1. Mysinusitiscoach: Patient empowerment in chronic rhinosinusitis using mobile technology*
- Author
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Seys, S. F., Bousquet, J., Bachert, C., Fokkens, W. J., Agache, I., Manuel Bernal-Sprekelsen, Callebaut, I., Cardel, L. O., Carrie, S., Castelnuovo, P., Cathcart, R., Constantinidis, J., Cools, L., Cornet, M., Clement, G., Sousa, J. C., Cox, T., Doulaptsi, M., Gevaert, P., Hopkins, C., Hox, V., Hummel, T., Hosemann, W., Jacobs, R., Jorissen, M., Landis, B. N., Leunig, A., Lund, V. J., Mullol, J., Onerci, M., Palkonen, S., Proano, I., Prokopakis, E., Ryan, D., Riechelmann, H., Saevels, J., Segboer, C., Speleman, K., Steinsvik, E. A., Surda, P., Tomazic, P. V., Vanderveken, O., Gerven, L., Zele, T., Verhaeghe, B., Vierstraete, K., Vlaminck, S., Wilkinson, J., Williams, S., Pugin, B., Hellings, P. W., Universidade do Minho, Ear, Nose and Throat, AII - Inflammatory diseases, Contre les MAladies Chroniques pour un VIeillissement Actif en Languedoc-Roussillon (MACVIA-LR), Centre Hospitalier Régional Universitaire [Montpellier] (CHRU Montpellier)-Université Montpellier 1 (UM1)-Centre Hospitalier Universitaire de Nîmes (CHU Nîmes)-European Innovation Partnership on Active and Healthy Ageing Reference Site (EIP on AHA), Commission Européenne-Commission Européenne-Organisation Mondiale de la Santé / World Health Organization Office (OMS / WHO)-Centre National de la Recherche Scientifique (CNRS)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Montpellier (UM), Ghent University Hospital, Transilvania University of Brasov, Thérapeutique Recombinante Expérimentale (TIMC-IMAG-TheREx), Techniques de l'Ingénierie Médicale et de la Complexité - Informatique, Mathématiques et Applications, Grenoble - UMR 5525 (TIMC-IMAG), Institut polytechnique de Grenoble - Grenoble Institute of Technology (Grenoble INP )-VetAgro Sup - Institut national d'enseignement supérieur et de recherche en alimentation, santé animale, sciences agronomiques et de l'environnement (VAS)-Centre National de la Recherche Scientifique (CNRS)-Université Grenoble Alpes [2016-2019] (UGA [2016-2019])-Institut polytechnique de Grenoble - Grenoble Institute of Technology (Grenoble INP )-VetAgro Sup - Institut national d'enseignement supérieur et de recherche en alimentation, santé animale, sciences agronomiques et de l'environnement (VAS)-Centre National de la Recherche Scientifique (CNRS)-Université Grenoble Alpes [2016-2019] (UGA [2016-2019]), Laboratoire de parasitologie-mycologie, CHU Grenoble, Laboratoire d'Annecy-le-Vieux de Physique Théorique (LAPTH), Université Savoie Mont Blanc (USMB [Université de Savoie] [Université de Chambéry])-Centre National de la Recherche Scientifique (CNRS), University of Barcelona, University of Edinburgh, and UCL - (SLuc) Service d'oto-rhino-laryngologie
- Subjects
self-management ,[SDV]Life Sciences [q-bio] ,Medicina Básica [Ciências Médicas] ,03 medical and health sciences ,0302 clinical medicine ,Quality of life (healthcare) ,Health care ,otorhinolaryngologic diseases ,medicine ,Humans ,Sinusitis ,Patient participation ,030223 otorhinolaryngology ,rhinosinusitis ,Rhinitis ,Computer. Automation ,education ,Science & Technology ,Self-management ,business.industry ,Health technology ,General Medicine ,Evidence-based medicine ,mobile application ,medicine.disease ,Precision medicine ,Mobile Applications ,3. Good health ,Self Care ,chronic airway disease ,030228 respiratory system ,Otorhinolaryngology ,Chronic Disease ,Ciências Médicas::Medicina Básica ,Quality of Life ,Position paper ,Human medicine ,Medical emergency ,Patient Participation ,business - Abstract
Mobile health technology is emerging to take a prominent position in the management of chronic diseases. These technologies aim at enhancing patient empowerment via education and self-management. To date, of all the different apps available for patients with sinus disease, none were developed by medical experts dealing with chronic rhinosinusitis (CRS). The European Forum for Research and Education in Allergy and Airway diseases (EUFOREA) has undertaken a multi-stakeholder approach for designing, developing and implementing a tool to support CRS patients in monitoring their symptoms and to provide patients with a digital support platform containing reliable medical information about their disease and treatment options. mySinusitisCoach has been developed by medical experts dealing with CRS in close collaboration with patients, primary care physicians and community pharmacists, meeting the needs of both patients and health care providers. From a research perspective, the generation of real life data will help to validate clinical studies, patient stratification and improve understanding of the socio-economic impact of CRS, thereby paving the way for better treatment strategies., info:eu-repo/semantics/publishedVersion