1. Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1.
- Author
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Halbeisen, Florian, Hogg, Claire, Alanin, Mikkel C., Bukowy-Bieryllo, Zuzanna, Dasi, Francisco, Duncan, Julie, Friend, Amanda, Goutaki, Myrofora, Jackson, Claire, Keenan, Victoria, Harris, Amanda, Hirst, Robert A., Latzin, Philipp, Marsh, Gemma, Nielsen, Kim, Norris, Dominic, Pellicer, Daniel, Reula, Ana, Rubbo, Bruna, and Rumman, Nisreen
- Subjects
DYSKINESIAS ,DISEASE progression ,EPIDEMIOLOGY ,THEORY of knowledge ,DIAGNOSIS ,THERAPEUTICS - Abstract
Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. ‘Better Experimental Approaches to Treat Primary Ciliary Dyskinesia’ (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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