this vulnerable group should include support for safe feeding techniques. These should be prioritised to help ease the transition into eventual family‐based care if we are to move towards deinstitutionalizing children and strengthening families. [ABSTRACT FROM AUTHOR]
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- 2022
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5. Adapting Disability Research Methods and Practices During the Covid-19 Pandemic: Experiences from the Field.
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Banks, Lena Morgon, Willan, Samantha, Inglis-Jassiem, Gakeemah, Dunkle, Kristin, Ganle, John, Shakespeare, Tom, Khan, Rifat Shahpar, Hameed, Shaffa, Machisa, Mercilene, Watson, Nicholas, Carpenter, Bradley, Smythe, Tracey, Mthethwa, Nomfundo, Seketi, Queen, Wilbur, Jane, Nzuza, Ayanda, İlkkurşun, Zeynep, Tetali, Shailaja, Huq, Lopita, and Clyde, Amanda
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COVID-19 pandemic ,RESEARCH teams ,PEOPLE with disabilities ,RESEARCH methodology ,DISABILITIES ,DIGITAL communications - Abstract
People with disabilities are often excluded from research, which may be exacerbated during the ongoing Covid-19 pandemic. This article provides an overview of key challenges, opportunities, and strategies for conducting disability-inclusive research during the pandemic, drawing on the experience of research teams working across ten countries on disabilityfocused studies. It covers adaptations that are relevant across the project lifecycle, including maintaining ethical standards and safeguarding; enabling active participation of people with disabilities; adapting remote research data collection tools and methods to meet accessibility, feasibility, and acceptability requirements; and promoting inclusive and effective analysis and dissemination. While this article is focused on adaptations during the pandemic, it is highly likely that the issues and strategies highlighted here will be relevant going forward, either in similar crises or as the world continues to move towards greater digital communication and connectedness. [ABSTRACT FROM AUTHOR]
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- 2022
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6. A path toward disability-inclusive health in Zimbabwe Part 1: A qualitative study on access to healthcare.
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Smythe, Tracey, Mabhena, Thubelihle, Murahwi, Shepherd, Kujinga, Tapiwanashe, Kuper, Hannah, and Rusakaniko, Simbarashe
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DISCRIMINATION against people with disabilities , *CARE of people with disabilities , *HEALTH services accessibility , *COVID-19 , *HEALTH literacy , *HEALTH equity - Abstract
Background: On average, people with disabilities have greater healthcare needs, yet face a range of barriers in accessing care. Objectives: Our objectives were to explore the experiences of people with disabilities in accessing care and identify opportunities for the health system to be designed for inclusion in Zimbabwe. Methods: In-depth qualitative interviews were conducted between May and June 2021 with 24 people with disabilities (identified through purposive sampling) and with 10 key informants from local and national health authorities (identified through expert recommendations). Interviews explored the experience of accessing healthcare prior to the coronavirus disease 2019 (COVID-19) pandemic. Interviews were transcribed, coded and thematically analysed. We used the disability-inclusive health 'Missing Billion' framework to map and inform barriers to inclusive healthcare and disparities in outcomes faced by people with disabilities. Results: People with disabilities experienced difficulties accessing health services in Zimbabwe prior to COVID-19. These experiences were shaped by health literacy, self-stigma and affordability of services, which limited demand. Supply of health services was constrained by the perceived poor capacity of health workers to treat people with disabilities and discrimination. Inclusion was facilitated by clinic staff support of people with disabilities' access to medication through referral to mission hospitals and private clinics, and the lobbying of organisations of people with disabilities. Conclusion: Strategies to promote disability inclusion in healthcare include meaningfully engaging people with disabilities, investing in organisations of people with disabilities, protecting funding for disability inclusion, collecting and analysing disability-disaggregated data and strengthening a twin-track approach to health service provision. [ABSTRACT FROM AUTHOR]
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- 2022
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7. A path toward disability-inclusive health in Zimbabwe Part 2: A qualitative study on the national response to COVID-19.
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Smythe, Tracey, Mabhena, Thubelihle, Murahwi, Shepherd, Kujinga, Tapiwanashe, Kuper, Hannah, and Rusakaniko, Simbarashe
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COVID-19 pandemic , *COVID-19 , *HEALTH services accessibility , *PEOPLE with disabilities , *MEDICAL care - Abstract
Background: People with disabilities are at higher risk of adverse coronavirus disease 2019 (COVID-19) outcomes. Additionally, measures to mitigate COVID-19 transmission have impacted health service provision and access, which may particularly disadvantage people with disabilities. Objectives: To explore the perspectives and experiences of people with disabilities in accessing health services in Zimbabwe during the pandemic, to identify perceived challenges and facilitators to inclusive health and key actions to improve accessibility. Methods: We used in-depth interviews with 24 people with disabilities (identified through purposive sampling) and with 10 key informants (from expert recommendation) to explore the impact of COVID-19 on access to health care. Interviews were transcribed, coded and thematically analysed. We used the disability-inclusive health 'Missing Billion' framework to map and inform barriers to inclusive health care during COVID-19 and disparities in outcomes faced by people with disabilities. Results: People with disabilities demonstrated good awareness of COVID-19 mitigation strategies, but faced difficulties accessing COVID-19 information and health services. Challenges to the implementation of COVID-19 guidelines related to a person's functional impairment and financial ability to do so. A key supply-side constraint was the perceived de-prioritisation of rehabilitation services. Further restrictions on access to health services and rehabilitation decreased an individual's functional ability and exacerbated pre-existing conditions. Conclusion: The immediate health and financial impacts of the COVID-19 pandemic on people with disabilities in Zimbabwe were severe. Government departments should include people with disabilities in all communications and activities related to the pandemic through a twin-track approach, meaning inclusion in mainstream activities and targeting with specific interventions where necessary. [ABSTRACT FROM AUTHOR]
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- 2022
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8. Should disability-inclusive health be a priority in low-income countries? A case-study from Zimbabwe.
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Kuper, Hannah, Smythe, Tracey, Kujinga, Tapiwa, Chivandire, Greaterman, and Rusakaniko, Simbarashe
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HEALTH policy , *INVESTMENTS , *HEALTH services accessibility , *MIDDLE-income countries , *COST control , *LOW-income countries , *PEOPLE with disabilities , *HEALTH planning , *MEDICAL needs assessment ,MEDICAL care for people with disabilities - Abstract
The National Disability Policy was launched in Zimbabwe in June 2021 and includes a range of commitments for the provision of disability-inclusive health services and rehabilitation. Fulfilment of these pledges is important, as at least 7% of the population have disabilities, and people with disabilities face greater challenges accessing healthcare services and experience worse health outcomes. However, it will require financial investment which is challenging as the needs of people with disabilities are set against a background of widespread health systems failures in Zimbabwe, exacerbated by the COVID-19 pandemic. Zimbabwe currently faces an epidemic of TB and HIV and a growing burden of non-communicable diseases (NCDs) with a lack of investment, healthcare staff or infrastructure to provide the necessary care. Urgent action is therefore needed to strengthen the health system and 'build back better' after both the pandemic and the regime change. The Zimbabwean government may face the dilemma, common in many low-resource settings, of whether to focus on disability or to wait until the health system has been strengthened for the majority. This paper proposed four complementary arguments why it is important to focus on people with disabilities. First, this focus respects the rights of people with disabilities, including those specified in the new National Disability Policy. Second, it will be challenging to reach the Sustainable Development Goals, including those on health and other global health targets, without including people with disabilities. Third, there is a growing rationale that disability-inclusive health systems will work better for all, and fourth, that they will create cost savings. Everyone will therefore benefit when the health systems are designed for inclusion. In conclusion, a focus on disability may help to strengthen health systems for all as well as helping to achieve human rights and global development goals. [ABSTRACT FROM AUTHOR]
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- 2022
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9. Systematic review of interventions for reducing stigma experienced by children with disabilities and their families in low- and middle-income countries: state of the evidence.
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Smythe, Tracey, Adelson, Jaimie D, and Polack, Sarah
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CHILDREN with disabilities , *MIDDLE-income countries , *SOCIAL stigma , *META-analysis , *SOCIAL policy , *FAMILIES - Abstract
Objectives: To identify and assess the evidence for interventions to reduce stigma experienced by children with disabilities and their families in low- and middle-income settings.Methods: Systematic review of seven databases (MEDLINE, EMBASE, Global Health, PsycINFO, Social Policy and Practice, CINAHL, IBSS) for studies of interventions that aimed to reduce stigma for children with disabilities published from January 2000 to April 2018. Data were extracted on study population, study design, intervention level(s) and target group, and type(s) of stigma addressed. A narrative approach was used to synthesise the results.Results: Twenty studies were included. The majority (65%) of interventions targeted enacted stigma (negative attitudes) and the most common intervention approach was education/training (63%). Over half (54%) of interventions were delivered at the organisational/institutional level, and only four studies targeted more than one social level. The most common disability targeted was epilepsy (50%) followed by intellectual impairment (20%). The majority of studies (n = 18/20, 90%) found a reduction in a component of stigma; however, most (90%) studies had a high risk of bias.Conclusions: This review highlights the lack of quality evidence on effective stigma-reduction strategies for children with disabilities. Validation and consistent use of contextually relevant scales to measure stigma may advance this field of research. Studies that involve people with disabilities in the design and implementation of these strategies are needed. [ABSTRACT FROM AUTHOR]- Published
- 2020
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10. Prevalence and causes of musculoskeletal impairment in Mahabubnagar District, Telangana State, India: results of a population-based survey.
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Smythe, Tracey, Mactaggart, Islay, Kuper, Hannah, Murthy, G. V. S., Lavy, Christopher, and Polack, Sarah
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MUSCULOSKELETAL system diseases ,DISEASE prevalence ,ETIOLOGY of diseases ,HEARING disorders ,VISION disorders ,MENTAL depression ,PHYSIOLOGICAL therapeutics ,PUBLIC health - Abstract
Background: Musculoskeletal impairments (MSI) are the leading contributor to global years lived with disability. Comparable epidemiological data on MSI is lacking, and are needed to inform health and rehabilitative services. This study aimed to estimate the prevalence and causes of MSI in Telangana State, India. Method: A population-based survey used probability proportionate to size and compact-segment sampling to select 51 clusters of 80 individuals (all ages). Participants were screened using seven questions and any participant who screened positive underwent standardized examination by a physiotherapist for MSI presence, severity and diagnosis. Data were also collected on vision and hearing impairment, depression and self-reported difficulties with physical functioning. Results: The prevalence of MSI was 19.6% (95% CI: 16.7-22.8%) and this increased with age. The majority (82%; 574/699) of MSI was classified as mild, 11% as moderate and 7% as severe. Over half (57%) of MSI diagnoses were acquired non-traumatic causes, with degenerative joint disease being the most common. There was a high unmet need for physiotherapy services (3% attended vs. 40% recommended). One-fifth (21%) of MSI cases also had at least one of vision (10%) or hearing (11%) impairment or depression (3%). Conclusions: MSI is common among persons living in Mahabubnagar District, particularly older adults. These estimates can inform public health initiatives for the planning of health and rehabilitation services. [ABSTRACT FROM AUTHOR]
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- 2017
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