1. A Patient Portal Intervention to Promote Adolescent and Young Adult Self-Management Skills.
- Author
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Allende-Richter, Sophie, Benitez, Ashley D., Ramirez, Melanie, Rivera, William, Liu, Shanshan, Gray, Kathryn P., and Bourgeois, Fabienne
- Subjects
PILOT projects ,STATISTICS ,CONFIDENCE intervals ,CLINICAL trials ,PATIENT portals ,TRANSITIONAL care ,SELF-management (Psychology) ,RESEARCH methodology ,SELF-evaluation ,INTERVIEWING ,COMMUNITY health services ,ABILITY ,TRAINING ,PRE-tests & post-tests ,MEDICAL care use ,CRONBACH'S alpha ,T-test (Statistics) ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,SOUND recordings ,SCALE analysis (Psychology) ,RESEARCH funding ,THEMATIC analysis ,STATISTICAL sampling ,DATA analysis ,EDUCATIONAL outcomes ,CISGENDER people ,ADULTS ,ADOLESCENCE - Abstract
OBJECTIVE: Failure to transfer care to adult medicine is associated with gaps in health care access and poor health outcomes among young adults. We examined whether a patient portal educational intervention is acceptable and can improve adolescent and young adult (AYA) self-management skills toward transition readiness to adult care. METHODS: We conducted a single site feasibility study using a mixed research method consisting of 1) a patient portal one-on-one educational intervention with pre- and postsurveys adapted from the Transition Readiness Assessment Questionnaire to assess participant self-management skills and portal user activity; 2) portal user experience was assessed through semistructured interviews until thematic saturation was reached. Study participants were 13 to 25 years old and received care at an academic-affiliated community pediatric clinic. Descriptive statistics were used to describe participant characteristics, paired t tests, or Wilcoxon signed-rank tests to assess outcomes of survey response changes pre- versus postintervention. RESULTS: Sixty percent of enrolled participants (N = 78) completed the surveys. Following the educational intervention, we observed an increase in participants self-reporting knowing how to access their protected health information P < .0001, (95%, confidence interval [CI], 1-2) and in the proportion of participants self-reporting to strongly agree to know their medication P = .025 (95%, CI 0-1). We also observed an increase in portal user access at 3 weeks; the median number of logins was 2 per participant (range 1-36, P < .0001). The Portal user experience was strongly positive. CONCLUSION: Our patient portal educational intervention suggests that AYAs welcome a patient portal to access protected health information and is associated with an increase in the proportion of participants self-reporting to strongly agree with knowing their medication. While these results are encouraging, this is a quasiexperimental study designed on the frame of feasibility. Our study was not adequately powered, limiting our findings' significance. Future interventions would benefit from a larger sample size with a comparison group to ascertain the effect of a patient portal on self-management skills in a diverse AYA population and inform best practices. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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