1. Family Management Style Framework: A New Tool With Potential to Assess Families Who Have Children With Brain Tumors
- Author
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Janet A. Deatrick, Rosanna Pollack, Kim Mooney, Annaka G. Thibodeaux, Cynthia Schmus, and Barbara Hieb Davey
- Subjects
Family management ,MEDLINE ,Nursing assessment ,Models, Psychological ,Pediatrics ,Nuclear Family ,Style (sociolinguistics) ,03 medical and health sciences ,0302 clinical medicine ,Adaptation, Psychological ,Health care ,Humans ,Medicine ,Disease management (health) ,Child ,Nursing Assessment ,Parenting ,030504 nursing ,Brain Neoplasms ,Oncology (nursing) ,business.industry ,Disease Management ,Family nursing ,030220 oncology & carcinogenesis ,Family Nursing ,0305 other medical science ,business ,Qualitative research ,Clinical psychology - Abstract
Qualitative studies of families with children who have cancer or other serious illnesses have found that families often come to view their child and their lives as normal. They manage illness-related demands using family management styles that sustain usual patterns of family and child functioning. Few studies have addressed the family management styles of families who express less satisfaction with family and child functioning or who are identified by health care professionals as having difficulty with family functioning. Such families are likely to be overrepresented among those whose children are being treated for brain tumors that entail extremely burdensome treatments as well as a range of unfavorable prognoses and long-term sequelae. In fact, little is known about how these families manage on a day-to-day basis and how the interdisciplinary team can best provide supportive care to optimize their functioning. The purpose of this article is to present the Family Management Styles Framework as a tool that is useful in both clinical practice and research for assessing families who have children with cancer, including those with brain tumors.
- Published
- 2006
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