1. Understanding the Bariatric Patient Perspective in the National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study
- Author
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Karen J. Coleman, David G. Schlundt, Kemberlee R. Bonnet, Kimberly J. Holmquist, Jennifer Dunne, Elizabeth Crull, Beatrice Y. Hanaoka, Michelle R. Lent, Joe Nadglowski, Louisa Sylvia, Shilpa Venkatachalam, Stavra A. Xanthakos, Roni Zeiger, David Arterburn, Neely Williams, Anita Courcoulas, Jane Anau, Kathleen M. McTigue, Cynthia Blalock, Elisha Malanga, James McClay, Corrigan L. McBride, David Schlundt, Ana Emiliano, Rabih Nemr, Kathleen McTigue, Marc Michalsky, Sameer Murali, Ali Tavakkoli, Nirav Desai, Caroline Apovian, Jeanne Clark, Elizabeth Nauman, Elizabeth Cirielli, Tammy St. Clair, Julie Tice, Joseph Vitello, and Cheri Janning
- Subjects
Male ,medicine.medical_specialty ,Endocrinology, Diabetes and Metabolism ,Bariatric Surgery ,030209 endocrinology & metabolism ,03 medical and health sciences ,0302 clinical medicine ,Bariatrics ,Patient-Centered Care ,Health care ,medicine ,Humans ,Situational ethics ,Ohio ,Nutrition and Dietetics ,business.industry ,Perspective (graphical) ,Pennsylvania ,medicine.disease ,Focus group ,Obesity ,Obesity, Morbid ,Clinical research ,Family medicine ,030211 gastroenterology & hepatology ,Surgery ,Female ,Outcomes research ,business ,Patient centered - Abstract
In 2016, the Patient-Centered Outcomes Research Institute funded the National Patient Centered Clinical Research Network (PCORnet) Bariatric Study (PBS). Understanding the experience of postoperative patients was a key component of this study. Nine focus groups were conducted in Southern California, Louisiana, Pennsylvania, and Ohio and in a national advocacy conference for patients with obesity. Participants were identified and recruited in both clinical and community settings. Focus group transcripts were analyzed using an iterative inductive-deductive approach to identify global overarching themes. There were 76 focus group participants. Participants were mostly women (81.4%), had primarily undergone gastric sleeve (47.0%), were non-Hispanic white (51.4%), had some college education (44.3%), and made $100,000 annual income or less (65.7%). Qualitative findings included negative reactions patients received from friends, family, and co-workers once they disclosed that they had bariatric surgery to lose weight; and barriers to follow-up care included insurance coverage, emotional and situational challenges, and physical pain limiting mobility. These findings confirm the other qualitative findings in this area. The approach to bariatric surgery should be expanded to provide long-term comprehensive care that includes in-depth postoperative lifetime monitoring of emotional and physical health.
- Published
- 2020