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In this article, we examine work with communal data in the context of clinical genetic testing. Drawing from prior research on digital research infrastructures and from the analysis of our empirical data on genetic testing, we describe how data generated in laboratories distributed all over the world are shared and re-used. Our research findings point to six different human-driven activities related to expanding, disambiguating, sanitizing and assessing the relevance, validity and combinability of data. We contribute to research within Health Informatics with a framework that foregrounds human-driven activities for data interoperability. [ABSTRACT FROM AUTHOR]

In this article, we examine three cases of e-health solutions for patients in Norway. For the analysis of the three cases, we focused on friction forces that come into play when different established arrangements need to change to accommodate novelty. We argue that the design of new technologies was shaped by friction related to institutionalised practices, regulatory regimes and entrenched patient roles. These friction forces connect the past with the present, come into action when aiming for novelty and result to the perpetuation of constituents of the past during change processes. Specifically, the e-health solutions under study were strongly influenced by established healthcare provision logics. All three initiatives expanded the healthcare information infrastructure towards the patients with as little disruption to established arrangements as possible. [ABSTRACT FROM AUTHOR]

This paper explores the normative and intentional issues of ensuring quality-in-use of large-scale information systems (IS) in the services sector. A descriptive model for observing the dynamics between key actors during system acquisition is proposed. The model supports the conceptualization of project dynamics in terms of different actors’ capability (power, capacity and knowledge) and perspectives (business, technical and human activity). A retrospective analysis of two case studies is performed using this model: different actors involved are identified and the interplay between them is analysed. Interpreting from the case studies, it is argued that ensuring a balance among perspectives is instrumental in arriving at usable systems. This paper contends that ensuring quality-in-use entails a normative part, which can be dealt with by methods and tools and an intentional part which cannot be prescribed, but can be influenced by facilitating the discourse between perspectives from the procurement stage and as the project unfolds. [ABSTRACT FROM AUTHOR]