1. Impact of the COVID-19 pandemic: How our response is shaping the future of cystic fibrosis care.
- Author
-
Sabadosa KA, Faro A, Nelson EC, and Marshall BC
- Subjects
- Communicable Disease Control methods, Continuity of Patient Care, Health Services Accessibility organization & administration, Health Services Accessibility trends, Humans, Organizational Innovation, SARS-CoV-2, United States epidemiology, COVID-19 epidemiology, COVID-19 prevention & control, Cystic Fibrosis epidemiology, Cystic Fibrosis therapy, Delivery of Health Care trends, Delivery of Health Care, Integrated organization & administration, Telemedicine organization & administration, Telemedicine standards
- Abstract
The findings of this body of work are presented in the eight articles included in this supplement. The impact and perspectives of adult and pediatric care teams and patient/families are covered with special attention to mental health care, the financial and personnel impacts within care programs, the experiences of vulnerable and underrepresented patient populations, and implementation of remoting monitoring. Commentaries from colleagues provide a broader perspective, offering reflections on the findings and their implications regarding the future CF care model., Competing Interests: Declaration of Competing Interest KAS, AF, BCM are employees of the Cystic Fibrosis Foundation. ECN received grant funding from the Cystic Fibrosis Foundation (NELSON20QI0)., (Copyright © 2021. Published by Elsevier B.V.)
- Published
- 2021
- Full Text
- View/download PDF