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2 results on '"Brustia, F"'

1. Satisfaction with antiepileptic drugs in children and adolescents with newly diagnosed and chronic epilepsy

Author

Beghi, E, Messina, P, Pupillo, E, Crichiutti, G, Baglietto, Mg, Veggiotti, P, Zamponi, N, Casellato, S, Margari, L, Cianchetti, C, Collaborators: Giussani G, TASCA Study G. r. o. u. p., Lanzarotti, C, Mattana, F, Assalone, C, Vari, Ms, Prato, G, Brustia, F, Lunghi, S, Olivotto, S, Cesaroni, E, Cappanera, S, Simula, D, Chillotti, I, Pisano, T, Pruna, D, Lucarelli, E, Bonanni, P, Micoli, B, Ferrari, Ar, Valvo, G, Parmeggiani, A, Tedde, Mr, Conti, S, Tortorella, G, Briguglio, M, Coppola, G, D'Aniello, A, Capovilla, G, Beccaria, F, Cagdas, S, Besana, D, Rasmini, P, Caldognetto, M, Martini, A, Romeo, A, Viri, M, Lodi, M, Gobbi, G, Boni, A, Germano, M, Tiberti, A, Battaglia, S, Micheli, R, Galli, J, Capizzi, Giorgio, Pieri, I., E. Beghi, P. Messina, E. Pupillo, G. Crichiutti, M.G. Baglietto, P. Veggiotti, N. Zamponi, S. Casellato, L. Margari, C. Cianchetti, the TASCA study group [.., A. Parmeggiani, and ]

Subjects
Male, Adverse event, medicine.medical_specialty, Pediatrics, Adolescent, Disease, Newly diagnosed, Epilepsy, antiepileptic drug, Quality of life, Humans, Medicine, Prospective Studies, Child, Psychiatry, Adverse effect, business.industry, Incidence (epidemiology), Age Factors, Adverse events, Drug acceptability, quality of life, medicine.disease, Chronic epilepsy, Adverse events, Quality of life, Drug acceptability, childhood and adolescence, Treatment Outcome, Neurology, Patient Satisfaction, Child, Preschool, Chronic Disease, epilepsy, Anticonvulsants, Female, Observational study, Neurology (clinical), business, Follow-Up Studies
Abstract

PURPOSE: To assess incidence, indicators and outcome of satisfaction with antiepileptic drugs in children. METHODS: Multicenter, observational, open, prospective survey of children and adolescents with epilepsy with three-month follow-up. Included were patients aged 3-17 years with newly diagnosed ("new diagnosis") or chronic epilepsy ("old diagnosis") requiring treatment start or change. Satisfaction was assessed with the Hedonic Visual Scale or direct questions, depending on patient's age. Quality of life of adolescents (QOLIE-48) and of caregivers (SF-36) and predictors of (dis)satisfaction were also assessed. RESULTS: 293 patients completed the study. Most had generalized idiopathic epilepsy, and a disease lasting

Published
2012

2. Reliability of the Performance of Upper Limb assessment in Duchenne muscular dystrophy

Author

Sonia Messina, Marika Pane, Angela Berardinelli, Tiziana Mongini, Eugenio Mercuri, Marina Pedemonte, Andrea Barp, Roberto De Sanctis, Filippo Cavallaro, Enrica Rolle, Giulia Colia, Marianna Scutifero, Francesca Brustia, Elena Pegoraro, Grazia D'Angelo, Antonella Pini, Gianluca Vita, Maria Sframeli, Giovanni Baranello, Maria Pia Sormani, Adele D'Amico, Valentina Lanzillotta, Serena Bonfiglio, Roberta Battini, Luisa Politano, Serena Sivo, Concetta Palermo, Ksenija Gorni, Roberta Scalise, Elena Iotti, Alice Gardani, Lucia Morandi, Elena S. Mazzone, Luca Bello, Flaviana Bianco, Emanuela Viggiano, Lavinia Fanelli, Roberta Petillo, Enrico Bertini, Claudio Bruno, Silvia Frosini, Michela Catteruccia, Pane, M, Mazzone, E, Fanelli, L, De Sanctis, R, Bianco, F, Sivo, S, D'Amico, A, Messina, S, Battini, R, Scutifero, M, Petillo, R, Frosini, S, Scalise, R, Vita, G, Bruno, C, Pedemonte, M, Mongini, T, Pegoraro, E, Brustia, F, Gardani, A, Berardinelli, A, Lanzillotta, V, Viggiano, E, Cavallaro, F, Sframeli, M, Bello, L, Barp, A, Bonfiglio, S, Rolle, E, Colia, G, Catteruccia, M, Palermo, C, D'Angelo, G, Pini, A, Iotti, E, Gorni, K, Baranello, G, Morandi, L, Bertini, E, Politano, Luisa, Sormani, M, and Mercuri, E.

Subjects
Adult, Male, Duchenne muscular dystrophy, medicine.medical_specialty, Activities of daily living, Adolescent, Clinical Neurology, Scale validation, Upper Extremity, Young Adult, Typically developing, Settore MED/39 - NEUROPSICHIATRIA INFANTILE, Physical medicine and rehabilitation, medicine, Humans, Genetics(clinical), Muscular Dystrophy, Pediatrics, Perinatology, and Child Health, Young adult, Child, Preschool, Upper limb, Genetics (clinical), business.industry, Outcome measures, Duchenne, medicine.disease, Muscular Dystrophy, Duchenne, medicine.anatomical_structure, Neurology, Child, Preschool, Pediatrics, Perinatology and Child Health, Cohort, Disease Progression, Physical therapy, Neurology (clinical), Symptom Assessment, business
Abstract

The Performance of Upper Limb was specifically designed to assess upper limb function in Duchenne muscular dystrophy. The aim of this study was to assess (1) a cohort of typically developing children from the age of 3years onwards in order to identify the age when the activities assessed in the individual items are consistently achieved, and (2) a cohort of 322 Duchenne children and young adults to establish the range of findings at different ages. We collected normative data for the scale validation on 277 typically developing subjects from 3 to 25years old. A full score was consistently achieved by the age of 5years. In the Duchenne cohort there was early involvement of the proximal muscles and a proximal to distal progressive involvement. The scale was capable of measuring small distal movements, related to activities of daily living, even in the oldest and weakest patients. Our data suggest that the assessment can be reliably used in both ambulant and non ambulant Duchenne patients in a multicentric setting and could therefore be considered as an outcome measure for future trials.

Published
2014

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